The making of expert patients: The role of online health communities in arthritis self-management
Abstract
Chronic disease is an epidemic, one that requires patients to play an active role in managing symptoms and disease affect. This study used ethnomethodology ( N = 8231) to understand how patients with arthritis use online health communities to exchange disease-related information to better manage their chronic disease. The findings show that online health communities facilitate self-management behaviors through the exchange of health information and disease experience. These online health communities act as self-management programs led by peers with the same chronic disease through the exchange of health information based on experience, working to improve members’ health literacy related to arthritis.
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OHCs offer a mechanism for value cocreation among stakeholders with minimal time and cost restriction.
“In essence, communication extension brings the patients into focus, and OHCs offer a mechanism for value cocreation among stakeholders with minimal time and cost restriction [17,19,46,66-75].”
From Improving the Theoretical Understanding Toward Patient-Driven Health Care Innovation Through Online Value Cocreation: Systematic Review (2020) · cites this paper as [46]
OHCs facilitate self-management through health information exchange and disease experiences.
“These communities facilitate self-management through health information exchange and disease experiences [46].”
From Improving the Theoretical Understanding Toward Patient-Driven Health Care Innovation Through Online Value Cocreation: Systematic Review (2020) · cites this paper as [46]
OHCs can be an effective tool for knowledge sharing and peer education and have the potential to impact patients' health literacy.
“OHCs can be an effective tool for knowledge sharing and peer education, and it has the potential to impact patients’ health literacy [46,71].”
From Improving the Theoretical Understanding Toward Patient-Driven Health Care Innovation Through Online Value Cocreation: Systematic Review (2020) · cites this paper as [46]
By enabling patients to support each other in OHCs, organizations can also indirectly improve customers' ties with the product and with the organization.
“As such, by enabling patients to support each other in OHCs, organizations can also indirectly improve customers’ ties with the product and with the organization [46].”
From Improving the Theoretical Understanding Toward Patient-Driven Health Care Innovation Through Online Value Cocreation: Systematic Review (2020) · cites this paper as [46]
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- Authors
- Willis, E.
- Affiliations
- University of Memphis (US)
- Corresponding author
- Willis, Erin
- ORCID
- Willis, Erin
- Venue
- Journal of Health Psychology
- Publisher
- SAGE Publications
- Published
- 2013-08-29
- Volume
- 19
- Issue
- 12
- Pages
- 1613-1625
- ISSN
- 1359-1053 (ISSN-L)
- 1461-7277
- OpenAlex
- W2138041622
- Cited by
- 48
- References
- 51
- Citations by year
- 2026: 3 · 2025: 1 · 2024: 1 · 2023: 3 · 2022: 4 · 2021: 7 · 2020: 8 · 2019: 3 · 2018: 6 · 2017: 4 · 2016: 3 · 2015: 4 · 2014: 1
- FWCI
- 4.83
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Health Psychology (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
- Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
- Health Sciences › Health Professions › General Health Professions › Mobile Health and mHealth Applications
- Keywords
- online health communities, arthritis, self-management, chronic disease, peer support, health information exchange, health literacy, patient expertise, disease experience
- MeSH terms
- Adult, Aged, Aged, 80 and over, Arthritis, Female, Humans, Male, Middle Aged, Self Care, Health Behavior, Internet, Young Adult, Information Seeking Behavior, Social Networking
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