Perceived Burdensomeness and the Wish for Hastened Death in Persons With Severe and Persistent Mental Illness
Open accessAbstract
Background: In several European countries, medical assistance in dying (MAID) is no longer confined to persons with a terminal prognosis but is also available to those suffering from persistent and unbearable mental illness. To date, scholarly discourse on MAID in this population has been dominated by issues such as decision-making capacity, uncertainty as to when a disease is incurable, stigmatization, isolation, and loneliness. However, the issue of perceived burdensomeness has received little attention. Objective: The study explores the possible impact of perceived burdensomeness on requests for MAID among persons with severe and persistent mental illness (SPMI). Method: Using the method of ethical argumentation, we discuss the issue of access to MAID for persons with SPMI and perceived burdensomeness. Conclusion: Perceived burdensomeness may be a contributing factor in the wish for hastened death among persons with SPMI. MAID is ethically unsupportable if SPMI causes the individual to make an unrealistic assessment of burdensomeness, indicating a lack of decision-making capacity in the context of that request. However, the possibility that some individuals with SPMI may perceive burdensomeness does not mean that they should be routinely excluded from MAID. For SPMI patients with intact decision-making capacity who feel their life is not worth living, perceived burdensomeness as a component of this intolerable suffering is not a sufficient reason to deny access to MAID.
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
Two-track approaches to MAiD-MD, which maintain recovery-oriented care in parallel with the assessment of MAiD-MD requests, are reportedly promising.
“Two-track approaches to MAiD-MD, which maintain recovery-oriented care in parallel with the assessment of MAiD-MD requests, are also reportedly promising [40, 69].”
From Medical assistance in dying for people living with mental disorders: a qualitative thematic review (2023) · cites this paper as [69]
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Cites
THE NATURE OF SUFFERING AND THE GOALS OF MEDICINE
Cassel, E. J. (1982) · New England Journal of Medicine · doi:10.1056/nejm198203183061104 · Cited by 2,149 · see citing works
Orden, K. A. V., Cukrowicz, K. C., Witte, T. K., & Joiner, T. E. (2011) · Psychological Assessment · doi:10.1037/a0025358 · Cited by 1,415 · see citing works
The Nature of Suffering and the Goals of Medicine
Cassell, E. J. (1998) · Loss Grief & Care · doi:10.1300/j132v08n01_18 · Cited by 1,178 · see citing works
Van Orden, K. A., Witte, T. K., Gordon, K. H., Bender, T. W., & Joiner, T. E. (2008) · Journal of Consulting and Clinical Psychology · doi:10.1037/0022-006x.76.1.72 · Cited by 1,126 · see citing works
Emanuel, E. J., Onwuteaka-Philipsen, B. D., Urwin, J. W., & Cohen, J. (2016) · JAMA · doi:10.1001/jama.2016.8499 · Cited by 751 · see citing works
Definition and prevalence of severe and persistent mental illness
Ruggeri, M., Leese, M., Thornicroft, G., Bisoffi, G., & Tansella, M. (2000) · The British Journal of Psychiatry · doi:10.1192/bjp.177.2.149 · Cited by 552 · see citing works
Evidence-Based Practices for Services to Families of People With Psychiatric Disabilities
