A rapid synthesis of the evidence on interventions supporting self-management for people with long-term conditions: PRISMS – Practical systematic RevIew of Self-Management Support for long-term conditions

Taylor, Stephanie JC; Pinnock, Hilary; Epiphaniou, Eleni; Pearce, Gemma; Parke, Hannah L; Schwappach, Anna; Purushotham, Neetha; Jacob, Sadhana; Griffiths, Chris J; Greenhalgh, Trisha; Sheikh, Aziz

doi:10.3310/hsdr02530

Cited by 431Chronic Disease Management StrategiesDiabetes Management and EducationHealth Policy Implementation Science

A rapid synthesis of the evidence on interventions supporting self-management for people with long-term conditions: PRISMS – Practical systematic RevIew of Self-Management Support for long-term conditions

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Taylor, Stephanie JC, Pinnock, Hilary, Epiphaniou, Eleni, Pearce, Gemma, Parke, Hannah L, Schwappach, Anna, Purushotham, Neetha, Jacob, Sadhana +3 more·2014·Health Services and Delivery Research

DOI 10.3310/hsdr02530

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Abstract

Background Despite robust evidence concerning self-management for some long-term conditions (LTCs), others lack research explicitly on self-management and, consequently, some patient groups may be overlooked. Aim To undertake a rapid, systematic overview of the evidence on self-management support for LTCs to inform health-care commissioners and providers about what works, for whom, and in what contexts. Methods Self-management is ‘the tasks . . . individuals must undertake to live with one or more chronic conditions . . . [including] . . . having the confidence to deal with medical management, role management and emotional management of their conditions’. We convened an expert workshop and identified characteristics of LTCs potentially of relevance to self-management and 14 diverse exemplar LTCs (stroke, asthma, type 2 diabetes mellitus, depression, chronic obstructive pulmonary disease, chronic kidney disease, dementia, epilepsy, hypertension, inflammatory arthropathies, irritable bowel syndrome, low back pain, progressive neurological disorders and type 1 diabetes mellitus). For each LTC we conducted systematic overviews of systematic reviews of randomised controlled trials (RCTs) of self-management support interventions (‘quantitative meta-reviews’); and systematic overviews of systematic reviews of qualitative studies of patients’ experiences relating to self-management (‘qualitative meta-reviews’). We also conducted an original systematic review of implementation studies of self-management support in the LTCs. We synthesised all our data considering the different characteristics of LTCs. In parallel, we developed a taxonomy of the potential components of self-management support. Results We included 30 qualitative systematic reviews (including 515 unique studies), 102 quantitative systematic reviews (including 969 RCTs), and 61 studies in the implementation systematic review. Effective self-management support interventions are multifaceted, should be tailored to the individual, their culture and beliefs, a specific LTC and position on the disease trajectory, and underpinned by a collaborative/communicative relationship between the patient and health-care professional (HCP) within the context of a health-care organisation that actively promotes self-management. Self-management support is a complex intervention and although many components were described and trialled in the studies no single component stood out as more important than any other. Core components include (1) provision of education about the LTC, recognising the importance of understanding patients’ pre-existing knowledge and beliefs about their LTC; (2) psychological strategies to support adjustment to life with a LTC; (3) strategies specifically to support adherence to treatments; (4) practical support tailored to the specific LTC, including support around activities of daily living for disabling conditions, action plans in conditions subject to marked exacerbations, intensive disease-specific training to enable self-management of specific clinical tasks; and (5) social support as appropriate. Implementation requires a whole-systems approach which intervenes at the level of the patient, the HCP and the organisation. The health-care organisation is responsible for providing the means (both training and time/material resources) to enable HCPs to implement, and patients to benefit from, self-management support, regularly evaluating self-management processes and clinical outcomes. More widely there is a societal need to address public understanding of LTCs. The lack of public story for many conditions impacted on patient help-seeking behaviour and public perceptions of need. Conclusions Supporting self-management is inseparable from the high-quality care for LTCs. Commissioners and health-care providers should promote a culture of actively supporting self-management as a normal, expected, monitored and rewarded aspect of care. Further research is needed to understand how health service managers and staff can achieve this culture change in their health-care organisations. Study registration This study is registered as PROSPERO CRD42012002898. Funding The National Institute for Health Research Health Services and Delivery Research programme.

