Stillbirth and Stigma: The Spoiling and Repair of Multiple Social Identities
Abstract
This study investigated mothers' experiences surrounding stillbirth in the United Kingdom, their memory making and sharing opportunities, and the effect these opportunities had on them. Qualitative data were generated from free text responses to open-ended questions. Thematic content analysis revealed that “stigma” was experienced by most women and Goffman's (1963) work on stigma was subsequently used as an analytical framework. Results suggest that stillbirth can spoil the identities of “patient,” “mother,” and “full citizen.” Stigma was reported as arising from interactions with professionals, family, friends, work colleagues, and even casual acquaintances. Stillbirth produces common learning experiences often requiring “identity work” (Murphy, 2012). Memory making and sharing may be important in this work and further research is needed. Stigma can reduce the memory sharing opportunities for women after stillbirth and this may explain some of the differential mental health effects of memory making after stillbirth that is documented in the literature.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
The lack of precise data about perinatal losses entails the calculation of unreal rates of prevalence, generating a false perception of these losses as isolated cases and causing stigma in women and families affected.
“This lack of precise data about perinatal losses entails the calculation of unreal rates of prevalence for this kind of episodes, generating a false perception of these losses as isolated cases and, therefore, causing stigma in women and families affected (Brierley-Jones et al., 2014; Fernandez et al., 2011).”
From Integrative Review of Emotional Care Following Perinatal Loss (2021) · cites this paper as Brierley-Jones et al., 2014
The grief resulting from a perinatal loss is complex and unique, often causing a sense of biological failure and loss of self.
“The grief resulting from a perinatal loss is complex and unique, often causing a sense of biological failure and loss of self.”
From Integrative Review of Emotional Care Following Perinatal Loss (2021) · cites this paper as Brierley-Jones et al., 2014
Perinatal loss is characterized by lack of memories associated with the infant to help cope with grieving, loss of future expectations by the parents, and minimization by others.
“Additionally, this type of losses is characterized by lack of memories associated to the infant to help cope with the grieving process, loss of future expectations by the parents, and minimization by others (Brierley-Jones et al., 2014; Ellis et al., 2016).”
From Integrative Review of Emotional Care Following Perinatal Loss (2021) · cites this paper as Brierley-Jones et al., 2014
Cites
The Discovery of Grounded Theory; Strategies for Qualitative Research
Glaser, B. G., Strauss, A. L., & Strutzel, E. (1968) · Nursing Research · doi:10.1097/00006199-196807000-00014 · Cited by 39,449 · see citing works
Henry, J. D., & Crawford, J. R. (2005) · British Journal of Clinical Psychology · doi:10.1348/014466505x29657 · Cited by 5,801 · see citing works
Major risk factors for stillbirth in high-income countries: a systematic review and meta-analysis
Flenady, V., Koopmans, L., Middleton, P., Frøen, J. F., Smith, G. C., Gibbons, K., Coory, M., Gordon, A., Ellwood, D., McIntyre, H. D., et al. (2011) · The Lancet · doi:10.1016/s0140-6736(10)62233-7 · Cited by 1,247 · see citing works
Hughes, P., Turton, P., Hopper, E., & Evans, C. (2002) · The Lancet · doi:10.1016/s0140-6736(02)09410-2 · Cited by 375 · see citing works
Frøen, J. F., Cacciatore, J., McClure, E. M., Kuti, O., Jokhio, A. H., Islam, M., & Shiffman, J. (2011) · The Lancet · doi:10.1016/s0140-6736(10)62232-5 · Cited by 356 · see citing works
Perinatal Loss and Parental Grief: The Challenge of Ambiguity and Disenfranchised Grief
Lang, A., Fleiszer, A. R., Duhamel, F., Sword, W., Gilbert, K. R., & Corsini-Munt, S. (2011) · OMEGA - Journal of Death and Dying · doi:10.2190/om.63.2.e · Cited by 239 · see citing works
Radestad, I., Steineck, G., Nordin, C., & Sjogren, B. (1996) · BMJ · doi:10.1136/bmj.312.7045.1505 · Cited by 204 · see citing works
Kelley, M. C., & Trinidad, S. B. (2012) · BMC Pregnancy and Childbirth · doi:10.1186/1471-2393-12-137 · Cited by 164 · cited 5× · see citing works
“Further, it is not “normal” in such societies for babies to die (Kelley & Trinidad, 2012; Layne, 2003) and such an event leads to doubts regarding maternal moral probity (Murphy, 2012).”