Dixon, L. B., McFarlane, W. R., Lefley, H. P., Lucksted, A. A., Cohen, M., Falloon, I. R. H., Mueser, K. T., Miklowitz, D. J., Solomon, P., & Sondheimer, D. L. (2001) · Psychiatric Services · doi:10.1176/appi.ps.52.7.903 · Cited by 501 · see citing works
Mental capacity in psychiatric patients: Systematic review
Okai, D., Owen, G., McGuire, H., Singh, S., Churchill, R., & Hotopf, M. (2007) · British Journal of Psychiatry · doi:10.1192/bjp.bp.106.035162 · Cited by 262 · see citing works
Feeling like a burden to others: a systematic review focusing on the end of life
McPherson, C. J., Wilson, K. G., & Murray, M. A. (2007) · Palliative Medicine · doi:10.1177/0269216307076345 · Cited by 242 · see citing works
Rodríguez‐Prat, A., Balaguer, A., Booth, A., & Monforte‐Royo, C. (2017) · BMJ Open · doi:10.1136/bmjopen-2017-016659 · Cited by 183 · see citing works
Cognitive Therapy for Depression
Zapotoczky, H. G. (2010) · Psychopathology · doi:10.1159/000285146 · Cited by 171 · see citing works
Trachsel, M., Irwin, S. A., Biller-Andorno, N., Hoff, P., & Riese, F. (2016) · BMC Psychiatry · doi:10.1186/s12888-016-0970-y · Cited by 148 · see citing works
Self-citationDees, M. K., Vernooij-Dassen, M. J., Dekkers, W. J., Elwyn, G., Vissers, K. C., & van Weel, C. (2013) · Palliative Medicine · doi:10.1177/0269216312463259 · Cited by 146 · see citing works
Hill, R. M., & Pettit, J. W. (2014) · Journal of Clinical Psychology · doi:10.1002/jclp.22071 · Cited by 144 · see citing works
Caregiver burden in mental illness: review of measurement, findings and interventions in 2004–2005
Schulze, B., & Wulf Rössler, A. (2005) · Current Opinion in Psychiatry · doi:10.1097/01.yco.0000179504.87613.00 · Cited by 140 · see citing works
Defining Severe and Persistent Mental Illness—A Pragmatic Utility Concept Analysis
Zumstein, N., & Riese, F. (2020) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2020.00648 · Cited by 121 · see citing works
The wish to hasten death: a review of clinical studies
Monforte‐Royo, C., Villavicencio‐Chávez, C., Tomás‐Sábado, J., & Balaguer, A. (2010) · Psycho-Oncology · doi:10.1002/pon.1839 · Cited by 116 · see citing works
Physician-assisted death in psychiatric practice in The Netherlands
Groenewoud, J. H., van der Maas, P. J., van der Wal, G., Hengeveld, M. W., Tholen, A. J., Schudel, W. J., & van der Heide, A. (1997) · New England Journal of Medicine · doi:10.1056/nejm199706193362506 · Cited by 104 · see citing works
Treatment-resistant major depressive disorder and assisted dying
Schuklenk, U., & Vathorst, S. V. D. (2015) · Journal of Medical Ethics · doi:10.1136/medethics-2014-102458 · Cited by 93 · see citing works
Does perceived burdensomeness erode meaning in life among older adults?
Orden, K. A. V., Bamonti, P. M., King, D. A., & Duberstein, P. R. (2012) · Aging & Mental Health · doi:10.1080/13607863.2012.657156 · Cited by 88 · see citing works
Gudat, H., Ohnsorge, K., Streeck, N., & Rehmann‐Sutter, C. (2019) · Bioethics · doi:10.1111/bioe.12590 · Cited by 82 · see citing works
A scoping review of palliative care for persons with severe persistent mental illness
Donald, E. E., & Stajduhar, K. (2019) · Palliative & Supportive Care · doi:10.1017/s1478951519000087 · Cited by 77 · see citing works
Why are people with mental illness excluded from the rational suicide debate?
