Self‐Management in Pediatric Inflammatory Bowel Disease: A Clinical Report of the North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition
Open accessAbstract
This clinical report aims to review key self-management and adherence issues in pediatric inflammatory bowel disease (IBD) and to provide recommendations for health care providers regarding evidence-based assessment and treatment approaches to promote optimal self-management. Self-management difficulties in the form of nonadherence to treatment regimens are common in pediatric IBD and are influenced by various disease-related, individual, family, and health professional relationship factors. To promote adaptive self-management, health care providers are encouraged to adopt a long-term preventive orientation, which includes routine screening of barriers to self-management and nonadherence in the context of routine clinic appointments. The use of a multimethod approach to assessment that incorporates objective measures (eg, pill counts or bioassays) may be particularly advantageous. Individualized treatment approaches that incorporate evidence-based practices, such as providing written treatment plans and offering opportunities to practice and receive feedback on skills, may help to ameliorate minor self-management concerns; however, more severe or chronic self-management problems may require a referral for behavioral health intervention. Additional research to broaden our understanding of self-management in domains beyond medication adherence and to evaluate the effect of clinic-based interventions is imperative.
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Hommel et al. have previously highlighted the need for further examination of dietary adherence in IBD.
“Hommel et al 36 have previously highlighted the need for further examination of dietary adherence in IBD.”
From A Systematic review of self-management interventions for children and adolescents with inflammatory bowel disease (2019) · cites this paper as [36]
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“The recent North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition clinical report on self-management in pediatric inflammatory bowel disease (IBD) has identified the need for assessment and measurement tools that focus on self-management behaviors other than adherence (2).”
BackgroundSocial Risk Factors for Medication Nonadherence: Findings from the CARDIA Study
Oates, G. R., Juarez, L., Hansen, B., Kiefe, C. I., & Shikany, J. M. (2020) · American Journal of Health Behavior · doi:10.5993/ajhb.44.2.10 · Cited by 45 · see citing works
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“DISCUSSION Self-management is defined as the health behaviors and actions that patients engage in to care for a chronic condition, whereas self-efficacy refers to the belief in one’s capacity to perform those behaviors and actions (15,18).”
BackgroundA qualitative content analysis of peer mentoring video calls in adolescents with chronic illness
Kohut, S. A., Stinson, J., Forgeron, P. A., van Wyk, M., Harris, L., & Luca, S. (2016) · Journal of Health Psychology · doi:10.1177/1359105316669877 · Cited by 44 · see citing works
Langer, S. L., Romano, J. M., Mancl, L., & Levy, R. L. (2014) · Pain Research and Treatment · doi:10.1155/2014/751097 · Cited by 42 · see citing works
Depression Screening in Pediatric Inflammatory Bowel Disease Clinics
Mackner, L. M., Whitaker, B. N., Maddux, M. H., Thompson, S., Hughes-Reid, C. L., Drovetta, M., & Reed, B. (2019) · Journal of Pediatric Gastroenterology and Nutrition · doi:10.1097/mpg.0000000000002499 · Cited by 41 · see citing works
The Impact of Adherence and Health Literacy on Difficult-to-Control Asthma
Zaeh, S. E., Ramsey, R. R., Bender, B. G., Hommel, K. A., Mosnaim, G. S., & Rand, C. S. (2021) · The Journal of Allergy and Clinical Immunology In Practice · doi:10.1016/j.jaip.2021.11.003 · Cited by 40 · see citing works
Wren, A. A., Neiman, N., Caruso, T. J., Rodríguez, S., Taylor, K. L., Madill, M., Rives, H., & Nguyen, L. A. B. (2021) · Children · doi:10.3390/children8050368 · Cited by 39 · see citing works
“Poor health outcomes can in turn increase distress [9,11], which may lead to a cycle involving the brain-gut axis, highlighting the need for behavioral interventions that can improve biopsychosocial processes and support effective multidisciplinary care for pediatric IBD.”