InfluentialBoyle, F. M., Vance, J. C., Najman, J. M., & Thearle, M. J. (1996) · Social Science & Medicine · doi:10.1016/0277-9536(96)00039-1 · Cited by 148 · see citing works
Bereaved parents’ experience of stillbirth in UK hospitals: a qualitative interview study
Downe, S., Schmidt, E., Kingdon, C., & Heazell, A. E. P. (2013) · BMJ Open · doi:10.1136/bmjopen-2012-002237 · Cited by 134 · cited 3× · see citing works
“Women in this and other studies reported this in terms of guilt and shame (Cacciatore, DeFrain et al., 2008; DeFrain et al., 1990; Downe et al., 2013; Säflund, Sj ö gren, & Wredling, 2004) , being “ refugees in their own lives ” [no.10, 69 months], isolated and excluded (Kelley & Trinidad, 2012),…”
The psychological effects of stillbirth and neonatal death on fathers: Systematic review
Badenhorst, W., Riches, S., Turton, P., & Hughes, P. (2006) · Journal of Psychosomatic Obstetrics & Gynecology · doi:10.1080/01674820600870327 · Cited by 125 · see citing works
Effects of Contact with Stillborn Babies on Maternal Anxiety and Depression
Cacciatore, J., Rådestad, I., & Frederik Frøen, J. (2008) · Birth · doi:10.1111/j.1523-536x.2008.00258.x · Cited by 125 · see citing works
Long-term psychosocial sequelae of stillbirth: phase II of a nested case-control cohort study
Turton, P., Evans, C., & Hughes, P. (2009) · Archives of Women's Mental Health · doi:10.1007/s00737-008-0040-7 · Cited by 105 · see citing works
Vance, J. C., Najman, J. M., Thearle, M. J., Embelton, G., Foster, W. J., & Boyle, F. M. (1995) · Pediatrics · doi:10.1542/peds.96.5.933 · Cited by 97 · see citing works
Guilt‐ and shame‐proneness and the grief of perinatal bereavement
Barr, P. (2004) · Psychology and Psychotherapy: Theory, Research and Practice · doi:10.1348/1476083042555442 · Cited by 85 · cited 3× · see citing works
“These may in turn relate to different personalities (Barr, 2004), biographical experiences and/or family structures.”
Erlandsson, K., Warland, J., Cacciatore, J., & Rådestad, I. (2013) · Midwifery · doi:10.1016/j.midw.2012.01.007 · Cited by 76 · see citing works
Recovering from stillbirth: the effects of making and sharing memories on maternal mental health
Crawley, R., Lomax, S., & Ayers, S. (2013) · Journal of Reproductive and Infant Psychology · doi:10.1080/02646838.2013.795216 · Cited by 73 · see citing works
Self-citationReclaiming a moral identity: stillbirth, stigma and ‘moral mothers
Murphy, S. (2012) · Midwifery · doi:10.1016/j.midw.2011.06.005 · Cited by 66 · see citing works
‘She was a person, she was here’: The experience of late pregnancy loss in Australia
Lee, C. (2012) · Journal of Reproductive and Infant Psychology · doi:10.1080/02646838.2012.661849 · Cited by 45 · see citing works
Events after Stillbirth in Relation to Maternal Depressive Symptoms: A Brief Report
Surkan, P. J., Rådestad, I., Cnattingius, S., Steineck, G., & Dickman, P. W. (2008) · Birth · doi:10.1111/j.1523-536x.2008.00229.x · Cited by 37 · see citing works
Shrouds of silence: three women’s stories of prenatal loss
St John, A., Cooke, M., & Goopy, S. (2006) · Australian Journal of Advanced Nursing · doi:10.37464/2006.233.1929 · Cited by 34 · see citing works
The Silent Birth: A Feminist Perspective
Cacciatore, J. (2009) · Social Work · doi:10.1093/sw/54.1.91 · Cited by 20 · cited 1× · see citing works
“These responses can be interpreted as a public denial of their babies’ identities and the imposition of silence on women who come to inhabit a restricted world where grieving is cut short (Cacciatore, 2009; Kelley & Trinidad, 2011; Murphy & Thomas, 2013).”