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Supportive self-management approaches are well established in the management of several chronic painful disorders, but this is not the case for chronic headache disorders.
“Supportive self-management approaches are well established in the management of several chronic painful disorders, but this is not the case for chronic headache disorders.15–17”
From Usual care and a self-management support programme versus usual care and a relaxation programme for people living with chronic headache disorders: A randomised controlled trial protocol (CHESS) (2020) · cites this paper as [17]
The section ‘Support with psychological impact of long-term conditions’ (page not supplied) reports strong evidence for a component of self-management support in low back pain and rheumatoid arthritis, although benefits were not always sustained. The Methods passage (page not supplied) lists the conditions reviewed but not headache; the paper’s omission of headache does not establish that supportive self-management is not well established for chronic headache disorders. (LLM, conf=0.82)
Experimental — accuracy not yet measured
Patients enjoy the relaxation part of pain self-management programmes.
“We know from experience that patients enjoy the relaxation part of pain self-management programmes.17”
From Usual care and a self-management support programme versus usual care and a relaxation programme for people living with chronic headache disorders: A randomised controlled trial protocol (CHESS) (2020) · cites this paper as [17]
Table 11 lists relaxation as a psychological strategy in self-management support, but does not report whether patients enjoy it. Searches for “enjoy,” “relaxation,” and patient appreciation in pain programmes found no passage addressing that experience; the available copy is truncated. (LLM, conf=0.72)
Experimental — accuracy not yet measured
mHealth apps-medical apps in particular-offer the possibility to improve general health care issues and, more specifically, issues related to type 1 and type 2 diabetes mellitus.
“Therefore, mHealth apps—medical apps in particular—offer the possibility to improve general health care issues and, more specifically, issues related to type 1 (T1DM) and type 2 (T2DM) diabetes mellitus [3,16-18].”
From Effectiveness of Disease-Specific mHealth Apps in Patients With Diabetes Mellitus: Scoping Review (2021) · cites this paper as [16]

