Interviews with parents of adolescents with intellectual and developmental disabilities in a weight management study
Abstract
Background: Adolescents and young adults with intellectual and developmental disabilities are at risk of obesity. Parents influence their diet and physical activity behaviours and therefore, can play important roles in weight management. The aims of this qualitative study were to explore parents' experiences assisting their son or daughter to participate in a weight management study. Methods: Interviews were completed at 6 months with 27 parents whose adolescent or young adult had completed the weight loss portion of an 18‐month weight management study. Interviews were recorded, transcribed and thematic analysis performed. Results: Parents shared insights about how well program components worked with their family, and what strategies worked best to adopt healthier dietary choices and become more physically active. The importance of meeting regularly with someone outside the family to encourage healthier habits was stressed. Conclusions: Future weight management studies should involve parents and their adolescents to help tailor strategies and adapt intervention approaches.
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Structured, hands-on cooking interventions can enhance confidence, nutrition knowledge, and practical skills among adults with ID.
“Preliminary studies suggest that structured, hands-on cooking interventions can enhance confidence, nutrition knowledge, and practical skills among adults with ID24 25, though their effects on long-term weight outcomes have not been evaluated.”
From A cooking skills intervention for long-term weight loss in young adults with intellectual disabilities: Rationale and design for a randomized trial (2026) · cites this paper as [25]
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Ptomey, L. T., Danon, J. C., Catley, D., Washburn, R. A., Bodde, A., Diaz, F. J., Helsel, B. C., Rice, A. M., Sherman, J. R., Koester, M., et al. (2026) · Contemporary Clinical Trials · doi:10.1016/j.cct.2026.108380
Self-citation
- Authors
- Gibson, C. A., Sullivan, D. K., Ptomey, L. T., Rice, A. M., & Donnelly, J. E.
- Affiliations
- Department of Internal Medicine University of Kansas Medical Center Kansas City Kansas USA
- Department of Dietetics and Nutrition University of Kansas Medical Center Kansas City Kansas USA
- Department of Internal Medicine, Division of Physical Activity and Weight Management University of Kansas Medical Center Kansas City Kansas USA
- Venue
- Journal of Applied Research in Intellectual Disabilities
- Publisher
- Wiley
- Published
- 2022-11-30
- Volume
- 36
- Issue
- 2
- Pages
- 289-299
- ISSN
- 1360-2322
- 1468-3148
- Cited by
- 1
- References
- 1
- Language
- en
- Funders
- Eunice Kennedy Shriver National Institute of Child Health and Human Development (HD079642)
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