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VALIDATION OF QUESTIONNAIRE INFORMATION ON RISK FACTORS AND DISEASE OUTCOMES IN A PROSPECTIVE COHORT STUDY OF WOMEN
Abstract
To assess the validity of self-reported illnesses, medical records were reviewed for participants reporting major illnesses on the biennial follow-up questionnaires used in a prospective cohort study which began in 1976. In over 90% of cases of cancer of the breast, skin, large bowel, and thyroid, histopathology reports confirmed the subjects' self-report. Lower levels of confirmation were obtained for cancers of the lung, ovary, and uterus. Application of strict diagnostic criteria also gave lower levels of confirmation for myocardial infarction (68%) and stroke (66%). Among random samples of women reporting fractures and hypertension all records obtained confirmed self-reports. For self-reported elevated cholesterol levels 85.7% of self-reports were confirmed. Self-report is a valuable epidemiologic tool but may require additional documentation when the disease is diagnostically complex.
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“The moderately increased lung and colorectal cancer mortality among women with ≥15 years of night shift work is consistent with previous reports on the risk of developing incident lung and colorectal among night shift–working women in the same cohort.58,59”
From Total and Cause-Specific Mortality of U.S. Nurses Working Rotating Night Shifts (2015) · cites this paper as [59]
In the citing paper
“Of 85 women we sampled from NHS who had reported high blood pressure and responded to a validation questionnaire, only one denied elevated blood pressure (reporting that she in fact had hypotension).(21) Self reported hypertension was found to have high vaildity compared to the medical records. Of 51 women who reported hypertension for whom we were able to obtain medical records, hypertension (bl”
From Infertility, fertility treatment, and risk of hypertension (2015) · cites this paper as [21]
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“Medical records were not obtained for self-reported cases of BCC, because the validity of BCC self-reports was more than 90% in validation studies in our cohorts in early years [13,14].”
MethodResultSelf-citationA Simplified Score to Quantify Comorbidity in COPD
Putcha, N., Puhan, M. A., Drummond, M., Han, M. K., Regan, E. A., Hanania, N. A., Martínez, C. H., Foreman, M. G., Bhatt, S. P., Make, B. J., et al. (2014) · PLoS ONE · doi:10.1371/journal.pone.0114438 · Cited by 74
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BackgroundAwareness of osteoporotic patients
Kutsal, Y. G., Atalay, A., Arslan, Ş., Başaran, A., Cantürk, F., Cindaş, A., Eryavuz, M., İrdesel, J., Karadavut, K. İ., Kirazlı, Y., et al. (2004) · Osteoporosis International · doi:10.1007/s00198-004-1678-2 · Cited by 73
“when the disease is diagnostically complex [17].”
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Capture–recapture estimation of unreported work‐related musculoskeletal disorders in Connecticut
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“Such broader level diagnostic constructs are thought to improve diagnostic validity for self-reported prevalence surveys (Colditz et al., 1986, Cox and Iachan, 1987).”
BackgroundA prospective study of the validity of data on self‐reported dental visits
Gilbert, G. H., Rose, J. S., & Shelton, B. J. (2002) · Community Dentistry And Oral Epidemiology · doi:10.1034/j.1600-0528.2002.00062.x · Cited by 74
Changes in Fish Consumption in Midlife and the Risk of Coronary Heart Disease in Men and Women
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Self-citationLong-Term Survival in the Elderly after Trauma
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Influence of age on the association between lifestyle factors and risk of hypertension
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Vascular Risk Factors, Cardiovascular Disease, and Restless Legs Syndrome in Women
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“In two studies of the accuracy of selfreported fractures, the false-positive rate of reported hip or wrist fracture was 0 percent among women ages 36-61 (25) and 8-11 percent among women 65 years and older (26).”
BackgroundRisk factors for fracture in a UK population: a prospective cohort study
Porthouse, J., Birks, Y. F., Torgerson, D. J., Cockayne, S., Puffer, S., & Watt, I. (2004) · QJM · doi:10.1093/qjmed/hch097 · Cited by 73
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“It was not possible to validate the self-reports of fracture against medical records, but in a prospective cohort study of 121 700 nurses, Colditz and colleagues [14] found that fracture recall was better than for cancer, myocardial infarction or stroke.”
BackgroundHigh phobic anxiety is related to lower leukocyte telomere length in women
Okereke, O. I., Prescott, J., Wong, J. Y. Y., Han, J., Rexrode, K. M., & De Vivo, I. (2012) · PLoS ONE · doi:10.1371/journal.pone.0040516 · Cited by 72
“Details regarding the NHS and validation of various health exposures and endpoints have been published previously [24,25,26].”