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Self-management in neurological disorders: Systematic review of the literature and potential interventions in multiple sclerosis care
Rae-Grant, A. D., Turner, A. P., Sloan, A. P., Miller, D., Hunziker, J., & Haselkorn, J. K. (2011) · The Journal of Rehabilitation Research and Development · doi:10.1682/jrrd.2010.08.0159 · Cited by 74 · see citing works
Self-monitoring of blood glucose in patients with type 2 diabetes mellitus who are not using insulin #2
Malanda, U., Bot, S., & Nijpels, G. (2013) · Rivm (National Institute for Public Health and the Environment) · doi:10.2337/dc12-0831document · Cited by 74 · see citing works
Effects of multidisciplinary models of care for adult pre-dialysis patients with chronic kidney disease: a systematic review
Strand, H., & Parker, D. (2012) · International Journal of Evidence-Based Healthcare · doi:10.1111/j.1744-1609.2012.00253.x · Cited by 73 · see citing works
A systematic review of randomized control trials evaluating the effectiveness of interactive computerized asthma patient education programs
Bussey‐Smith, K. L., & Rossen, R. D. (2007) · Annals of Allergy Asthma & Immunology · doi:10.1016/s1081-1206(10)60727-2 · Cited by 73 · see citing works
Promoting the use of Personal Asthma Action Plans: a systematic review
Ring, N., Malcolm, C. A., Wyke, S., MacGillivray, S. A., Dixon, D. L., Hoskins, G., Pinnock, H., & Sheikh, A. (2007) · Primary Care Respiratory Journal · doi:10.3132/pcrj.2007.00049 · Cited by 73 · see citing works
Self-citation
Occupational therapy for cognitive impairment in stroke patients
Hoffmann, T., Bennett, S. H., Koh, C., & McKenna, K. T. (2010) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd006430.pub2 · Cited by 72 · see citing works
Diabetes empowerment related to Pender's Health Promotion Model: A meta‐synthesis
Ho, A. Y. K., Berggren, I., & Dahlborg‐Lyckhage, E. (2010) · Nursing and Health Sciences · doi:10.1111/j.1442-2018.2010.00517.x · Cited by 72 · see citing works
Meta-Analysis of Interventions for Medication Adherence to Antihypertensives
Takiya, L., Peterson, A. M., & Finley, R. S. (2004) · Annals of Pharmacotherapy · doi:10.1345/aph.1d268 · Cited by 71 · see citing works
A systematic review of the effects of occupational therapy for persons with dementia: a meta-analysis of randomized controlled trials
Kim, S.-Y., Yoo, E.-Y., Jung, M.-Y., Park, S.-H., & Park, J.-H. (2012) · NeuroRehabilitation: An International, Interdisciplinary Journal · doi:10.3233/nre-2012-0779 · Cited by 70 · see citing works
Establishing Diabetes Self-Management in a Community Health Center Serving Low-Income Latinos
Liebman, J., Heffernan, D., & Sarvela, P. (2007) · The Science of Diabetes Self-Management and Care · doi:10.1177/0145721707304075 · Cited by 69 · see citing works
Home-based educational interventions for children with asthma
Welsh, E. J., Hasan, M., & Li, P. (2011) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd008469.pub2 · Cited by 69 · see citing works
Outcomes for a Comprehensive School-Based Asthma Management Program
Gerald, L. B., Redden, D. T., Wittich, A. R., Hains, C. S., Turner‐Henson, A., Hemstreet, M. P., Feinstein, R., Erwin, S., & Bailey, W. C. (2006) · Journal of School Health · doi:10.1111/j.1746-1561.2006.00114.x · Cited by 69 · see citing works
Diabetes self-management training program in a community clinic improves patient outcomes at modest cost
Banister, N. A., Jastrow, S. T., Hodges, V. A., Loop, R. A., & Gillham, M. B. (2004) · Journal of the American Dietetic Association · doi:10.1016/j.jada.2004.02.027 · Cited by 68 · see citing works
Gender Ratios in Autism, Asperger Syndrome and Autism Spectrum Disorder
Whiteley, P. (2010) · Autism Insights · doi:10.4137/aui.s3938 · Cited by 67 · see citing works
Effects of psychological interventions for patients with systemic lupus erythematosus: a systematic review and meta-analysis
Zhang, J., Wei, W., & Wang, C. (2012) · Lupus · doi:10.1177/0961203312447667 · Cited by 65 · see citing works
The role of computer‐aided psychotherapy within an NHS CBT specialist service
Learmonth, D., Trosh, J., Rai, S., Sewell, J., & Cavanagh, K. (2008) · Counselling and Psychotherapy Research · doi:10.1080/14733140801976290 · Cited by 65 · cited 1× · see citing works