Hewitt, J. (2013) · International Journal of Law and Psychiatry · doi:10.1016/j.ijlp.2013.06.006 · Cited by 70 · see citing works
Rodríguez‐Prat, A., Balaguer, A., Crespo, I., & Monforte‐Royo, C. (2019) · Bioethics · doi:10.1111/bioe.12562 · Cited by 70 · see citing works
Assisted dying: law and practice around the world
Dyer, O., White, C., & García Rada, A. (2015) · BMJ · doi:10.1136/bmj.h4481 · Cited by 68 · see citing works
Physician-assisted suicide in psychiatry and loss of hope
Berghmans, R., Widdershoven, G., & Widdershoven-Heerding, I. (2013) · International Journal of Law and Psychiatry · doi:10.1016/j.ijlp.2013.06.020 · Cited by 61 · see citing works
Family Discord and Proxy Decision Makers' End-of-Life Treatment Decisions
Winter, L., & Parks, S. M. (2008) · Journal of Palliative Medicine · doi:10.1089/jpm.2008.0039 · Cited by 60 · see citing works
Deschepper, R., Distelmans, W., & Bilsen, J. (2014) · JAMA Psychiatry · doi:10.1001/jamapsychiatry.2014.185 · Cited by 58 · see citing works
Unbearability of suffering at the end of life: the development of a new measuring device, the SOS-V
Ruijs, C. D., Onwuteaka-Philipsen, B. D., van der Wal, G., & Kerkhof, A. J. F. M. (2009) · BMC Palliative Care · doi:10.1186/1472-684x-8-16 · Cited by 53 · see citing works
Euthanasia: The role of the psychiatrist
Naudts, K., Ducatelle, C., Kovacs, J., Laurens, K., Van Den Eynde, F., & Van Heeringen, C. (2006) · British Journal of Psychiatry · doi:10.1192/bjp.bp.105.010256 · Cited by 52 · see citing works
Why active euthanasia and physician assisted suicide should be legalised
Doyal, L., & Doyal, L. (2001) · BMJ · doi:10.1136/bmj.323.7321.1079 · Cited by 50 · see citing works
Physician-assisted suicide and psychiatric illness
Vandenberghe, J. (2018) · New England Journal of Medicine · doi:10.1056/nejmp1714496 · Cited by 50 · see citing works
A Suicide Right for the Mentally Ill? A Swiss Case Opens a New Debate
Appel, J. M. (2007) · The Hastings Center Report · doi:10.1353/hcr.2007.0035 · Cited by 30 · see citing works
Wied, T. S., Knebel, M., Tesky, V. A., & Haberstroh, J. (2019) · European Psychologist · doi:10.1027/1016-9040/a000372 · Cited by 29 · see citing works
Suicide and Physician-Assisted Death for Persons With Psychiatric Disorders: How Much Overlap?
Kim, S. Y. H., Conwell, Y., & Caine, E. D. (2018) · JAMA Psychiatry · doi:10.1001/jamapsychiatry.2018.2065 · Cited by 25 · see citing works
Hodel, M. A., Hoff, P., Irwin, S. A., Biller-Andorno, N., Riese, F., & Trachsel, M. (2019) · Palliative and Supportive Care · doi:10.1017/s1478951519000233 · Cited by 25 · see citing works
Self-citationSelf‐perceived burden to others as a moral emotion in wishes to die. A conceptual analysis
Rehmann‐Sutter, C. (2019) · Bioethics · doi:10.1111/bioe.12603 · Cited by 23 · see citing works
Hains, A. R., Janackovski, A., Deane, F. P., & Rankin, K. N. (2018) · Suicide and Life-Threatening Behavior · doi:10.1111/sltb.12452 · Cited by 22 · see citing works
Shaffer, C. S., Cook, A. N., & Connolly, D. A. (2016) · Psychology, Public Policy, and Law · doi:10.1037/law0000082 · Cited by 21 · see citing works
Malpas, P. J., Mitchell, K., & Johnson, M. H. (2012) · PubMed · Cited by 18 · see citing works
Medical Assistance in Dying: Challenges for Psychiatry
Jones, R. M., & Simpson, A. I. F. (2018) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2018.00678 · Cited by 18 · see citing works
Being a burden to others and wishes to die: The importance of the sociopolitical context
Roest, B., Trappenburg, M. J., & Leget, C. J. W. (2019) · Bioethics · doi:10.1111/bioe.12688 · Cited by 14 · see citing works
Validity and reliability of the Palliative Care Transition Measure for Caregivers (PCTM-C)
D’Angelo, D., Mastroianni, C., Artico, M., Biagioli, V., Latina, R., Guarda, M., Piredda, M., & Marinis, M. G. D. (2018) · Palliative & Supportive Care · doi:10.1017/s1478951517001225 · Cited by 9 · see citing works
Bleek, J. (2011) · Ethik in der Medizin · doi:10.1007/s00481-011-0148-6 · Cited by 8 · see citing works
Moral dilemmas in (not) treating patients who feel they are a burden
Metselaar, S., & Widdershoven, G. A. M. (2019) · Bioethics · doi:10.1111/bioe.12579 · Cited by 8 · see citing works
Relieving one’s relatives from the burdens of care
den Hartogh, G. (2017) · Medicine Health Care and Philosophy · doi:10.1007/s11019-017-9815-9 · Cited by 7 · see citing works
“Being a burden to others” and wishes to die: An ethically complicated relation
Rehmann‐Sutter, C., Ohnsorge, K., Onwuteaka-Philipsen, B. D., & Widdershoven, G. A. M. (2019) · Bioethics · doi:10.1111/bioe.12618 · Cited by 6 · see citing works
Hodel, M., & Trachsel, M. (2018) · Bioethica Forum · doi:10.24894/bf.2018.11014 · Cited by 4 · see citing works
Self-citationNormative-descriptive and the Naturalistic Fallacy
Landeweerd, L. (2004) · Global Bioethics · doi:10.1080/11287462.2004.10800838 · Cited by 2 · see citing works
Flagged first, then by citations
1 of the 50 references couldn’t be matched to a known paper.
