The DOI matches its Crossref record; 11 of the 11 references it cites were found in a registry or an index.
Patient perception of bodily functions in multiple sclerosis: gait and visual function are the most valuable
Abstract
Multiple sclerosis is a heterogeneous disease with varying clinical picture. There have been substantial efforts to develop outcome measurements for therapeutic interventions but very few studies have addressed the value of bodily functions from the patient perspective. In a randomly selected cohort of early (<5 years, n = 84) and longer lasting disease courses (>15 years, n = 82) patients we asked for a weighting of 13 bodily functions and compared results with actual disability as measured by the United Kingdom Disability Scale. Lower limb function was given the highest priority in both patient groups followed by visual functioning and cognition especially in longer lasting MS. Actual disability did not correlate with the given priorities indicating that experienced deficits do not influence the subjective ratings of bodily functions. These results underline that ambulation-focused scales in MS represent a key dimension from the patient perspective. Visual functioning should be taken more into account.
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Cites
New diagnostic criteria for multiple sclerosis: Guidelines for research protocols
Poser, C. M., Paty, D. W., Scheinberg, L., McDonald, W. I., Davis, F. A., Ebers, G. C., Johnson, K. P., Sibley, W. A., Silberberg, D. H., & Tourtellotte, W. W. (1983) · Annals of Neurology · doi:10.1002/ana.410130302 · Cited by 7,384
Development of a multiple sclerosis functional composite as a clinical trial outcome measure
Cutter, G. R. (1999) · Brain · doi:10.1093/brain/122.5.871 · Cited by 1,190
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The Guy's Neurological Disability Scale (GNDS): a new disability measure for multiple sclerosis
Sharrack, B., & Hughes, R. A. (1999) · Multiple Sclerosis Journal · doi:10.1177/135245859900500406 · Cited by 293
The psychometric properties of clinical rating scales used in multiple sclerosis
Sharrack, B., Hughes, R. A. C., Soudain, S., & Dunn, G. (1999) · Brain · doi:10.1093/brain/122.1.141 · Cited by 258
Clinical outcomes assessment in multiple sclerosis
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Self-citationMultiple sclerosis: assessment of disability and disability scales
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The usefulness of evaluative outcome measures in patients with multiple sclerosis
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Cited by
Impact of Walking Impairment in Multiple Sclerosis: Perspectives of Patients and Care Partners
LaRocca, N. G. (2011) · The Patient: Patient-Centered Outcomes Research · doi:10.2165/11591150-000000000-00000 · Cited by 507
Wade, L., Needham, L., McGuigan, P., & Bilzon, J. (2022) · PeerJ · doi:10.7717/peerj.12995 · Cited by 384
Assessing walking disability in multiple sclerosis
Kieseier, B. C., & Pozzilli, C. (2012) · Multiple Sclerosis Journal · doi:10.1177/1352458512444498 · Cited by 306
Progressive multiple sclerosis: prospects for disease therapy, repair, and restoration of function
Ontaneda, D., Thompson, A. J., Fox, R. J., & Cohen, J. A. (2017) · The Lancet · doi:10.1016/s0140-6736(16)31320-4 · Cited by 298
Baert, I., Freeman, J., Smedal, T., Dalgas, U., Romberg, A., Kalron, A., Conyers, H., Elorriaga, I., Gebara, B., Gumse, J., et al. (2014) · Neurorehabilitation and Neural Repair · doi:10.1177/1545968314521010 · Cited by 213
Metadata
- Authors
- Heesen, C., Böhm, J., Reich, C., Kasper, J., Goebel, M., & Gold, S.
- Venue
- Multiple Sclerosis Journal
- Publisher
- SAGE Publications
- Published
- 2008-06-23
- Volume
- 14
- Issue
- 7
- Pages
- 988-991
- ISSN
- 1352-4585 (ISSN-L)
- 1477-0970
- OpenAlex
- W2145481931
- Cited by
- 521
- References
- 11
- FWCI
- 7.37
- Type
- journal article
- Language
- en
- Open access
- closed
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- Heesen, C., Böhm, J., Reich, C., Kasper, J., Goebel, M., & Gold, S. (2008). Patient perception of bodily functions in multiple sclerosis: gait and visual function are the most valuable. Multiple Sclerosis Journal. https://doi.org/10.1177/1352458508088916
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Bibliographic data: Semantic Scholar, OpenAlex, Crossref.
Contains information from the Semantic Scholar Academic Graph Datasets, made available under the ODC Attribution License (ODC-BY 1.0).
Semantic Scholar’s data is described in: Kinney, R., et al. (2023). The Semantic Scholar Open Data Platform. arXiv:2301.10140.
