Caregiver Burden and Psychoeducational Interventions in Alzheimer’s Disease: A Review
Open accessAbstract
Background: Caring for a patient with Alzheimer’s disease (AD) is associated with poor quality of life and deteriorating health for the caregiver. Methods: This comprehensive review was performed to investigate the current literature on caregiver burden, factors affecting caregiver burden and the effectiveness of different types of intervention. Results: Successful psychoeducational interventions for caregivers have included provision of information about AD, care planning, advice about patient management and the importance of self-care, skills training to aid patient management, stress management training, and problem-solving and decision-making guidance. Conclusion: Interventions that are individually tailored to the caregiver are particularly effective at reducing caregiver burden and should be further investigated. The use of effective pharmacological treatment for the improvement and/or stabilisation of AD symptoms in the patient is also likely to improve caregiver burden.
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Prior research has shown that avoidant coping, such as thought suppression, is associated with negative outcomes in dementia caregivers.
“This is imperative as prior research has shown that avoidant coping, such as thought suppression, is associated with negative outcomes in dementia caregivers (Beinart, Weinman, Wade, & Brady, 2012;Li et al., 2012).”
From Supported Web-Based Acceptance and Commitment Therapy for Older Family Caregivers (CareACT) Compared to Usual Care. (2022) · cites this paper as Beinart, Weinman, Wade, & Brady, 2012
The Results section (Factors Contributing to Caregiver Burden; page unavailable) reports greater burden among caregivers using wishful thinking and stoicism than among those confronting problems or seeking support. This supports the broader association between coping style and negative outcomes, but the paper does not identify thought suppression specifically. (LLM, conf=0.85)
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Cites
Global prevalence of dementia: a Delphi consensus study
Ferri, C. P., Prince, M. J., Brayne, C., Brodaty, H., Fratiglioni, L., Ganguli, M., Hall, K. S., Hasegawa, K., Hendrie, H. C., Huang, Y., et al. (2005) · The Lancet · doi:10.1016/s0140-6736(05)67889-0 · Cited by 5,336 · see citing works
2013 Alzheimer's disease facts and figures
Thies, W. H., & Bleiler, L. (2013) · Alzheimer s & Dementia · doi:10.1016/j.jalz.2013.02.003 · Cited by 3,331 · see citing works
Epidemiology of Alzheimer disease
Reitz, C., Brayne, C., & Mayeux, R. (2011) · Nature Reviews Neurology · doi:10.1038/nrneurol.2011.2 · Cited by 1,675 · see citing works
Caregiver Weil-Being: A Multidimensional Examination of Family Caregivers of Demented Adults
George, L. K., & Gwyther, L. P. (1986) · The Gerontologist · doi:10.1093/geront/26.3.253 · Cited by 1,393 · see citing works
Correlates of Physical Health of Informal Caregivers: A Meta-Analysis
Pinquart, M., & Sörensen, S. (2007) · The Journals of Gerontology Series B · doi:10.1093/geronb/62.2.p126 · Cited by 1,132 · see citing works
Mandelkow, E., & Mandelkow, E. (1998) · Trends in Cell Biology · doi:10.1016/s0962-8924(98)01368-3 · Cited by 951 · see citing works
Nonpharmacological therapies in Alzheimer’s disease: a systematic review of efficacy
Olazarán, J., Reisberg, B., Clare, L., Cruz, I., Peña-Casanova, J., del Ser, T., Woods, B., Beck, C., Auer, S., Lai, C., et al. (2010) · Dementia and Geriatric Cognitive Disorders · doi:10.1159/000316119 · Cited by 937 · see citing works
Pinquart, M., & Sorensen, S. (2006) · International Psychogeriatrics · doi:10.1017/s1041610206003462 · Cited by 827 · see citing works
Positive aspects of caregiving: rounding out the caregiver experience
Cohen, C. A., Colantonio, A., & Vernich, L. (2002) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.561 · Cited by 690 · see citing works
Predicting caregiver burden and depression in Alzheimer'sdisease
Clyburn, L. D., Stones, M. J., Hadjistavropoulos, T., & Tuokko, H. A. (2000) · The Journals of Gerontology Series B · doi:10.1093/geronb/55.1.s2 · Cited by 522 · see citing works
Beach, S. R., Schulz, R., Yee, J. L., & Jackson, S. (2000) · Psychology and Aging · doi:10.1037//0882-7974.15.2.259 · Cited by 419 · see citing works
