The development and validation of a short measure of functioning and well being for individuals with Parkinson's disease
Abstract
Parkinson's disease is a common degenerative neurological condition. A number of general health status measures exist but these may not address areas salient to specific diseases. We report here the development and validation of a short 39 item health status questionnaire for use in Parkinson's disease. Questionnaire items, generated from in-depth interviews with people with Parkinson's disease, were developed into a 65 item questionnaire. Data from a postal survey using the 65 item questionnaire were statistically analysed to produce a shorter questionnaire with 39 items and eight scales addressing different dimensions of Parkinson's disease. A second postal survey was conducted in order to assess the reliability and validity of the new 39 item questionnaire. The final questionnaire, referred to here as the 39 item Parkinson's Disease Questionnaire (PDQ-39), proved to have satisfactory internal and test-retest reliability, and construct validity in relation to other measures, reported by respondents with Parkinson's disease.
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The Parkinson's Disease Questionnaire-39 is a valid and reliable instrument for patients with Parkinson's disease.
“The PDQ-39 is a valid and reliable instrument for patients with PD [42, 43].”
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“The PDQ-39 is a valid and reliable instrument for patients with PD [42, 43].”
BackgroundMethodKim, M. Y., Jethani, P., Kang, E., Lipsey, K. L., & Foster, E. R. (2024) · Archives of Physical Medicine and Rehabilitation · doi:10.1016/j.apmr.2023.10.009 · Cited by 5 · see citing works
- Authors
- Peto, V., Jenkinson, C., Fitzpatrick, R., & Greenhall, R.
- Affiliations
- University of Oxford (GB)
- Venue
- Quality of Life Research
- Published
- 1995-06
- Volume
- 4
- Issue
- 3
- Pages
- 241-248
- ISSN
- 0962-9343 (ISSN-L)
- 1573-2649
- OpenAlex
- W2077567545
- Cited by
- 1,204
- References
- 27
- Citations by year
- 2026: 57 · 2025: 58 · 2024: 66 · 2023: 63 · 2022: 62 · 2021: 77 · 2020: 57 · 2019: 62 · 2018: 58 · 2017: 47 · 2016: 59 · 2015: 45 · 2014: 38 · 2013: 53 · 2012: 49
- FWCI
- 49.39
- Type
- journal article
- Language
- en
- Open access
- closed
- Licence
- www.springer.com/tdm (tdm)
- Locations
- Quality of Life Research (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Social Sciences › Education › Health Education and Validation
- Health Sciences › Medicine › Neurology › Parkinson's Disease Mechanisms and Treatments
- Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
- Keywords
- Parkinson's disease, PDQ-39, health status questionnaires, questionnaire development, reliability statistics, construct validity, test-retest reliability, patient-reported outcomes
- MeSH terms
- Activities of Daily Living, Adult, Aged, Aged, 80 and over, Female, Health Status, Humans, Interpersonal Relations, Male, Mental Processes, Middle Aged, Parkinson Disease, Quality of Life, Surveys and Questionnaires, Social Support, Reproducibility of Results
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