Research works printed but not linked: 3
- [8]Termination of Life on Request and Assisted Suicide Review Procedures Act (2002), 26 691, no. 137 of the 2000–2001 Parliamentary Session That Went Into Effect (2002).
- [22]Joiner TE Jr Why People Die by Suicide. Cambridge, MA: Harvard University Press (2005).
- [40]Beck AT Rush AJ Shaw BF Emery G Cognitive Therapy of Depression. New York, NY: Guilford Press (1987).
Cited by
Sorted by citations
Physician Assisted Death for Psychiatric Suffering: Experiences in the Netherlands
van Veen, S., Widdershoven, G., Beekman, A., & Evans, N. (2022) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2022.895387 · Cited by 29 · see citing works
Moureau, L., Verhofstadt, M., & Liégeois, A. (2023) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2023.1094038 · Cited by 26 · see citing works
Persons with mental disorders and assisted dying practices in Spain: An overview
Pozón, S. R., Terribas, N., Falcó‐Pegueroles, A., & Román-Maestre, B. (2023) · International Journal of Law and Psychiatry · doi:10.1016/j.ijlp.2023.101871 · Cited by 19 · see citing works
Gleeson, H., Roesch, C., Hafford‐Letchfield, T., & Ellmers, T. J. (2021) · International Psychogeriatrics · doi:10.1017/s1041610221002659 · Cited by 16 · see citing works
Assistierter Suizid und die ethischen Implikationen für die Pflegefachpersonen
Riedel, A., Klotz, K., & Seidlein, A. (2024) · Springer Reference Pflege, Therapie, Gesundheit · doi:10.1007/978-3-662-58685-3_102-1 · Cited by 13 · see citing works
A Conversation on Feminism, Ableism, and Medical Assistance in Dying
Grant, I., Benedet, J., Sheehy, E. A., & Frazee, C. (2023) · Canadian Journal of Women and the Law/Revue Femmes et Droit · doi:10.3138/cjwl_2023_grant3 · Cited by 11 · see citing works
Medical assistance in dying for people living with mental disorders: a qualitative thematic review
Favron-Godbout, C., & Racine, E. (2023) · BMC Medical Ethics · doi:10.1186/s12910-023-00971-4 · Cited by 6 · see citing works
“Two-track approaches to MAiD-MD, which maintain recovery-oriented care in parallel with the assessment of MAiD-MD requests, are also reportedly promising [40, 69].”
BackgroundMethodInfluentialJamil, U., & Pearce, J. M. (2025) · OMEGA - Journal of Death and Dying · doi:10.1177/00302228251323299 · Cited by 5 · see citing works
Telepsychiatry in Africa: overcoming barriers to access and care
Aderinto, N., Olatunji, G. D., Kokori, E., Babalola, A. E., Ogieuhi, I. J., Aboje, J. E., Egbunu, E. O., Oluwakorede, A. T., Ukoaka, B. M., Moradeyo, A. A., et al. (2025) · Discover Mental Health · doi:10.1007/s44192-025-00197-3 · Cited by 5 · see citing works
Unbearable Suffering: A Concept Analysis
Ortega‐Galán, Á. M., Fernández, M. D. R., Roldán-Rodríguez, L., Ramos‐Pichardo, J. D., Cabrera‐Troya, J., Gómez-Beltrán, P. A., & Amo, R. O. (2022) · Journal of Hospice and Palliative Nursing · doi:10.1097/njh.0000000000000844 · Cited by 5 · see citing works
The role of the ethics expert in Spanish legislation on euthanasia and mental health
Pozón, S. R. (2025) · Bioethics News · doi:10.1007/s40592-025-00228-3 · Cited by 4 · see citing works
Moureau, L., Tansens, A., Desimpele, L., Verdée, T., & Lepeleire, J. D. (2023) · Tijdschrift voor Geneeskunde · doi:10.47671/tvg.78.22.142 · Cited by 4 · see citing works
Organ donation after medically assisted death on psychiatric grounds: an ethical analysis
van Vlerken, K., Marijnissen, R. M., Pronk, R., Widdershoven, G. A. M., & van Veen, S. M. P. (2025) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2025.1574900 · Cited by 2 · see citing works
Physician-assisted suicide in Italy: where do we stand and where do we want to go?