Mittelman, M. S., Roth, D. L., Coon, D. W., & Haley, W. E. (2004) · American Journal of Psychiatry · doi:10.1176/appi.ajp.161.5.850 · Cited by 385 · see citing works
Selwood, A., Johnston, K., Katona, C., Lyketsos, C., & Livingston, G. (2007) · Journal of Affective Disorders · doi:10.1016/j.jad.2006.10.025 · Cited by 342 · see citing works
The Effect of a Family Therapy and Technology-Based Intervention on Caregiver Depression
Eisdorfer, C., Czaja, S. J., Loewenstein, D., Rubert, M. P., Argüelles, S., Mitrani, V. B., & Szapocznik, J. (2003) · The Gerontologist · doi:10.1093/geront/43.4.521 · Cited by 314 · see citing works
Caregiver Burden in Alzheimer Disease: Cross-Sectional and Longitudinal Patient Correlates
Mohamed, S., Rosenheck, R. A., Lyketsos, C. G., & Schneider, L. S. S. (2010) · American Journal of Geriatric Psychiatry · doi:10.1097/jgp.0b013e3181d5745d · Cited by 291 · see citing works
The Effects of a Special Computer Network on Caregivers of Persons with Alzheimer??s Disease
BRENNAN, P. F., MOORE, S. M., & SMYTH, K. A. (1995) · Nursing Research · doi:10.1097/00006199-199505000-00007 · Cited by 242 · see citing works
Positive Aspects of Alzheimer's Caregiving: The Role of Race
Roff, L. L., Burgio, L. D., Gitlin, L. N., Nichols, L. O., Chaplin, W. F., & Hardin, J. M. (2004) · The Journals of Gerontology Series B · doi:10.1093/geronb/59.4.p185 · Cited by 236 · see citing works
Mahoney, D. F., Tarlow, B. J., & Jones, R. N. (2003) · The Gerontologist · doi:10.1093/geront/43.4.556 · Cited by 234 · see citing works
Wisniewski, S. R., Belle, S. H., Coon, D. W., Marcus, S. M., Ory, M. G., Burgio, L. D., Burns, R. A., & Schulz, R. (2003) · Psychology and Aging · doi:10.1037/0882-7974.18.3.375 · Cited by 224 · see citing works
Beyond the global score of the Zarit Burden Interview: useful dimensions for clinicians
Ankri, J., Andrieu, S., Beaufils, B., Grand, A., & Henrard, J. C. (2005) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.1275 · Cited by 217 · see citing works
Primary Care Interventions for Dementia Caregivers: 2-Year Outcomes From the REACH Study
Burns, R. A., Nichols, L. O., Martindale-Adams, J. L., Graney, M. J., & Lummus, A. (2003) · The Gerontologist · doi:10.1093/geront/43.4.547 · Cited by 193 · see citing works
Factors associated with the positive impact of caring for elderly and dependent relatives
López, J., López‐Arrieta, J., & Crespo, M. (2005) · Archives of Gerontology and Geriatrics · doi:10.1016/j.archger.2004.12.001 · Cited by 183 · see citing works
Martı́n-Carrasco, M., Franco, M., Valero, C. P., Millán, P. R., García, C. I., Montalbán, S. R., Vázquez, A. L. G., Piris, S. P., & Vilanova, M. B. (2008) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.2142 · Cited by 181 · see citing works
Li, R., Cooper, C., Bradley, J., Shulman, A., & Livingston, G. (2012) · Journal of Affective Disorders · doi:10.1016/j.jad.2011.05.055 · Cited by 173 · see citing works
Small, G. W., & Dubois, B. (2007) · Current Medical Research and Opinion · doi:10.1185/030079907x233403 · Cited by 150 · see citing works
Quality of life for caregivers of people with Alzheimer’s disease
Vellone, E., Piras, G., Talucci, C., & Cohen, M. Z. (2008) · Journal of Advanced Nursing · doi:10.1111/j.1365-2648.2007.04494.x · Cited by 140 · see citing works
Winter, L., & Gitlin, L. N. (2007) · American Journal of Alzheimer's Disease & Other Dementias® · doi:10.1177/1533317506291371 · Cited by 135 · see citing works
LONELINESS AND DEPRESSION IN CAREGIVERS OF PERSONS WITH ALZHEIMER'S DISEASE OR RELATED DISORDERS
Beeson, R. A., Horton‐Deutsch, S., Farran, C. J., & Neundorfer, M. M. (2000) · Issues in Mental Health Nursing · doi:10.1080/016128400750044279 · Cited by 132 · see citing works
Mittelman, M. S., Brodaty, H., Wallen, A. S., & Burns, A. S. (2008) · American Journal of Geriatric Psychiatry · doi:10.1097/jgp.0b013e3181898095 · Cited by 128 · see citing works
Drinka, T. J. K., Smith, J. C., & Drinka, P. J. (1987) · Journal of the American Geriatrics Society · doi:10.1111/j.1532-5415.1987.tb01398.x · Cited by 127 · see citing works
Health Consequences of Alzheimer’s Caregiving Transitions: Effects of Placement and Bereavement
Grant, I., Adler, K. A., Patterson, T. L., Dimsdale, J. E., Ziegler, M. G., & Irwin, M. R. (2002) · Psychosomatic Medicine · doi:10.1097/00006842-200205000-00012 · Cited by 123 · see citing works
Does Cognitive Impairment Influence Burden in Caregivers of Patients with Alzheimer's Disease?
