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Cited by 56Disability Rights and RepresentationParkinson's Disease Mechanisms and TreatmentsDementia and Cognitive Impairment Research

Reformulating Psychological Difficulties in People with Parkinson’s Disease: The Potential of a Social Relational Approach to Disablism

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Simpson, Jane, McMillan, Helen, Reeve, Donna·2013·Parkinson's Disease
DOI 10.1155/2013/608562PMC PMC3755389
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Abstract

Research investigating the psychological difficulties experienced by people with Parkinson's disease (PD) is dominated by individualistic neurobiological and psychological perspectives. Therefore, this opinion paper draws on a reformulation of the social model of disability, Thomas' (1999) and (2007) social relational approach to disablism, to offer an alternative way of conceptualising psychological difficulties experienced by people with PD. This opinion paper explores the ways in which socially imposed restrictions and stigma may contribute to psychological difficulties by using Thomas' (2007) concept of psychoemotional disablism. By using the lens of psychoemotional disablism, this paper demonstrates that people with PD can be exposed to stigmatising attitudes and interactions which could contribute to restrictions, feelings of shame, and psychological difficulties such as depression. Accordingly, it is argued that further attention to the link between psychological difficulties and social dimensions of disablism in PD is needed in both research arenas and clinical practice to broaden understandings and interventions for people with PD.

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  • People with PD can experience a wide range of psychological difficulties, including anxiety, depression, apathy, impulse control disorders, and more rarely psychosis.

    “people with PD can experience a wide range of psychological difficulties, including anxiety, depression, apathy, impulse control disorders, and more rarely psychosis (ffytche et al., 2017; Simpson, McMillan, & Reeve, 2013).”

    From Psychological interventions for people with Parkinson's disease in the early 2020s: Where do we stand? (2021) · cites this paper as Simpson, McMillan, & Reeve, 2013

    The Introduction lists depression, anxiety, apathy, psychosis, and problems with impulse control as psychological difficulties people with PD can experience. It does not say that psychosis is rarer than the other difficulties, so the frequency qualifier is unsupported by this source. (LLM, conf=0.88)

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Research works printed but not linked: 19

  1. [19]de Ridder D Schreurs K Bensing J The relative benefits of being optimistic: optimism as a coping resource in multiple sclerosis and Parkinson’s disease British Journal of Health Psychology 2000 5 2 141 155 2-s2.0-0034055833
  2. [20]Goodley D Watson N Roulstone A Thomas C The psychology of disability Routledge Handbook of Disability Studies 2012 London, UK Routledge 310 324
  3. [24]Thomas C Female Forms: Experiencing and Understanding Disability 1999 Buckingham, UK Open University Press
  4. [28]Barnes C Watson N Roulstone A Thomas C Understanding the social model of disability: past, present and future Routledge Handbook of Disability Studies 2012 London, UK Routledge 12 29
  5. [31]Reeve D Barnes C Mercer G Psycho-emotional dimensions of disability and the social model Implementing the Social Model of Disability: Theory and Research 2004 Leeds, UK The Disability Press 83 100
  6. [32]Reeve D Watson N Roulstone A Thomas C Psycho-emotional disablism: the missing link? Routledge Handbook of Disability Studies 2012 London, UK Routledge 78 93
  7. [33]Reeve D Anderson J Sapey B Spandler H Psycho-emotional disablism in the lives of people experiencing mental distress Distress or Disability? Proceedings of a Symposium Held at Lancaster University 2011 Lancaster, UK Lancaster University: Centre for Disability Research (CeDR) 24 29
  8. [36]Kitwood T Dementia Reconsidered 1997 Berkshire, UK Open University Press
  9. [37]Beresford P Thinking about “mental health”: towards a social model Journal of Mental Health 2002 11 6 581 584 2-s2.0-0036945821
  10. [39]Ferrie J The psycho-emotional impact of impairment effects: where chronic illness meets disability studies Paper Presented at a Symposium Held at Lancaster University November 2011 Lancaster, UK Lancaster University: Centre for Disability Research (CeDR)
  11. [41]Quackenbush N Speaking of—and as—stigma: performativity and Parkinson’s in the rhetoric of Michael J. Fox. Disability Studies Quarterly 2011 31 3 p. 12
  12. [51]Benharoch J Wiseman T Participation in occupations: some experiences of people with Parkinson’s disease British Journal of Occupational Therapy 2004 67 9 380 387 2-s2.0-5044245995
  13. [54]Link BG Phelan JC Conceptualizing stigma Annual Review of Sociology 2001 27 363 385 2-s2.0-0035629556
  14. [61]Parkinson’s UK Press release: people with Parkinson’s subject to “intolerable” discrimination and prejudice 2013, http://forum.parkinsons.org.uk/about_us/media_centre/press_release_paw_2013.aspx
  15. [66]Moore S Knowles S Beliefs and knowledge about Parkinson’s disease E-Journal of Applied Psychology 2006 2 1 15 21
  16. [70]Hemmesch AR The stigmatizing effects of facial masking and abnormal bodily movement on older adult’s first impressions of individuals with Parkinson’s disease [Ph.D. thesis] 2011 Waltham, Mass, USA Brandeis University
  17. [73]Cuddy AJC Norton MI Fiske ST This old stereotype: the pervasiveness and persistence of the elderly stereotype Journal of Social Issues 2005 61 2 267 285 2-s2.0-21144445256
  18. [80]Paterson K Watson N Roulstone A Thomas C It’s about time! Understanding the experiences of speech impairment Routledge Handbook of Disability Studies 2012 London, UK Routledge 165 177
  19. [89]Wressle E Engstrand C Granérus A-K Living with Parkinson’s disease: elderly patients’ and relatives’ perspective on daily living Australian Occupational Therapy Journal 2007 54 2 131 139 2-s2.0-34250205635

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Authors
Simpson, J., McMillan, H., & Reeve, D.
Affiliations
  • Lancaster University (GB)
  • Pennine Care NHS Foundation Trust (GB)
Corresponding author
Simpson, Jane
ORCID
Venue
Parkinson's Disease
Publisher
Wiley
Published
2013
Volume
2013
Pages
1-8
ISSN
  • 2042-0080 (ISSN-L)
  • 2090-8083
DOI
10.1155/2013/608562
PMC
PMC3755389
OpenAlex
W2009755208
Cited by
56
References
56
Citations by year
2026: 2 · 2025: 4 · 2024: 3 · 2023: 3 · 2022: 6 · 2021: 6 · 2020: 6 · 2019: 4 · 2018: 2 · 2017: 6 · 2016: 10 · 2015: 2 · 2014: 2
FWCI
12.32
Type
journal article
Language
en
Open access
Licence
Locations
  • Parkinson s Disease (publishedVersion, cc-by)
  • Europe PMC (PubMed Central) (publishedVersion, cc-by)
  • PubMed Central (publishedVersion, cc-by)
  • PubMed (publishedVersion)
  • Lancaster EPrints (Lancaster University) (acceptedVersion)
  • DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
Topics
  • Social Sciences › Safety Research › Disability Rights and Representation
  • Health Sciences › Medicine › Neurology › Parkinson's Disease Mechanisms and Treatments
  • Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
Keywords
psychological difficulties, social model of disability, stigma, shame, depression, social restrictions

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