Flagged first, then by citations
Cited by
Sorted by citations
Understanding stillbirth stigma: A scoping literature review
Pollock, D., Ziaian, T., Pearson, E., Cooper, M., & Warland, J. (2020) · Women and Birth · doi:10.1016/j.wombi.2019.05.004 · Cited by 82 · see citing works
The psychological, social, and economic impact of stillbirth on families
Murphy, S., & Cacciatore, J. (2017) · Seminars in Fetal and Neonatal Medicine · doi:10.1016/j.siny.2017.02.002 · Cited by 82 · see citing works
Recovering from stillbirth: the effects of making and sharing memories on maternal mental health
Crawley, R., Lomax, S., & Ayers, S. (2013) · Journal of Reproductive and Infant Psychology · doi:10.1080/02646838.2013.795216 · Cited by 73 · see citing works
Self-citationChristiansen, D. M., Olff, M., & Elklit, A. (2014) · General Hospital Psychiatry · doi:10.1016/j.genhosppsych.2014.07.012 · Cited by 67 · see citing works
Pregnancy and infant loss: a survey of families’ experiences in Ontario Canada
Watson, J., Simmonds, A., La Fontaine, M., & Fockler, M. E. (2019) · BMC Pregnancy and Childbirth · doi:10.1186/s12884-019-2270-2 · Cited by 64 · see citing works
Camacho-Ávila, M., Fernández-Sola, C., Jiménez-López, F. R., Granero-Molina, J., Fernández-Medina, I. M., Martínez-Artero, L., & Hernández-Padilla, J. M. (2019) · BMC Pregnancy and Childbirth · doi:10.1186/s12884-019-2666-z · Cited by 61 · see citing works
Obst, K. L., Oxlad, M., Due, C., & Middleton, P. (2021) · BMC Pregnancy and Childbirth · doi:10.1186/s12884-020-03514-6 · Cited by 61 · see citing works
Breaking the silence: determining prevalence and understanding stillbirth stigma
Pollock, D. D., Pearson, D. E., Cooper, D. M., Ziaian, A. P. T., Foord, C., & Warland, A. P. J. (2021) · Midwifery · doi:10.1016/j.midw.2020.102884 · Cited by 53 · see citing works
Integrative Review of Emotional Care Following Perinatal Loss
Furtado-Eraso, S., Escalada-Hernández, P., & Marín-Fernández, B. (2021) · Western Journal of Nursing Research · doi:10.1177/0193945920954448 · Cited by 51 · see citing works
Schoonover, K. L., Prokop, L., & Lapid, M. I. (2022) · Journal of Palliative Care · doi:10.1177/08258597211062762 · Cited by 22 · see citing works
Addressing Stillbirth in India Must Include Men
Roberts, L., Montgomery, S., Ganesh, G., Kaur, H. P., & Singh, R. (2017) · Issues in Mental Health Nursing · doi:10.1080/01612840.2017.1294220 · Cited by 14 · see citing works
- Authors
- Brierley-Jones, L., Crawley, R., Lomax, S., & Ayers, S.
- Affiliations
- University of Sunderland, United Kingdom
- University of Sunderland (GB)
- City, University of London (GB)
- Venue
- OMEGA - Journal of Death and Dying
- Publisher
- SAGE Publications
- Published
- 2014-12
- Volume
- 70
- Issue
- 2
- Pages
- 143-168
- ISSN
- 0030-2228 (ISSN-L)
- 1541-3764
- OpenAlex
- W2045428877
- Cited by
- 78
- References
- 22
- Citations by year
- 2026: 5 · 2025: 9 · 2024: 2 · 2023: 6 · 2022: 9 · 2021: 16 · 2020: 7 · 2019: 11 · 2018: 5 · 2017: 3 · 2016: 3 · 2014: 1 · 2013: 1
- FWCI
- 2.75
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- OMEGA - Journal of Death and Dying (publishedVersion)
- PubMed (publishedVersion)
- City Research Online (City University London) (acceptedVersion)
- Sunderland Repository (University of Sunderland) (acceptedVersion)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Grief, Bereavement, and Mental Health
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Global Maternal and Child Health
- Social Sciences › Anthropology › Death, Funerary Practices, and Mourning
- Keywords
- stillbirth, stigma, maternal experience, social identity, identity work, memory formation, memory sharing, Goffman's stigma theory, maternal mental health, professional-patient interaction, family and social relationships
- MeSH terms
- Adult, Attitude to Death, Bereavement, Female, United Kingdom, Humans, Mental Health, Parents, Social Identification, Social Support, Stillbirth, Young Adult, Social Stigma
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review