Germain, S., the ICTUS-EADC Network, Adam, S., Olivier, C., Cash, H., Ousset, P., Andrieu, S., Vellas, B. J., Meulemans, T., Reynish, E. L., et al. (2009) · Journal of Alzheimer s Disease · doi:10.3233/jad-2009-1016 · Cited by 118 · see citing works
García‐Alberca, J. M., Lara, J. P., & Berthier, M. L. (2011) · The International Journal of Psychiatry in Medicine · doi:10.2190/pm.41.1.f · Cited by 116 · see citing works
EDUCA study: Psychometric properties of the Spanish version of the Zarit Caregiver Burden Scale
Martı́n-Carrasco, M., Otermín, P., Pérez-Camo, V., Pujol, J., Agüera, L., Martín, M. J., Gobartt, A. L., Pons, S., & Balañá, M. (2010) · Aging & Mental Health · doi:10.1080/13607860903586094 · Cited by 101 · see citing works
Winblad, B. G., Kawata, A. K., Beusterien, K. M., Thomas, S. K., Wimo, A. B., Lane, R. M., Fillit, H. M., & Blesa, R. (2007) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.1806 · Cited by 101 · see citing works
O’Rourke, N., Kupferschmidt, A. L., Claxton, A., Smith, J. Z., Chappell, N. L., & Beattie, B. L. (2010) · Aging & Mental Health · doi:10.1080/13607863.2010.501063 · Cited by 100 · see citing works
Positive Aspects in Caregiving: An Overlooked Variable in Research
Cohen, C. A., Gold, D. P., Shulman, K. I., & Sarracini, C. Z. (1994) · Canadian Journal on Aging / La Revue canadienne du vieillissement · doi:10.1017/s071498080000619x · Cited by 81 · see citing works
Mills, P. J., Ancoli‐Israel, S., von Känel, R., Mausbach, B. T., Aschbacher, K., Patterson, T. L., Ziegler, M. G., Dimsdale, J. E., & Grant, I. (2008) · Brain Behavior and Immunity · doi:10.1016/j.bbi.2008.09.014 · Cited by 80 · see citing works
Caregiver preference for rivastigmine patches versus capsules for the treatment of Alzheimer disease
Blesa, R., Ballard, C. G., Orgogozo, J., Lane, R. M., & Thomas, S. K. (2007) · Neurology · doi:10.1212/01.wnl.0000281848.25142.11 · Cited by 75 · see citing works
Lingler, J. H., Martire, L. M., & Schulz, R. (2005) · Journal of the American Geriatrics Society · doi:10.1111/j.1532-5415.2005.53313.x · Cited by 72 · see citing works
Predicting Gains in Dementia Caregiving
Liew, T. M., Luo, N., Ng, W. Y., Chionh, H. L., Goh, J., & Yap, P. L. K. (2010) · Dementia and Geriatric Cognitive Disorders · doi:10.1159/000275569 · Cited by 69 · see citing works
Gaugler, J. E., Wall, M. M., Kane, R. L., Menk, J. S., Sarsour, K., Johnston, J. A., Beusching, D., & Newcomer, R. J. (2010) · Medical Care · doi:10.1097/mlr.0b013e3181ec557b · Cited by 66 · see citing works
Quality of Life and Burden of Spouses of Alzheimer Disease Patients
Schölzel-Dorenbos, C. J. M., Draskovic, I., Vernooij-Dassen, M. J. F. J., & Rikkert, M. G. M. O. (2009) · Alzheimer Disease & Associated Disorders · doi:10.1097/wad.0b013e318190a260 · Cited by 65 · see citing works
Does Caregiver Burden Mediate the Effects of Behavioral Disturbances on Nursing Home Admission?
Gaugler, J. E., Wall, M. M., Kane, R. L., Menk, J. S., Sarsour, K., Johnston, J. A., Schuh, K. J., & Newcomer, R. J. (2011) · American Journal of Geriatric Psychiatry · doi:10.1097/jgp.0b013e31820d92cc · Cited by 59 · see citing works
Alzheimer's disease and the psychosocial burden for caregivers.
Gruffydd, E., & Randle, J. (2006) · PubMed · Cited by 48 · see citing works
Searson, R., Hendry, A. M., Ramachandran, R., Burns, A. S., & Purandare, N. B. (2008) · Aging & Mental Health · doi:10.1080/13607860801956977 · Cited by 47 · see citing works
Health self-perception by dementia family caregivers: sociodemographic and clinical factors
Valente, L., Truzzi, A., de Souza, W. F., Alves, G. S., Alves, C. E. D. O., Sudo, F. K., Lanna, M. E., Moreira, D. M., Engelhardt, E., & Laks, J. (2011) · Arquivos de Neuro-Psiquiatria · doi:10.1590/s0004-282x2011000600003 · Cited by 41 · see citing works
Alzheimer's care at home: a focus on caregivers strain.
Varela, G., Varona, L., Anderson, K. H., & Sansoni, J. (2011) · PubMed · Cited by 39 · see citing works
Dementia Caregiving: The Role of the Primary Care Physician
Cohen, C. A., Pringle, D. M., & Leduc, L. (2001) · Canadian Journal of Neurological Sciences / Journal Canadien des Sciences Neurologiques · doi:10.1017/s0317167100001232 · Cited by 37 · see citing works
Memantine ER, a once-daily formulation for the treatment of Alzheimer's disease
Bassil, N., Thaipisuttikul, P., & Grossberg, G. T. (2010) · Expert Opinion on Pharmacotherapy · doi:10.1517/14656566.2010.493874 · Cited by 36 · see citing works
Hayslip, B., Han, G., & Anderson, C. L. (2008) · Educational Gerontology · doi:10.1080/03601270802016481 · Cited by 32 · see citing works