BackgroundPractice-Based Approach to Assessing and Treating Nonadherence in Pediatric Regimens
Duncan, C. L., Mentrikoski, J. M., Wu, Y. P., & Fredericks, E. M. (2014) · Clinical Practice in Pediatric Psychology · doi:10.1037/cpp0000066 · Cited by 34 · see citing works
“There are caveats to this process, however, in that pa-perwork (e.g., signed privacy forms), often specific to particular pharmacies, must be processed prior to receiving data (Hommel et al., 2013).”
Mackner, L. M., Ruff, J. M., & Vannatta, K. A. (2014) · Journal of Pediatric Gastroenterology and Nutrition · doi:10.1097/mpg.0000000000000473 · Cited by 30 · see citing works
Vernon‐Roberts, A., Chan, P., Christensen, B., Havrlant, R., Giles, E. M., & Williams, A. (2024) · Inflammatory Bowel Diseases · doi:10.1093/ibd/izae087 · Cited by 26 · see citing works
Importance of Adherence in the Outcome of Juvenile Idiopathic Arthritis
Len, C. A., Silva, V. B. M. E., & Terreri, M. T. R. A. (2014) · Current Rheumatology Reports · doi:10.1007/s11926-014-0410-2 · Cited by 26 · see citing works
Gray, W. N., Reed, B., Morgan, P. J., Holbrook, E., Kugathasan, S., Saeed, S. A., Denson, L. A., & Hommel, K. A. (2018) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2018.01.008 · Cited by 25 · see citing works
Successful Transition from Pediatric to Adult Care in Inflammatory Bowel Disease: What is the Key?
Kim, J., & Ye, B. D. (2019) · Pediatric Gastroenterology Hepatology & Nutrition · doi:10.5223/pghn.2019.22.1.28 · Cited by 24 · see citing works
“knowledge regarding their medical history and medication regimens and deficits in their self-management skills [8,70].”
BackgroundRoutine use of thiopurines in maintaining remission in pediatric Crohn's disease.
Boyle, B. M., Kappelman, M. D., Colletti, R. B., Baldassano, R. N., Milov, D. E., & Crandall, W. (2014) · PubMed Central · doi:10.3748/wjg.v20.i27.9185 · Cited by 23 · see citing works
Benefits of Attending a Summer Camp for Children With Inflammatory Bowel Disease
Salazar, G., & Heyman, M. B. (2014) · Journal of Pediatric Gastroenterology and Nutrition · doi:10.1097/mpg.0000000000000359 · Cited by 23 · see citing works
“Knowledge and perspective about IBD gained at camp may contribute to greater adherence to therapeutic regimens among this population that faces social, developmental, and cognitive barriers to successful self-management (14).”
BackgroundTrajectories of oral medication adherence in youth with inflammatory bowel disease.
Greenley, R. N., Karazsia, B. T., Schurman, J. V., Gumidyala, A. P., Nguyen, E., Thomason, M. M., Walter, J. G., Noe, J. D., Werlin, S. L., & Kahn, S. A. (2014) · Health Psychology · doi:10.1037/hea0000149 · Cited by 23 · see citing works
Tran, L., & Mulligan, K. (2019) · Inflammatory Bowel Diseases · doi:10.1093/ibd/izy299 · Cited by 22 · see citing works
“Treatment satisfaction and acceptability was measured in four trials (.,Hommel et al. 2012., Hommel et al. 2011, Reigada et al.)”
