The International Burden of Migraine Study (IBMS): Study design, methodology, and baseline cohort characteristics
Open accessAbstract
Objective: To describe a survey methodology to evaluate headache characteristics and burden and to present baseline characteristics for the international cohort of survey participants. Methods: A targeted, web-based methodology was used to recruit and survey subjects with migraine in 10 countries. Based on reported symptoms, subjects meeting ICHD-2 criteria for migraine were included; eligible subjects were classified as chronic (≥ 15 headache days per month) or episodic (< 15 headache days per month). Outcomes included sociodemographic and clinical characteristics, resource utilization, disability, health-related quality of life, anxiety, depression and productivity. Results: Of 23,312 survey respondents, 11,897 were eligible and 9715 (81.7%) completed the survey; subjects were 81.5% female; 5.7% ( n = 555) had chronic migraine. Conclusions: This is the first large international cohort of persons with chronic and episodic migraine studied using a web-based approach, a methodology well suited to the study of the burden of migraines.
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No detailed assessment of the current treatment pathway, impact on work productivity, or burden associated with premonitory and postdromal phases of migraine is available in individuals experiencing ≥4 monthly migraine days who have had previous prophylactic treatments that failed and continue to experience frequent migraines.
“Specifically, no detailed assessment of the current treatment pathway, impact on work productivity, or burden associated with premonitory and postdromal phases of migraine is available in individuals experiencing ≥4 MMDs who have had previous prophylactic treatments that failed and continue to experience frequent migraines.”
From My Migraine Voice survey: a global study of disease burden among individuals with migraine for whom preventive treatments have failed (2018) · cites this paper as [5]
Current understanding of migraine burden among individuals with the highest unmet needs, specifically those experiencing ≥4 monthly migraine days and prior prophylaxis failure, is limited.
“However, the current understanding of migraine burden among individuals with the highest unmet needs, specifically those experiencing ≥4 monthly migraine days (MMDs) and prior prophylaxis failure, is limited.”
From My Migraine Voice survey: a global study of disease burden among individuals with migraine for whom preventive treatments have failed (2018) · cites this paper as [5]
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Indirect costs attributed to headache: A nation-wide survey of an active working population
Gil‐Gouveia, R., & Miranda, R. (2021) · Cephalalgia · doi:10.1177/03331024211043795 · Cited by 14 · see citing works
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LIVING WITH BURDEN OF MIGRAINE: THE ANALYSIS OF "MY MIGRAINE VOICE SURVEY" RESULTS IN TURKEY
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Sharing is Caring: The Case for Company-Level Collaboration in Pharmacoeconomic Modelling
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Role of Epidemiological Data Within the Drug Development Lifecycle: A Chronic Migraine Case Study
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We still have no data to change the diagnostic criteria for chronic migraine
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- Authors
- Payne, K. A., Varon, S. F., Kawata, A. K., Yeomans, K., Wilcox, T. K., Manack, A., Buse, D. C., Lipton, R. B., Goadsby, P. J., & Blumenfeld, A. M.
- Affiliations
- United BioSource Corporation, Canada.
- Allergan (United States) (US)
- United BioSource Corporation, USA.
- Albert Einstein College of Medicine (US)
- University of California, San Francisco (US)
- Neurology Center, USA.
- Corresponding author
- Payne, Krista A
- Venue
- Cephalalgia
- Publisher
- SAGE Publications
- Published
- 2011-06-20
- Volume
- 31
- Issue
- 10
- Pages
- 1116-1130
- ISSN
- 0333-1024 (ISSN-L)
- 1468-2982
- OpenAlex
- W2095214476
- Cited by
- 74
- References
- 44
- Citations by year
- 2026: 1 · 2025: 6 · 2024: 3 · 2023: 3 · 2022: 5 · 2021: 7 · 2020: 6 · 2019: 8 · 2018: 3 · 2017: 4 · 2016: 5 · 2015: 2 · 2014: 8 · 2013: 3 · 2012: 8
- FWCI
- 4.60
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Cephalalgia (publishedVersion)
- PubMed (publishedVersion)
- Research Portal (King's College London) (submittedVersion)
- Funders
- Allergan
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Migraine and Headache Studies
- Social Sciences › Sociology and Political Science › Survey Methodology and Nonresponse
- Health Sciences › Medicine › Pharmacology › Musculoskeletal pain and rehabilitation
- Keywords
- migraine, chronic migraine, episodic migraine, disease burden, health-related quality of life, disability, productivity, anxiety, depression, resource utilization (health care), online surveys, international cohort
- MeSH terms
- Adolescent, Adult, Aged, Cross-Sectional Studies, Data Collection, Female, Humans, Male, Middle Aged, Migraine Disorders, Research Design, Cohort Studies, Cost of Illness, Internet, Young Adult
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