Sevilla, C., Caballero, P. E. J., Alfonso, V. R. J., & González-Adalid, M. (2009) · Dementia and Geriatric Cognitive Disorders · doi:10.1159/000236015 · Cited by 30 · see citing works
Alzheimer’s disease treatment: Assessing caregiver preferences for mode of treatment delivery
Abetz, L. N., Rofail, D., Mertzanis, P., Heelis, R., Rosa, K., Tellefsen, C., de Climens, A. R., McBurney, C. R., & Thomas, S. K. (2009) · Advances in Therapy · doi:10.1007/s12325-009-0034-5 · Cited by 25 · see citing works
Reactions to caregiving of frail, older persons predict depression
Aggar, C., Ronaldson, S. M., & Cameron, I. D. (2010) · International Journal of Mental Health Nursing · doi:10.1111/j.1447-0349.2010.00688.x · Cited by 20 · see citing works
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The P2X7 Receptor: Central Hub of Brain Diseases
Andrejew, R., Oliveira-Giacomelli, Á., Ribeiro, D. E., Glaser, T., Arnaud-Sampaio, V. F., Lameu, C., & Ulrich, H. (2020) · Frontiers in Molecular Neuroscience · doi:10.3389/fnmol.2020.00124 · Cited by 162 · see citing works
Understanding the needs of caregivers of persons with dementia: a scoping review
Queluz, F. N. F. R., Kervin, E., Wozney, L., Fancey, P., McGrath, P. J., & Keefe, J. (2020) · International Psychogeriatrics · doi:10.1017/s1041610219000243 · Cited by 142 · see citing works
Reed, C. C., Belger, M. A., Dell’Agnello, G., Wimo, A. B., Argimón, J. M., Bruno, G., Dodel, R. C., Haro, J. M., Jones, R. W., & Vellas, B. J. (2014) · Dementia and Geriatric Cognitive Disorders Extra · doi:10.1159/000358234 · Cited by 123 · see citing works
Haro, J. M., Kahle‐Wrobleski, K., Bruno, G., Belger, M. A., Dell’Agnello, G., Dodel, R. C., Jones, R. W., Reed, C. C., Vellas, B. J., Wimo, A. B., et al. (2014) · The journal of nutrition health & aging · doi:10.1007/s12603-014-0500-x · Cited by 111 · see citing works
Frías, C. E., Pascual, M. G., Montoro-Lorite, M., Ribas, N., Risco, E., & Zabalegui, A. (2019) · Journal of Advanced Nursing · doi:10.1111/jan.14286 · Cited by 114 · see citing works
Teahan, Á., Lafferty, A., McAuliffe, E., Phelan, A., O’Sullivan, L., O’Shea, D., Nicholson, E., & Fealy, G. (2020) · Journal of Aging and Health · doi:10.1177/0898264319899793 · Cited by 85 · see citing works
Chan, E., Glass, G. F., Chua, K., Ali, N., & Lim, W. S. (2018) · The journal of nutrition health & aging · doi:10.1007/s12603-018-1098-1 · Cited by 88 · see citing works
Three-Year Trajectories of Caregiver Burden in Alzheimer's Disease
Conde‐Sala, J. L., Garriga, O. T., Calvó‐Perxas, L., Franch, J. V., Pousa, S. L., & Garre‐Olmo, J. (2014) · Journal of Alzheimer s Disease · doi:10.3233/jad-140360 · Cited by 75 · see citing works
Caregiver Burden and Dementia: A Systematic Review of Self-Report Instruments
Tu, J. Y., Jin, G., Chen, J.-H., & Chen, Y.-C. (2022) · Journal of Alzheimer s Disease · doi:10.3233/jad-215082 · Cited by 63 · see citing works
Reed, C. C., Belger, M. A., Andrews, J. S., Tockhorn‐Heidenreich, A., Jones, R. W., Wimo, A. B., Dodel, R. C., & Haro, J. M. (2019) · International Psychogeriatrics · doi:10.1017/s1041610219000425 · Cited by 64 · see citing works
Depression, Anxiety and Quality of Life in Caregivers of Long-Term Home Care Patients
Yıkılkan, H., Aypak, C., & Görpelioğlu, S. (2014) · Archives of Psychiatric Nursing · doi:10.1016/j.apnu.2014.01.001 · Cited by 55 · see citing works
Greco, A., Pancani, L., Sala, M., Annoni, A. M., Steca, P., Paturzo, M., D’Agostino, F., Alvaro, R., & Vellone, E. (2017) · European Journal of Cardiovascular Nursing · doi:10.1177/1474515117693890 · Cited by 51 · see citing works
Updated meta-review of evidence on support for carers
Thomas, S., Dalton, J., Harden, M., Eastwood, A. J., & Parker, G. M. (2017) · Health Services and Delivery Research · doi:10.3310/hsdr05120 · Cited by 51 · see citing works
Wang, H.-W., Chen, D., Yu, H.-W., & Chen, Y. (2015) · Journal of Medical Internet Research · doi:10.2196/jmir.4516 · Cited by 50 · see citing works
Clinical Characterization and the Caregiver Burden of Dementia in China
Tang, B., Harary, E., Kurzman, R., Mould-Quevedo, J. F., Pan, S. M., Yang, J., & Qiao, J. (2013) · Value in Health Regional Issues · doi:10.1016/j.vhri.2013.02.010 · Cited by 48 · see citing works
Adherence to Cholinesterase Inhibitors in Alzheimer's Disease: A Review
Brady, R., & Weinman, J. A. (2013) · Dementia and Geriatric Cognitive Disorders · doi:10.1159/000347140 · Cited by 47 · see citing works
Self-citationKayadjanian, N., Vrana-Diaz, C. J., Bohonowych, J. E. S., Strong, T. V., Morin, J., Potvin, D., & Schwartz, L. (2021) · PLoS ONE · doi:10.1371/journal.pone.0248739 · Cited by 46 · see citing works