InfluentialMaddux, M. H., Ricks, S., DeLurgio, S. A., & Hommel, K. A. (2017) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2017.03.006 · Cited by 22 · see citing works
Objective Versus Self-Reported Adherence to Airway Clearance Therapy in Cystic Fibrosis
Oates, G. R., Štěpáníková, I., Rowe, S. M., Gamble, S., Gutierrez, H. H., & Harris, W. T. (2018) · Respiratory Care · doi:10.4187/respcare.06436 · Cited by 22 · see citing works
Vernon‐Roberts, A., Otley, A. R., Frampton, C., Gearry, R. B., & Day, A. S. (2020) · Inflammatory Intestinal Diseases · doi:10.1159/000506200 · Cited by 22 · see citing works
Longitudinal non‐adherence predicts treatment escalation in paediatric ulcerative colitis
Carmody, J. K., Plevinsky, J. M., Peugh, J., Denson, L. A., Hyams, J. S., Lobato, D. J., LeLeiko, N. S., & Hommel, K. A. (2019) · Alimentary Pharmacology & Therapeutics · doi:10.1111/apt.15445 · Cited by 21 · see citing works
Integrated Multidisciplinary Treatment for Pediatric Inflammatory Bowel Disease
Wren, A. A., & Maddux, M. H. (2021) · Children · doi:10.3390/children8020169 · Cited by 16 · see citing works
“, depression) have been shown to be strong predictors of negative health outcomes in pediatric IBD, such as disease activity and risk of relapse, as well as nonadherence, healthcare utilization, and higher health care costs [4,5].”
BackgroundSelf-citationUpdates in diagnosis and management of inflammatory bowel disease
Sandberg, K., Yarger, E., & Saeed, S. (2020) · Current problems in pediatric and adolescent health care · doi:10.1016/j.cppeds.2020.100785 · Cited by 14 · see citing works
Cushman, G. K., Shih, S. W., Stolz, M. G., Hinrichs, R. C., Jovanović, T., Lee, J. L., Kugathasan, S., & Reed, B. (2020) · Journal of Psychosomatic Research · doi:10.1016/j.jpsychores.2020.110323 · Cited by 13 · see citing works
Ahola Kohut, S., Martincevic, I., Turrell, S. L., Church, P. C., Walters, T. D., Weiser, N., & Iuliano, A. (2021) · Children · doi:10.3390/children8050396 · Cited by 13 · see citing works
Self-Management Techniques in IBD
Keefer, L., & Kane, S. V. (2015) · Springer eBooks · doi:10.1007/978-3-319-22285-1_5 · Cited by 12 · see citing works
“Similar results have been found in other studies [90] as well as with adolescents, particularly in the context of transition care [91, 92].”
ResultOutpatient Monitoring and Self-Care
Mathew, J., Lail, J. L., Chang, A. C., & Jefferies, J. L. (2017) · Elsevier eBooks · doi:10.1016/b978-0-12-802393-8.00058-2 · Cited by 12 · see citing works
Inflammatory Bowel Disease Self-Management
Malloy, C., Rawl, S. M., & Miller, W. R. (2022) · Gastroenterology Nursing · doi:10.1097/sga.0000000000000657 · Cited by 11 · see citing works
“Skills training, providing tangible resources, tailored navigation to address barriers, and emotional support are also key components of self-management interventions (Hommel et al., 2013; Hommel, Herzer, Ingerski, Hente, & Denson, 2011; Novak, Costantini, Schneider, & Beanlands, 2013).”
Longitudinal Barriers to Thiopurine Adherence in Adolescents With Inflammatory Bowel Diseases
Plevinsky, J. M., Wojtowicz, A. A., Miller, S. A., & Greenley, R. N. (2018) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsy062 · Cited by 11 · see citing works
Maddux, M. H., Gordy, A., Schurman, C., Cole, T., & Staggs, V. S. (2019) · Journal of Clinical Psychology in Medical Settings · doi:10.1007/s10880-019-09636-0 · Cited by 10 · see citing works
Waschmann, M., Lin, H. C., & Stellway, J. E. (2021) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2021.07.002 · Cited by 10 · see citing works
Hilty, D. M., Yellowlees, P., Myers, K., Parish, M. B., & Rabinowitz, T. (2015) · Springer eBooks · doi:10.1007/978-3-319-20852-7_6 · Cited by 10 · see citing works
Kowalska‐Duplaga, K., Gawlik-Scislo, A., Krzesiek, E., Jarocka‐Cyrta, E., Łazowska‐Przeorek, I., Duplaga, M., & Banaszkiewicz, A. (2021) · World Journal of Gastroenterology · doi:10.3748/wjg.v27.i27.4468 · Cited by 9 · see citing works
Noser, A. E., Lancaster, B. D., Hommel, K. A., Roberts, C. M., King, J. A., Alt, E., Fredericks, E. M., & Ramsey, R. R. (2023) · Digestive Diseases and Sciences · doi:10.1007/s10620-023-07884-7 · Cited by 9 · see citing works
“1 3 Inflammatory bowel disease (IBD) treatment is tailored to patients’ clinical presentation [1, 2] and daily self-management regimens are often complex, including multiple medication doses per day, use of supplements, and dietary modifications [3, 4].”