Turillazzi, E., Morena, D., Iacoponi, N., & Fineschi, V. (2025) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2025.1606036 · Cited by 2 · see citing works
Where Do I Go to Wait? Ethical Considerations During the 90 Day Reflection Period for MAiD
Disha, K., Bianchi, A., Shanker, R. R., & Lukich, N. (2023) · Canadian Journal of Bioethics · doi:10.7202/1098559ar · Cited by 2 · see citing works
Does Allowing Track 2 MAiD Harm Disabled People?
Abernethy, N. J. (2026) · Canadian Journal of Bioethics · doi:10.7202/1124209ar · Cited by 1 · see citing works
Jamil, U., & Pearce, J. M. (2024) · Preprints.org · doi:10.20944/preprints202409.1363.v1 · Cited by 1 · see citing works
Putting Medical Assistance in Dying to the Acid Test
Trachsel, M., & Haberstroh, J. (2021) · GeroPsych · doi:10.1024/1662-9647/a000264
Self-citationE-book: Ethiek en gezondheidsrecht - Uitgave 2023
Daniels, L. A., Vandersteegen, T., Marneffe, W., Braeckman, N., Dejans, E., Tongel, A. V., Ponnet, K. S., Baets, N. D., Wilde, L. F. D., Ravez, L., et al. (2023) · Tijdschrift voor Geneeskunde · doi:10.47671/tvg.79.23.e018
Favron‐Godbout, C., & Racine, É. (2023) · Figshare · doi:10.6084/m9.figshare.24432000
Legislación española sobre discapacidad psíquica
Guillén, J. M. B. (2024) · Revista Internacional de Doctrina y Jurisprudencia · doi:10.25115/ridj.vi32.9745
Ethical and Psychiatric Considerations in Euthanasia and Medically Assisted Suicide (E/PAS)
(2026) · Frontiers research topics · doi:10.3389/978-2-8325-8321-0
Information environments, epistemic selves, and life’s end
Matthews, S., & Gurgenci, T. (2026) · Ethics and Information Technology · doi:10.1007/s10676-026-09916-y
- Authors
- Stoll, J., Ryan, C. J., & Trachsel, M.
- Affiliations
- The University of Sydney (AU)
- University of Zurich (CH)
- Corresponding author
- Trachsel, Manuel
- Venue
- Frontiers in Psychiatry
- Publisher
- Frontiers Media SA
- Published
- 2021-01-12
- Volume
- 11
- Pages
- 532817-532817
- ISSN
- 1664-0640 (ISSN-L)
- PMC
- PMC7835407
- OpenAlex
- W3121103083
- Cited by
- 20
- References
- 50
- Citations by year
- 2026: 2 · 2025: 5 · 2024: 2 · 2023: 7 · 2022: 2 · 2021: 2
- FWCI
- 3.03
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- Frontiers in Psychiatry (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- Zurich Open Repository and Archive (University of Zurich) (acceptedVersion, cc-by)
- UNSWorks (University of New South Wales, Sydney, Australia) (submittedVersion, cc-by-nc-nd)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- Zurich Open Repository and Archive (University of Zurich) (submittedVersion, cc-by)
- Zurich Open Repository and Archive (University of Zurich)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics and bioethics in healthcare
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Social Sciences › Psychology › Clinical Psychology › Healthcare Decision-Making and Restraints
- Keywords
- medical assistance in dying, perceived burdensomeness, severe and persistent mental illness, decision-making capacity, ethical argumentation, ethics of euthanasia
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review