Cited by 120Autism Spectrum Disorder ResearchFamily and Disability Support ResearchChild Nutrition and Feeding Issues

Fascination and Isolation: A Grounded Theory Exploration of Unusual Sensory Experiences in Adults with Asperger Syndrome

Smith, Richard S., Sharp, Jonathan·2013·Journal of Autism and Developmental Disorders

Abstract

Unusual sensory experiences are commonly seen in people with Asperger syndrome (AS). They correlate with functional impairments and cause distress. The current study investigates how these experiences have affected nine adults with AS's lives, as well as the coping strategies utilised. Semi-structured interviews were conducted using Instant Messaging software. Data were analysed using Grounded Theory. A number of inter-related categories and focused codes were identified. The categories included heightened senses, sensory stress, the stress avalanche, moderating factors, coping strategies, other people, self-acceptance, fascination, and isolation. A model was constructed as to how these categories and codes interact. How these findings link with previous research into autism spectrum disorders is discussed. Implications for services and future research are also made.

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Crossref · 10.1007/s10803-012-1633-6

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49 of 49 references verified0 citation errors · 0 not checkable

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  • Receiving the diagnosis helped people develop coping strategies for sensory difficulties and communicate their needs to others.

    “Receiving the diagnosis helped people develop coping strategies for sensory difficulties and communicate their needs to others.”

    From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as R. S. Smith and Sharp (2013)

  • In adults, self-report studies with cognitively able autistic participants indicate a conscious awareness of their sensory processing being different, which might help them to develop coping strategies.

    “In adults, self-report studies with cognitively able autistic participants (Elwin et al., 2013; Jones et al., 2003; Smith & Sharp, 2012) indicate a conscious awareness of their sensory processing being different, which might help them to develop coping strategies.”
  • Coping strategies of avoiding or controlling an unpleasant sensory stimulus can sometimes result in unhelpful outcomes for the individual.

    “In self-report studies of sensory experiences in children with autism, coping strategies of avoiding or controlling an unpleasant stimulus are present even in the youngest participants (e.g., Kirby et al., 2014), though these can sometimes result in unhelpful outcomes for the individual (Ashburner et al., 2013; Smith & Sharp, 2012).”
  • Previous self-reports of unhelpful sensory coping strategies suggest that outcomes might not always be considered in autism.

    “Previous self-reports of unhelpful sensory coping strategies (Ashburner et al., 2013; Smith & Sharp, 2012), suggest outcomes might not always be considered in autism”

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Authors
Smith, R. S., & Sharp, J.
Affiliations
  • Sheffield Health and Social Care NHS Foundation Trust (GB)
  • St Mary's Hospital (GB)
Corresponding author
Smith, Richard S.
Venue
Journal of Autism and Developmental Disorders
Published
2012-08-25
Volume
43
Issue
4
Pages
891-910
ISSN
  • 0162-3257 (ISSN-L)
  • 1573-3432
OpenAlex
W2067975863
Cited by
120
References
49
Citations by year
2026: 8 · 2025: 12 · 2024: 13 · 2023: 11 · 2022: 16 · 2021: 20 · 2020: 9 · 2019: 7 · 2018: 4 · 2017: 4 · 2016: 7 · 2015: 4 · 2014: 3 · 2013: 2
FWCI
1.47
Type
journal article
Language
en
Open access
closed
Locations
  • Journal of Autism and Developmental Disorders (publishedVersion)
  • PubMed (publishedVersion)
Topics
  • Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
  • Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
  • Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
Keywords
Asperger syndrome, coping strategies, fascination, social isolation, self-acceptance, autism spectrum disorder, autistic adults
MeSH terms
Adaptation, Psychological, Adult, Female, Humans, Interview, Psychological, Male, Middle Aged, Perceptual Disorders, Psychiatric Status Rating Scales, Psychological Theory, Sensation Disorders, Social Isolation, Stress, Psychological, Internet, Asperger Syndrome, Qualitative Research

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