“This illness diminishes me. What it does is like theft”: A qualitative meta‐synthesis of people's experiences of living with asthma

Pickles, Kristen; Eassey, Daniela; Reddel, Helen K.; Locock, Louise; Kirkpatrick, Susan; Smith, Lorraine

doi:10.1111/hex.12605

Cited by 28Asthma and respiratory diseasesNursing care and researchChronic Obstructive Pulmonary Disease (COPD) Research

“This illness diminishes me. What it does is like theft”: A qualitative meta‐synthesis of people's experiences of living with asthma

Open access

Pickles, Kristen, Eassey, Daniela, Reddel, Helen K., Locock, Louise, Kirkpatrick, Susan, Smith, Lorraine·2018·Health Expectations

DOI 10.1111/hex.12605PMC PMC5750696

Open this paper in CoChat — free account Open PDF

Abstract

Background: What matters to people in their everyday experiences of living with asthma is influenced by a diverse range of personal, social, medical and environmental factors. Previous reviews of the asthma literature have largely focused on medical aspects of asthma or specific population groups with particular needs. Objective: To identify, describe and synthesize from the available qualitative literature the views and experiences of adults living with asthma. Method: We systematically searched for qualitative studies reporting on the personal experience of living with asthma. A meta‐synthesis approach was used to analyse and interpret the data. Key themes relating to personal perspectives on asthma were identified and grouped into overarching concepts. Results: We identified 26 studies. There was a paucity of literature on the physical burden of asthma symptoms and the role of social support. Our synthesis generated a central concept of the “work” associated with living with asthma: work was of a personal nature, and at times an intensely emotional experience. Individuals tailored their behaviour in response to demands of the physical and social environment, including interactions with health‐care professionals. Conclusion: This is the first systematic review of the qualitative literature reporting on people's own perspectives of living with asthma. Our findings draw attention to the nuances and sensitivities surrounding patient experiences of self‐management. Medical care is a central plank of managing chronic conditions, but our health‐care systems are now expected to deliver patient‐centred care. Considering the broader aspects of asthma management, beyond that of symptoms and treatment, will help to facilitate comprehensive care.

The claims and statistics of this paper haven’t been checked yet.

Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.

Integrity signals

Registry

Crossref · 10.1111/hex.12605

Cites

85 of 85 references verified0 citation errors · 0 not checkable

Statistics

Claims the paper makes

The claims and statistics of this paper haven’t been checked yet.

Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.

Claims other papers make about this one

Each is checked against this paper’s own text: does it say what the citing paper says it does?

Symptoms, exacerbations, and triggers in asthma are associated with lower quality of life, tiredness, activity limitation, negative effects on social life and relationships, problems with finding and keeping employment, and reduced productivity.
“Symptoms, exacerbations, and triggers in asthma are associated with lower quality of life (QoL), tiredness, activity limitation, negative effects on social life and relationships, problems with finding and keeping employment, and reduced productivity.3–7”
From A systematic review of psychological, physical health factors, and quality of life in adult asthma (2019) · cites this paper as [3]

Self-check

Percentages, sums and reported differences re-computed from the paper’s own numbers.

The self-check needs the paper’s full text.

