Cited by 90Suicide and Self-Harm StudiesDementia and Cognitive Impairment ResearchGrief, Bereavement, and Mental Health

The occurrence and persistence of thoughts of suicide, self-harm and death in family caregivers of people with dementia: a longitudinal data analysis over 2 years

Open access
Joling, Karlijn J., O'Dwyer, Siobhan T., Hertogh, Cees M.P.M., van Hout, Hein P.J.·2018·International Journal of Geriatric Psychiatry

Abstract

Objective: Family caregivers of people with dementia often report high levels of stress and depression, but little is known about those who contemplate suicide or self‐harm. This study explores thoughts of suicide, self‐harm and death in dementia caregivers and investigates the characteristics that distinguish them from those without such thoughts. Methods: Data were collected every 3 months, for 24 months, from 192 family caregivers of people with dementia living in the Netherlands. Caregivers did not have a clinical depression or anxiety disorder at baseline. Suicide‐related thoughts were measured with an item from the Mini International Neuropsychiatric Interview, a diagnostic instrument for DSM‐IV mental disorders. Fisher exact, analysis of variance or Kruskal–Wallis tests compared the characteristics of caregivers who had contemplated suicide with two comparison groups. Results: Within 24 months, 76 caregivers reported symptoms of a potential depression and were further assessed for suicidal thoughts. Nine carers (11.8%, 4.7% of the total sample) reported suicidal thoughts with three of those at multiple points. Caregivers with suicidal thoughts had more severe depressive and anxious symptoms, had a lower sense of competence and mastery, felt less happy and experienced more health problems, less family support and more feelings of loneliness than caregivers who had not. Conclusion: Suicidal thoughts are present in dementia caregivers and can persist across the care trajectory. Various psychological and social characteristics significantly distinguish caregivers with suicidal thoughts from those without. More research is needed to enable the identification of high‐risk caregivers and provide an evidence base for the development of preventive strategies and interventions. © 2017 The Authors. International Journal of Geriatric Psychiatry Published by John Wiley & Sons Ltd.

The claims and statistics of this paper haven’t been checked yet.

Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.

A few free checks a day · papers already verified open instantly · results are public

Integrity signals

Registry

Crossref · 10.1002/gps.4708

Cites

38 of 38 references verified0 citation errors · 0 not checkable

Statistics

Claims the paper makes

The claims and statistics of this paper haven’t been checked yet.

Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.

A few free checks a day · papers already verified open instantly · results are public

Claims other papers make about this one

Each is checked against this paper’s own text: does it say what the citing paper says it does?

Self-check

Percentages, sums and reported differences re-computed from the paper’s own numbers.

The self-check needs the paper’s full text.

Cites

Flagged first, then by citations

Research works printed but not linked: 1

  1. Bosanquet N, Huttin C, Kurz A, et al 1997 Alzheimer's disease: an international perspective on care delivery In Health Policy Review Paper No. 11. London: Imperial College of Science, Technology and Medicine, University of London.

Cited by

Sorted by citations

Authors
Joling, K. J., O'Dwyer, S. T., Hertogh, C. M. P. M., & van Hout, H. P. J.
Affiliations
  • Amsterdam Public Health (NL)
  • Amsterdam Public Health research institute VU University Medical Centre Amsterdam The Netherlands
Corresponding author
Joling, Karlijn J.
Venue
International Journal of Geriatric Psychiatry
Publisher
Wiley
Published
2017-04-05
Volume
33
Issue
2
Pages
263-270
ISSN
  • 0885-6230 (ISSN-L)
  • 1099-1166
OpenAlex
W2604844474
Cited by
90
References
37
Citations by year
2026: 2 · 2025: 10 · 2024: 16 · 2023: 13 · 2022: 16 · 2021: 8 · 2020: 7 · 2019: 11 · 2018: 5 · 2017: 2
FWCI
8.46
Type
journal article
Language
en
Open access
Locations
  • International Journal of Geriatric Psychiatry (publishedVersion, cc-by-nc)
  • Europe PMC (PubMed Central) (publishedVersion, cc-by-nc)
  • PubMed Central (publishedVersion, cc-by-nc)
  • PubMed (publishedVersion)
  • Amsterdam UMC (VU Amsterdam) - Institutional Repository (submittedVersion, other-oa)
  • University of Birmingham Research Portal (University of Birmingham) (submittedVersion, other-oa)
  • Data Archiving and Networked Services (DANS) (submittedVersion, other-oa)
Funders
ZonMw (2620.00003)
Topics
  • Social Sciences › Psychology › Clinical Psychology › Suicide and Self-Harm Studies
  • Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
  • Social Sciences › Psychology › Clinical Psychology › Grief, Bereavement, and Mental Health
Keywords
suicidal ideation, self-harm, death thoughts, family caregivers, dementia, caregiver depression, anxiety symptoms, caregiver stress, loneliness, family support, sense of competence, suicide prevention
MeSH terms
Aged, Aged, 80 and over, Attitude to Death, Dementia, Female, Humans, Longitudinal Studies, Male, Middle Aged, Netherlands, Stress, Psychological, Logistic Models, Self-Injurious Behavior, Caregivers, Diagnostic and Statistical Manual of Mental Disorders, Suicidal Ideation

About these checks

Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.

Statistics and arithmetic are recomputed, not judged.

Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.

What counts as a claim ›How we measure confidence ›How we check this ›

Are you an author, or do you see a problem with this page? Request a review