Parekh, N., Shah, S. B., McMaster, K., Speziale, A., Yun, L. H., Nguyen, D. L., Melmed, G., & Kane, S. (2016) · Annals of gastroenterology : quarterly publication of the Hellenic Society of Gastroenterology · doi:10.20524/aog.2016.0084 · Cited by 48 · see citing works
Terayama, H., Sakurai, H., Namioka, N., Jaime, R., Otakeguchi, K., Fukasawa, R., Sato, T., Hirao, K., Kanetaka, H., Shimizu, S., et al. (2018) · Psychogeriatrics · doi:10.1111/psyg.12337 · Cited by 40 · see citing works
Onyeneho, C. A., & Ilesanmi, R. E. (2021) · Asia-Pacific Journal of Oncology Nursing · doi:10.4103/2347-5625.308678 · Cited by 39 · see citing works
Ndikuno, C. K., Namutebi, M., Kuteesa, J., Mukunya, D., & Olwit, C. (2016) · BMC Psychiatry · doi:10.1186/s12888-016-1084-2 · Cited by 38 · see citing works
Fänge, A. M., Schmidt, S., Nilsson, M. H., Carlsson, G., Liwander, A., Bergström, C. D., Olivetti, P., Johansson, P., & Chiatti, C. (2017) · Trials · doi:10.1186/s13063-017-1796-8 · Cited by 36 · see citing works
Caregiver Burden in Adults With Inflammatory Bowel Disease
Shukla, R., Thakur, E. R., Bradford, A. M., & Hou, J. K. (2017) · Clinical Gastroenterology and Hepatology · doi:10.1016/j.cgh.2017.05.020 · Cited by 36 · see citing works
Rosell‐Murphy, M., Bonet, J. M., Baena, E., Prieto, G., Serrano, E. B., Solé, F. G., Rubio, M., Krier, I., Torres, P., & Mimoso, S. (2014) · BMC Family Practice · doi:10.1186/1471-2296-15-53 · Cited by 32 · see citing works
Kent, E. E., Mollica, M. A., Dionne-Odom, J. N., Ferrer, R. A., Jensen, R. E., Ornstein, K. A., & Smith, A. W. (2020) · Palliative & Supportive Care · doi:10.1017/s1478951520000036 · Cited by 35 · see citing works
Kaasalainen, S., Hunter, P. V., Bello-Haas, V. P. M. D., Dolovich, L. R., Froggatt, K. A., Hadjistavropoulos, T., Markle‐Reid, M., Ploeg, J., Simard, J., Thabane, L., et al. (2020) · Pilot and Feasibility Studies · doi:10.1186/s40814-020-00575-4 · Cited by 34 · see citing works
Baruah, U., Shivakumar, P., Loganathan, S., Pot, A. M., Mehta, K. M., Gallagher-Thompson, D. E., Dua, T., & Varghese, M. (2020) · Clinical Gerontologist · doi:10.1080/07317115.2020.1725703 · Cited by 32 · see citing works
Bruvik, F. K., Allore, H. G., Ranhoff, A. H., & Engedal, K. (2013) · Dementia and Geriatric Cognitive Disorders Extra · doi:10.1159/000355912 · Cited by 31 · see citing works
Woolhouse, S., Cooper, E., & Pickard, A. (2013) · International Journal of Drug Policy · doi:10.1016/j.drugpo.2013.05.018 · Cited by 30 · see citing works
Coping with Emotional Distress via Self-Disclosure to Robots: An Intervention with Caregivers
Laban, G., Morrison, V., Kappas, A., & Cross, E. S. (2025) · International Journal of Social Robotics · doi:10.1007/s12369-024-01207-0 · Cited by 39 · see citing works
Dückert, S., Gewohn, P., König, H., Schöttle, D., Konnopka, A., Rahlff, P., Vogeley, K. T., Schulz, H., David, N., & Peth, J. (2023) · Review Journal of Autism and Developmental Disorders · doi:10.1007/s40489-023-00414-1 · Cited by 33 · see citing works
Xian, M., & Xu, L. (2019) · Dementia · doi:10.1177/1471301219837464 · Cited by 30 · see citing works
Fan, Q., DuBose, L., Ory, M. G., Lee, S., Hoang, M.-N., Vennatt, J., Kew, C. L., Doyle, D., & Falohun, T. (2023) · JMIR Aging · doi:10.2196/47577 · Cited by 29 · see citing works
Anderberg, P., Barnestein‐Fonseca, P., Parra, J. G., Garolera, M., Quintana, M., Mayoral, F., Lemmens, E., & Berglund, J. S. (2019) · JMIR Research Protocols · doi:10.2196/13711 · Cited by 31 · see citing works
Cognitive and Neuropsychiatric Impairments in Alzheimer's Disease: Current Treatment Strategies
Borisovskaya, A., Pascualy, M., & Soo Borson, B. (2014) · Current Psychiatry Reports · doi:10.1007/s11920-014-0470-z · Cited by 27 · see citing works
Merlo, P., Devita, M., Mandelli, A., Rusconi, M. L., Taddeucci, R., Terzi, A., Arosio, G., Bellati, M., Gavazzeni, M., & Mondini, S. (2017) · Aging Clinical and Experimental Research · doi:10.1007/s40520-017-0844-2 · Cited by 27 · see citing works
Lappalainen, P., Pakkala, I., Lappalainen, R., & Nikander, R. (2022) · Clinical Gerontologist · doi:10.1080/07317115.2021.1912239 · Cited by 25 · see citing works
Knowledge evaluation instruments for dementia caregiver education programs: A scoping review
Resciniti, N. V., Tang, W., Tabassum, M., Pearson, J. L., Spencer, S. M., Lohman, M. C., Ehlers, D. K., Alhasan, D. M., Miller, M. C., Teixeira, A., et al. (2020) · Geriatrics and gerontology international/Geriatrics & gerontology international · doi:10.1111/ggi.13901 · Cited by 25 · see citing works
Passoni, S., Curinga, T., Toraldo, A., Berlingeri, M., Fernández, I., & Bottini, G. (2018) · Frontiers in Psychology · doi:10.3389/fpsyg.2018.00967 · Cited by 20 · see citing works