Global and regional mortality from 235 causes of death for 20 age groups in 1990 and 2010: a systematic analysis for the Global Burden of Disease Study 2010.
Lozano, R., Naghavi, M., Foreman, K., Lim, S., Shibuya, K., Aboyans, V., Abraham, J., Adair, T., Aggarwal, R., Ahn, S. Y., et al. (2012) · The Lancet · doi:10.1016/s0140-6736(12)61728-0 · Cited by 14,070 · see citing works
Prevalence, Severity, and Comorbidity of 12-Month DSM-IV Disorders in the National Comorbidity Survey Replication
Kessler, R. C., Chiu, W. T., Demler, O., & Walters, E. E. (2005) · Archives of General Psychiatry · doi:10.1001/archpsyc.62.6.617 · Cited by 12,052 · see citing works
Methods for the thematic synthesis of qualitative research in systematic reviews
Thomas, J., & Harden, A. (2008) · BMC Medical Research Methodology · doi:10.1186/1471-2288-8-45 · Cited by 9,312 · see citing works
Years lived with disability (YLDs) for 1160 sequelae of 289 diseases and injuries 1990–2010: a systematic analysis for the Global Burden of Disease Study 2010
Vos, T., Flaxman, A. D., Naghavi, M., Lozano, R., Michaud, C., Ezzati, M., Shibuya, K., Salomon, J. A., Abdalla, S., Aboyans, V., et al. (2012) · The Lancet · doi:10.1016/s0140-6736(12)61729-2 · Cited by 8,291 · see citing works
Qualitative methods for health research
Green, J., & Thorogood, N. (2009) · Choice Reviews Online · doi:10.5860/choice.47-0901 · Cited by 4,607 · see citing works
Chronic illness as biographical disruption
Bury, M. (1982) · Sociology of Health & Illness · doi:10.1111/1467-9566.ep11339939 · Cited by 3,960 · see citing works
International ERS/ATS guidelines on definition, evaluation and treatment of severe asthma
Chung, K. F., Wenzel, S. E., Brozek, J. L., Bush, A., Castro, M., Sterk, P. J., Adcock, I. M., Bateman, E. D., Bel, E. H., Bleecker, E. R., et al. (2014) · European Respiratory Journal · doi:10.1183/09031936.00202013 · Cited by 3,926 · see citing works
Checklists for improving rigour in qualitative research: a case of the tail wagging the dog?
Barbour, R. S. (2001) · BMJ · doi:10.1136/bmj.322.7294.1115 · Cited by 2,613 · see citing works
Loss of self: a fundamental form of suffering in the chronically ill
Charmaz, K. (1983) · Sociology of Health & Illness · doi:10.1111/1467-9566.ep10491512 · Cited by 1,794 · see citing works
Using meta ethnography to synthesise qualitative research: a worked example
Britten, N., Campbell, R., Pope, C., Donovan, J., Morgan, M., & Pill, R. (2002) · Journal of Health Services Research & Policy · doi:10.1258/135581902320432732 · Cited by 1,110 · see citing works
Qualitative research methods in health technology assessment: a review of the literature.
Murphy, Dingwall, Greatbatch, Parker, & Watson (1998) · Health Technology Assessment · doi:10.3310/hta2160 · Cited by 1,107 · see citing works
Conducting a meta-ethnography of qualitative literature: Lessons learnt
Atkins, S., Lewin, S., Smith, H., Engel, M., Fretheim, A., & Volmink, J. (2008) · BMC Medical Research Methodology · doi:10.1186/1471-2288-8-21 · Cited by 981 · see citing works
The Influence of Social Support on Chronic Illness Self-Management: A Review and Directions for Research
Gallant, M. P. (2003) · Health Education & Behavior · doi:10.1177/1090198102251030 · Cited by 954 · see citing works
Economic burden of asthma: a systematic review
Bahadori, K., Doyle‐Waters, M. M., Marra, C. A., Lynd, L. D., Alasaly, K., Swiston, J. R., & FitzGerald, J. M. (2009) · BMC Pulmonary Medicine · doi:10.1186/1471-2466-9-24 · Cited by 723 · see citing works
Shared Treatment Decision Making Improves Adherence and Outcomes in Poorly Controlled Asthma
Wilson, S. R., Strub, P., Buist, A. S., Knowles, S. B., Lavori, P. W., Lapidus, J., & Vollmer, W. M. (2009) · American Journal of Respiratory and Critical Care Medicine · doi:10.1164/rccm.200906-0907oc · Cited by 672 · see citing works
Adolescents with a chronic condition: challenges living, challenges treating
Sawyer, S. M., Drew, S., Yeo, M. S., & Britto, M. T. (2007) · The Lancet · doi:10.1016/s0140-6736(07)60370-5 · Cited by 656 · see citing works
Appraising qualitative research for inclusion in systematic reviews: a quantitative and qualitative comparison of three methods
Dixon-Woods, M., Sutton, A., Shaw, R., Miller, T., Smith, J., Young, B., Bonas, S., Booth, A., & Jones, D. (2007) · Journal of Health Services Research & Policy · doi:10.1258/135581907779497486 · Cited by 546 · see citing works
An administrative data merging solution for dealing with missing data in a clinical registry: adaptation from ICD-9 to ICD-10
Southern, D. A., Norris, C. M., Quan, H., Shrive, F. M., Galbraith, P. D., Humphries, K. H., Gao, M., Knudtson, M. L., Ghali, W. A., & the APPROACH Investigators (2008) · BMC Medical Research Methodology · doi:10.1186/1471-2288-8-1 · Cited by 503 · see citing works
Medication, chronic illness and identity: The perspective of people with asthma
Adams, S., Pill, R., & Jones, A. S. (1997) · Social Science & Medicine · doi:10.1016/s0277-9536(96)00333-4 · Cited by 349 · see citing works
Sudden illness and biographical flow in narratives of stroke recovery
Faircloth, C. A., Boylstein, C. A., Rittman, M., Young, M. E., & Gubrium, J. F. (2004) · Sociology of Health & Illness · doi:10.1111/j.1467-9566.2004.00388.x · Cited by 344 · see citing works
No Symptoms, No Asthma
Halm, E. A., Mora, P. A., & Leventhal, H. (2006) · CHEST Journal · doi:10.1378/chest.129.3.573 · Cited by 336 · see citing works
