The DOI matches its Crossref record; 34 of the 34 references it cites were found in a registry or an index.
Parent and child perspectives on the nature of anxiety in children and young people with autism spectrum disorders: a focus group study
Abstract
Anxiety disorders are common among children and young people with autism spectrum disorders (ASD). Despite growing knowledge about the prevalence, phenomenology and treatment of anxiety disorders, relatively little is understood about the nature and impact of anxiety in this group and little is known about autism-specific factors that may have a role in the increased prevalence of anxiety disorders. In this exploratory study, we report on a series of five focus groups with 17 parents of children and adolescents with ASD and anxiety. Across groups, parents gave strikingly similar descriptions of the triggers and behavioural signs associated with anxiety. Another consistent finding was that many parents reported that their children had great difficulty expressing their worries verbally and most showed their anxiety through changes in their behaviour. The impact of anxiety was reported to often be more substantial than the impact of ASD itself. The implications of the focus group findings are discussed in relation to existing literature.
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“Many studies implicate excessive worry in autism regarding change, and excessive rigidity about things such as foods, rituals, and clothing [18, 19, 21-23].”
From Autistic Cognition: Charting Routes to Anxiety (2021) · cites this paper as [21]
Citations
Cites
Focus Groups: A Practical Guide for Applied Research
Billson, J. M. (1989) · Human Biology · Cited by 8,560
Qualitative research. Introducing focus groups.
Kitzinger, J. (1995) · BMJ · doi:10.1136/bmj.311.7000.299 · Cited by 6,939
A cognitive model of posttraumatic stress disorder
Ehlers, A., & Clark, D. M. (2000) · Behaviour Research and Therapy · doi:10.1016/s0005-7967(99)00123-0 · Cited by 6,147
Prevalence and development of psychiatric disorders in childhood and adolescence
Costello, E. J., Mustillo, S., Erkanli, A., Keeler, G., & Angold, A. (2003) · Archives of General Psychiatry · doi:10.1001/archpsyc.60.8.837 · Cited by 4,035
Simonoff, E., Pickles, A., Charman, T., Chandler, S., Loucas, T., & Baird, G. (2008) · Journal of the American Academy of Child & Adolescent Psychiatry · doi:10.1097/chi.0b013e318179964f · Cited by 3,399
A Pragmatic View of Thematic Analysis
Aronson, J. (1995) · The Qualitative Report · doi:10.46743/2160-3715/1995.2069 · Cited by 1,758 · cited 1×
“Following focus group methodology in analyses (Kitzinger, 1995; Krueger and Casey, 2000), transcripts were analysed using thematic analysis (Aronson, 1994).”
MethodBeesdo, K., Knappe, S., & Pine, D. S. (2009) · Psychiatric Clinics of North America · doi:10.1016/j.psc.2009.06.002 · Cited by 1,703
Ellsworth, P. D. (1980) · American Journal of Occupational Therapy · doi:10.5014/ajot.34.12.819a · Cited by 1,702
Krueger, R. A. (2000) · Oxford University Press eBooks · doi:10.1037/10518-189 · Cited by 1,520
Anxiety in children and adolescents with autism spectrum disorders
White, S. W., Oswald, D., Ollendick, T., & Scahill, L. (2009) · Clinical Psychology Review · doi:10.1016/j.cpr.2009.01.003 · Cited by 1,427 · cited 1×
“…controlled trials suggest that enhanced and adapted CBT can successfully treat anxiety disorders in high functioning children with ASD (e.g. Wood et al., 2009), though currently it is not clear which adaptations are crucial or which modifications are required for which anxiety disorder…”
BackgroundAn information processing model of anxiety: Automatic and strategic processes
Beck, A. T., & Clark, D. A. (1997) · Behaviour Research and Therapy · doi:10.1016/s0005-7967(96)00069-1 · Cited by 1,317
Anxiety Disorders During Childhood and Adolescence: Origins and Treatment
Rapee, R. M., Schniering, C. A., & Hudson, J. L. (2009) · Annual Review of Clinical Psychology · doi:10.1146/annurev.clinpsy.032408.153628 · Cited by 821 · cited 2×
“5% and 5%, affecting twice as many girls as boys (Rapee et al., 2009) with cumulative prevalence rates indicating that 9.”