Shafiezadeh, A., Heravi‐Karimooi, M., Mirzaee, A., Rejeh, N., Nia, H. S., & Montazeri, A. (2020) · Health and Quality of Life Outcomes · doi:10.1186/s12955-020-01509-7 · Cited by 24 · see citing works
Association between clinical dementia rating and clinical outcomes in Alzheimer's disease
Lanctôt, K. L., Boada, M., Tariot, P. N., Dabbous, F., Hahn‐Pedersen, J. H., Udayachalerm, S., Rakêt, L. L., Saiontz-Martinez, C., Michalak, W., Weidner, W. S., et al. (2024) · Alzheimer s & Dementia Diagnosis Assessment & Disease Monitoring · doi:10.1002/dad2.12522 · Cited by 16 · see citing works
Janssen, N., Handels, R. L. H., Köhler, S., Gonçalves‐Pereira, M., Marques, M. J., Irving, K., Hopper, L., Bieber, A., Orrell, M. W., Selbæk, G., et al. (2020) · Journal of the American Medical Directors Association · doi:10.1016/j.jamda.2020.05.009 · Cited by 18 · see citing works
Prolonged grief in caregivers of community-dwelling dementia patients
Passoni, S., Toraldo, A., Villa, B., & Bottini, G. (2014) · American Journal of Alzheimer s Disease & Other Dementias® · doi:10.1177/1533317514542643 · Cited by 17 · see citing works
Encinas-Monge, C., Hidalgo-Fuentes, S., Cejalvo, E., & Vilar, M. M. (2024) · Nursing Reports · doi:10.3390/nursrep14030187 · Cited by 16 · see citing works
de Oliveira, A. M., Radanovic, M., de Mello, P. C. H., Buchain, P. C., Vizzotto, A. D. B., Harder, J., Stella, F., Gitlin, L. N., Piersol, C. V., Valiengo, L. D. C. L., et al. (2021) · Journal of Alzheimer s Disease · doi:10.3233/jad-210142 · Cited by 14 · see citing works
Raivio, M., Laakkonen, M., & Pitkälä, K. H. (2014) · European Geriatric Medicine · doi:10.1016/j.eurger.2014.08.006 · Cited by 16 · see citing works
Fields, N. L., Xu, L., Richardson, V., Parekh, R., Ivey, D. L., & Calhoun, M. (2019) · Dementia · doi:10.1177/1471301219871192 · Cited by 16 · see citing works
Bjørge, H., Kvaal, K. S., & Ulstein, I. D. (2019) · BMC Health Services Research · doi:10.1186/s12913-019-4551-x · Cited by 17 · see citing works
Kaasalainen, S., McCleary, L., Vellani, S., & Pereira, J. L. (2021) · Canadian Geriatrics Journal · doi:10.5770/cgj.24.493 · Cited by 15 · see citing works
Madaleno, T. R., Moriguti, J. C., Ferriolli, E., Carlo, M. M. R. D. P. D., & Lima, N. K. D. C. (2019) · Aging Clinical and Experimental Research · doi:10.1007/s40520-019-01212-8 · Cited by 15 · see citing works
Jehangir, A., Collier, A., Shakhatreh, M., Malik, Z., & Parkman, H. (2019) · Digestive Diseases and Sciences · doi:10.1007/s10620-019-05723-2 · Cited by 13 · see citing works
Haro, J. M., Kahle‐Wrobleski, K., Bruno, G., Belger, M. A., Dell’Agnello, G., Dodel, R. C., Jones, R. W., Reed, C. C., Vellas, B. J., Wimo, A. B., et al. (2014) · The journal of nutrition health & aging · doi:10.1007/s12603-014-0036-0 · Cited by 15 · see citing works
Mitoku, K., & Shimanouchi, S. (2014) · The Open Nursing Journal · doi:10.2174/1874434620140512001 · Cited by 14 · see citing works
Pfeiffer, K., Hautzinger, M., Patak, M., Grünwald, J., Becker, C., & Albrecht, D. (2017) · BMC Geriatrics · doi:10.1186/s12877-017-0456-x · Cited by 14 · see citing works
Novais, T., Moutet, C., Delphin‐Combe, F., Dauphinot, V., Colin, C., Krolak‐Salmon, P., & Mouchoux, C. (2016) · Contemporary Clinical Trials · doi:10.1016/j.cct.2016.12.020 · Cited by 12 · see citing works
Fekete, M., Szabó, Á., Stephens, C. V., & Alpass, F. (2017) · Dementia · doi:10.1177/1471301217725897 · Cited by 12 · see citing works
Léon, C., Pin, S., Kreft-Jaïs, C., & Arwidson, P. (2015) · Journal of Alzheimer's Disease · doi:10.3233/jad-142922 · Cited by 11 · see citing works
Yous, M., Hunter, P. V., Coker, E., Fisher, K., Nicula, M., Kazmie, N., Bello-Haas, V. P. M. D., Hadjistavropoulos, T., McAiney, C. A., Thompson, G. N., et al. (2023) · Journal of the American Medical Directors Association · doi:10.1016/j.jamda.2023.08.012 · Cited by 11 · see citing works
‘Living Together With Dementia’: preliminary results of a training programme for family caregivers
Sousa, L., Sequeira, C., Ferré‐Grau, C., & Graça, L. (2020) · Scandinavian Journal of Caring Sciences · doi:10.1111/scs.12821 · Cited by 14 · see citing works
Olfactory testing in consecutive patients referred with suspected dementia
Christensen, I. T., Larsson, E., Holm, I. E., Nielsen, O. B. F., & Andersen, S. (2017) · BMC Geriatrics · doi:10.1186/s12877-017-0516-2 · Cited by 10 · see citing works
Mickens, M., Perrin, P. B., Arelis, A. A., Rábago, B., Macías-Islas, M. Á., & Arango‐Lasprilla, J. C. (2018) · Behavioural Neurology · doi:10.1155/2018/8929735 · Cited by 10 · see citing works