Association Between Obesity and Weight Change and Risk of Diverticulitis in Women
Ma, W., Jovani, M., Liu, P., Nguyen, L. H., Cao, Y., Tam, I., Wu, K., Giovannucci, E. L., Strate, L. L., & Chan, A. T. (2018) · Gastroenterology · doi:10.1053/j.gastro.2018.03.057 · Cited by 70
Fung, T. T., Manson, J. E., Solomon, C. G., Liu, S., Willett, W. C., & Hu, F. B. (2003) · Journal of the American College of Nutrition · doi:10.1080/07315724.2003.10719332 · Cited by 71
“Although some misclassification of covariates is possible, in previous validation studies, members of the NHS cohort have demonstrated accurate self-report of health characteristics [16, 34].”
BackgroundSelf-citationGenetic variation in XRCC1, sun exposure, and risk of skin cancer
Han, J., Hankinson, S. E., Colditz, G. A., & Hunter, D. J. (2004) · British Journal of Cancer · doi:10.1038/sj.bjc.6602174 · Cited by 70
“There was no significant difference in frequency distribution between cases and controls for any of the five inferred common haplotypes.”
BackgroundSelf-citationCorrelates of Bone and Blood Lead Levels among Middle-aged and Elderly Women
Korrick, S., Schwartz, J. D., Tsaih, S., Hunter, D. J., Aro, A., ROSNER, B. A., Speizer, F. E., & Hu, H. (2002) · American Journal of Epidemiology · doi:10.1093/aje/kwf042 · Cited by 71
“The Nurses’ Health Study (NHS) is a prospective evaluation of chronic disease in a US sample of 121,700 female registered nurses (16).”
BackgroundSelf-citationProspective Evaluation of Analgesic Use and Risk of Renal Cell Cancer
Cho, E. (2011) · Archives of Internal Medicine · doi:10.1001/archinternmed.2011.356 · Cited by 72
Endothelial Nitric Oxide Synthase Gene Variants and Primary Open-Angle Glaucoma
Kang, J. H. (2011) · Archives of Ophthalmology · doi:10.1001/archophthalmol.2011.118 · Cited by 71
Social Integration and Reduced Risk of Coronary Heart Disease in Women
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Periodontal Disease and Incidence of Hypertension in the Health Professionals Follow-Up Study
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Cumulative ultraviolet radiation flux in adulthood and risk of incident skin cancers in women
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“Cumulative ultraviolet radiation flux in adulthood and risk of incident skin cancers in women”
BackgroundResultSiggeirsdóttir, K., Aspelund, T., Sigurðsson, G., Mogensen, B., Chang, M., Jónsdóttir, B., Eiríksdóttir, G., Launer, L. J., Harris, T. B., Jónsson, B. Y., et al. (2007) · European Journal of Epidemiology · doi:10.1007/s10654-007-9163-9 · Cited by 70
“Three studies report no or low false positive rate for hip and forearm fractures [2, 8, 13] which is similar to our results while others report higher rates [3, 4, 9, 12, 29].”
ResultIntake of Dietary Fiber, Fruits, and Vegetables and Risk of Diverticulitis
Ma, W., Nguyen, L. H., Song, M., Jovani, M., Liu, P., Cao, Y., Tam, I., Wu, K., Giovannucci, E. L., Strate, L. L., et al. (2019) · The American Journal of Gastroenterology · doi:10.14309/ajg.0000000000000363 · Cited by 71
Tang, J. Y., Spaunhurst, K. M., Chlebowski, R. T., et al. (2011) · JNCI Journal of the National Cancer Institute · doi:10.1093/jnci/djr333 · Cited by 69
“However, studies assessing the validity of self-reports of skin cancer have found that they are highly correlated with pathology review (>90% correlation) (37,38).”
BackgroundKorngold, E. C., Januzzi, J. L., Gantzer, M. L., Moorthy, M. V., Cook, N. R., & Albert, C. M. (2009) · Circulation · doi:10.1161/circulationaha.108.832576 · Cited by 69
Additive and Interactive Effects of Comorbid Physical and Mental Conditions on Functional Health
Fultz, N. H., Ofstedal, M. B., Herzog, A. R., et al. (2003) · Journal of Aging and Health · doi:10.1177/0898264303253502 · Cited by 68
“In general, however, self-reported health data have been shown to provide useful and valid information, which would other wise be unavailable for analysis (Colditz et al., 1986; Fried, Young, Rubin, & Bandeen-Roche, 2001; Robinson, Young, Roos, & Gelsky, 1997).”
MethodRemembering fractures: fracture registration and proband recall in southern Sweden.