“At the end of the course, approximately one in five of those who completed the cCBT were referred on to face-to-face therapy.(268) Authors concluded that offering cCBT as a first step was an effective way to manage demand,(265,267,268) provide timely access to therapy(269) and could be supported by volunteer support w…”
Background
Patient-held medical records for patients with chronic disease: a systematic review
Ko, H., Turner, T., Jones, C., & Hill, C. (2010) · BMJ Quality & Safety · doi:10.1136/qshc.2009.037531 · Cited by 64 · see citing works
Randomized controlled trials in industrial low back pain. Part 3. Subacute/chronic pain interventions
Scheer, S. J., Watanabe, T. K., & Radack, K. L. (1997) · Archives of Physical Medicine and Rehabilitation · doi:10.1016/s0003-9993(97)90235-5 · Cited by 61 · see citing works
Qualitative studies of type 1 diabetes in adolescence: a systematic literature review
Spencer, J., Cooper, H., & Milton, B. S. (2009) · Pediatric Diabetes · doi:10.1111/j.1399-5448.2009.00603.x · Cited by 61 · see citing works
Indigenous healthcare worker involvement for Indigenous adults and children with asthma
Chang, A. B., Taylor, B., Masters, I. B., Laifoo, Y., & Brown, A. D. H. (2010) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd006344.pub3 · Cited by 61 · see citing works
Psychosocial interventions as adjunct therapy for patients with rheumatoid arthritis: a systematic review
DISSANAYAKE, R. K., & Bertouch, J. V. (2010) · International Journal of Rheumatic Diseases · doi:10.1111/j.1756-185x.2010.01563.x · Cited by 58 · see citing works
Education programmes for people with diabetic kidney disease
Li, T., Wu, H. M., Feng, W., Huang, C. Q., Yang, M. J., Dong, B. R., & Liu, G. J. (2011) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd007374.pub2 · Cited by 57 · see citing works
Developing stroke rehabilitation and community services: a meta-synthesis of qualitative literature
Reed, M., WOOD, V. A., Harrington, R., & Paterson, J. (2011) · Disability and Rehabilitation · doi:10.3109/09638288.2011.613511 · Cited by 56 · see citing works
Daily functioning and self-management in patients with chronic low back pain after an intensive cognitive behavioral programme for pain management
van Hooff, M. L., van der Merwe, J. D., O'Dowd, T. J., Pavlov, P. W., Spruit, M., de Kleuver, M., & van Limbeek, J. (2010) · European Spine Journal · doi:10.1007/s00586-010-1435-5 · Cited by 53 · see citing works
Follow-up of the Finnish Asthma Programme 2000–2010: reduction of hospital burden needs risk group rethinking
Kauppi, P., Linna, M., Martikainen, J. E., Mäkelä, M. J., & Haahtela, T. (2012) · Thorax · doi:10.1136/thoraxjnl-2011-201028 · Cited by 53 · see citing works
Asthma nurse practice improves outcomes and reduces costs in primary health care
Lindberg, M., Ahlner, J., Ekström, T., Jonsson, D., & Möller, M. (2002) · Scandinavian Journal of Caring Sciences · doi:10.1046/j.1471-6712.2002.00054.x · Cited by 52 · see citing works
Setting the standard for routine asthma consultations: a discussion of the aims, process and outcomes of reviewing people with asthma in primary care
Pinnock, H., Fletcher, M. J., Holmes, S., Keeley, D., Leyshon, J., Price, D. B., Russell, R. E. K., Versnel, J., & Wagstaff, B. (2010) · Primary Care Respiratory Journal · doi:10.4104/pcrj.2010.00006 · Cited by 51 · see citing works
Self-citation
Diabetes Self-Management in a Community Health Center: Improving Health Behaviors and Clinical Outcomes for Underserved Patients
Anderson, D., & Christison-Lagay, J. (2008) · Clinical Diabetes · doi:10.2337/diaclin.26.1.22 · Cited by 51 · see citing works
Strategies for improving adherence to antiepileptic drug treatment in patients with epilepsy
Al-Aqeel, S., & Alsabhan, J. F. (2011) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd008312.pub2 · Cited by 51 · see citing works
The psychosocial spiritual experience of elderly individuals recovering from stroke: a systematic review
Lamb, M., Buchanan, D. M., Godfrey, C. M., Harrison, M. B., & Oakley, P. (2008) · International Journal of Evidence-Based Healthcare · doi:10.1111/j.1744-1609.2008.00079.x · Cited by 51 · see citing works

