Fascination and Isolation: A Grounded Theory Exploration of Unusual Sensory Experiences in Adults with Asperger Syndrome
Abstract
Unusual sensory experiences are commonly seen in people with Asperger syndrome (AS). They correlate with functional impairments and cause distress. The current study investigates how these experiences have affected nine adults with AS's lives, as well as the coping strategies utilised. Semi-structured interviews were conducted using Instant Messaging software. Data were analysed using Grounded Theory. A number of inter-related categories and focused codes were identified. The categories included heightened senses, sensory stress, the stress avalanche, moderating factors, coping strategies, other people, self-acceptance, fascination, and isolation. A model was constructed as to how these categories and codes interact. How these findings link with previous research into autism spectrum disorders is discussed. Implications for services and future research are also made.
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Receiving the diagnosis helped people develop coping strategies for sensory difficulties and communicate their needs to others.
“Receiving the diagnosis helped people develop coping strategies for sensory difficulties and communicate their needs to others.”
From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as R. S. Smith and Sharp (2013)
In adults, self-report studies with cognitively able autistic participants indicate a conscious awareness of their sensory processing being different, which might help them to develop coping strategies.
“In adults, self-report studies with cognitively able autistic participants (Elwin et al., 2013; Jones et al., 2003; Smith & Sharp, 2012) indicate a conscious awareness of their sensory processing being different, which might help them to develop coping strategies.”
From The design and implementation of a CBT-based intervention for sensory processing difficulties in adolescents on the autism spectrum (2016) · cites this paper as Smith & Sharp, 2012
Coping strategies of avoiding or controlling an unpleasant sensory stimulus can sometimes result in unhelpful outcomes for the individual.
“In self-report studies of sensory experiences in children with autism, coping strategies of avoiding or controlling an unpleasant stimulus are present even in the youngest participants (e.g., Kirby et al., 2014), though these can sometimes result in unhelpful outcomes for the individual (Ashburner et al., 2013; Smith & Sharp, 2012).”
From The design and implementation of a CBT-based intervention for sensory processing difficulties in adolescents on the autism spectrum (2016) · cites this paper as Smith & Sharp, 2012
Previous self-reports of unhelpful sensory coping strategies suggest that outcomes might not always be considered in autism.
“Previous self-reports of unhelpful sensory coping strategies (Ashburner et al., 2013; Smith & Sharp, 2012), suggest outcomes might not always be considered in autism”
From The design and implementation of a CBT-based intervention for sensory processing difficulties in adolescents on the autism spectrum (2016) · cites this paper as Smith & Sharp, 2012
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The effect of ambient sounds on decision-making and heart rate variability in autism
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“Neural Noise” in Auditory Responses in Young Autistic and Neurotypical Children
Dwyer, P. S. R., Vukušić, S., Williams, Z. J., Saron, C. D., & Rivera, S. M. (2022) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-022-05797-4 · Cited by 14 · see citing works
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The appraisal of roadway environment and infrastructure by drivers with autism: A qualitative study
Dirix, H., Ross, V., Brijs, K., Vermeiren, E., Timmermans, C., Alhajyaseen, W., Brijs, T., Wets, G., & Spooren, A. I. F. (2021) · Transportation Research Part F Traffic Psychology and Behaviour · doi:10.1016/j.trf.2021.01.016 · Cited by 12 · see citing works
Ćirović, M., Jeličić, L., Maksimović, S., Fatić, S., Marisavljević, M., Matić, T. B., & Subotić, M. (2023) · Diagnostics · doi:10.3390/diagnostics13182878 · Cited by 10 · see citing works
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Bury, S. M., Hedley, D., & Uljarević, M. (2021) · Autism and child psychopathology series · doi:10.1007/978-3-030-66445-9_15 · Cited by 12 · see citing works
