Selecting outcome measures in mental health: the views of service users
Abstract
BACKGROUND: Little is known about service users' views of measures used to evaluate treatments in mental health. AIMS: To identify the views of people with psychosis and affective disorder about the relevance and acceptability of commonly used outcome measures. METHODS: Twenty-four widely used outcome measures were presented to expert groups of service users. Nominal group methods were used to develop consensus about the appropriateness of each measure. Comments made by service users about how outcomes should be assessed were also recorded. RESULTS: Group members expressed concern about the ability of some outcome measures to capture their experiences. Patient-rated measures were assessed as more relevant and appropriate than staff-rated measures, and the need to examine negative as well as the positive effects of treatments was emphasised. Specific concerns were raised about some widely used measures including the Global Assessment of Functioning and the European Quality of Life scale. CONCLUSIONS: We consider it essential that service users' views are taken into account when selecting measures to evaluate treatment outcomes. Providing insight into views of users of mental health services, our findings serve as a starting point for discussion.
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Critics of the clinical recovery model have highlighted limitations regarding lack of sensitivity to variability across individuals and contexts, and not including outcomes meaningful to service users.
“However, critics of the clinical recovery model have highlighted limitations regarding the lack of sensitivity to variability across individuals and contexts, and not including outcomes that are meaningful to service users (7).”
From Recovery from Severe Mental Health Problems: A Systematic Review of Service User and Informal Caregiver Perspectives (2021) · cites this paper as [7]
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- Authors
- Crawford, M. J., Robotham, D., Thana, L., Patterson, S., Weaver, T., Barber, R., Wykes, T., & Rose, D.
- Affiliations
- Centre for Mental Health (GB)
- Mental Health Foundation (GB)
- University of Sheffield (GB)
- King's College London (GB)
- Corresponding author
- Crawford, Mike J.
- ORCID
- Venue
- Journal of Mental Health
- Publisher
- Informa UK Limited
- Published
- 2011-07-19
- Volume
- 20
- Issue
- 4
- Pages
- 336-346
- ISSN
- 0963-8237 (ISSN-L)
- 1360-0567
- OpenAlex
- W2106736493
- Cited by
- 172
- References
- 38
- Citations by year
- 2026: 5 · 2025: 9 · 2024: 14 · 2023: 12 · 2022: 11 · 2021: 10 · 2020: 11 · 2019: 13 · 2018: 14 · 2017: 11 · 2016: 7 · 2015: 12 · 2014: 16 · 2013: 17 · 2012: 7
- FWCI
- 25.57
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Mental Health (publishedVersion)
- PubMed (publishedVersion)
- Middlesex University Research Repository (Middlesex University Of London) (submittedVersion)
- Research Portal (King's College London) (submittedVersion)
- Funders
- National Institute for Health and Care Research (RP-PG-0606-1050)
- Topics
- Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
- Social Sciences › Psychology › Clinical Psychology › Psychiatric care and mental health services
- Health Sciences › Medicine › Psychiatry and Mental health › Schizophrenia research and treatment
- Keywords
- outcome measures, service user perspectives, mental health services, psychosis, mood disorders, Global Assessment of Functioning, EQ-5D, treatment outcome assessment
- MeSH terms
- Adult, Female, Humans, London, Male, Mental Health Services, Middle Aged, Psychotic Disorders, Patient Satisfaction, Outcome Assessment, Health Care, Mood Disorders
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
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