`Make me normal': The views and experiences of pupils on the autistic spectrum in mainstream secondary schools
Abstract
Facilitating the learning and participation of pupils with Asperger syndrome and high-functioning autism (herein referred to as AS) in mainstream schools is complex and poorly understood. We report on a small-scale qualitative study of the views and experiences of 20 such pupils drawn from four secondary schools in north-west England. Data were collected through semi-structured interviews and pupil diaries. Interpretive phenomenological analysis was used to explore how pupils with AS make sense of their educational experiences. The central theme was how participants constructed their understanding of what their AS meant to them. This was often characterized by negative perceptions of their differences, such as being `retarded' or having a `bad brain'. The links between this understanding and reported difficulties with peers and teachers, the desire to `fit in', and other themes are discussed. The implications of these findings for policy and practice in this area are also presented.
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In the face of constant negative messaging, especially combined with more generalised discrimination against disabled people, considerable stigma is associated with the autism label.
“In the face of this constant negative messaging, especially combined with more generalised discrimination against disabled people, it is unsurprising that considerable stigma is associated with the autism label.”
From Annual Research Review: Shifting from ‘normal science’ to neurodiversity in autism science (2022) · cites this paper as Humphrey & Lewis, 2008
Studies with young autistic people in particular have found that they often construe themselves as 'different' to neurotypical people in a negative way.
“Studies with young autistic people in particular have found that they often construe themselves as ‘different’ to neurotypical people in a negative way (Cribb, Kenny, & Pellicano, 2019; Humphrey & Lewis, 2008; Shattuck et al., 2014; Williams, Gleeson, & Jones, 2019).”
From Annual Research Review: Shifting from ‘normal science’ to neurodiversity in autism science (2022) · cites this paper as Humphrey & Lewis, 2008
Many autistic people want to be accepted for being "who they are" and take pride in being neurodivergent.
“Many autistic people want to be accepted for being “who they are” and take pride in being neurodivergent, a term (alongside neurodiversity) used to describe differences in the way people think, with diversity in the brain an important and celebrated part of human variation (Cage et al. 2016a; Humphrey and Lewis 2008; Hurlbutt and Chalmers 2002; Jaarsma and Welin 2012; Robertson 2009).”
From Experiences of autism acceptance and mental health in autistic adults (2018) · cites this paper as Humphrey and Lewis 2008
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“…and minimizing distress (Huws and Jones, 2015); recognition of the need for alternative to the interview platforms for some autistic individuals (Humphrey and Lewis, 2008); and accommodation of non-verbal autistic communication via the employment of, e.g., drawings and photo elicitation (King…”
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- Authors
- Humphrey, N., & Lewis, S.
- Affiliations
- University of Manchester (GB)
- ORCID
- Humphrey, Neil
- Venue
- Autism
- Publisher
- SAGE Publications
- Published
- 2008-01
- Volume
- 12
- Issue
- 1
- Pages
- 23-46
- ISSN
- 1362-3613 (ISSN-L)
- 1461-7005
- OpenAlex
- W2119717901
- Cited by
- 587
- References
- 63
- Citations by year
- 2026: 31 · 2025: 30 · 2024: 38 · 2023: 44 · 2022: 47 · 2021: 37 · 2020: 32 · 2019: 48 · 2018: 31 · 2017: 36 · 2016: 38 · 2015: 34 · 2014: 33 · 2013: 21 · 2012: 31
- FWCI
- 9.68
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Autism (publishedVersion)
- PubMed (publishedVersion)
- Research Explorer (The University of Manchester) (submittedVersion)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Sociology and Political Science › Inclusion and Disability in Education and Sport
- Social Sciences › Education › Inclusive Education and Diversity
- Keywords
- Asperger syndrome, high-functioning autism, mainstream education, student experience, peer relationships, teacher-student relationship, fitting in, self-perception, inclusive education, high school students
- MeSH terms
- Adaptation, Psychological, Adolescent, Autistic Disorder, Child, England, Female, Humans, Interpersonal Relations, Interview, Psychological, Mainstreaming, Education, Male, Intellectual Disability, Peer Group, Self Concept, Sick Role, Social Adjustment, Writing, Asperger Syndrome
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