Flagged first, then by citations

4 of the 279 references couldn’t be matched to a known paper.

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Coproduction of healthcare service
Batalden, M., Batalden, P., Margolis, P., Seid, M., Armstrong, G., Opipari-Arrigan, L., & Hartung, H. (2016) · BMJ Quality & Safety · doi:10.1136/bmjqs-2015-004315 · Cited by 1,078 · see citing works
The worldwide impact of telemedicine during COVID-19: current evidence and recommendations for the future
Omboni, S., Padwal, R. S., Alessa, T., Benczúr, B., Green, B. B., Hubbard, I., Kario, K., Khan, N. A., Конради, А. О., Logan, A. G., et al. (2022) · Connected Health · doi:10.20517/ch.2021.03 · Cited by 385 · see citing works
Systematic meta-review of supported self-management for asthma: a healthcare perspective
groups, F. T. P. A. R., Pinnock, H., Parke, H. L., Panagioti, M., Daines, L., Pearce, G., Epiphaniou, E., Bower, P., Sheikh, A., Griffiths, C. J., et al. (2017) · BMC Medicine · doi:10.1186/s12916-017-0823-7 · Cited by 291 · see citing works
Self-citation
Management of Cancer and Health After the Clinic Visit: A Call to Action for Self-Management in Cancer Care
Howell, D., Mayer, D. K., Fielding, R., Eicher, M., Leeuw, I. M. V., Johansen, C., Soto‐Pérez‐de‐Celis, E., Foster, C. N., Chan, R. J., Alfano, C. M., et al. (2020) · JNCI Journal of the National Cancer Institute · doi:10.1093/jnci/djaa083 · Cited by 240 · see citing works
The use of mobile applications to support self-management for people with asthma: a systematic review of controlled studies to identify features associated with clinical effectiveness and adherence.
Hui, C. Y., Walton, R., McKinstry, B., Jackson, T., Parker, R., & Pinnock, H. (2017) · Journal of the American Medical Informatics Association · doi:10.1093/jamia/ocw143 · Cited by 198 · see citing works
Self-citation
Self-efficacy and health-related quality of life: a cross-sectional study of primary care patients with multi-morbidity
Peters, M., Potter, C., Kelly, L., & Fitzpatrick, R. M. (2019) · Health and Quality of Life Outcomes · doi:10.1186/s12955-019-1103-3 · Cited by 212 · see citing works
Self-management interventions for people with severe mental illness: systematic review and meta-analysis
Lean, M., Fornells-Ambrojo, M., Milton, A., Lloyd-Evans, B., Harrison-Stewart, B., Yesufu-Udechuku, A., Kendall, T., & Johnson, S. (2019) · The British Journal of Psychiatry · doi:10.1192/bjp.2019.54 · Cited by 211 · see citing works
The PRISMS taxonomy of self-management support: derivation of a novel taxonomy and initial testing of its utility
Pearce, G., Parke, H. L., Pinnock, H., Epiphaniou, E., Bourne, C. L., Sheikh, A., & Taylor, S. J. (2016) · Journal of Health Services Research & Policy · doi:10.1177/1355819615602725 · Cited by 181 · see citing works
Self-citation
Using digital interventions for self-management of chronic physical health conditions: A meta-ethnography review of published studies
Morton, K., Dennison, L., May, C., Murray, E., Little, P., McManus, R., & Yardley, L. (2016) · Patient Education and Counseling · doi:10.1016/j.pec.2016.10.019 · Cited by 181 · see citing works
Building trust: Leadership reflections on community empowerment and engagement in a large urban initiative
Lansing, A. E., Romero, N. J., Siantz, E., Silva, V., Casteel, D., & Gilmer, T. (2023) · BMC Public Health · doi:10.1186/s12889-023-15860-z · Cited by 193 · see citing works
Peer-supported self-management for people discharged from a mental health crisis team: a randomised controlled trial
Johnson, S., Lamb, D., Marston, L., Osborn, D., Mason, O., Henderson, C., Ambler, G., Milton, A., Davidson, M., Christoforou, M., et al. (2018) · The Lancet · doi:10.1016/s0140-6736(18)31470-3 · Cited by 143 · see citing works
Motivations, Challenges, and Attitudes to Self-management in Kidney Transplant Recipients: A Systematic Review of Qualitative Studies
Jamieson, N. J., Hanson, C. S., Josephson, M. A., Gordon, E. J., Craig, J. C., Halleck, F., Budde, K., & Tong, A. (2015) · American Journal of Kidney Diseases · doi:10.1053/j.ajkd.2015.07.030 · Cited by 171 · see citing works
Qualitative systematic review of barriers and facilitators to self-management of chronic obstructive pulmonary disease: views of patients and healthcare professionals
Russell, S., Ogunbayo, O. J., Newham, J. J., Heslop-Marshall, K., Netts, P., Hanratty, B., Beyer, F. R., & Kaner, E. (2018) · npj Primary Care Respiratory Medicine · doi:10.1038/s41533-017-0069-z · Cited by 165 · see citing works
Effectiveness of Disease-Specific mHealth Apps in Patients With Diabetes Mellitus: Scoping Review
Eberle, C., Löhnert, M., & Stichling, S. (2021) · JMIR mHealth and uHealth · doi:10.2196/23477 · Cited by 160 · see citing works