BackgroundSpanish and English Language Symposia to Enhance Activation in Pediatric Inflammatory Bowel Disease
Martin, M., Garcia‐Careaga, M., Christofferson, M., Bensen, R., Yeh, A. M., & Park, K. T. (2016) · Journal of Pediatric Gastroenterology and Nutrition · doi:10.1097/mpg.0000000000001191 · Cited by 8 · see citing works
“(JPGN 2016;63: 508–511) igh-value care in pediatric inflammatory bowel disease (IBD) requires patients and their families to actively particiH pate in health maintenance and disease management (1).”
BackgroundSuccessful transition from pediatric to adult care in inflammatory bowel disease: what is the key?
Kim, J., & Ye, B. D. (2018) · Intestinal Research · doi:10.5217/ir.2018.00128 · Cited by 8 · see citing works
“Self-management skills include medication adherence and the adequate management of symptoms, side effects of medication, stress, and emotion.(69,70) However, in practice, a high proportion of adult and pediatric gastroenterologists reported inadequacies in the preparation of patients for transfer, and there was a sign…”
BackgroundResultHauer, A. C., Sultan, M. I., Darma, A., Altamimi, E. M., Serban, D. E., Assa, A., Franco, C. P. S., de Ridder, L., Wilson, D. C., Afzal, N. A., et al. (2025) · Journal of Pediatric Gastroenterology and Nutrition · doi:10.1002/jpn3.70121 · Cited by 14 · see citing works
Schurman, J. V., & Friesen, C. A. (2021) · Children · doi:10.3390/children8040286 · Cited by 7 · see citing works
“this mounting evidence, both the North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition (NASPGHAN) and a task force of the ImproveCareNow network have endorsed the importanc of routine psychosocial and adherence screening in yout with IBD, marki g the new standard for best practice and settin…”
BackgroundA Nationwide Survey on Patient Empowerment in Pediatric Inflammatory Bowel Disease in Germany
Kaul, K., Schumann, S., Sander, C., Däbritz, J., & de Laffolie, J. (2023) · Children · doi:10.3390/children10121904 · Cited by 7 · see citing works
Adherence to Infliximab Treatment in a Pediatric Inflammatory Bowel Disease Cohort
Vitale, D. S., Greenley, R. N., Lerner, D. G., Mavis, A., & Werlin, S. L. (2015) · Journal of Pediatric Gastroenterology and Nutrition · doi:10.1097/mpg.0000000000000817 · Cited by 7 · see citing works
“Second, there was no documented relation between participant age, sex, or IBD type with adherence group, despite some data to support associations between demographic and disease factors and oral medication adherence (6).”
BackgroundVernon‐Roberts, A., Lopez, R. N., Lewindon, P. J., Lemberg, D. A., Bowcock, N. L., Alex, G., Otley, A. R., Jacobson, K., Roberts, A. J., Evans, H., et al. (2021) · JPGN Reports · doi:10.1097/pg9.0000000000000093 · Cited by 7 · see citing works
“For children with IBD, their treatment adherence and the development of self-management skills may benefit from addressing modifiable factors such as disease and treatment knowledge (4,5).”
BackgroundVernon‐Roberts, A., Gearry, R. B., & Day, A. S. (2021) · Gastrointestinal Disorders · doi:10.3390/gidisord3020007 · Cited by 6 · see citing works
“However, they do not directly estimate adherence and once again assume ingestion [31].”
