Cited by 161Dementia and Cognitive Impairment ResearchNursing care and researchFamily Caregiving in Mental Illness

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The Psychosocial Impact of Young Onset Dementia on Spouses

Kaiser, Sam, Panegyres, Peter K.·2007·American Journal of Alzheimer's Disease & Other Dementias®

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Abstract

Dementia in young adults is not very well studied in terms of clinical effects on the patient, and not much is known about the effects on spouses and caregivers. This study assessed the psychological impact of the diagnosis of young onset dementia on spouses. A questionnaire that used the Zarit Burden Interview and the Beck Depression Index was sent to 120 spouses of a cohort of patients with established diagnoses of young onset dementia (age of onset before 65 years), including frontotemporal lobar degeneration, Alzheimer’s disease, and primary progressive aphasia. A total of 100 usable responses were received. The mean age of respondents was 62.3 years (54% women, 46% men). A cross-sectional analysis showed that the diagnosis of young onset dementia has a significant impact on spouses, characterized by concerns of dependency, fear, and increased depression, especially in the spouses of patients with frontotemporal lobar degeneration.

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Authors: Kaiser, S., & Panegyres, P. K.
Affiliations: Government of Western Australia Department of Health (AU)
ORCID: Panegyres, Peter K.
Venue: American Journal of Alzheimer's Disease & Other Dementias®
Publisher: SAGE Publications
Published: 2007-12
Volume: 21
Issue: 6
Pages: 398-402
ISSN: 0888-4897 (ISSN-L)
1533-3175
1938-2731
DOI: 10.1177/1533317506293259
OpenAlex: W2003601873
Cited by: 161
References: 19
Citations by year: 2026: 1 · 2025: 4 · 2024: 4 · 2023: 7 · 2022: 10 · 2021: 8 · 2020: 38 · 2019: 8 · 2018: 7 · 2017: 8 · 2016: 10 · 2015: 6 · 2014: 6 · 2013: 9 · 2012: 13
FWCI: 3.82
Type: journal article
Language: en
Open access: closed
Licence: journals.sagepub.com/page/policies/text-and-data-mining-license (tdm)
Locations: American Journal of Alzheimer s Disease & Other Dementias® (publishedVersion)
PubMed (publishedVersion)
Topics: Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
Health Sciences › Nursing › Research and Theory › Nursing care and research
Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
Keywords: early-onset dementia, spouses, caregiver burden, depression, frontotemporal lobar degeneration, Alzheimer's disease, primary progressive aphasia, Zarit Burden Interview
MeSH terms: Age Factors, Alzheimer Disease, Attitude to Health, Cross-Sectional Studies, Dementia, Major Depressive Disorder, Fear, Female, Humans, Male, Middle Aged, Psychology, Surveys and Questionnaires, Cohort Studies, Caregivers, Cost of Illness, Spouses

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The Psychosocial Impact of Young Onset Dementia on Spouses

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