The DOI matches its Crossref record; 16 of the 16 references it cites were found in a registry or an index.
Women's experiences of endometriosis: a systematic review and synthesis of qualitative research
Open accessAbstract
Background: Endometriosis is experienced by approximately 10% of women worldwide; it is associated with significant burden on the woman, her family, and society. Aim: The aim of this systematic review was to synthesise the available qualitative literature to increase our understanding of the effects of endometriosis on women's lives. Methods: Seven social science and medical databases (PubMed, Medline, CINAHL, Web of Science, ScienceDirect, PsycInfo and Embase) and Google Scholar were searched for peer-reviewed papers published in English of research using qualitative methods. Results and conclusions: Eighteen papers reporting 11 studies met the inclusion criteria. Participant numbers ranged from 15 to 61 women, all recruited from support groups and specialised clinics. Studies were conducted in high-income, Anglophone countries. The review identified four prominent themes: Life, Symptoms, Medical Experience, and Self. Women's reported experiences demonstrated opportunities for enhancing current clinical practice, including improved education about endometriosis for health professionals, the need to take a comprehensive approach to pain treatment, and initiating appropriate discussion of the impact on sex life. Significant evidence gaps were identified: there was inadequate investigation of women's experiences of endometriosis-associated infertility and of the impact of reduced social participation on perceived support and emotional well-being, and limited or no inclusion of the experiences of adolescent and post-menopausal women, women from low socioeconomic backgrounds, women who do not identify as Caucasian, and non-heterosexual women.
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Cites
Using thematic analysis in psychology
Braun, V., & Clarke, V. (2006) · Qualitative Research in Psychology · doi:10.1191/1478088706qp063oa · Cited by 194,414
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Endometriosis: epidemiology and aetiological factors
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De Graaff, A. A., D'Hooghe, T. M., Dunselman, G. A. J., Dirksen, C. D., Hummelshoj, L., WERF EndoCost Consortium, Simoens, S., Bokor, A., Brandes, I., Brodszky, V., et al. (2013) · Human Reproduction · doi:10.1093/humrep/det284 · Cited by 473
Depressive symptoms, anxiety, and quality of life in women with pelvic endometriosis
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The impact of endometriosis upon quality of life: a qualitative analysis
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Cited by
Qualitative research methods: when to use them and how to judge them
Hammarberg, K., Kirkman, M., & de Lacey, S. (2016) · Human Reproduction · doi:10.1093/humrep/dev334 · Cited by 1,259
Self-citationDella Corte, L., Di Filippo, C., Gabrielli, O., Reppuccia, S., La Rosa, V. L., Ragusa, R., Fichera, M., Commodari, E., Bifulco, G., & Giampaolino, P. (2020) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph17134683 · Cited by 387
Prevalence and incidence of endometriosis in Australian women: a data linkage cohort study
Rowlands, I., Abbott, J., Montgomery, G., Hockey, R., Rogers, P., & Mishra, G. (2021) · BJOG: An International Journal of Obstetrics & Gynaecology · doi:10.1111/1471-0528.16447 · Cited by 230
Armour, M., Sinclair, J., Ng, C. H. M., Hyman, M. S., Lawson, K., Smith, C. A., & Abbott, J. (2020) · Scientific Reports · doi:10.1038/s41598-020-73389-2 · Cited by 149
Bush, D., Brick, E., East, M. C., & Johnson, N. (2017) · Australian and New Zealand Journal of Obstetrics and Gynaecology · doi:10.1111/ajo.12614 · Cited by 70
Metadata
- Authors
- Young, K., Fisher, J., & Kirkman, M.
- Venue
- Journal of Family Planning and Reproductive Health Care
- Publisher
- BMJ
- Published
- 2014-09-02
- Volume
- 41
- Issue
- 3
- Pages
- 225-234
- ISSN
- 1471-1893 (ISSN-L)
- 2045-2098
- OpenAlex
- W2151338363
- Cited by
- 238
- References
- 16
- FWCI
- 0.77
- Type
- journal article
- Language
- en
- Open access
- bronze
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