Jönsson, B., Gärdsell, P., Johnell, O., Redlund-Johnell, I., & Sernbo, I. (1994) · Journal of Epidemiology & Community Health · doi:10.1136/jech.48.5.489 · Cited by 65
Self-report of high cholesterol
Natarajan, S., Lipsitz, S. R., & Nietert, P. J. (2002) · American Journal of Preventive Medicine · doi:10.1016/s0749-3797(02)00446-4 · Cited by 67
García‐Aymerich, J., Varraso, R., Danaei, G., Camargo, C. A., & Hernán, M. Á. (2013) · American Journal of Epidemiology · doi:10.1093/aje/kwt229 · Cited by 71
“Follow-up questionnaires have been sent every 2 years (13).”
BackgroundLey, S. H., Chavarro, J. E., Li, M., Bao, W., Hinkle, S. N., Wander, P. L., Rich-Edwards, J. W., Olsen, S. F., Vaag, A. A., Damm, P., et al. (2020) · Diabetes Care · doi:10.2337/dc19-2237 · Cited by 69
“The validity of these assessments has been documented previously (22).”
BackgroundBallerini, P., Contursi, A., Bruno, A., Mucci, M., Tacconelli, S., & Patrignani, P. (2022) · Frontiers in Pharmacology · doi:10.3389/fphar.2022.838079 · Cited by 71
“Pooled analysis of two prospective United States cohort studies (the Nurses’ Health Study and thistle Health Professionals Follow-up Study) (Colditz et al., 1986; ChasanTaber et al., 1996) reported that regular Aspirin use [defined as consumption of two or more standard-dose (325-mg) Aspirin tablets per week] was asso…”
BackgroundInfluentialXu, J., Moslehpour, M., Tran, T. K., Dinh, K. C., Ngo, T. Q., & Huy, P. Q. (2023) · Renewable Energy · doi:10.1016/j.renene.2023.03.015 · Cited by 74
Borgi, L., Curhan, G. C., Willett, W. C., Hu, F. B., Satija, A., & Forman, J. P. (2015) · Journal of Hypertension · doi:10.1097/hjh.0000000000000722 · Cited by 69
“In 51 cases of self-reported hypertension in NHS, for example, 77% had a pressure above 160/95mmHg and 100% had a pressure above 140/ 90mmHg [12].”
BackgroundSelf-citationLyall, K., Pauls, D. L., Santangelo, S. L., Spiegelman, D. L., & Ascherio, A. (2010) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-010-1079-7 · Cited by 68
“However, this is a sample of nurses, who have previously been shown to provide highly reliable and valid self-reported health information (Colditz et al. 1986; Troy et al. 1995; Colditz et al. 1997; Tomeo et al. 1999).”
BackgroundPhysical Activity and Albuminuria
Robinson, E., Fisher, N. D. L., Forman, J. P., & Curhan, G. C. (2010) · American Journal of Epidemiology · doi:10.1093/aje/kwp442 · Cited by 67
“Selfreported diabetes and hypertension have been validated by medical record review in these cohorts and have been found to correlate with expected results (23, 24).”
BackgroundFerketich, A. K., & Binkley, P. F. (2005) · European Heart Journal · doi:10.1093/eurheartj/ehi329 · Cited by 66
Preterm Delivery and Maternal Cardiovascular Disease Risk Factors: The Nurses' Health Study II
Tanz, L. J., Stuart, J. J., Williams, P. L., Missmer, S. A., Rimm, E. B., James-Todd, T. M., & Rich-Edwards, J. W. (2018) · Journal of Women s Health · doi:10.1089/jwh.2018.7150 · Cited by 70
“Validation of self-reported elevated cholesterol compared to medical records and measured blood samples in a similar cohort yielded a positive predictive value of 86% and negative predictive value of 85%.(31)”
BackgroundResultMuraki, I., Wu, H., Imamura, F., Laden, F., Rimm, E. B., Hu, F. B., Willett, W. C., & Sun, Q. (2014) · American Journal of Clinical Nutrition · doi:10.3945/ajcn.114.087551 · Cited by 64
“Although we adjusted for a self-reported hypercholesterolemia, which was reliable to use as a covariate (65), some residual confounding may still exist (66).”
MethodSelf-citationPlasma Resistin Levels Associate with Risk For Hypertension among Nondiabetic Women
Zhang, L., Curhan, G. C., & Forman, J. P. (2010) · Journal of the American Society of Nephrology · doi:10.1681/asn.2009101053 · Cited by 65
Reliability and Validity of Self-Report CD4 Counts in Persons Hospitalized with HIV Disease
Cunningham, W. E., Rana, H. M., Shapiro, M. F., & Hays, R. D. (1997) · Journal of Clinical Epidemiology · doi:10.1016/s0895-4356(97)00061-9 · Cited by 63
Utility of Health data from Social Surveys: Is There a Gold Standard for Measuring Morbidity?
