Caregiver burden and patients’ perception of being a burden in ALS
Abstract
The determinants of ALS caregiver burden and the feeling of the patients as being a burden were assessed using the Caregiver Burden Inventory and the Self-Perceived Burden Scale in 60 caregiver-patient couples. Caregiver burden was correlated to their level of depression and quality of life and, differently from other chronic disorders, increased with the worsening of patients' disability. ALS patients have a good objective perception of their impact on caregivers.
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Quality of life may be increased and perceived carer burden decreased in MND family carers who find positive meaning and have a sense of hope.
“Quality of life may be increased and perceived carer burden decreased in MND family carers who find positive meaning [13,14] and have a sense of hope [18].”
From Feasibility, acceptability and potential effectiveness of dignity therapy for family carers of people with motor neurone disease (2014) · cites this paper as [18]
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Efficacy of Hypnosis-Based Treatment in Amyotrophic Lateral Sclerosis: A Pilot Study
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Calvo, A., Moglia, C., Ilardi, A., Cammarosano, S., Gallo, S., Canosa, A., Mastro, E., Montuschi, A., & Chiò, A. (2011) · Amyotrophic Lateral Sclerosis · doi:10.3109/17482968.2011.560947 · Cited by 29 · see citing works
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- Authors
- Chiò, A., Gauthier, A., Calvo, A., Ghiglione, P., & Mutani, R.
- Affiliations
- From the Department of Neuroscience (Drs. A. Chiò, A. Gauthier, A. Calvo, A. Ghiglione, and R. Mutani), University of Turin, and IRCCS Istituto Auxologico Italiano (Dr. R. Mutani), Piancavallo, Italy.
- IRCCS Istituto Auxologico Italiano (IT)
- ORCID
- Calvo, A.
- Venue
- Neurology
- Published
- 2005-05-24
- Volume
- 64
- Issue
- 10
- Pages
- 1780-1782
- ISSN
- 0028-3878 (ISSN-L)
- 1526-632X
- OpenAlex
- W2080752676
- Cited by
- 223
- References
- 9
- Citations by year
- 2026: 8 · 2025: 6 · 2024: 11 · 2023: 10 · 2022: 5 · 2021: 19 · 2020: 15 · 2019: 8 · 2018: 11 · 2017: 11 · 2016: 10 · 2015: 16 · 2014: 13 · 2013: 4 · 2012: 16
- FWCI
- 22.70
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Neurology (publishedVersion)
- PubMed (publishedVersion)
- Institutional Research Information System University of Turin (University of Turin) (submittedVersion)
- Topics
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Health Sciences › Medicine › Neurology › Amyotrophic Lateral Sclerosis Research
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Keywords
- amyotrophic lateral sclerosis, caregiver burden, perceived burden, depression, quality of life, disability progression, Caregiver Burden Inventory
- MeSH terms
- Activities of Daily Living, Adult, Age Factors, Aged, Amyotrophic Lateral Sclerosis, Chronic Disease, Depression, Female, Humans, Male, Middle Aged, Patients, Quality of Life, Surveys and Questionnaires, Sex Factors, Social Support, Caregivers, Disease Progression, Spouses
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