Cited by 113Digital Mental Health InterventionsNursing care and researchTelemedicine and Telehealth Implementation

Reducing caregiver stress with internet-based interventions: a systematic review of open-label and randomized controlled trials

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Hu, Chunling, Kung, Simon, Rummans, Teresa A, Clark, Matthew M, Lapid, Maria I·2015·Journal of the American Medical Informatics Association

Abstract

Objective The high level of stress associated with caring for others with medical conditions has been recognized for some time. Reducing caregiver stress can improve caregiver quality of life as well as improve the care they provide to loved ones. This systematic review assesses the effectiveness of internet-based interventions to decrease caregiver stress. Materials and methods A comprehensive literature search of Ovid MEDLINE (1946–2013), Embase (1988–2013), PsycINFO (1987–2013), and CINAHL was conducted using terms related to caregiver and internet-based interventions. Internet-based interventions involving informal caregivers in an open-label or randomized controlled trial setting were included. A pair of raters independently reviewed all published abstracts. Data regarding participants, interventions, and outcomes were extracted and, for randomized trials, methodology quality was also reviewed. Results Eight open-label trials met the review criteria: three showed positive benefit in reducing caregiver stress, four were partially positive (some outcomes positive, others negative), and one was a negative study. Sixteen randomized trials met the review criteria: six showed positive benefit, five were partially positive, and five were negative. There were no clear patterns as to the variables (such as study duration and complexity of intervention) associated with better outcomes, although earlier studies typically had more negative outcomes. Discussion Internet-based interventions were mostly effective in reducing aspects of caregiver stress and improving their well-being. Further studies to assess outcomes for caregivers and their recipients’ health, different technology delivery methods, and the cost of such interventions are needed.

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Research works printed but not linked: 2

  1. Biegel D, Sales E, Schulz R. Family caregiving in chronic illness: heart disease, cancer, stroke, Alzheimer's disease, and chronic mental illness. Newbury Park, CA: Sage Publications, 1991.
  2. Farnham S, Cheng L, Stone L, et al. Hutchworld: Clinical study of computer-mediated social support for cancer patients and their caregivers. In: Proceedings of the SIGCHI conference on Human factors in computing systems: Changing our world, changing ourselves.

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Authors
Hu, C., Kung, S., Rummans, T. A., Clark, M. M., & Lapid, M. I.
Affiliations
Mayo Clinic (US)
Corresponding author
Hu, Chunling
Venue
Journal of the American Medical Informatics Association
Published
2014-08-14
Volume
22
Issue
e1
Pages
e194-e209
ISSN
  • 1067-5027 (ISSN-L)
  • 1527-974X
OpenAlex
W2112114043
Cited by
113
References
76
Citations by year
2026: 3 · 2025: 8 · 2024: 7 · 2023: 8 · 2022: 7 · 2021: 7 · 2020: 14 · 2019: 14 · 2018: 14 · 2017: 15 · 2016: 9 · 2015: 7
FWCI
1.25
Type
journal article
Language
en
Open access
Locations
  • Journal of the American Medical Informatics Association (publishedVersion)
  • PubMed Central (publishedVersion)
  • PubMed (publishedVersion)
Topics
  • Social Sciences › Psychology › Applied Psychology › Digital Mental Health Interventions
  • Health Sciences › Health Professions › Pharmacy › Nursing care and research
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Telemedicine and Telehealth Implementation
Keywords
caregiver stress, online intervention, informal caregivers, caregiver well-being, online health interventions, caregiver burden, intervention effectiveness
MeSH terms
Health Education, Humans, Stress, Psychological, Randomized Controlled Trials as Topic, Caregivers, Internet

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