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Cited by 800Autism Spectrum Disorder ResearchMental Health and Patient InvolvementFamily and Disability Support Research

The DOI matches its Crossref record; 35 of the 47 references it cites were found in a registry or an index.

What should autism research focus upon? Community views and priorities from the United Kingdom

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Pellicano, Elizabeth, Dinsmore, Adam, Charman, Tony·2014·Autism
DOI 10.1177/1362361314529627PMC PMC4230972
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Abstract

The rise in the measured prevalence of autism has been accompanied by much new research and research investment internationally. This study sought to establish whether the pattern of current UK autism research funding maps on to the concerns of the autism community. Interviews and focus groups were conducted with autistic adults, family members, practitioners and researchers to identify their priorities for research. We also captured the views of a large number of stakeholders via an online survey. There was a clear disparity between the United Kingdom’s pattern of funding for autism research and the priorities articulated by the majority of participants. There was general consensus that future priorities for autism research should lie in those areas that make a difference to people’s day-to-day lives. There needs to be greater involvement of the autism community both in priority setting and in research more broadly to ensure that resources reach where they are most needed and can make the most impact.

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Citations

Cites

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    Method

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    “…in the United Kingdom (UK) has an autism spectrum condition (Baird et al., 2006; Brugha et al., 2011) – more than a 20-fold increase from the results of the first epidemiological study (Lotter, 1966) – and such estimates are similar in other parts of the world (e.g. Elsabbagh et al., 2012).”
    Result

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    “Recent figures estimate that approximately 1% of the population in the United Kingdom (UK) has an autism spectrum condition (Baird et al., 2006; Brugha et al., 2011) – more than a 20-fold increase from the results of the first epidemiological study (Lotter, 1966) – and such estimates are similar in…”
    ResultSelf-citation

  • Research Update

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    “The snowball sampling technique we used has advantages (of accessing previously ‘hidden’ populations; Atkinson and Flint, 2001) but is potentially biased towards the inclusion of individuals with greater inter-connections (e.”
    Method

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    “Autistic people are less likely to have a well-paying job than non-autistic people; many have fewer social contacts and connections outside their immediate family and many also struggle with their mental health and material well-being (e.g. Howlin et al., 2004, 2013; Howlin and Moss, 2012).”
    Background

  • Epidemiology of Autism Spectrum Disorders in Adults in the Community in England

    Brugha, T. S., McManus, S., Bankart, J., Scott, F., Purdon, S., Smith, J., Bebbington, P., Jenkins, R., & Meltzer, H. (2011) · Archives of General Psychiatry · doi:10.1001/archgenpsychiatry.2011.38 · Cited by 903 · cited 2×

    “Recent figures estimate that approximately 1% of the population in the United Kingdom (UK) has an autism spectrum condition (Baird et al., 2006; Brugha et al., 2011) – more than a 20-fold increase from the results of the first epidemiological study (Lotter, 1966) – and such estimates are similar in…”
    Result

  • Epidemiology of autistic conditions in young children: 1. Prevalence

    Lotter, V. (1966) · Social Psychiatry · doi:10.1007/bf00584048 · Cited by 780 · cited 2×

    “…in the United Kingdom (UK) has an autism spectrum condition (Baird et al., 2006; Brugha et al., 2011) – more than a 20-fold increase from the results of the first epidemiological study (Lotter, 1966) – and such estimates are similar in other parts of the world (e.g. Elsabbagh et al., 2012).”
    Result

  • Adults with Autism Spectrum Disorders

    Howlin, P., & Moss, P. (2012) · The Canadian Journal of Psychiatry · doi:10.1177/070674371205700502 · Cited by 559 · cited 1×

    “Autistic people are less likely to have a well-paying job than non-autistic people; many have fewer social contacts and connections outside their immediate family and many also struggle with their mental health and material well-being (e.g. Howlin et al., 2004, 2013; Howlin and Moss, 2012).”
    Background

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    Background

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    “Autistic people are less likely to have a well-paying job than non-autistic people; many have fewer social contacts and connections outside their immediate family and many also struggle with their mental health and material well-being (e.g. Howlin et al., 2004, 2013; Howlin and Moss, 2012).”
    Background

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Show all 47 references

12 of the 47 references couldn’t be matched to a known paper.

Research works printed but not linked: 7

  1. 10.1016/S0140-6736(06)69041-7 · DOI · Paper page
  2. Charman T, 2004, Mapping Autism Research: Identifying UK Priorities for the Future
  3. Dawson G, 2013, Archives of General Psychiatry, 70, 9
  4. Milton DEM, 2013, Medical Sociology Online, 7, 61
  5. Ne’eman A, 2011, Talk about Autism Q&A: Ari Ne’eman –
  6. Pellicano E, 2013, A future made together: Shaping autism research in the UK
  7. Pellicano E, PLOS One

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Metadata

Authors
Pellicano, E., Dinsmore, A., & Charman, T.
Affiliations
  • University of London (GB)
  • King's College London (GB)
Corresponding author
Pellicano, Elizabeth
ORCID
Venue
Autism
Publisher
SAGE Publications
Published
2014-04-30
Volume
18
Issue
7
Pages
756-770
ISSN
  • 1362-3613 (ISSN-L)
  • 1461-7005
DOI
10.1177/1362361314529627
PMC
PMC4230972
OpenAlex
W2155427676
Cited by
800
References
47
Citations by year
2026: 83 · 2025: 89 · 2024: 88 · 2023: 70 · 2022: 78 · 2021: 73 · 2020: 109 · 2019: 58 · 2018: 58 · 2017: 39 · 2016: 27 · 2015: 23 · 2014: 5
FWCI
17.48
Type
journal article
Language
en
Open access
Licence
Locations
  • Autism (publishedVersion, cc-by)
  • Europe PMC (PubMed Central) (publishedVersion, cc-by)
  • PubMed Central (publishedVersion, cc-by)
  • PubMed (publishedVersion)
  • Research Portal (King's College London) (publishedVersion, other-oa)
  • UWA Profiles and Research Repository (UWA) (submittedVersion, other-oa)
Funders
  • Waterloo Foundation
  • Wolfson Foundation
Topics
  • Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
  • Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
  • Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
Keywords
research funding, autism community, stakeholder perspectives, autistic adults, priority setting, community-engaged research, research investment, United Kingdom
MeSH terms
Adolescent, Adult, Aged, Aged, 80 and over, Attitude to Health, Autistic Disorder, Child, Child, Preschool, Female, United Kingdom, Health Services Needs and Demand, Humans, Interviews as Topic, Male, Middle Aged, Research, Residence Characteristics, Patient Satisfaction, Focus Groups, Young Adult

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