Next steps for adolescent and young adult oncology workshop: An update on progress and recommendations for the future

Smith, Ashley Wilder; Seibel, Nita L.; Lewis, Denise R.; Albritton, Karen H.; Blair, Donald F.; Blanke, Charles D.; Bleyer, W. Archie; Freyer, David R.; Geiger, Ann M.; Hayes‐Lattin, Brandon; Tricoli, James V.; Wagner, Lynne I.; Zebrack, Bradley J.

doi:10.1002/cncr.29870

Cited by 249Childhood Cancer Survivors' Quality of LifeAcute Lymphoblastic Leukemia researchGlobal Cancer Incidence and Screening

Next steps for adolescent and young adult oncology workshop: An update on progress and recommendations for the future

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Smith, Ashley Wilder, Seibel, Nita L., Lewis, Denise R., Albritton, Karen H., Blair, Donald F., Blanke, Charles D., Bleyer, W. Archie, Freyer, David R. +5 more·2016·Cancer

DOI 10.1002/cncr.29870PMC PMC7521143

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Abstract

Each year, 70,000 adolescents and young adults (AYAs) between ages 15 and 39 years in the United States are diagnosed with cancer. In 2006, a National Cancer Institute (NCI) Progress Review Group (PRG) examined the state of science associated with cancer among AYAs. To assess the impact of the PRG and examine the current state of AYA oncology research, the NCI, with support from the LIVESTRONG Foundation, sponsored a workshop entitled “Next Steps in Adolescent and Young Adult Oncology” on September 16 and 17, 2013, in Bethesda, Maryland. This report summarizes the findings from the workshop, opportunities to leverage existing data, and suggestions for future research priorities. Multidisciplinary teams that include basic scientists, epidemiologists, trialists, biostatisticians, clinicians, behavioral scientists, and health services researchers will be essential for future advances for AYAs with cancer. Cancer 2016;122:988–999. © 2016 American Cancer Society

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The National Cancer Policy Forum and National Cancer Institute have highlighted the critical need to assist patients with reducing symptom burden and promoting self-management of symptoms.
“The National Cancer Policy Forum and National Cancer Institute have highlighted the critical need to assist patients with reducing symptom burden and promoting self-management of symptoms [12, 13].”
From Improving symptom management for survivors of young adult cancer: rationale and study protocol for a pilot randomized controlled trial (2024) · cites this paper as [13]
The Health-Related Quality of Life section reports higher symptom burden among adolescent and young adult cancer patients with unmet service needs, and the paper describes an NCI-sponsored workshop on future research priorities. It does not say that the National Cancer Policy Forum and NCI highlighted a critical need to help patients reduce symptom burden or self-manage symptoms; its discussion is also specific to adolescent and young adult oncology. (LLM, conf=0.79)
Experimental — accuracy not yet measured
For many young adult cancer survivors, the impact of treatment is significant and long-lasting, including physical symptoms such as pain and fatigue, psychological distress, and increased risk of long-term health problems such as second cancers and early-onset cardiovascular disease.
“For many YA cancer survivors, the impact of treatment is significant and long-lasting, including difficult physical symptoms (e.g., pain, fatigue) [4–6], psychological distress [6–10], and an increased risk of long-term health problems (e.g., second cancers, early-onset cardiovascular disease) [11–13].”
From Improving symptom management for survivors of young adult cancer: rationale and study protocol for a pilot randomized controlled trial (2024) · cites this paper as [13]
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Authors: Smith, A. W., Seibel, N. L., Lewis, D. R., Albritton, K. H., Blair, D. F., Blanke, C. D., Bleyer, W. A., Freyer, D. R., Geiger, A. M., Hayes‐Lattin, B., Tricoli, J. V., Wagner, L. I., & Zebrack, B. J.
Affiliations: National Cancer Institute (US)
Cook Children's Medical Center and University of North Texas Health Science Center Houston Texas
National Institutes of Health (US)
Oregon Health & Science University (US)
University of Southern California (US)
Wake Forest University Health Sciences (US)
University of Michigan School of Social Work Ann Arbor Michigan
Corresponding author: Smith, Ashley Wilder
ORCID: Smith, Ashley Wilder
Seibel, Nita L.
Lewis, Denise R.
Albritton, Karen H.
Blanke, Charles D.
Freyer, David R.
Geiger, Ann M.
Hayes‐Lattin, Brandon
Tricoli, James V.
Wagner, Lynne I.
Venue: Cancer
Publisher: Wiley
Published: 2016-02-05
Volume: 122
Issue: 7
Pages: 988-999
ISSN: 0008-543X (ISSN-L)
1097-0142
DOI: 10.1002/cncr.29870
PMC: PMC7521143
OpenAlex: W2257617433
Cited by: 249
References: 89
Citations by year: 2026: 25 · 2025: 37 · 2024: 31 · 2023: 22 · 2022: 19 · 2021: 27 · 2020: 20 · 2019: 16 · 2018: 24 · 2017: 20 · 2016: 8
FWCI: 3.48
Type: journal article
Language: en
Open access: hybrid
doi.org
Licence: public-domain
onlinelibrary.wiley.com/termsAndConditions#vor (vor)
Locations: Cancer (publishedVersion, public-domain)
PubMed (publishedVersion)
PubMed Central (acceptedVersion)
Funders: National Cancer Institute (UG1CA189974, U10CA180888, P30CA014089)
Topics: Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Acute Lymphoblastic Leukemia research
Health Sciences › Medicine › Oncology › Global Cancer Incidence and Screening
Keywords: adolescent and young adult cancer, research priorities, multidisciplinary research teams, cancer epidemiology, health services research, data sharing
MeSH terms: Adolescent, Adult, Female, Humans, Male, Medical Oncology, Neoplasms, United States, National Cancer Institute (U.S.), Young Adult

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