BackgroundGreenley, R. N., Reed, B., Wojtowicz, A. A., Plevinsky, J. M., Lewis, J. D., & Kahn, S. A. (2017) · Children s Health Care · doi:10.1080/02739615.2017.1383911 · Cited by 6 · see citing works
Practice survey: adherence monitoring and intervention in pediatric gastroenterology and hepatology
Maddux, M. H., Ricks, S., Bass, J., Daniel, J. F., Carpenter, E. S., & Radford, K. (2018) · Therapeutics and Clinical Risk Management · doi:10.2147/tcrm.s159611 · Cited by 5 · see citing works
“26 These might include asking patients about difficulty in sticking to a medication regimen at every clinic visit, providing patients with pill boxes and/or a list of smartphone apps designed to provide medication-taking reminders, or collaboration with social work and psychology to address…”
Pipicella, J. L., Vernon‐Roberts, A., Dutt, S., Giles, E. M., Day, A. S., Connor, S. J., & Andrews, J. M. (2023) · Digestive Diseases and Sciences · doi:10.1007/s10620-023-08146-2 · Cited by 5 · see citing works
“The greatest percentage of children voting yes was seen for self-management tasks, which is important given poor self-management in both adults and pediatrics has been associated with poor health outcomes [27–30].”
BackgroundBąk-Drabik, K. K., Adamczyk, P., Duda-Wrońska, J., Dąbrowska-Piechota, D., Jarzumbek, A., & Kwiecień, J. (2021) · Gastroenterology Research and Practice · doi:10.1155/2021/9970019 · Cited by 5 · see citing works
“The patients, who are nonadherent, are more likely to have a more severe course of disease potentially necessitating the need for a more aggressive medical treatment, such as an increased corticosteroid use or surgery, present a higher risk of disease recurrence, in addition to these medical consequences, and, eventua…”
BackgroundStudy of Adherence to Medication in Pediatric Liver Diseases (“SAMPLD” Study) in Indian Children
Suchismita, A., Ashritha, A., Sood, V., Lal, B. B., Khanna, R., Kumar, G., & Alam, S. (2022) · Journal of Clinical and Experimental Hepatology · doi:10.1016/j.jceh.2022.10.006 · Cited by 5 · see citing works
Pollock, M. D., Brotkin, S. M., Denio, E. B., Dave, S., Fisher, E. B., Docherty, S. L., & Maslow, G. (2022) · Clinical Practice in Pediatric Psychology · doi:10.1037/cpp0000468 · Cited by 5 · see citing works
Vernon‐Roberts, A., Musto, F., Aloi, M., & Day, A. S. (2023) · Gastrointestinal Disorders · doi:10.3390/gidisord5020016 · Cited by 3 · see citing works
“For children with IBD, the acquisition of fundamental components of health knowledge regarding their own clinical history, IBD management, and general IBD facts contributes to treatment adherence and the development of self-management skills [6,7].”
BackgroundNeiman, N., Boothroyd, D. B., Anjur, K., Bensen, R., Yeh, A. M., & Wren, A. A. (2024) · Inflammatory Bowel Diseases · doi:10.1093/ibd/izae170 · Cited by 3 · see citing works
Inflammatory bowel disease and gastrointestinal disorders
Plevinsky, J. M., & Greenley, R. N. (2020) · Elsevier eBooks · doi:10.1016/b978-0-12-816000-8.00011-6 · Cited by 3 · see citing works
Plevinsky, J. M., Denson, L. A., Hellmann, J., Minar, P., Rosen, M. J., & Hommel, K. A. (2020) · Journal of Pediatric Gastroenterology and Nutrition · doi:10.1097/mpg.0000000000002778 · Cited by 3 · see citing works
“Pediatric IBD adherence research has utilized objective (eg, pill counts, electronic monitoring, bioassays) and subjective measures (eg, validated measures, visual analog scales) to examine nonadherence (7,9).”