Ferraro, K. F., & Farmer, M. M. (1999) · American Sociological Review · doi:10.1177/000312249906400212 · Cited by 64
Endes, S., Schaffner, E., Caviezel, S., et al. (2015) · European Journal of Epidemiology · doi:10.1007/s10654-015-0076-8 · Cited by 64
“Besides, medical treatment is commonly based on clear disease indications and it has been shown, that self-reported medical history is accurately related to cardiovascular and metabolic disease [56, 57].”
BackgroundFish intake and risk of chronic obstructive pulmonary disease in 2 large US cohorts
Varraso, R., Barr, R. G., Willett, W. C., Speizer, F. E., & Camargo, C. A. (2014) · American Journal of Clinical Nutrition · doi:10.3945/ajcn.114.094516 · Cited by 63
“The Nurses’ Health Study (NHS) began in 1976, when 121,701 female nurses 30–55 y old who were living in 11 US states, responded to a mailed health questionnaire (25).”
BackgroundSelf-citationDahm, C. C., Chomistek, A. K., Jakobsen, M. U., Mukamal, K. J., Eliassen, A. H., Sesso, H. D., Overvad, K., Willett, W. C., Rimm, E. B., & Chiuve, S. E. (2016) · Journal of the American Heart Association · doi:10.1161/jaha.116.003583 · Cited by 67
“First, while hypercholesterolemia and hypertension were self-reported, these outcomes have been previously validated.(44,45) Information on high school diet was collected during adulthood and is likely recalled with some error.”
BackgroundSelf-citationFung, T. T., Chiuve, S. E., Willett, W. C., Hankinson, S. E., Hu, F. B., & Holmes, M. D. (2013) · Breast Cancer Research and Treatment · doi:10.1007/s10549-013-2484-3 · Cited by 62
Self-citationProspective study of obesity, hypertension, high cholesterol, and risk of restless legs syndrome
Vito, K. D., Li, Y., Batool‐Anwar, S., Ning, Y., Han, J., & Gao, X. (2014) · Movement Disorders · doi:10.1002/mds.25860 · Cited by 63
Self-reported medical history was generally accurate among Japanese workplace population
Wada, K., Yatsuya, H., Ouyang, P., Otsuka, R., Mitsuhashi, H., Takefuji, S., Matsushita, K., Sugiura, K., Hotta, Y., Toyoshima, H., et al. (2008) · Journal of Clinical Epidemiology · doi:10.1016/j.jclinepi.2008.04.006 · Cited by 64
“Previous studies showed that the confirmation rate for self-reported stroke obtained by the self-administered questionnaire was 66% among 33e55-year-old American women [6].”
BackgroundResultSitagliptin and risk of fractures in type 2 diabetes: R esults from the TECOS trial
Josse, R. G., Majumdar, S. R., Zheng, Y., Adler, A., Bethel, M. A., Buse, J. B., Green, J. B., Kaufman, K. D., Rodbard, H. W., Tankova, T. I., et al. (2016) · Diabetes Obesity and Metabolism · doi:10.1111/dom.12786 · Cited by 62
“First, with the methodology used, we were able to capture most symptomatic fractures, and self-report of recent fractures is valid and both very sensitive and specific (33,34); however, certain fractures may have been missed, and we may have underestimated the overall fracture incidence.”
MethodPseudophakic retinal detachment in high axial myopia
Jacobi, F. K., & Hessemer, V. (1997) · Journal of Cataract & Refractive Surgery · doi:10.1016/s0886-3350(97)80087-9 · Cited by 63
Allergy and infectious disease histories and the risk of childhood acute lymphoblastic leukaemia
Rosenbaum, P. F., Louis, G. M. B., & Brecher, M. L. (2005) · Paediatric and Perinatal Epidemiology · doi:10.1111/j.1365-3016.2005.00634.x · Cited by 60
Migraine, headache, and the risk of depression: Prospective cohort study
Rist, P. M., Schürks, M., Buring, J. E., & Kurth, T. (2013) · Cephalalgia · doi:10.1177/0333102413483930 · Cited by 61
Racial Discrimination, Mood Disorders, and Cardiovascular Disease Among Black Americans
Chae, D. H., Nuru‐Jeter, A., Lincoln, K. D., & Arriola, K. J. (2011) · Annals of Epidemiology · doi:10.1016/j.annepidem.2011.10.009 · Cited by 57
“Although retrospective reports of cardiovascular health are limited, prior studies have found high levels of recall accuracy (52, 53).”