The Relationship of Asthma and Anxiety Disorders
Katon, W. J., Richardson, L., Lozano, P., & McCauley, E. (2004) · Psychosomatic Medicine · doi:10.1097/01.psy.0000126202.89941.ea · Cited by 322 · see citing works
Status of implementation of Framework Convention on Tobacco Control (FCTC) in Ghana: a qualitative study
Owusu‐Dabo, E., McNeill, A. D., Lewis, S., Gilmore, A., & Britton, J. R. (2010) · BMC Public Health · doi:10.1186/1471-2458-10-1 · Cited by 289 · see citing works
The significance and consequences of having painful and disabled joints in older age: co‐existing accounts of normal and disrupted biographies
Sanders, C., Donovan, J., & Dieppe, P. A. (2002) · Sociology of Health & Illness · doi:10.1111/1467-9566.00292 · Cited by 265 · see citing works
Illness in the context of older age: the case of stroke
Pound, P., Gompertz, P., & Ebrahim, S. (1998) · Sociology of Health & Illness · doi:10.1111/1467-9566.00112 · Cited by 262 · see citing works
Mild asthma: an expert review on epidemiology, clinical characteristics and treatment recommendations
Dusser, D. J., Montani, D., Chanez, P., Jacques de, B. L. I. C., Delacourt, C., Deschildre, A., Devillier, P., Didier, A. P., Leroyer, C., Marguet, C., et al. (2007) · Allergy · doi:10.1111/j.1398-9995.2007.01394.x · Cited by 253 · see citing works
What Is Worse for Asthma Control and Quality of Life
Lavoie, K., Bacon, S., Barone, S., Cartier, A., Ditto, B., & Labrecque, M. (2006) · CHEST Journal · doi:10.1378/chest.130.4.1039 · Cited by 234 · see citing works
The Living & Breathing Study: a study of patients' views of asthma and its treatment
Haughney, J., Barnes, G., Partridge, M. R., & Cleland, J. (2004) · Primary Care Respiratory Journal · doi:10.1016/j.pcrj.2003.11.007 · Cited by 148 · see citing works
Inhaled corticosteroids for asthma: impact of practice level device switching on asthma control
Thomas, M. D., Price, D. B., Chrystyn, H., Lloyd, A., Williams, A., & von Ziegenweidt, J. (2009) · BMC Pulmonary Medicine · doi:10.1186/1471-2466-9-1 · Cited by 147 · see citing works
Barriers and Facilitators to Healthy Physical Activity in Asthma Patients
Mancuso, C. A., Sayles, W., Robbins, L. P., Phillips, E., Ravenell, K. L., Duffy, C. M., Wenderoth, S., & Charlson, M. E. (2006) · Journal of Asthma · doi:10.1080/02770900500498584 · Cited by 146 · see citing works
Understanding what helps or hinders asthma action plan use: A systematic review and synthesis of the qualitative literature
Ring, N., Jepson, R. G., Hoskins, G., Wilson, C., Pinnock, H., Sheikh, A., & Wyke, S. (2011) · Patient Education and Counseling · doi:10.1016/j.pec.2011.01.025 · Cited by 138 · see citing works
Barriers and facilitators to asthma self‐management in adolescents: A systematic review of qualitative and quantitative studies
Holley, S., Morris, R. C. G., Knibb, R. C., Latter, S. M., Liossi, C., Mitchell, F., & Roberts, G. C. (2016) · Pediatric Pulmonology · doi:10.1002/ppul.23556 · Cited by 133 · see citing works
Psychiatric disorders in asthmatic outpatients
Nascimento, I., Nardi, A. E., Valença, A. M., Lopes, F. L., Mezzasalma, M. A., Nascentes, R., & Zin, W. A. (2002) · Psychiatry Research · doi:10.1016/s0165-1781(02)00029-x · Cited by 129 · see citing works
A systematic review of psychological, physical health factors, and quality of life in adult asthma
Stanescu, S., Kirby, S. E., Thomas, M., Yardley, L., & Ainsworth, B. (2019) · npj Primary Care Respiratory Medicine · doi:10.1038/s41533-019-0149-3 · Cited by 124 · see citing works
"I don't eat a hamburger and large chips every day!" A qualitative study of the impact of public health messages about obesity on obese adults
Lewis, S. C., Thomas, S. L., Hyde, J., Castle, D. J., Blood, R. W., & Komesaroff, P. A. (2010) · BMC Public Health · doi:10.1186/1471-2458-10-309 · Cited by 119 · see citing works
The views of young children in the UK about obesity, body size, shape and weight: a systematic review
Rees, R., Oliver, K., Woodman, J., & Thomas, J. (2011) · BMC Public Health · doi:10.1186/1471-2458-11-188 · Cited by 109 · see citing works
Asthma and mental disorders in primary care
Goodwin, R. D., Olfson, M., Shea, S., Lantigua, R., Carrasquilo, O., Gameroff, M. J., & Weissman, M. M. (2003) · General Hospital Psychiatry · doi:10.1016/s0163-8343(03)00071-9 · Cited by 104 · see citing works
Prevalence of mood disorders and relationship to asthma severity in patients at an inner-city asthma clinic
Nejtek, V. A., Brown, E. S., Khan, D. A., Moore, J. J., Wagner, J. V., & Perantie, D. C. (2001) · Annals of Allergy Asthma & Immunology · doi:10.1016/s1081-1206(10)62206-5 · Cited by 83 · see citing works
Factors affecting adherence to asthma treatment in an international cohort of young and middle-aged adults
Corsico, A. G., Cazzoletti, L., de Marco, R., Janson, C., Jarvis, D., Zoia, M. C., Bugiani, M., Accordini, S., Villani, S., Marinoni, A., et al. (2007) · Respiratory Medicine · doi:10.1016/j.rmed.2006.11.012 · Cited by 82 · see citing works
Treating asthma with a self-management model of illness behaviour in an Australian community pharmacy setting
Smith, L. D., Bosnic-Anticevich, S. Z., Mitchell, B., Saini, B., Krass, I., & Armour, C. L. (2007) · Social Science & Medicine · doi:10.1016/j.socscimed.2006.11.006 · Cited by 80 · see citing works
Self-citation
Family Support and Asthma Outcomes in Adolescents: Barriers to Adherence as a Mediator
Rhee, H., Belyea, M. J., & Brasch, J. D. (2010) · Journal of Adolescent Health · doi:10.1016/j.jadohealth.2010.03.009 · Cited by 76 · see citing works