“Therefore, mHealth apps—medical apps in particular—offer the possibility to improve general health care issues and, more specifically, issues related to type 1 (T1DM) and type 2 (T2DM) diabetes mellitus [3,16-18].”
Self-Management Support Interventions for Stroke Survivors: A Systematic Meta-Review
Parke, H. L., Epiphaniou, E., Pearce, G., Taylor, S. J., Sheikh, A., Griffiths, C. J., Greenhalgh, T., & Pinnock, H. (2015) · PLoS ONE · doi:10.1371/journal.pone.0131448 · Cited by 152 · see citing works
Self-citation
Supported self-management for people with type 2 diabetes: a meta-review of quantitative systematic reviews
Captieux, M., Pearce, G., Parke, H. L., Epiphaniou, E., Wild, S., Taylor, S. J. C., & Pinnock, H. (2018) · BMJ Open · doi:10.1136/bmjopen-2018-024262 · Cited by 132 · see citing works
Self-citation
Implementing supported self-management for asthma: a systematic review and suggested hierarchy of evidence of implementation studies
Pinnock, H., Epiphaniou, E., Pearce, G., Parke, H., Greenhalgh, T., Sheikh, A., Griffiths, C. J., & Taylor, S. J. C. (2015) · BMC Medicine · doi:10.1186/s12916-015-0361-0 · Cited by 132 · see citing works
Self-citation
Developing standards for reporting implementation studies of complex interventions (StaRI): a systematic review and e-Delphi
Pinnock, H., Epiphaniou, E., Sheikh, A., Griffiths, C., Eldridge, S., Craig, P., & Taylor, S. J. (2015) · Implementation Science · doi:10.1186/s13012-015-0235-z · Cited by 128 · see citing works
Self-citation
A systematic review of the effectiveness of self-management interventions in people with multiple sclerosis at improving depression, anxiety and quality of life
Kidd, T., Carey, N., Mold, F., Westwood, S., Miklaucich, M., Konstantara, E., Sterr, A., & Cooke, D. (2017) · PLoS ONE · doi:10.1371/journal.pone.0185931 · Cited by 114 · see citing works
Barriers and facilitators to asthma self‐management in adolescents: A systematic review of qualitative and quantitative studies
Holley, S., Morris, R. C. G., Knibb, R. C., Latter, S. M., Liossi, C., Mitchell, F., & Roberts, G. C. (2016) · Pediatric Pulmonology · doi:10.1002/ppul.23556 · Cited by 133 · see citing works
Hemodialysis Self-management Intervention Randomized Trial (HED-SMART): A Practical Low-Intensity Intervention to Improve Adherence and Clinical Markers in Patients Receiving Hemodialysis
Griva, K., Mooppil, N., Ng, J.-A. H., Lam, K. F. Y., McBain, H. B., & Newman, S. P. (2017) · American Journal of Kidney Diseases · doi:10.1053/j.ajkd.2017.09.014 · Cited by 128 · see citing works
Supported self-management for asthma
Pinnock, H. (2015) · Breathe · doi:10.1183/20734735.015614 · Cited by 127 · see citing works
Self-citation
Supporting self-management for people with hypertension: a meta-review of quantitative and qualitative systematic reviews
Shahaj, O., Denneny, D., Schwappach, A., Pearce, G., Epiphaniou, E., Parke, H. L., Taylor, S. J. C., & Pinnock, H. (2019) · Journal of Hypertension · doi:10.1097/hjh.0000000000001867 · Cited by 110 · see citing works
Self-citation
What impact do chronic disease self-management support interventions have on health inequity gaps related to socioeconomic status: a systematic review
Hardman, R., Begg, S. J., & Spelten, E. R. (2020) · BMC Health Services Research · doi:10.1186/s12913-020-5010-4 · Cited by 121 · see citing works
Use of predictive algorithms in-home monitoring of chronic obstructive pulmonary disease and asthma: A systematic review
Sanchez-Morillo, D., Fernandez-Granero, M. A., & Leon-Jimenez, A. (2016) · Chronic Respiratory Disease · doi:10.1177/1479972316642365 · Cited by 110 · see citing works
Using intervention mapping to develop a theory-driven, group-based complex intervention to support self-management of osteoarthritis and low back pain (SOLAS).
Hurley, D. A., Murphy, L. C., Hayes, D., Hall, A. M., Toomey, E., McDonough, S. M., Lonsdale, C., Walsh, N. E., Guerin, S., & Matthews, J. (2015) · Implementation Science · doi:10.1186/s13012-016-0418-2 · Cited by 110 · see citing works
Telemedicine in the COVID-19 Era: A Narrative Review Based on Current Evidence
Nittari, G., Savva, D., Tomassoni, D., Tayebati, S. K., & Amenta, F. (2022) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph19095101 · Cited by 115 · see citing works
We need to talk about purpose: a critical interpretive synthesis of health and social care professionals’ approaches to self‐management support for people with long‐term conditions
Morgan, H. M., Entwistle, V. A., Cribb, A., Christmas, S., Owens, J., Skea, Z. C., & Watt, I. S. (2016) · Health Expectations · doi:10.1111/hex.12453 · Cited by 107 · see citing works
Characteristics associated with quality of life among people with drug-resistant epilepsy
SMILE Team, Ridsdale, L., Wojewodka, G., Robinson, E. J., Landau, S., Noble, A. J., Taylor, S. J., Richardson, M. P., Baker, G. A., & Goldstein, L. H. (2017) · Journal of Neurology · doi:10.1007/s00415-017-8512-1 · Cited by 102 · see citing works
