Cited by 19Dementia and Cognitive Impairment ResearchGeriatric Care and Nursing HomesPalliative Care and End-of-Life Issues

A protocol for a systematic review of research on managing behavioural and psychological symptoms in dementia for community-dwelling older people: evidence mapping and syntheses

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Trivedi, Daksha, Goodman, Claire, Dickinson, Angela, Gage, Heather, McLaughlin, Jennifer, Manthorpe, Jill, Ashaye, Kunle, Iliffe, Steve·2013·Systematic Reviews

Abstract

BACKGROUND: Non-cognitive behavioural and psychological symptoms of dementia affect up to 90% of people with dementia during the disease course and result in distress, increased carer burden, high service utilization and unwanted moves to care homes. Research has focused on long-term settings and has not considered people with dementia living at home and at different stages of the disease trajectory. Our aim is to review systematically the evidence concerning non-pharmacological strategies to minimise behavioural and psychological symptoms in community-dwelling older people with dementia. METHODS/DESIGN: Our approach is a two-stage co-design: a systematic mapping of the broad evidence around behavioural and psychological symptoms followed by an in-depth systematic review of studies of non-pharmacological interventions for behavioural and psychological symptoms from the perspective of their impact on community-dwelling older people with dementia and their carers. The review will include published literature involving a wide range of electronic databases using sensitive and comprehensive searches and lateral searching including checking citations.We will produce a descriptive map of the studies by design and by the focus of interventions and apply further inclusion criteria, developed in conjunction with lay experts, to select studies for an in-depth systematic review that will include independent quality assessment and detailed data extraction by two reviewers.The review process will be integrated with stakeholder meetings and a multidisciplinary expert advisory group to guide the review parameters and shape the research questions on the management of behavioural and psychological symptoms in people with dementia. Because studies are likely to be diverse in methodology and interventions, we will conduct a narrative synthesis of the in-depth systematic review. If appropriate, we will pool studies in a meta-analysis. We will explore review findings at both stages through focus groups and interviews with service providers, practitioners, people with dementia and carers. DISCUSSION: This integrated review in collaboration with key stakeholders will synthesise research evidence to identify appropriate interventions for effective management of behavioural and psychological symptoms that supports people with dementia living at home and their carers, and which reflects their priorities. It will make recommendations for research and practice. STUDY REGISTRATION: PROSPERO registration number: CRD42013004344.

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  1. NICE-SCIE A NICE–SCIE Guideline on Supporting People with Dementia and Their Carers in Health and Social Care. National Clinical Practice Guideline Number 42 2007 Leicester, UK: British Psychological Society 21834193
  2. Cochrane Handbook for Systematic Reviews of Interventions Standards for the Reporting of New Cochrane Intervention Reviews 2012 Chichester: The Cochrane Library, John Wiley & Sons http://www.cochrane-handbook.org, http://www.editorial-unit.cochrane.org/sites/editorial-unit.cochrane.org/files/uploads/MECIR%20Reporting%20standards%201.1_17122012_2.pdf

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Authors
Trivedi, D., Goodman, C., Dickinson, A., Gage, H., McLaughlin, J., Manthorpe, J., Ashaye, K., & Iliffe, S.
Affiliations
  • University of Hertfordshire (GB)
  • University of Surrey (GB)
  • King's College London (GB)
  • Lister Hospital (GB)
  • University College London (GB)
Corresponding author
Trivedi, Daksha
Venue
Systematic Reviews
Published
2013-08-28
Volume
2
Issue
1
Pages
70-70
ISSN
2046-4053 (ISSN-L)
OpenAlex
W2151835919
Cited by
19
References
49
Citations by year
2024: 2 · 2023: 3 · 2022: 1 · 2019: 2 · 2018: 5 · 2017: 2 · 2016: 3 · 2015: 1
FWCI
0.18
Type
journal article
Language
en
Open access
Locations
  • Systematic Reviews (publishedVersion, cc-by)
  • Europe PMC (PubMed Central) (publishedVersion, cc-by)
  • PubMed Central (publishedVersion, cc-by)
  • PubMed (publishedVersion)
  • University of Hertfordshire Research Archive (University of Hertfordshire) (acceptedVersion)
  • UCL Discovery (University College London) (submittedVersion)
  • University of Hertfordshire Research Archive (University of Hertfordshire) (submittedVersion, cc-by)
Funders
  • National Institute for Health and Care Research (NF-SI-0510-10091, 08/1809/229, PB-PG-0211-24078)
  • Economic and Social Research Council (ES/G030405/1, ES/J010464/1)
  • Research for Patient Benefit Programme
Topics
  • Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
  • Health Sciences › Health Professions › General Health Professions › Geriatric Care and Nursing Homes
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
Keywords
behavioral and psychological symptoms of dementia, community-dwelling older adults, non-pharmacological treatment, caregiver burden, co-design, evidence mapping, stakeholder engagement
MeSH terms
Systematic Reviews as Topic, Dementia, Humans, Research Design, Residence Characteristics

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