The status of asthma control in the U.S. adult population
Fuhlbrigge, A. L., Reed, M. L., Stempel, D. A., Ortega, H. G., Fanning, K. M., & Stanford, R. H. (2009) · Allergy and Asthma Proceedings · doi:10.2500/aap.2009.30.3276 · Cited by 74 · see citing works
Diabetes Medication Assistance Service: The pharmacist's role in supporting patient self-management of type 2 diabetes (T2DM) in Australia
Mitchell, B., Armour, C. L., Lee, M., Song, Y. J. C., Stewart, K., Peterson, G. M., Hughes, J., Smith, L. D., & Krass, I. (2011) · Patient Education and Counseling · doi:10.1016/j.pec.2011.04.027 · Cited by 72 · see citing works
Self-citation
Bringing self-management into clinical view: a qualitative study of long-term condition management in primary care consultations
Blakeman, T., Bower, P., Reeves, D., & Chew-Graham, C. A. (2010) · Chronic Illness · doi:10.1177/1742395309358333 · Cited by 65 · see citing works
Patients' views of the burden of asthma: a qualitative study
Goeman, D. P., Thien, F. C. K., Abramson, M. J., Douglass, J. A., Aroni, R. A., Sawyer, S. M., & Stewart, K. (2002) · Medical Journal of Australia · doi:10.5694/j.1326-5377.2002.tb04786.x · Cited by 64 · see citing works
Reasons for Delay in Seeking Treatment for Acute Asthma: The Patient's Perspective
Janson, S. L., & Becker, G. (1998) · Journal of Asthma · doi:10.3109/02770909809048951 · Cited by 62 · see citing works
"The solution needs to be complex."Obese adults' attitudes about the effectiveness of individual and population based interventions for obesity
Thomas, S. L., Lewis, S. C., Hyde, J., Castle, D. J., & Komesaroff, P. A. (2010) · BMC Public Health · doi:10.1186/1471-2458-10-420 · Cited by 58 · see citing works
Age-Specific Factors Influencing Asthma Management by Older Adults
Baptist, A. P., Deol, B. B., Reddy, R. C., Nelson, B. W., & Clark, N. M. (2009) · Qualitative Health Research · doi:10.1177/1049732309355288 · Cited by 56 · see citing works
Comparison of expectations of physicians and patients with rheumatoid arthritis for rheumatology clinic visits: a pilot, multicenter, international study
Wen, H., Schumacher, H. R., Li, X., Gu, J., Ma, L., Hua, W., Yokogawa, N., Shiroto, K., Baker, J. F., Dinnella, J. E., et al. (2012) · International Journal of Rheumatic Diseases · doi:10.1111/j.1756-185x.2012.01752.x · Cited by 56 · see citing works
Impact of asthma on self-reported health status and quality of life: a population based study of Australians aged 18-64
Ampon, R. D. (2005) · Thorax · doi:10.1136/thx.2005.040311 · Cited by 55 · see citing works
Perceptions of asthma in South Asians and their views on educational materials and self-management plans: a qualitative study
Hussein, S., & Partridge, M. R. (2002) · Patient Education and Counseling · doi:10.1016/s0738-3991(02)00033-2 · Cited by 53 · see citing works
Association Between Generalized Anxiety Disorder and Asthma Morbidity
Lavoie, K., Boudreau, M., Plourde, A., Campbell, T. S., & Bacon, S. (2011) · Psychosomatic Medicine · doi:10.1097/psy.0b013e318222e9fc · Cited by 50 · see citing works
Relationships of asthma knowledge, self-management, and social support in African American adolescents with asthma
Sin, M., Kang, D.-H., & Weaver, M. T. (2004) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2004.06.013 · Cited by 48 · see citing works
Understanding the self-care strategies of patients with asthma
Loignon, C., Bedos, C. P., Sévigny, R., & Leduc, N. (2008) · Patient Education and Counseling · doi:10.1016/j.pec.2008.10.008 · Cited by 44 · see citing works
The dilemma of seeking urgent care: Asthma episodes and emergency service use
Becker, G., JANSON-BJERKLIE, S., Benner, P., Slobin, K., & Ferketich, S. L. (1993) · Social Science & Medicine · doi:10.1016/0277-9536(93)90262-3 · Cited by 41 · see citing works
Balance, Balancing, and Health
Lipworth, W. L., Hooker, C., & Carter, S. M. (2011) · Qualitative Health Research · doi:10.1177/1049732311399781 · Cited by 40 · see citing works
Healthcare professional versus patient goal setting in intermittent allergic rhinitis
O’Connor, J., Seeto, C., Saini, B., Bosnic-Anticevich, S. Z., Krass, I., Armour, C. L., & Smith, L. D. (2007) · Patient Education and Counseling · doi:10.1016/j.pec.2007.09.004 · Cited by 39 · see citing works
Self-citation
Asthma self management in adults: A review of current literature
Andrews, K. L., Jones, S. C., & Mullan, J. (2013) · Collegian Journal of the Royal College of Nursing Australia · doi:10.1016/j.colegn.2012.12.005 · Cited by 39 · see citing works
Back for more: a qualitative study of emergency department reattendance for asthma
Goeman, D., Thien, F. C. K., Douglass, J. A., Aroni, R., Abramson, M. J., Sawyer, S. M., & Stewart, K. (2004) · The Medical Journal of Australia · doi:10.5694/j.1326-5377.2004.tb05831.x · Cited by 38 · see citing works
The contribution of goal specificity to goal achievement in collaborative goal setting for the management of asthma
Smith, L. D., Alles, M. C., Lemay, K. S., Reddel, H. K., Saini, B., Bosnic-Anticevich, S. Z., Emmerton, L., Stewart, K., Burton, D., Krass, I., et al. (2013) · Research in Social and Administrative Pharmacy · doi:10.1016/j.sapharm.2013.02.002 · Cited by 30 · see citing works
Self-citation
Intractable or Uncontrolled Asthma: Psychosocial Factors
Meijer, A. M., Griffioen, R. W., Nierop, J. C. V., & Oppenheimer, L. (1995) · Journal of Asthma · doi:10.3109/02770909509044834 · Cited by 30 · see citing works