Treatment Adherence Within Consultation-Liaison Services
Ramsey, R. R., & Holbein, C. E. (2020) · Issues in Clinical Child Psychology · doi:10.1007/978-3-030-35598-2_32 · Cited by 2 · see citing works
Maddux, M. H., Drovetta, M., Mackner, L. M., Plevinsky, J. M., & Whitaker, B. N. (2023) · Journal of Pediatric Gastroenterology and Nutrition · doi:10.1097/mpg.0000000000003751 · Cited by 2 · see citing works
“REDCap (Research Electronic Data Capture) is a secure, web-based application designed to support data capture for research studies, providing (1) an intuitive interface for validated data entry; (2) audit trails for tracking data manipulation and export procedures; (3) automated export procedures for seamless data dow…”
BackgroundMethodPsychological Aspects of Inflammatory Bowel Disease in Children and Adolescents
Plevinsky, J. M., & Hommel, K. A. (2023) · Springer eBooks · doi:10.1007/978-3-031-14744-9_50 · Cited by 2 · see citing works
Developing a non-invasive diagnostic model for pediatric Crohn’s disease using RNA-seq analysis
He, B., Wang, F., Shu, J., Cheng, Y., Zhou, X., & Huang, T. (2023) · Frontiers in Genetics · doi:10.3389/fgene.2023.1142326 · Cited by 2 · see citing works
“The diagnosis of pediatric Crohn’s disease is based on a combination of medical history, physical examination, and test results (Hommel et al., 2013).”
BackgroundNomura, S., Hirano, Y., Takeuchi, I., Shimizu, H., & Arai, K. (2023) · Pediatric Gastroenterology Hepatology & Nutrition · doi:10.5223/pghn.2023.26.5.239 · Cited by 2 · see citing works
“Thus, parents may feel pressured to take responsibility for understanding and supporting this condition, as well as treatment adherence both inside and outside the home [13-15].”
Inflammatory Bowel Disease Infusion Therapy Adherence in a Rural Pediatric Population
Garcia, L. R. H., Shams, Z., Magner, A., Webster, K., Thompson, S., & Patel, P. (2023) · Cureus · doi:10.7759/cureus.36753 · Cited by 2 · see citing works
“Because this population often has more autonomy and a desire to “fit in”, it has been reported that “forgetting “and “interfering with other activities” are the main reasons for medical non-adherence [2,8].”
BackgroundThomason, M. M., Poulopoulos, N., Nguyen, E., Gumidyala, A. P., Kahn, S. A., & Greenley, R. N. (2017) · Journal of Child Health Care · doi:10.1177/1367493517712115 · Cited by 2 · see citing works
“In recognition that measure development and validation should occur over multiple studies (Holmbeck and Devine, 2009), our goal was to build upon the preliminary support for the BAMS as a reliable and valid assessment screener for adherence barriers among adolescents with IBD, a group known to be at increased risk for…”
BackgroundMethodInfluentialStellway, J. E., Cummings, C., Paternostro, J., Stoeckel, M., Muir, L. V., & Harris, M. A. (2022) · Clinical Practice in Pediatric Psychology · doi:10.1037/cpp0000444 · Cited by 2 · see citing works
“Moreover,pediatricpatients withIBDreportsigni fi cant psychosocial challenges that are unique to this key developmental stage,forexampleattemptstomaintaintypicalado-lescent activities, school, relationships while navigating a condition that is dif fi cult to discuss with others (Hommel et al., 2013).”
赵, 明. (2021) · Nursing Science · doi:10.12677/ns.2021.104043 · Cited by 1 · see citing works
Tobi, C. B., & Buchbinder, M. H. (2023) · Qualitative Health Research · doi:10.1177/10497323231218159 · Cited by 1 · see citing works
“Explanatory models can enhance disease-related knowledge, which may improve medication adherence (Fishman et al., 2010; Hommel et al., 2013).”