ResultFruit and Vegetable Intake and Hip Fracture Incidence in Older Men and Women: The CHANCES Project
Benetou, V., Orfanos, P., Feskanich, D., Michaëlsson, K., Pettersson, U., Eriksson, S., Grodstein, F., Wolk, A., Bellavia, A., Ahmed, L. A., et al. (2016) · Journal of Bone and Mineral Research · doi:10.1002/jbmr.2850 · Cited by 61
“Validation studies conducted in the context of CHANCES confirmed 86% of the self-reported cases in EPICElderly Greece (only the validated confirmed self-reported cases were considered as outcomes in the current analysis), whereas in NHS a validation study conducted in the past confirmed all reported hip fractures.((28…”
ResultRoberts, A. L., Lyall, K., Rich-Edwards, J. W., Ascherio, A., & Weisskopf, M. G. (2016) · Autism · doi:10.1177/1362361314566049 · Cited by 58
“In validation studies in this cohort, self-reports of healthrelated factors have been highly accurate (Colditz et al., 1986, 1997; Hankinson et al., 1997; Martinez et al., 1997; Tomeo et al., 1999; Troy et al., 1995).”
MethodKeyes, K. M., McLaughlin, K. A., Demmer, R. T., Cerdá, M., Koenen, K. C., Uddin, M., & Galea, S. (2013) · Depression and Anxiety · doi:10.1002/da.22090 · Cited by 65
Plasma Inflammatory Markers and the Risk of Developing Hypertension in Men
Sesso, H. D., Jiménez, M. C., Wang, L., Ridker, P. M., Buring, J. E., & Gaziano, J. M. (2015) · Journal of the American Heart Association · doi:10.1161/jaha.115.001802 · Cited by 60
“As a result, hypertension misclassification would only slightly bias our risk estimates, as also observed in other studies of selfreported BP(35) and hypertension.(53,54) Finally, the generalizability of the observed associations between inflammation and hypertension to other populations with respect to different sex,…”
ResultAspirin, other NSAIDs, and ovarian cancer risk (United States)
Fairfield, K. M., Hunter, D. J., Fuchs, C. S., Colditz, G. A., & Hankinson, S. E. (2002) · Cancer Causes & Control · doi:10.1023/a:1016380917625 · Cited by 59
“Details of the quest onnaire and docume tation of its reproducibility and validity have been published elsewhere [25-28].”
BackgroundSelf-citationVitamin and carotenoid intake and risk of squamous cell carcinoma of the skin
Fung, T. T., Spiegelman, D. L., Egan, K. M., Giovannucci, E. L., Hunter, D. J., & Willett, W. C. (2002) · International Journal of Cancer · doi:10.1002/ijc.10798 · Cited by 61
Self-citationBirthweight, childhood growth and hypertension in adulthood
Zhao, M., Shu, X. O., Jin, F., Yang, G., Li, H., Liu, D., Wen, W., Gao, Y., & Zheng, W. (2002) · International Journal of Epidemiology · doi:10.1093/ije/31.5.1043 · Cited by 60
Menopause and Risk of Kidney Stones
Prochaska, M., Taylor, E. N., & Curhan, G. C. (2018) · The Journal of Urology · doi:10.1016/j.juro.2018.04.080 · Cited by 59
Lignan Intake and Risk of Coronary Heart Disease
Hu, Y., Li, Y., Sampson, L., Wang, M., Manson, J. E., Rimm, E. B., & Sun, Q. (2021) · Journal of the American College of Cardiology · doi:10.1016/j.jacc.2021.05.049 · Cited by 59
Self-citationAssociation of Gestational Diabetes With Subsequent Long-Term Risk of Mortality
Wang, Y., Mitsunami, M., Manson, J. E., Gaskins, A. J., Rich-Edwards, J. W., Wang, L., Zhang, C., & Chavarro, J. E. (2023) · JAMA Internal Medicine · doi:10.1001/jamainternmed.2023.4401 · Cited by 58
Korat, A. V. A., Shea, M. K., Jacques, P. F., Sebastiani, P., Wang, M., Eliassen, A. H., Willett, W. C., & Sun, Q. (2024) · American Journal of Clinical Nutrition · doi:10.1016/j.ajcnut.2023.11.010 · Cited by 66
“Previous studies have reported high validity of self-reported health information in the NHS [31,32].”
ResultSelf-citationPersonal history of rosacea and risk of incident cancer among women in the US
Li, W., Zhang, M., Danby, F. W., Han, J., & Qureshi, A. A. (2015) · British Journal of Cancer · doi:10.1038/bjc.2015.217 · Cited by 59
Lobule type and subsequent breast cancer risk: Results from the Nurses' Health Studies
Baer, H. J., Collins, L. C., Connolly, J. L., et al. (2009) · Cancer · doi:10.1002/cncr.24167 · Cited by 59
Self-citationPrediction of Incident Hypertension Risk in Women with Currently Normal Blood Pressure
Paynter, N. P., Cook, N. R., Everett, B. M., Sesso, H. D., Buring, J. E., & Ridker, P. M. (2009) · The American Journal of Medicine · doi:10.1016/j.amjmed.2008.10.034 · Cited by 61
Britton, A. R., Milne, B., Butler, T., Sánchez-Gálvez, A., Shipley, M. J., Rudd, A. G., Wolfe, C. D. A., Bhalla, A., & Brunner, E. J. (2012) · BMC Medical Research Methodology · doi:10.1186/1471-2288-12-83 · Cited by 59
“Rates of false-positive self-reports of stroke in population studies vary between 25 and 37% [1-4].”