Lay versus professional motivation for asthma treatment: a cross-sectional, qualitative study in a single Glasgow general practice
Steven, K. (2002) · Family Practice · doi:10.1093/fampra/19.2.172 · Cited by 30 · see citing works
‘You have to learn to live with it’: a qualitative and quantitative study of older people with asthma
Goeman, D., O’Hehir, R. E., Jenkins, C. R., Scharf, S., & Douglass, J. A. (2007) · The Clinical Respiratory Journal · doi:10.1111/j.1752-699x.2007.00033.x · Cited by 29 · see citing works
Mike Bury: Biographical Disruption and Long-Term and Other Health Conditions
Locock, L., & Ziébland, S. (2015) · Palgrave Macmillan UK eBooks · doi:10.1057/9781137355621_37 · Cited by 29 · see citing works
Self-citation
“No Other Choice”: Reasons for Emergency Department Utilization Among Urban Adults With Acute Asthma
Lawson, C. C., Carroll, K., Gonzalez, R., Priolo, C., Apter, A. J., & Rhodes, K. V. (2014) · Academic Emergency Medicine · doi:10.1111/acem.12285 · Cited by 25 · see citing works
Young, African American adults with asthma: what matters to them?
Speck, A. L., Nelson, B. W., Jefferson, S. O., & Baptist, A. P. (2013) · Annals of Allergy Asthma & Immunology · doi:10.1016/j.anai.2013.10.016 · Cited by 24 · see citing works
An integrated operational definition and conceptual model of asthma self-management in teens
Mammen, J. R., Rhee, H., Norton, S. A., Butz, A. M., Halterman, J. S., & Arcoleo, K. J. (2018) · Journal of Asthma · doi:10.1080/02770903.2017.1418888 · Cited by 23 · see citing works
Taking part: Engaging knowledge on health in clinical encounters
Nunes, J. A., Ferreira, P., & Queirós, F. (2014) · Social Science & Medicine · doi:10.1016/j.socscimed.2014.07.017 · Cited by 22 · see citing works
Articulation of Asthma and Its Care Among Low-Income Emergency Care Recipients
Munro, J., Haire-Joshu, D. L., Fisher, E. B., & Wedner, H. J. (1996) · Journal of Asthma · doi:10.3109/02770909609055372 · Cited by 22 · see citing works
The role of non-clinicians in a goal setting model for the management of allergic rhinitis in community pharmacy settings
Smith, L. D., Nguyen, T., Seeto, C., Saini, B., & Brown, L. (2010) · Patient Education and Counseling · doi:10.1016/j.pec.2010.10.003 · Cited by 22 · see citing works
Self-citation
BEACH program update.
Britt, H. C., & Miller, G. C. (2015) · PubMed · Cited by 21 · see citing works
Quality of life with asthma: the existential and the aesthetic
Drummond, N. (2000) · Sociology of Health & Illness · doi:10.1111/1467-9566.00201 · Cited by 20 · see citing works
With an attack I associate it more with going into hospital: Understandings of asthma and psychosocial stressors; are they related to use of services?
Jones, I. R., Ahmed, N., Kelly, M. J., Bothamley, G. H., Rajakulasingam, R. K., Victor, C. R., O’Malley, A., & Griffiths, C. J. (2007) · Social Science & Medicine · doi:10.1016/j.socscimed.2007.09.012 · Cited by 20 · see citing works
Choosing to attend an asthma doctor: a qualitative study in adults attending emergency departments
Douglass, J. A. (2004) · Family Practice · doi:10.1093/fampra/cmh211 · Cited by 19 · see citing works
Asthma from the patient’s perspective
Al‐Kalemji, A., Johannesen, H., Petersen, K. D., Sherson, D., & Bælum, J. (2013) · Journal of Asthma · doi:10.3109/02770903.2013.860162 · Cited by 18 · see citing works
The private struggle of mothers with asthma: a gender perspective on illness management
van Mens-Verhulst, J., Radtke, H. L., & Spence, C. D. (2003) · Patient Education and Counseling · doi:10.1016/s0738-3991(03)00200-3 · Cited by 18 · see citing works
Living with Asthma: An Analysis of Patients' Perspectives
Öncel, S., Özer, Z., & Yılmaz, M. (2011) · Journal of Asthma · doi:10.3109/02770903.2011.642047 · Cited by 17 · see citing works
Self management beliefs: Attitudes and behaviour of adults with severe life threatening asthma requiring an admission to hospital
Donald, K. J., McBurney, H., & Browning, C. J. (2005) · PubMed · doi:10.26181/22200697 · Cited by 16 · see citing works
‘It’s a powerful message’: a qualitative study of Australian healthcare professionals’ perceptions of asthma through the medium of drawings
Cheung, M. M. Y., Saini, B., & Smith, L. D. (2019) · BMJ Open · doi:10.1136/bmjopen-2018-027699 · Cited by 14 · see citing works
Self-citation
Asthma management in rural New South Wales: Perceptions of health care professionals and people with asthma
Cvetkovski, B., Armour, C. L., & Bosnic-Anticevich, S. Z. (2009) · Australian Journal of Rural Health · doi:10.1111/j.1440-1584.2009.01071.x · Cited by 12 · see citing works
Intergenerational learning about keeping health: a qualitative regional Australian study
Taylor, J., Price, K., Braunack‐Mayer, A., Haren, M. T., & Mcdermott, R. (2012) · Health Promotion International · doi:10.1093/heapro/das068 · Cited by 5 · see citing works
Alternative and complementary therapies
REES, M. C. P. (2008) · Cambridge University Press eBooks · doi:10.1017/cbo9781139696937.007 · Cited by 1 · see citing works
The messages for health professionals
Clark, R. (2020) · CRC Press eBooks · doi:10.1201/9781315376240-16 · Cited by 1 · see citing works
RELATIONSHIPS WITH FAMILY AND FRIENDS
(2010) · Liverpool University Press eBooks · doi:10.2307/j.ctv3029rt5.17 · Cited by 1 · see citing works
Early Signs and Symptoms
(2015) · State University of New York Press eBooks · doi:10.2307/jj.18377241.12 · Cited by 1 · see citing works

