The DOI matches its Crossref record; 133 of the 133 references it cites were found in a registry or an index.
Stress and Parents of Children with Autism: A Review of Literature
Abstract
The purpose of this review is twofold. The first is to synthesize factors that impact parents' experiences of caring for a child with autism spectrum disorder (ASD); the second is to identify factors that impact parental stress and parental decision-making to use autism services or not. Parents of children with ASD score higher on levels of stress than other groups of parents. The daily challenges of caring for the child are endless and effect all aspects of the child's care as well as the parent's mental health and ability to manage the needs of the child and family. Understanding more about the challenges parents face will provide direction for research, intervention development, and practice. Accordingly, a search was conducted using CINAHL and Medline. Inclusion criteria included articles available in full text, published in English, and focused on children with ASD distinct from other diagnoses, as well as parental experiences of caring for a child with ASD. Articles (N = 132) that met the inclusion criteria were summarized. Challenging aspects of the child's diagnosis and care are discussed, as well as the factors that impact parental stress and decision-making to use autism services. Recommendations for research and practice include interventional development related to early diagnosis, disparity, access to care, parental decision-making to use autism services, and parental stress management.
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In the citing paper
“Parents of children with a neurodevelopmental disorder (NDD) experience more stress than parents of typically developing children.”
In the citing paper
“Research has identified CB as the best predictor of parental stress (5, 9–11).”
Citations
Cites
Diagnostic and Statistical Manual of Mental Disorders
American Psychiatric Association (2013) · doi:10.1176/appi.books.9780890425596 · Cited by 116,369
Epidemiology of Pervasive Developmental Disorders
Fombonne, E. (2009) · Pediatric Research · doi:10.1203/pdr.0b013e31819e7203 · Cited by 1,971
Hayes, S. A., & Watson, S. L. (2013) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-012-1604-y · Cited by 1,847 · cited 1×
“…& Pisula, 2010), other disabilities (Dunn et al., 2001; Reed & Osborne, 2013), and typically functioning children (Baker-Ericzen, Brookman-Frazee, & Stahmer, 2005; Dabrowska & Pisula, 2010; Hayes & Watson, 2012; Montes & Halterman, 2007; Pisula & Kossakowska, 2010; Zablotsky et al., 2013).”
American Journal of Occupational Therapy
Holcomb, E. (2014) · Wiley eBooks · doi:10.1002/9781118660584.ese0113 · Cited by 1,214
The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders
Lecavalier, L., Leone, S., & Wiltz, J. (2006) · Journal of Intellectual Disability Research · doi:10.1111/j.1365-2788.2005.00732.x · Cited by 1,163
Racial/Ethnic Disparities in the Identification of Children With Autism Spectrum Disorders
Mandell, D. S., Wiggins, L. D., Carpenter, L. A., Daniels, J., DiGuiseppi, C., Durkin, M. S., Giarelli, E., Morrier, M. J., Nicholas, J. S., Pinto-Martin, J. A., et al. (2009) · American Journal of Public Health · doi:10.2105/ajph.2007.131243 · Cited by 946
Dabrowska, A., & Pisula, E. (2010) · Journal of Intellectual Disability Research · doi:10.1111/j.1365-2788.2010.01258.x · Cited by 900
Dawson, G., Jones, E. J. H., Merkle, K., Venema, K., Lowy, R., Faja, S., Kamara, D., Murias, M., Greenson, J., Winter, J., et al. (2012) · Journal of the American Academy of Child & Adolescent Psychiatry · doi:10.1016/j.jaac.2012.08.018 · Cited by 799
Mothers supporting children with autistic spectrum disorders
Bromley, J., Hare, D. J., Davison, K., & Emerson, E. (2004) · Autism · doi:10.1177/1362361304047224 · Cited by 646
Moderators of Stress in Parents of Children with Autism
Dunn, M. E., Burbine, T., Bowers, C. A., & Tantleff-Dunn, S. (2001) · Community Mental Health Journal · doi:10.1023/a:1026592305436 · Cited by 645
Research works printed but not linked: 8
- Aghaeinejad M., 2013, International Research Journal of Applied and Basic Sciences, 5, 667
- 10.1007/s10826-008-929-y · DOI
- Centers for Disease Control and Prevention, Data & Statistics
- Ekas N. V., 2010, Journal of Autism and Developmental Disorders
- Lickenbrock D. M., 2010, Journal of Autism and Developmental Disorders
- 10.1176/appi.ps.61.8.822 · DOI
- Prince-Hughes D., 2004, Songs of the gorilla nation: My journey through autism
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Cited by
Sorted by citations
Schnabel, A., Youssef, G. J., Hallford, D. J., Hartley, E., McGillivray, J., Stewart, M., Forbes, D., & Austin, D. (2019) · Autism · doi:10.1177/1362361319844636 · Cited by 252
“Although systematic reviews of the literature on parents of children with ASD have focused on parenting stress (Bonis, 2016; Cachia, Anderson, & Moore, 2016; Corcoran, Berry, & Hill, 2015; Hayes & Watson, 2013; Karst & Van Hecke, 2012), quality of life (Vasilopoulou & Nisbet, 2016) and social…”
BackgroundInfluentialAlhuzimi, T. E. (2020) · Research in Developmental Disabilities · doi:10.1016/j.ridd.2020.103822 · Cited by 233
Perceptions of Families of Individuals with Autism Spectrum Disorder during the COVID-19 Crisis
Manning, J. H., Billian, J., Matson, J., Allen, C., & Soares, N. S. (2020) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-020-04760-5 · Cited by 229
“Parenting a child with ASD can be stressful (Bonis 2016); meeting the needs of individuals with ASD can be challenging due to the severity and chronicity of the condition, the mental health comorbidities, intensive interventions needed by persons with ASD and the difficulty obtaining services…”
BackgroundImpacto de la COVID-19 en niños con trastorno del espectro autista
Amorim, R., Catarino, S., Miragaia, P., Ferreras, C., Viana, V., & Guardiano, M. (2020) · Revista de Neurología · doi:10.33588/rn.7108.2020381 · Cited by 185
Parental Stress in Families of Children With Disabilities
Hsiao, Y.-J. (2018) · Intervention in School and Clinic · doi:10.1177/1053451217712956 · Cited by 98
Metadata
- Authors
- Bonis, S.
- Affiliations
- University of Wisconsin–Milwaukee (US)
- Corresponding author
- Bonis, Susan
- ORCID
- Bonis, Susan
- Venue
- Issues in Mental Health Nursing
- Publisher
- Informa UK Limited
- Published
- 2016-03-03
- Volume
- 37
- Issue
- 3
- Pages
- 153-163
- ISSN
- 0161-2840 (ISSN-L)
- 1096-4673
- OpenAlex
- W2319420461
- Cited by
- 404
- References
- 132
- Citations by year
- 2026: 45 · 2025: 58 · 2024: 65 · 2023: 50 · 2022: 53 · 2021: 56 · 2020: 35 · 2019: 25 · 2018: 10 · 2017: 4 · 2016: 2
- FWCI
- 2.03
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Issues in Mental Health Nursing (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
- Keywords
- autism spectrum disorder, parental stress, parents of autistic children, parental decision-making, autism services, health care access, early diagnosis, parental mental health, stress management
- MeSH terms
- Autism Spectrum Disorder, Adult, Child, Humans, Parents, Stress, Psychological
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