Leidi‐Maimone, B., Notter-Bielser, M.-L., Laouadi, M.-H., Perrin, S., Métraux, H., Damian, D., Chavan, C. F., Nsir, M., Cibelli, G., Tâche, M.-J., et al. (2020) · Aging · doi:10.18632/aging.103291 · Cited by 10 · see citing works
Juengst, S. B., Supnet, C. B., Kew, C. L., Silva, V. R., Vega, M., Han, G., Kelley, B. J., Smith, M. L., & Maestre, G. E. (2021) · Contemporary Clinical Trials · doi:10.1016/j.cct.2021.106506 · Cited by 10 · see citing works
DuBose, L., Fan, Q., Fisher, L., Hoang, M.-N., Salha, D., Lee, S., Ory, M. G., & Falohun, T. (2024) · JMIR Research Protocols · doi:10.2196/64127 · Cited by 9 · see citing works
Supporting Caregivers of Veterans with Dementia
Koufacos, N. S., Gottesman, E. M., Dorisca, E., & Howe, J. L. (2023) · Journal of Social Work in End-of-Life & Palliative Care · doi:10.1080/15524256.2023.2184597 · Cited by 8 · see citing works
Das, S. C., Saxena, O., & Singh, T. K. (2020) · Indian Journal of Social Psychiatry · doi:10.4103/ijsp.ijsp_17_20 · Cited by 8 · see citing works
Liu, P.-C., Gau, B., & Hung, C.-C. (2014) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2014.04.006 · Cited by 8 · see citing works
Coping with Emotional Distress via Self-Disclosure to Robots: Intervention with CaregiversPreprint
Laban, G., Morrison, V. L., Kappas, A., & Cross, E. S. (2023) · doi:10.31234/osf.io/gbk2j · Cited by 8 · see citing works
A REVIEW OF BURDEN OF CAREGIVERS OF PATIENTS WITH ALZHEIMER'S DISEASE
Ridzuan, S. A., Darussalam, S. E., Hisham, N. H. M., Namasivayam, P., Nichole, Y. M. Y., Zaid, D. S. S., Nor, N. H. M., Mohamed, M. H., Mooi, C. S., Devaraj, N. K., et al. (2019) · MNJ (Malang Neurology Journal) · doi:10.21776/ub.mnj.2019.005.01.7 · Cited by 7 · see citing works
Kabir, Z. N., Tyrrell, M., Konradsen, H., Craftman, Å. G., Joshi, N. K., Gupta, M. K., Sharma, S. K., & Bhardwaj, P. (2024) · BMC Geriatrics · doi:10.1186/s12877-024-05106-x · Cited by 5 · see citing works
Informal caregivers’ perspectives on participation in a dementia rehabilitation programme
Lampinen, J., Nilsson, I., Conradsson, M., Littbrand, H., Sondell, A., Gustafson, Y., Öhlin, J., & Lindelöf, N. (2025) · Scandinavian Journal of Occupational Therapy · doi:10.1080/11038128.2025.2463374 · Cited by 5 · see citing works
Reliability and Validity of the Turkish Version of the Caregiver Reaction Assessment Scale
Bahar, Z., Elçigil, A., Beşer, A., Küçükgüçlü, Ö., Uğur, Ö., & Söylemez, B. A. (2017) · Studies on Ethno-Medicine · doi:10.1080/09735070.2017.1387396 · Cited by 5 · see citing works
Family Caregiving in Dementia in India: Challenges and Emerging Issues
Varghese, M., Baruah, U., & Loganathan, S. (2021) · Springer eBooks · doi:10.1007/978-981-16-3864-0_8 · Cited by 5 · see citing works
Dwolatzky, T., Tractinsky, N., & Sarne‐Fleischmann, V. (2014) · Alzheimer s & Dementia · doi:10.1016/j.jalz.2014.04.137 · Cited by 5 · see citing works
Rawlings, G. H., Beail, N., Condliffe, R., Kiely, D. G., Thompson, A. R., Sabroe, I., & Armstrong, I. J. (2022) · Pulmonary Circulation · doi:10.1002/pul2.12077 · Cited by 5 · see citing works
Depression bei pflegenden Angehörigen
Pfeiffer, K. (2017) · Springer eBooks · doi:10.1007/978-3-662-53697-1_18 · Cited by 5 · see citing works
Az informális ellátás mérése és egészség-gazdaságtani értékelése
Zrubka, Z. (2017) · Orvosi Hetilap · doi:10.1556/650.2017.30841 · Cited by 5 · see citing works
Psychosoziale Therapieverfahren für Patienten mit Demenz
Bohlken, J., & Kurz, A. (2013) · NeuroTransmitter · doi:10.1007/s15016-013-0435-1 · Cited by 4 · see citing works
Physical activity programs in older persons with Alzheimer’s disease: a need for dedicated trials
Libero, T. D., Langiano, E., Dimeo, C., & Abbatecola, A. M. (2021) · Journal of Gerontology and Geriatrics · doi:10.36150/2499-6564-n295 · Cited by 4 · see citing works
Lee, K. J., Cho, S., Kim, B. C., Park, M., & Lee, J. (2016) · Advances in Therapy · doi:10.1007/s12325-016-0465-8 · Cited by 4 · see citing works
Burn, O., Molloy, K., Kanekiyo, M., Parker, C., Rothwell, S. W., Pan, J. J., Trueman, D., & Ritchie, C. W. (2026) · Journal of Medical Economics · doi:10.1080/13696998.2025.2600875 · Cited by 3 · see citing works
Ortíz-Mallasén, V., Claramonte-Gual, E., Cervera‐Gasch, Á., Tudela, D. M., Valero‐Chillerón, M. J., Pejó, L. A., Llagostera‐Reverter, I., & González‐Chordá, V. M. (2024) · Nursing Reports · doi:10.3390/nursrep14030118 · Cited by 3 · see citing works
Factors Associated with Increased Burden of Caregivers of People with Dementia with Lewy Bodies
Toya, S., Hashimoto, M., Manabe, Y., Yamakage, H., & Ikeda, M. (2024) · Geriatrics · doi:10.3390/geriatrics9050115 · Cited by 3 · see citing works
How can we help caregivers of patients with Alzheimer’s dementia?