BackgroundInfluentialFern, E. F. (2001) · Sage eBooks · doi:10.4135/9781412990028 · Cited by 762
Wood, J. J., Drahota, A., Sze, K., Har, K., Chiu, A., & Langer, D. A. (2009) · Journal of Child Psychology and Psychiatry · doi:10.1111/j.1469-7610.2008.01948.x · Cited by 666
Anxiety in High-Functioning Children with Autism
Gillott, A., Furniss, F., & Walter, A. (2001) · Autism · doi:10.1177/1362361301005003005 · Cited by 562
Connolly, S. D., & Bernstein, G. A. (2007) · Journal of the American Academy of Child & Adolescent Psychiatry · doi:10.1097/01.chi.0000246070.23695.06 · Cited by 548
Anxiety in a neglected population: Prevalence of anxiety disorders in pre-adolescent children
Cartwright-Hatton, S., McNicol, K., & Doubleday, E. (2006) · Clinical Psychology Review · doi:10.1016/j.cpr.2005.12.002 · Cited by 543
Social Skill Deficits and Anxiety in High-Functioning Adolescents With Autism Spectrum Disorders
Bellini, S. (2004) · Focus on Autism and Other Developmental Disabilities · doi:10.1177/10883576040190020201 · Cited by 524
Presentation of depression in autism and Asperger syndrome: A review
Stewart, M. E., Barnard, L., Pearson, J., Hasan, R., & O’Brien, G. (2006) · Autism · doi:10.1177/1362361306062013 · Cited by 515
Chalfant, A. M., Rapee, R., & Carroll, L. (2007) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-006-0318-4 · Cited by 428 · cited 1×
“Additionally, the lack of available information about the atypical presentation of anxiety in ASD renders it difficult to implement the AACAP Practice Parameter recommendation (Connolly and Bernstein, 2007) that anxiety treatments are matched to child and family characteristics.”
BackgroundExploring the nature and function of anxiety in youth with autism spectrum disorders.
Wood, J. J., & Gadow, K. D. (2010) · Clinical Psychology: Science and Practice · doi:10.1111/j.1468-2850.2010.01220.x · Cited by 407 · cited 4×
“The themes identified by the parents in our study (Figure 1) very closely map onto the factors put forward by Wood and Gadow (2010), and provide some initial support for the face and external validity of this proposed model and its applicability to the real-life experiences of anxious young people with ASD and their f…”
BackgroundInfluentialGreen, J., Gilchrist, A., Burton, D., & Cox, A. (2000) · Journal of Autism and Developmental Disorders · doi:10.1023/a:1005523232106 · Cited by 389
Comorbid anxiety symptoms in children with pervasive developmental disorders
Muris, P., Steerneman, P., Merckelbach, H., Holdrinet, I., & Meesters, C. (1998) · Journal of Anxiety Disorders · doi:10.1016/s0887-6185(98)00022-x · Cited by 368
Green, S. A., & Ben-Sasson, A. (2010) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-010-1007-x · Cited by 327 · cited 2×
“…is also emerging of the relationship between anxiety and ASD-specific factors, including impoverished empathy and social skills (Bellini, 2004), theory of mind and central coherence difficulties (Burnette, et al., 2005) and sensory over-sensitivity and responsivity (Green and Ben-Sasson, 2010).”