BackgroundBody mass index and mortality in men: evaluating the shape of the association
Gelber, R. P., Kurth, T., Manson, J. E., Buring, J. E., & Gaziano, J. M. (2007) · International Journal of Obesity · doi:10.1038/sj.ijo.0803564 · Cited by 59
Fructose and Vitamin C Intake Do Not Influence Risk for Developing Hypertension
Forman, J. P., Choi, H. K., & Curhan, G. C. (2009) · Journal of the American Society of Nephrology · doi:10.1681/asn.2008050473 · Cited by 59
Association of nonmelanoma skin cancer with second malignancy
Rosenberg, C. A., Greenland, P., Khandekar, J. D., Loar, A., Ascensão, J. L., & López, A. M. (2003) · Cancer · doi:10.1002/cncr.11874 · Cited by 59
“reported from the Nurses Health Study that 90% of self-reported cases of cancers of the breast, skin, large bowel, and thyroid were confirmed by histopathology reports.(21) The reliability of self-reported cancers of the lung, ovary, and uterus were lower in that study.”
ResultRotating Night Shift Work and Risk of Ovarian Cancer
Poole, E. M., Schernhammer, E. S., & Tworoger, S. S. (2011) · Cancer Epidemiology, Biomarkers & Prevention · doi:10.1158/1055-9965.epi-11-0138 · Cited by 58
Type 2 Diabetes Prevention Diet and Hepatocellular Carcinoma Risk in US Men and Women
Luo, X., Sui, J., Yang, W., Sun, Q., Ma, Y., Simon, T. G., Liang, G., Meyerhardt, J. A., Chan, A. T., Giovannucci, E. L., et al. (2019) · The American Journal of Gastroenterology · doi:10.14309/ajg.0000000000000450 · Cited by 61
“(24) In the HPFS, FFQs were administered 7 times between 1986 and 2010.(25) Each FFQ contained approximately 131 items except for the 1980 FFQ which included 61 items.”
MethodValidity of Patient Self-reported History of Skin Cancer
Ming, M. E., Levy, R. M., Hoffstad, O., Filip, J. C., Gimotty, P. A., & Margolis, D. J. (2004) · Archives of Dermatology · doi:10.1001/archderm.140.6.730 · Cited by 57
Kang, J. H., Loomis, S. J., ROSNER, B. A., Wiggs, J. L., & Pasquale, L. R. (2015) · Investigative Ophthalmology & Visual Science · doi:10.1167/iovs.14-16088 · Cited by 59
Self-citationNiacin intake and risk of skin cancer in US women and men
Park, S. M., Li, T., Wu, S., Li, W., Weinstock, M. A., Qureshi, A. A., & Cho, E. (2017) · International Journal of Cancer · doi:10.1002/ijc.30630 · Cited by 62
“Although our participants were nurses or health professionals and validity of their self-report of BCC was proven to be high in previous studies.(18,25,26) There was still a higher possibility of misclassification of BCC.”
BackgroundMethodResultWürtz, A. M. L., Jakobsen, M. U., Bertoia, M. L., Hou, T., Schmidt, E. B., Willett, W. C., Overvad, K., Sun, Q., Manson, J. E., Hu, F. B., et al. (2020) · American Journal of Clinical Nutrition · doi:10.1093/ajcn/nqaa284 · Cited by 63
“Similar correlation coefficients were observed in the NHS (14).”
BackgroundInfluentialSelf-citationCigarette Smoking, Smoking Cessation, and Risk of Hearing Loss in Women
Lin, B. M., Wang, M., Stanković, K. M., Eavey, R. D., McKenna, M. J., Curhan, G. C., & Curhan, S. G. (2020) · The American Journal of Medicine · doi:10.1016/j.amjmed.2020.03.049 · Cited by 56
Comorbidities of COPD Have a Major Impact on Clinical Outcomes, Particularly in African Americans
Putcha, N., Han, M., Martinez, C., Foreman, M. G., Anzueto, A., Casaburi, R. H., Cho, M. H., Hanania, N. A., Hersh, C. P., Kinney, G. L., et al. (2014) · Chronic Obstructive Pulmonary Diseases Journal of the COPD Foundation · doi:10.15326/jcopdf.1.1.2014.0112 · Cited by 57
A Germline Variant in the Interferon Regulatory Factor 4 Gene as a Novel Skin Cancer Risk Locus
Han, J., Qureshi, A. A., Nan, H., Zhang, J., Song, Y., Guo, Q., & Hunter, D. J. (2011) · Cancer Research · doi:10.1158/0008-5472.can-10-1818 · Cited by 57
“The validity of selfreport of BCC is high in this medically sophisticated population (90%) (10).”