Lichtlé, J., Lamore, K., Pedoux, A., Downes, N., Mottron, L., & Cappe, É. (2021) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-021-05097-3 · Cited by 10 · see citing works
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Early Learning in Autism as an Atypical Balance between Assimilation and Accommodation Processes
Vivanti, G., Rogers, S. J., Dwyer, P. S. R., & Rivera, S. M. (2022) · Human Development · doi:10.1159/000526416 · Cited by 10 · see citing works
Lateral inhibition in the autism spectrum: An SSVEP study of visual cortical lateral interactions
Dickinson, A. H., Gomez, R., Jones, M., Zemon, V. M., & Milne, E. (2018) · Neuropsychologia · doi:10.1016/j.neuropsychologia.2018.02.018 · Cited by 10 · see citing works
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“My struggles are largely sensory processing:” The sensory world of autistic people
Brake, J. (2024) · Journal of Human Behavior in the Social Environment · doi:10.1080/10911359.2024.2382108 · Cited by 9 · see citing works
Peñuelas‐Calvo, I., Sareen, A., Porras‐Segovia, A., Cegla-Schvartzman, F., & Fernández‐Berrocal, P. (2021) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2021.642799 · Cited by 9 · see citing works
Self-Report of Restricted Repetitive Behaviors in Autistic Adults: A Systematic Review
Collis, E., Dark, E., Russell, A., & Brosnan, M. (2024) · Autism in Adulthood · doi:10.1089/aut.2023.0111 · Cited by 9 · see citing works
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Some clarifications on neural noise and sensory sensitivities in Autism
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Walsh, Ó., Linehan, C., & Ryan, C. (2025) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-025-06869-x · Cited by 8 · see citing works
Forwarding the Science of Sensory Features in Autism and Related Conditions
Schaaf, R. C., Puts, N. A. J., Williams, Z. J., & Woynaroski, T. G. (2023) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-023-05959-y · Cited by 7 · see citing works
Welcoming autistic students to academic libraries through innovative space utilization
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Price, A., Oates, R., Sumner, P., & Powell, G. (2025) · Neurodiversity · doi:10.1177/27546330251383024 · Cited by 5 · see citing works
Digital Tools Applications to Occupational Health and Safety for People with Autism
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“I Know It’s Very Spectrum-y”: Autistic Women Reflect on Sensory Aspects of Food and Eating
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Cortisol Responsivity to Social Play in Children with Autism: A Systematic Review
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Development and Validation of the Glasgow Sensory Questionnaire Short (GSQ-14)Preprint
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Conceptualizing a Mentorship Program for University Students with Autism Spectrum Disorder
Roberts, N. (2015) · Summit (Simon Fraser University)
- Authors
- Smith, R. S., & Sharp, J.
- Affiliations
- Sheffield Health and Social Care NHS Foundation Trust (GB)
- St Mary's Hospital (GB)
- Corresponding author
- Smith, Richard S.
- ORCID
- Smith, Richard S.
- Venue
- Journal of Autism and Developmental Disorders
- Published
- 2012-08-25
- Volume
- 43
- Issue
- 4
- Pages
- 891-910
- ISSN
- 0162-3257 (ISSN-L)
- 1573-3432
- OpenAlex
- W2067975863
- Cited by
- 120
- References
- 49
- Citations by year
- 2026: 8 · 2025: 12 · 2024: 13 · 2023: 11 · 2022: 16 · 2021: 20 · 2020: 9 · 2019: 7 · 2018: 4 · 2017: 4 · 2016: 7 · 2015: 4 · 2014: 3 · 2013: 2
- FWCI
- 1.47
- Type
- journal article
- Language
- en
- Open access
- closed
- Licence
- www.springer.com/tdm (tdm)
- Locations
- Journal of Autism and Developmental Disorders (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
- Keywords
- Asperger syndrome, coping strategies, fascination, social isolation, self-acceptance, autism spectrum disorder, autistic adults
- MeSH terms
- Adaptation, Psychological, Adult, Female, Humans, Interview, Psychological, Male, Middle Aged, Perceptual Disorders, Psychiatric Status Rating Scales, Psychological Theory, Sensation Disorders, Social Isolation, Stress, Psychological, Internet, Asperger Syndrome, Qualitative Research
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