Flagged first, then by citations

3 of the 88 references couldn’t be matched to a known paper.

Research works printed but not linked: 24

[14]Kahawati C, Smith L, Armour C. Goal setting by people with asthma ‐ what do they want? Aust Pharm. 2008; 27: 674‐ 678.
[28]Health Experiences Research Group. Asthma Topics. Oxford: DIPEx; 2015.
[29]Health Experiences Research Group. What is Asthma? Oxford: DIPEx; 2015.
[31]Health Experiences Research Group. Childhood Onset. Oxford: DIPEx; 2015.
[32]Health Experiences Research Group. Adult Onset. Oxford: DIPEx; 2015.
[33]Health Experiences Research Group. Triggers. Oxford: DIPEx; 2015.
[34]Health Experiences Research Group. What Asthma Feels Like. Oxford: DIPEx; 2015.
[35]Health Experiences Research Group. Changing Symptoms Over Time. Oxford: DIPEx; 2015.
[36]Health Experiences Research Group. Being Diagnosed With Asthma. Oxford: DIPEx; 2015.
[37]Health Experiences Research Group. Medication and Treatment‐ Inhalers. Oxford: DIPEx; 2015.
[38]Health Experiences Research Group. Medication and Treatment‐ Other Treatments. Oxford: DIPEx; 2015.
[40]Health Experiences Research Group. Managing Asthma‐Reviews and Action Plans. Oxford: DIPEx; 2015.
[41]Health Experiences Research Group. Managing Asthma‐Adjusting Medication and Other Self Care Strategies. Oxford: DIPEx; 2015.
[42]Health Experiences Research Group. Asthma Attack and Emergencies. Oxford: DIPEx; 2015.
[43]Health Experiences Research Group. Dealing With Health Professionals. Oxford: DIPEx; 2015.
[44]Health Experiences Research Group. Remembering to Take Medication. Oxford: DIPEx; 2015.
[45]Health Experiences Research Group. Finding Information About Asthma. Oxford: DIPEx; 2015.
[46]Health Experiences Research Group. Emotions and Coping. Oxford: DIPEx; 2015.
[47]Health Experiences Research Group. Asthma and the Workplace. Oxford: DIPEx; 2015.
[48]Health Experiences Research Group. Finances and Benefits. Oxford: DIPEx; 2015.
[49]Health Experiences Research Group. Exercise, Diet, Weight and Other Lifestyle Issues. Oxford: DIPEx; 2015.
[50]Health Experiences Research Group. Support and Support Groups. Oxford: DIPEx; 2015.
[52]Health Experiences Research Group. Advice to Others. Oxford: DIPEx; 2015.
[53]Health Experiences Research Group. Messages to Health Professionals. Oxford: DIPEx; 2015.