Alter, D. A., Stukel, T. A., Chong, A. S., & Henry, D. A. (2011) · Health Affairs · doi:10.1377/hlthaff.2009.0669 · Cited by 57
Simon, T. G., Kim, M. N., Luo, X., Yang, W., Ma, Y., Chong, D. Q., Fuchs, C. S., Meyerhardt, J. A., Corey, K. E., Chung, R. T., et al. (2020) · Journal of Hepatology · doi:10.1016/j.jhep.2019.12.022 · Cited by 57
Self-citationA prospective study of job strain and risk of breast cancer
Achat, H. M., Kawachi, I., Byrne, C., et al. (2000) · International Journal of Epidemiology · doi:10.1093/ije/29.4.622 · Cited by 57
Self-citationACTIVE cognitive training and rates of incident dementia
Unverzagt, F. W., Guey, L. T., Jones, R. N., Marsiske, M., King, J. W., Wadley, V. G., Crowe, M., Rebok, G. W., & Tennstedt, S. L. (2012) · Journal of the International Neuropsychological Society · doi:10.1017/s1355617711001470 · Cited by 56
“…correspondence to medical record diagnoses (Okura, Urban, Mahoney, Jacobsen, & Rodeheffer, 2004) and is often used in prevalence and risk factor studies (Colditz et al., 1986; O’Mahony, Dobson, Rodgers, James, & Thomson, 1995) but may be less sensitive for incident disease (Oksanen et al., 2010).”
BackgroundDietary glutamine, glutamate and mortality: two large prospective studies in US men and women
Ma, W., Heianza, Y., Huang, T., Wang, T., Sun, D., Zheng, Y., Hu, F. B., Rexrode, K. M., Manson, J. E., & Qi, L. (2017) · International Journal of Epidemiology · doi:10.1093/ije/dyx234 · Cited by 59
“Hypertension and hypercholesterolaemia were self-reported, with the validity of these reports confirmed on random sampling of medical records.(25) A supplementary questionnaire was used to confirm self-reported cases of diabetes according to established criteria,(26) and 98% of these cases were validated in comparison…”
MethodZhang, Y., Birmann, B. M., Han, J., Giovannucci, E. L., Speizer, F. E., Stampfer, M. J., ROSNER, B. A., & Schernhammer, E. S. (2020) · BMJ · doi:10.1136/bmj.m2942 · Cited by 58
Self-citationNew-onset hypertension and inflammatory response/poor outcome in acute ischemic stroke
Rodríguez‐Yáñez, M., Castellanos, M., Blanco, M., García, M. M., Nombela, F., Serena, J. L., Leira, R., Lizasoaín, I., Dávalos, A., & Castillo, J. (2006) · Neurology · doi:10.1212/01.wnl.0000247064.53130.91 · Cited by 56
VALIDATION OF SELF-REPORTED HISTORY OF ACUTE MYOCARDIAL INFARCTION
Rosamond, W. D., Sprafka, J. M., McGovern, P. G., Nelson, M., & Luepker, R. V. (1995) · Epidemiology · doi:10.1097/00001648-199501000-00013 · Cited by 55
Risk factors for fractures in older men and women: The Leisure World Cohort Study
White, S. C., Atchison, K. A., GORNBEIN, J. A., Nattiv, A., Paganini‐Hill, A., & Service, S. K. (2006) · Gender Medicine · doi:10.1016/s1550-8579(06)80200-7 · Cited by 57
Kubo, J. T., Henderson, M. T., Desai, M., Wactawski‐Wende, J., Stefanick, M. L., & Tang, J. Y. (2013) · Cancer Causes & Control · doi:10.1007/s10552-013-0280-3 · Cited by 55
“Non-melanoma skin cancer was not adjudicated centrally by the WHI and relies on self-report data; however, several studies have found selfreported skin cancer to be highly accurate [25, 26].”
Cardiovascular Disease in Early Stages of Chronic Kidney Disease in a Chinese Population
Zhang, L., Zuo, L., Wang, F., et al. (2006) · Journal of the American Society of Nephrology · doi:10.1681/asn.2006040402 · Cited by 55
“The validity of self-reported MI and stroke events by questionnaire was between 70 and 80% in previous studies (24,25).”