Self-citation
Clinical-effectiveness of self-management interventions in chronic obstructive pulmonary disease: An overview of reviews
Murphy, L. A., Harrington, P., Taylor, S. J., Teljeur, C., Smith, S. M., Pinnock, H., & Ryan, M. (2017) · Chronic Respiratory Disease · doi:10.1177/1479972316687208 · Cited by 93 · see citing works
“To date, a large volume of literature has been published on COPD SM interventions.(5) However, uncertainty regarding optimal format and short- and long-term benefits still exists presenting an obstacle to informed decision-making about COPD SM provision.”
BackgroundMethodSelf-citation
Interventions to improve the mental health of children and young people with long-term physical conditions: linked evidence syntheses
Moore, D. A., Nunns, M., Shaw, L., Rogers, M., Walker, E., Ford, T. J., Garside, R., Ukoumunne, O. C., Titman, P., Shafran, R., et al. (2019) · Health Technology Assessment · doi:10.3310/hta23220 · Cited by 97 · see citing works
Patient-mediated knowledge translation (PKT) interventions for clinical encounters: a systematic review
Gagliardi, A. R., Légaré, F., Brouwers, M. C., Webster, F., Badley, E. M., & Straus, S. E. (2015) · Implementation Science · doi:10.1186/s13012-016-0389-3 · Cited by 94 · see citing works
Experiences of Self-Management Support Following a Stroke: A Meta-Review of Qualitative Systematic Reviews
Pearce, G., Pinnock, H., Epiphaniou, E., Parke, H. L., Heavey, E., Griffiths, C., Greenhalgh, T., Sheikh, A., & Taylor, S. J. (2015) · PLoS ONE · doi:10.1371/journal.pone.0141803 · Cited by 87 · see citing works
Self-citation
Translating evidence to patient care through caregivers: a systematic review of caregiver-mediated interventions
Fiest, K. M., McIntosh, C. J., Demiantschuk, D., Leigh, J. P., & Stelfox, H. T. (2018) · BMC Medicine · doi:10.1186/s12916-018-1097-4 · Cited by 85 · see citing works
Adding value to remote monitoring: Co-design of a health literacy intervention for older people with chronic disease delivered by telehealth - The telehealth literacy project
Banbury, A., Nancarrow, S., Dart, J., Gray, L., Dodson, S., Osborne, R. H., & Parkinson, L. (2019) · Patient Education and Counseling · doi:10.1016/j.pec.2019.10.005 · Cited by 85 · see citing works
Why Health and Social Care Support for People with Long-Term Conditions Should be Oriented Towards Enabling Them to Live Well
Entwistle, V. A., Cribb, A., & Owens, J. (2016) · Health Care Analysis · doi:10.1007/s10728-016-0335-1 · Cited by 82 · see citing works
Smartphone Applications for Encouraging Asthma Self-Management in Adolescents: A Systematic Review
Alquran, A., Lambert, K. A., Farouque, A., Holland, A. E., Davies, J. M., Lampugnani, E. R., & Erbas, B. (2018) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph15112403 · Cited by 76 · see citing works
Evidence-Based Interventions for Adult Aural Rehabilitation: That Was Then, This Is Now
Maidment, D. W., Henshaw, H., Heffernan, E., & Ferguson, M. (2019) · Seminars in Hearing · doi:10.1055/s-0038-1676784 · Cited by 76 · see citing works
The Importance of Self-Management in the Context of Personalized Care in COPD
Cravo, A., Attar, D., Freeman, D., Holmes, S., Ip, L., & Singh, S. J. (2022) · International Journal of COPD · doi:10.2147/copd.s343108 · Cited by 72 · see citing works
The Taxonomy of Everyday Self-management Strategies (TEDSS): A framework derived from the literature and refined using empirical data
Audulv, Å., Ghahari, S., Kephart, G., Warner, G., & Packer, T. L. (2019) · Patient Education and Counseling · doi:10.1016/j.pec.2018.08.034 · Cited by 66 · see citing works
Patient empowerment and self‐management behaviour of chronic disease patients: A moderated mediation model of self‐efficacy and health locus of control
Wang, R. S., Zhou, C., Wu, Y., Sun, M., Yang, L., Ye, X., & Zhang, M. (2021) · Journal of Advanced Nursing · doi:10.1111/jan.15077 · Cited by 69 · see citing works
Barriers to effective diabetes management–a survey of people with severe mental illness
Mulligan, K., McBain, H., Lamontagne-Godwin, F., Chapman, J., Flood, C., Haddad, M., Jones, J., & Simpson, A. (2018) · BMC Psychiatry · doi:10.1186/s12888-018-1744-5 · Cited by 68 · see citing works
Studying Scale-Up and Spread as Social Practice: Theoretical Introduction and Empirical Case Study
Shaw, J., Shaw, S. E., Wherton, J. P., Hughes, G., & Greenhalgh, T. (2017) · Journal of Medical Internet Research · doi:10.2196/jmir.7482 · Cited by 67 · see citing works
Self-citation
Barriers to self-management of chronic pain in primary care: a qualitative focus group study
Gordon, K., Rice, H., Allcock, N., Bell, P., Dunbar, M., Gilbert, S., & Wallace, H. (2016) · British Journal of General Practice · doi:10.3399/bjgp17x688825 · Cited by 65 · see citing works