Rachel, W., & Turkot, A. (2015) · Psychoterapia · doi:10.12740/pt/28915 · Cited by 3 · see citing works
Leigh, E. S. (2014) · UCL Discovery (University College London) · Cited by 3 · see citing works
Juengst, S. B., Smith, M. L., Wilmoth, K., Wright, B., Han, G., Supnet, C., & Maestre, G. (2025) · Frontiers in Public Health · doi:10.3389/fpubh.2025.1682373 · Cited by 2 · see citing works
Needs analysis of family caregivers of people living with dementia in Sleman Regency, Yogyakarta
Ardiningrum, W., Nasrun, M. W. S., Kusumaningrum, P., & Damping, C. E. (2024) · Psychogeriatrics · doi:10.1111/psyg.13145 · Cited by 2 · see citing works
Adult-Child Caregivers’ Motivations when Caring for Home-Dwelling Parents with Dementia
Dombestein, H. (2021) · University of Stavanger eBooks · doi:10.31265/usps.87 · Cited by 2 · see citing works
Reinwand, D. A., Neise, M., & Zank, S. (2022) · Springer eBooks · doi:10.1007/978-3-531-19985-6_23 · Cited by 2 · see citing works
von Humboldt, S., Low, G., & Leal, I. M. P. (2024) · Social Sciences · doi:10.3390/socsci13120650 · Cited by 2 · see citing works
Alyafei, A. S., Swarbrick, C., & Holland, C. (2025) · Journal of global ageing. · doi:10.1332/29767202y2024d000000017 · Cited by 2 · see citing works
Psychoimmunology and Aging: A Tribute to George Freeman Solomon
Morley, J. E. (2015) · Journal of the American Medical Directors Association · doi:10.1016/j.jamda.2015.08.024 · Cited by 2 · see citing works
Lim, J. M., Barlas, J., & Kaur, D. (2022) · BMJ Open · doi:10.1136/bmjopen-2021-058118 · Cited by 2 · see citing works
Maio, L., Botsford, J., Dening, K. H., & Iliffe, S. (2019) · SAGE Open · doi:10.1177/2158244019856947 · Cited by 2 · see citing works
Behavioral and Psychosocial Treatments of Dementia in Mexico
Mejía-Arango, S., Ortega, M. L., & Barba-Ramírez, L. (2020) · Springer eBooks · doi:10.1007/978-1-0716-0132-7_15 · Cited by 2 · see citing works
Leavey, G., Corry, D. A. S., Waterhouse‐Bradley, B., Curran, E., Todd, S., McIlfatrick, S., COATES, V. E., Watson, M., Abbott, A., McCrory, B., et al. (2020) · BMJ Open · doi:10.1136/bmjopen-2019-036249 · Cited by 2 · see citing works
Caring for the caregivers: a reflection on the challenges of caring for an older adult with dementia
Koufacos, N. S. (2025) · Cogent Gerontology · doi:10.1080/28324897.2025.2496170 · Cited by 1 · see citing works
Koh, W., Lau, J., Ang, C., Yee, C. M., Ho, S., & Tan, K. (2026) · Palliative Medicine · doi:10.1177/02692163261428948 · Cited by 1 · see citing works
Howe, E. S., Shdo, S. M., Elliott, M., Hua, A. Y., Tang, N. M., Dronkers, N. F., & LEVENSON, R. W. (2022) · Training and Education in Professional Psychology · doi:10.1037/tep0000425 · Cited by 1 · see citing works
Caregiver reactions in pulmonary hypertension
Gallant (2017) · doi:10.17760/d20272508 · Cited by 1 · see citing works
- Authors
- Beinart, N., Weinman, J., Wade, D., & Brady, R.
- Affiliations
- King's College London (GB)
- Corresponding author
- Beinart, N.
- Wade, D.
- Brady, R.
- ORCID
- Venue
- Dementia and Geriatric Cognitive Disorders Extra
- Publisher
- S. Karger AG
- Published
- 2012-12-15
- Volume
- 2
- Issue
- 1
- Pages
- 638-648
- ISSN
- 1664-5464 (ISSN-L)
- PMC
- PMC3551411
- OpenAlex
- W2055817029
- Cited by
- 124
- References
- 54
- Citations by year
- 2026: 9 · 2025: 7 · 2024: 9 · 2023: 6 · 2022: 5 · 2021: 10 · 2020: 17 · 2019: 12 · 2018: 6 · 2017: 13 · 2016: 5 · 2015: 7 · 2014: 13 · 2013: 5
- FWCI
- 5.71
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- Dementia and Geriatric Cognitive Disorders Extra (publishedVersion, cc-by-nc)
- PubMed Central (publishedVersion, cc-by-nc-nd)
- PubMed (publishedVersion)
- Research Portal (King's College London) (submittedVersion, cc-by-nc)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion)
- Funders
- Novartis Pharma
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
- Keywords
- caregiver burden, Alzheimer's disease, psychoeducational intervention, caregiver support, stress management training, care planning, self-care, problem solving and decision making, personalized interventions
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