Pregnancy and infant loss: a survey of families’ experiences in Ontario Canada
Open accessAbstract
BACKGROUND: Pregnancy and infant loss has a pervasive impact on families, health systems, and communities. During and after loss, compassionate, individualized, and skilled support from professionals and organizations is important, but often lacking. Historically, little has been known about how families in Ontario access existing care and supports around the time of their loss and their experiences of receiving such care. METHODS: An online cross-sectional survey, including both closed-ended multiple choice questions and one open-ended question, was completed by 596 people in Ontario, Canada relating to their experiences of care and support following pregnancy loss and infant death. Quantitative data were analyzed descriptively using frequency distributions. Responses to the one open-ended question were thematically analyzed using a qualitative inductive approach. RESULTS: The majority of families told us that around the time of their loss, they felt they were not adequately informed, supported and cared for by healthcare professionals, and that their healthcare provider lacked the skills needed to care for them. Almost half of respondents reported experiencing stigma from providers, exacerbating their experience of loss. Positive encounters with care providers were marked by timely, individualized, and compassionate care. Families indicated that improvements in care could be made by providing information and explanations, discharge and follow-up instructions, and through discussions about available supports. CONCLUSIONS: Healthcare professionals can make a positive difference in how loss is experienced and in overall well-being by recognizing the impact of the loss, minimizing uncertainty and isolation, and by thoughtfully working within physical environments often not designed for the experience of loss. Ongoing supports are needed and should be tailored to parents' changing needs. Prioritizing access to specialized education for professionals providing services and care to this population may help to reduce the stigma experienced by bereaved families.
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Family members, partners, and healthcare providers are sources of support.
“Additionally, Watson and colleagues have identified family members, partners, and healthcare providers as sources of support. 13”
From Desired Care for Perinatal Bereavement: Meeting the Needs of Mothers After Discharge From the Hospital—a Qualitative Study (2024) · cites this paper as [13]
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- Authors
- Watson, J., Simmonds, A., La Fontaine, M., & Fockler, M. E.
- Affiliations
- Sunnybrook Health Science Centre (CA)
- University of Toronto (CA)
- Corresponding author
- Watson, Jo
- ORCID
- Watson, Jo
- Venue
- BMC Pregnancy and Childbirth
- Published
- 2019-04-16
- Volume
- 19
- Issue
- 1
- Pages
- 129-129
- ISSN
- 1471-2393 (ISSN-L)
- PMC
- PMC6469137
- OpenAlex
- W2945593841
- Cited by
- 64
- References
- 68
- Citations by year
- 2026: 7 · 2025: 9 · 2024: 14 · 2023: 11 · 2022: 7 · 2021: 5 · 2020: 11
- FWCI
- 6.72
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- BMC Pregnancy and Childbirth (publishedVersion, cc-by)
- Europe PMC (PubMed Central) (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- TSpace (University of Toronto) (submittedVersion, cc-by)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- Figshare (submittedVersion, cc-by)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Grief, Bereavement, and Mental Health
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Global Maternal and Child Health
- Health Sciences › Health Professions › General Health Professions › Maternal and Neonatal Healthcare
- Keywords
- miscarriage, infant death, bereaved families, healthcare provider support, stigma, compassionate care, bereavement support, follow-up care, professional education, Ontario
- MeSH terms
- Abortion, Spontaneous, Bereavement, Cross-Sectional Studies, Empathy, Female, Humans, Infant, Newborn, Male, Ontario, Parents, Patient Acceptance of Health Care, Postnatal Care, Pregnancy, Surveys and Questionnaires, Qualitative Research, Stillbirth, Perinatal Death
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