BackgroundAnnual Review of Clinical Psychology
(2017) · Annual Review of Clinical Psychology · doi:10.1146/clinpsy.724 · Cited by 318
Anxiety in children and adolescents with Autism Spectrum Disorders
MacNeil, B. M., Lopes, V., & Minnes, P. (2008) · Research in Autism · doi:10.1016/j.rasd.2008.06.001 · Cited by 265
Lang, R., Regester, A., Lauderdale, S., Ashbaugh, K., & Haring, A. (2010) · Developmental Neurorehabilitation · doi:10.3109/17518420903236288 · Cited by 226
Farrugia, S., & Hudson, J. L. (2006) · Focus on Autism and Other Developmental Disabilities · doi:10.1177/10883576060210010401 · Cited by 221
Moree, B. N., & Davis, T. E. (2010) · Research in Autism Spectrum Disorders · doi:10.1016/j.rasd.2009.10.015 · Cited by 220
Issues in the diagnosis and assessment of anxiety disorders in children and adolescents
Schniering, C. A., Hudson, J. L., & Rapee, R. M. (2000) · Clinical Psychology Review · doi:10.1016/s0272-7358(99)00037-9 · Cited by 219
Weak Central Coherence and Its Relations to Theory of Mind and Anxiety in Autism
Burnette, C. P., Mundy, P. C., Meyer, J. A., Sutton, S. K., Hecke, A. V. V., & Charak, D. (2005) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-004-1035-5 · Cited by 137
Enhancing CBT for the Treatment of Autism Spectrum Disorders and Concurrent Anxiety
Sze, K. M., & Wood, J. J. (2008) · Behavioural and Cognitive Psychotherapy · doi:10.1017/s1352465808004384 · Cited by 96
Muris, P., & Broeren, S. (2008) · Journal of Child and Family Studies · doi:10.1007/s10826-008-9242-x · Cited by 54
The balance of power in therapeutic interactions with individuals who have intellectual disabilities
Jahoda, A. J., Selkirk, M., Trower, P., Pert, C., Kroese, B. S., Dagnan, D., & Burford, B. (2008) · British Journal of Clinical Psychology · doi:10.1348/014466508x360746 · Cited by 52
Flagged first, then by citations
Research works printed but not linked: 3
- American Psychiatric Association, 2000, Diagnostic and Statistical Manual of Mental Disorder
- Einfeld SL, 1992, Manual for the developmental behaviour checklist
- Gaus VL, 2007, Cognitive-Behavioural Therapy for Adult Asperger Syndrome
Cited by
Sorted by citations
Hollocks, M. J., Lerh, J. W., Magiati, I., Meiser-Stedman, R., & Brugha, T. S. (2019) · Psychological Medicine · doi:10.1017/s0033291718002283 · Cited by 988
Self-citationTraditional and atypical presentations of anxiety in youth with autism spectrum disorder
Kerns, C. M., Kendall, P. C., Berry, L., Souders, M. C., Franklin, M. E., Schultz, R. T., Miller, J., & Herrington, J. (2014) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-014-2141-7 · Cited by 405
Agency of Autistic Children in Technology Research—A Critical Literature Review
Spiel, K., Frauenberger, C., Keyes, O., & Fitzpatrick, G. (2019) · ACM Transactions on Computer-Human Interaction · doi:10.1145/3344919 · Cited by 312
White, S. W., Mazefsky, C. A., Dichter, G. S., Chiu, P. H., Richey, J. A., & Ollendick, T. H. (2014) · International Journal of Developmental Neuroscience · doi:10.1016/j.ijdevneu.2014.05.012 · Cited by 252
Anxiety Levels in Children with Autism Spectrum Disorder: A Meta-Analysis
van Steensel, F. J. A., & Heeman, E. J. (2017) · Journal of Child and Family Studies · doi:10.1007/s10826-017-0687-7 · Cited by 269
Metadata
- Authors
- Ozsivadjian, A., Knott, F., & Magiati, I.
- Affiliations
- Guy's Hospital (GB)
- University of Reading (GB)
- National University of Singapore (SG)
- Venue
- Autism
- Publisher
- SAGE Publications
- Published
- 2012-02-01
- Volume
- 16
- Issue
- 2
- Pages
- 107-121
- ISSN
- 1362-3613 (ISSN-L)
- 1461-7005
- OpenAlex
- W1973148008
- Cited by
- 161
- References
- 33
- Citations by year
- 2026: 10 · 2025: 8 · 2024: 10 · 2023: 11 · 2022: 15 · 2021: 8 · 2020: 15 · 2019: 13 · 2018: 10 · 2017: 14 · 2016: 16 · 2015: 7 · 2014: 10 · 2013: 10 · 2012: 3
- FWCI
- 4.91
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Autism (publishedVersion)
- PubMed (publishedVersion)
- CentAUR (University of Reading) (acceptedVersion)
- National University of Singapore (submittedVersion)
- Research Portal (King's College London) (submittedVersion)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Child and Adolescent Psychosocial and Emotional Development
- Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
- Keywords
- autism spectrum disorder, anxiety disorders, children and adolescents, parental attitudes, anxiety triggers
- MeSH terms
- Activities of Daily Living, Adolescent, Anxiety, Child, Child Behavior, Child Development Disorders, Pervasive, Cognition, Female, Humans, Male, Parents, Stress, Psychological, Focus Groups
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