BackgroundDevelopment of self-management in pediatric inflammatory bowel disease: A qualitative exploration
Jesus, H. D., Ooms, A., Norton, C. S., Dibley, L. B., & Croft, N. M. (2019) · Journal of Nursing Education and Practice · doi:10.5430/jnep.v9n11p75
“Evidence in pediatric IBD is scant,[4] and the dynamics of self-management in this specific population needs further exploration prior to implementation.”
Sleep Patterns and Associated Factors in Children and Adolescents with Inflammatory Bowel Disease
Szabo, M. M. (2016) · doi:10.33915/etd.6760
“This reinforces the importance of psychologists supporting their physician colleagues in helping youth to manage their IBD and achieve remission status by screening and providing recommendations to promote adherence to treatment regimens and medical appointments (Hommel et al., 2013).”
BackgroundOutpatient monitoring and self-care
Kayali, S. M., Alexander, J., Rawal, A., Alkhatib, D. A., & Jefferies, J. L. (2025) · Elsevier eBooks · doi:10.1016/b978-0-443-13279-7.00027-4
Park, S., Noh, J., Kim, C. S., Lim, H., Lee, E. J., Koh, H., Day, A. S., & Vernon‐Roberts, A. (2025) · Journal of Korean Medical Science · doi:10.3346/jkms.2026.41.e7
“13 - 15 Therefore, it is crucial to assess the knowledge of children with IBD to ensure they have the correct understanding of their condition.”
Vellanki, S., Holbein, C. E., Boateng, A., Pressman, N., Kirsch, J., Sibinga, E. M. S., Mascarenhas, M., & Albenberg, L. G. (2025) · Global Advances in Integrative Medicine and Health · doi:10.1177/27536130251393662
Goodman, C., Neiman, N., Dunn, A. L., Yeh, A. M., Bensen, R., Mueller, C. M., & Wren, A. A. (2026) · Children · doi:10.3390/children13050658
“Effective IBD management requires sustained motivation, persistence, and self-regulation [18–20], capacities that may be particularly challenging during adolescence and young adulthood.”
Dattilo, T. M., Robbertz, A. S., Denson, L. A., & Hommel, K. A. (2026) · Journal of Pediatric Gastroenterology and Nutrition · doi:10.1002/jpn3.70473
- Authors
- Hommel, K. A., Greenley, R. N., Maddux, M. H., Gray, W. N., & Mackner, L. M.
- Affiliations
- Cincinnati Children's Hospital Medical Center (US)
- Rosalind Franklin University of Medicine and Science (US)
- Children's Mercy Hospital (US)
- Nationwide Children's Hospital (US)
- Corresponding author
- Hommel, Kevin A.
- Gray, Wendy N.
- Venue
- Journal of Pediatric Gastroenterology and Nutrition
- Publisher
- Wiley
- Published
- 2013-08
- Volume
- 57
- Issue
- 2
- Pages
- 250-257
- ISSN
- 0277-2116 (ISSN-L)
- 1536-4801
- PMC
- PMC3723797
- OpenAlex
- W2099165122
- Cited by
- 85
- References
- 59
- Citations by year
- 2026: 2 · 2025: 4 · 2024: 2 · 2023: 11 · 2022: 5 · 2021: 11 · 2020: 7 · 2019: 5 · 2018: 8 · 2017: 6 · 2016: 7 · 2015: 7 · 2014: 8 · 2013: 2
- FWCI
- 6.79
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Journal of Pediatric Gastroenterology and Nutrition (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- Funders
- Presbyterian Historical Society (R01 HD067174, P30 DK 078392)
- Topics
- Health Sciences › Medicine › Family Practice › Medication Adherence and Compliance
- Life Sciences › Biochemistry, Genetics and Molecular Biology › Genetics › Inflammatory Bowel Disease
- Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
- Keywords
- pediatric inflammatory bowel disease, self-management, medication adherence, barriers to self-management, pill count, bioassay, behavioral health referral, family involvement, preventive medicine, clinic-based intervention
- MeSH terms
- Child, Humans, Pediatrics, Self Care, Inflammatory Bowel Diseases, Medication Adherence
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