Disconnected relationships between primary care and community-based health and social services and system navigation for older adults: a qualitative descriptive study
Valaitis, R. K., Cleghorn, L., Ploeg, J., Risdon, C., Mangin, D. A., Dolovich, L. R., Agarwal, G., Oliver, D., Gaber, J., & Chung, H. (2020) · BMC Family Practice · doi:10.1186/s12875-020-01143-8 · Cited by 61 · see citing works
Systematic review and meta-analysis of clinical effectiveness of self-management interventions in Parkinson’s disease
Pigott, J., Kane, E. J., Ambler, G., Walters, K. R., & Schrag, A. E. (2022) · BMC Geriatrics · doi:10.1186/s12877-021-02656-2 · Cited by 60 · see citing works
What is the evidence for the effectiveness, appropriateness and feasibility of group clinics for patients with chronic conditions? A systematic review
Booth, A., Cantrell, A. J., Preston, L., Chambers, D., & Goyder, E. (2015) · Health Services and Delivery Research · doi:10.3310/hsdr03460 · Cited by 61 · see citing works
Post-stroke self-management interventions: a systematic review of effectiveness and investigation of the inclusion of stroke survivors with aphasia
Wray, F., Clarke, D., & Forster, A. (2018) · Disability and Rehabilitation · doi:10.1080/09638288.2017.1294206 · Cited by 61 · see citing works
Changes in telemonitored physiological variables and symptoms prior to exacerbations of chronic obstructive pulmonary disease
Burton, C. D., Pinnock, H., & McKinstry, B. (2014) · Journal of Telemedicine and Telecare · doi:10.1177/1357633x14562733 · Cited by 59 · see citing works
Self-citation
Self-management for bronchiectasis.
Kelly, C., Grundy, S., Lynes, D., Evans, D. J., Gudur, S., Milan, S., & Spencer, S. (2018) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd012528.pub2 · Cited by 52 · see citing works
Effectiveness of self-management interventions in inflammatory arthritis: a systematic review informing the 2021 EULAR recommendations for the implementation of self-management strategies in patients with inflammatory arthritis
Marques, A., Santos, E. J. F., Nikiphorou, E., Bosworth, A., & Carmona, L. (2021) · RMD Open · doi:10.1136/rmdopen-2021-001647 · Cited by 57 · see citing works
The prevalence of workaholism: a systematic review and meta-analysis
Andersen, F. B., Djugum, M. E. T., Sjåstad, V. S., & Pallesen, S. (2023) · Frontiers in Psychology · doi:10.3389/fpsyg.2023.1252373 · Cited by 57 · see citing works
Characterizing patient-oriented tools that could be packaged with guidelines to promote self-management and guideline adoption: a meta-review
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Authors: Taylor, S. J., Pinnock, H., Epiphaniou, E., Pearce, G., Parke, H. L., Schwappach, A., Purushotham, N., Jacob, S., Griffiths, C. J., Greenhalgh, T., & Sheikh, A.
Affiliations: Queen Mary University of London (GB)
University of Edinburgh (GB)
ORCID: Taylor, Stephanie JC
Pinnock, Hilary
Epiphaniou, Eleni
Pearce, Gemma
Griffiths, Chris J
Greenhalgh, Trisha
Sheikh, Aziz
Venue: Health Services and Delivery Research
Publisher: National Institute for Health and Care Research
Published: 2014-12
Volume: 2
Issue: 53
Pages: 1-580
ISSN: 2050-4349 (ISSN-L)
2050-4357
DOI: 10.3310/hsdr02530
OpenAlex: W2027619473
Cited by: 431
References: 279
Citations by year: 2026: 11 · 2025: 33 · 2024: 52 · 2023: 34 · 2022: 33 · 2021: 35 · 2020: 51 · 2019: 42 · 2018: 35 · 2017: 39 · 2016: 36 · 2015: 25 · 2014: 3 · 2012: 1
FWCI: 4.58
Type: journal article
Language: en
Open access: diamond
doi.org
Licence: www.nationalarchives.gov.uk/doc/non-commercial-government-licence/non-commercial-government-licence.htm (unspecified)
Locations: Health Services and Delivery Research (publishedVersion)
Edinburgh Research Explorer (University of Edinburgh) (publishedVersion, other-oa)
DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
Funders: National Institute for Health Research (11/1014/04)
Topics: Health Sciences › Medicine › Epidemiology › Chronic Disease Management Strategies
Health Sciences › Medicine › Endocrinology, Diabetes and Metabolism › Diabetes Management and Education
Health Sciences › Health Professions › General Health Professions › Health Policy Implementation Science
Keywords: self-management support, chronic disease, self-management interventions, patient education, medication adherence, patient-professional relationship, patient experience, complex interventions, personalized interventions, psychological adjustment, health care organization, asthma, type 2 diabetes, chronic obstructive pulmonary disease, depression, dementia, epilepsy, irritable bowel syndrome

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A rapid synthesis of the evidence on interventions supporting self-management for people with long-term conditions: PRISMS – Practical systematic RevIew of Self-Management Support for long-term conditions

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