Sorted by citations

A systematic review of psychological, physical health factors, and quality of life in adult asthma
Stanescu, S., Kirby, S. E., Thomas, M., Yardley, L., & Ainsworth, B. (2019) · npj Primary Care Respiratory Medicine · doi:10.1038/s41533-019-0149-3 · Cited by 124 · see citing works
“…I've said I wish I was dead, you'd be better off without me”: A systematic review of people's experiences of living with severe asthma
Eassey, D., Reddel, H. K., Foster, J. M., Kirkpatrick, S., Locock, L., Ryan, K., & Smith, L. D. (2018) · Journal of Asthma · doi:10.1080/02770903.2018.1452034 · Cited by 48 · see citing works
Self-citation
Patient preferences for asthma management: a qualitative study
Baggott, C., Chan, A. H. Y., Hurford, S., Fingleton, J., Beasley, R. W., Harwood, M. L. N., Reddel, H. K., & Levack, W. (2020) · BMJ Open · doi:10.1136/bmjopen-2020-037491 · Cited by 43 · see citing works
Self-citation
Update in Pediatric Asthma: Selected Issues
Azmeh, R., Greydanus, D. E., Agana, M. G., Dickson, C. A., Patel, D. R., Ischander, M. M., & Lloyd, R. D. (2019) · Disease-a-Month · doi:10.1016/j.disamonth.2019.100886 · Cited by 33 · see citing works
An integrated operational definition and conceptual model of asthma self-management in teens
Mammen, J. R., Rhee, H., Norton, S. A., Butz, A. M., Halterman, J. S., & Arcoleo, K. J. (2018) · Journal of Asthma · doi:10.1080/02770903.2017.1418888 · Cited by 23 · see citing works
A mixed‐methods analysis of younger adults' perceptions of asthma, self‐management, and preventive care: "This isn't helping me none"
Mammen, J., Turgeon, K., Philibert, A., Schoonmaker, J. D., Java, J., Halterman, J., Berliant, M. N., Crowley, A., Reznik, M., Feldman, J. M., et al. (2020) · Clinical and Experimental Allergy · doi:10.1111/cea.13751 · Cited by 9 · see citing works
The associations between personality traits and mental health in people with and without asthma
Kang, W. (2023) · Journal of Affective Disorders · doi:10.1016/j.jad.2023.04.022 · Cited by 14 · see citing works
‘It’s a powerful message’: a qualitative study of Australian healthcare professionals’ perceptions of asthma through the medium of drawings
Cheung, M. M. Y., Saini, B., & Smith, L. D. (2019) · BMJ Open · doi:10.1136/bmjopen-2018-027699 · Cited by 14 · see citing works
Self-citation
Psychological flexibility, cognitive emotion regulation and mental health outcomes among patients with asthma in Pakistan
Hussain, S., Khawar, R., Amin, R., Hamdani, A. R., & Majeed, A. (2023) · PeerJ · doi:10.7717/peerj.15506 · Cited by 12 · see citing works
Use of Health Related Quality of Life in Clinical Trials for Severe Asthma: A Systematic Review
Lanario, J. W., & Burns, L. (2021) · Journal of Asthma and Allergy · doi:10.2147/jaa.s320817 · Cited by 10 · see citing works
Patients’ drawings of their asthma: adding qualitative specificity to a quantitative measure of illness perceptions
Cheung, M. M. Y., Saini, B., & Smith, L. D. (2018) · Journal of Asthma · doi:10.1080/02770903.2018.1541358 · Cited by 5 · see citing works
Self-citation
Exploring quality of life and satisfaction with treatment in asthmatic patients receiving dry powder inhalers: a multinational survey
Contoli, M., Barile, S., Nudo, E., Guastalla, D., & Braido, F. (2021) · Journal of Asthma · doi:10.1080/02770903.2021.1923739 · Cited by 4 · see citing works
“Asthma is a very bully disease” – patient experiences of living with chronic respiratory diseases in Cape Town, South Africa
Stolbrink, M., Streicher, C., Mcimeli, K., Allwood, B., Mortimer, K. J., & Chinouya, M. J. (2023) · International Journal for Equity in Health · doi:10.1186/s12939-023-02002-5 · Cited by 4 · see citing works
Preferences for support in managing symptoms of an asthma flare-up: a pilot study of a discrete choice experiment
O’Connell, S., Queally, M., Savage, E., Murphy, D. M., & Carthy, V. J. C. M. (2022) · Journal of Asthma · doi:10.1080/02770903.2022.2054429 · Cited by 2 · see citing works
BREATHEIN: Better understanding obstructive REspiratory Airway disease Treatment and HEalth: a nationwide INvestigative survey in Denmark—a study protocol
Hansen, K. K., Pedersen, L. L., Løkke, A., & Hilberg, O. (2025) · BMJ Open · doi:10.1136/bmjopen-2025-099447 · Cited by 1 · see citing works
Emerging Concepts in Evidence-Based Asthma Management
Reddel, H. K. (2018) · Seminars in Respiratory and Critical Care Medicine · doi:10.1055/s-0037-1606567 · Cited by 1 · see citing works
Self-citation
Medications Used in Asthma Management
Mitchell, I., & Govias, G. (2021) · Springer eBooks · doi:10.1007/978-3-030-77896-5_6 · Cited by 1 · see citing works
The interaction between grass pollen allergen and respiratory virus on the immune response in allergic rhinitis and asthma
Kailaivasan, T. H. (2021) · Queensland University of Technology · doi:10.5204/thesis.eprints.211141
Re-imagining Self-Management
Rodham, K. (2020) · Springer eBooks · doi:10.1007/978-3-030-48969-4_5
Investigation of two treatment regimens in adults with mild asthma
Baggott, C. (2020) · doi:10.26686/wgtn.17149109
Peer Review #2 of "Psychological flexibility, cognitive emotion regulation and mental health outcomes among patients with asthma in Pakistan (v0.1)"
(2023) · PeerJ · doi:10.7287/peerj.15506v0.1/reviews/2
Peer Review #1 of "Psychological flexibility, cognitive emotion regulation and mental health outcomes among patients with asthma in Pakistan (v0.1)"
(2023) · PeerJ · doi:10.7287/peerj.15506v0.1/reviews/1
Peer Review #1 of "Psychological flexibility, cognitive emotion regulation and mental health outcomes among patients with asthma in Pakistan (v0.2)"
(2023) · PeerJ · doi:10.7287/peerj.15506v0.2/reviews/1
Peer Review #2 of "Psychological flexibility, cognitive emotion regulation and mental health outcomes among patients with asthma in Pakistan (v0.2)"
(2023) · PeerJ · doi:10.7287/peerj.15506v0.2/reviews/2
Middle-Range Theory of Asthma Self-Management
Hall, A. L., MacDonell, K. K., & Vallerand, A. H. (2025) · Nursing Science Quarterly · doi:10.1177/08943184251374542
Additional file 1 of “Asthma is a very bully disease” – patient experiences of living with chronic respiratory diseases in Cape Town, South Africa
Stolbrink, M., Streicher, C., Mcimeli, K., Allwood, B., Mortimer, K., & Chinouya, M. J. (2023) · Figshare · doi:10.6084/m9.figshare.24144114
Latent profiles of illness and treatment perceptions and their associations with adherence and asthma control
Lugo-González, I. V., Pérez-Bautista, Y. Y., Guillén-Díaz-Barriga, C., Erazo, L. R., & Fernández-Vega, M. (2026) · Journal of Asthma · doi:10.1080/02770903.2026.2721163