Infertility, fertility treatment, and risk of hypertension
Farland, L. V., Grodstein, F., Srouji, S. S., Forman, J. P., Rich-Edwards, J., Chavarro, J. E., & Missmer, S. A. (2015) · Fertility and Sterility · doi:10.1016/j.fertnstert.2015.04.043 · Cited by 55
“Of 85 women we sampled from NHS who had reported high blood pressure and responded to a validation questionnaire, only one denied elevated blood pressure (reporting that she in fact had hypotension).(21) Self reported hypertension was found to have high vaildity compared to the medical records.”
BackgroundSubjective well-being and cardiometabolic health: An 8–11year study of midlife adults
Boehm, J. K., Chen, Y., Williams, D. R., Ryff, C. D., & Kubzansky, L. D. (2016) · Journal of Psychosomatic Research · doi:10.1016/j.jpsychores.2016.03.018 · Cited by 56
“In addition, selfreported health status could be subject to bias, although priorwork suggests that self-report of medical conditions is reliable insofar as the conditions have becomemanifest [46].”
Wang, Y., Stuart, J. J., Rich-Edwards, J. W., Missmer, S. A., Rexrode, K. M., Farland, L. V., Mukamal, K. J., Nelson, S. M., Solomon, C. G., Fraser, A., et al. (2022) · JAMA Network Open · doi:10.1001/jamanetworkopen.2022.38513 · Cited by 62
Herpes Zoster and Long‐Term Risk of Cardiovascular Disease
Curhan, S. G., Kawai, K., Yawn, B. P., Rexrode, K. M., Rimm, E. B., & Curhan, G. C. (2022) · Journal of the American Heart Association · doi:10.1161/jaha.122.027451 · Cited by 60
“28,29 Ascertainment of Covariates 30– 33 Among the women in the NHS and NHS II, information on menopausal status, postmenopausal hormone therapy, and oral contraceptive use (NHS II only) was also obtained.”
Depression and the risk of psoriasis in US women
Dominguez, P., Han, J., Li, T., Ascherio, A., & Qureshi, A. A. (2012) · Journal of the European Academy of Dermatology and Venereology · doi:10.1111/j.1468-3083.2012.04703.x · Cited by 54
Increases in Weight and Body Size Increase the Odds for Hypertension During 7 Years of Follow‐up
Williams, P. T. (2008) · Obesity · doi:10.1038/oby.2008.396 · Cited by 53
“Using repeated surveys and confirmed diagnosis from medical records, self-reported hypertensions have been demonstrated by others as being generally reliable (27) and are reported by other major cohort studies (28–30).”
BackgroundPerfil de risco cardiovascular e autoavaliação da saúde no Brasil: estudo de base populacional
Pereira, J. C., Barreto, S. M., & Passos, V. M. D. A. (2009) · Revista Panamericana de Salud Pública · doi:10.1590/s1020-49892009000600004 · Cited by 54
Metadata
- Authors
- COLDITZ, G. A., MARTIN, P., STAMPFER, M. J., WILLETT, W. C., SAMPSON, L., ROSNER, B., HENNEKENS, C. H., & SPEIZER, F. E.
- Affiliations
- Brigham and Women's Hospital (US)
- Corresponding author
- COLDITZ, GRAHAM A.
- Venue
- American Journal of Epidemiology
- Publisher
- Oxford University Press (OUP)
- Published
- 1986-05
- Volume
- 123
- Issue
- 5
- Pages
- 894-900
- ISSN
- 0002-9262 (ISSN-L)
- 1476-6256
- OpenAlex
- W1958805324
- Cited by
- 992
- References
- 0
- Citations by year
- 2026: 13 · 2025: 10 · 2024: 19 · 2023: 25 · 2022: 23 · 2021: 17 · 2020: 27 · 2019: 22 · 2018: 32 · 2017: 40 · 2016: 49 · 2015: 48 · 2014: 40 · 2013: 36 · 2012: 45
- FWCI
- 35.02
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- American Journal of Epidemiology (publishedVersion)
- PubMed (publishedVersion)
- Funders
- National Heart, Lung, and Blood Institute (HL24074, HL34594)
- National Cancer Institute (CA-16686)
- Topics
- Social Sciences › Sociology and Political Science › Survey Methodology and Nonresponse
- Physical Sciences › Mathematics › Statistics and Probability › Statistical Methods in Epidemiology
- Health Sciences › Medicine › Oncology › Global Cancer Incidence and Screening
- Keywords
- questionnaire validation, self-reported illness, breast cancer, skin cancer, thyroid cancer, lung cancer, ovarian cancer, uterine cancer, myocardial infarction, stroke, fracture, hypertension, cholesterol levels, women, risk factors, disease outcome
- MeSH terms
- Adult, Blood Pressure, Cardiovascular Diseases, Cholesterol, Epidemiologic Methods, Female, Follow-Up Studies, Humans, Hypertension, Medical Records, Middle Aged, Morbidity, Neoplasms, Surveys and Questionnaires, United States, Fractures, Bone
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