“…I've said I wish I was dead, you'd be better off without me”: A systematic review of people's experiences of living with severe asthma
Eassey, D., Reddel, H. K., Foster, J. M., Kirkpatrick, S., Locock, L., Ryan, K., & Smith, L. D. (2018) · Journal of Asthma · doi:10.1080/02770903.2018.1452034 · Cited by 48 · see citing works
Self-citation
Asthma from the patient’s perspective
Al‐Kalemji, A., Johannesen, H., Petersen, K. D., Sherson, D., & Bælum, J. (2013) · Journal of Asthma · doi:10.3109/02770903.2013.860162 · Cited by 18 · see citing works
People's experiences of living with asthma : A literature review
Jansäter, A., & Milentijevic, M. (2024) · KTH Publication Database DiVA (KTH Royal Institute of Technology)
Perceptions and practices of adults with asthma: a social cognitive analysis
(20121906), K. A., Jones, S. C., & Mullan, J. (2013) · Research Online (University of Wollongong)
Perceptions and Practices of Adults With Asthma
Andrews, K. L., Jones, S. C., & Mullan, J. (2012) · Journal of Asthma & Allergy Educators · doi:10.1177/2150129712454882 · Cited by 14 · see citing works

Authors: Pickles, K., Eassey, D., Reddel, H. K., Locock, L., Kirkpatrick, S., & Smith, L.
Affiliations: The University of Sydney (AU)
University of Oxford (GB)
Corresponding author: Smith, Lorraine
ORCID: Pickles, Kristen
Eassey, Daniela
Reddel, Helen K.
Locock, Louise
Smith, Lorraine
Venue: Health Expectations
Publisher: Wiley
Published: 2017-08-02
Volume: 21
Issue: 1
Pages: 23-40
ISSN: 1369-6513 (ISSN-L)
1369-7625
DOI: 10.1111/hex.12605
PMC: PMC5750696
OpenAlex: W2740361797
Cited by: 28
References: 88
Citations by year: 2026: 1 · 2025: 2 · 2023: 8 · 2022: 1 · 2021: 4 · 2020: 4 · 2019: 3 · 2018: 4 · 2017: 1
FWCI: 0.40
Type: journal article
Language: en
Open access: gold
doi.org
Licence: cc-by
creativecommons.org/licenses/by/4.0/ (vor)
Locations: Health Expectations (publishedVersion, cc-by)
PubMed Central (publishedVersion, cc-by)
PubMed (publishedVersion)
Aberdeen University Research Archive (Aberdeen University) (submittedVersion)
Funders: Centre for Research Excellence in Severe Asthma, Australia
NIHR Oxford Biomedical Research Centre
Topics: Health Sciences › Medicine › Physiology › Asthma and respiratory diseases
Health Sciences › Health Professions › Pharmacy › Nursing care and research
Health Sciences › Medicine › Pulmonary and Respiratory Medicine › Chronic Obstructive Pulmonary Disease (COPD) Research
Keywords: asthma, lived experience, patient experience, self-management, chronic disease, social support, emotional burden, patient-centered care, adult asthma
MeSH terms: Self-Management, Asthma, Chronic Disease, Health Personnel, Humans, Quality of Life, Social Support, Qualitative Research

About these checks

Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.

Statistics and arithmetic are recomputed, not judged.

Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.

What counts as a claim ›How we measure confidence ›How we check this ›

Are you an author, or do you see a problem with this page? Request a review

“This illness diminishes me. What it does is like theft”: A qualitative meta‐synthesis of people's experiences of living with asthma

Abstract

Integrity signals

Claims the paper makes

Claims other papers make about this one

Self-check

Cites

Cited by

Related

Record

About these checks