Impact of the COVID-19 Pandemic on Autistic Adults: a Scoping Review
Open accessAbstract
Purpose of Review: The COVID-19 pandemic and its associated restrictions have had a significant impact on people's everyday lives, including the lives of Autistic adults. We aimed to (a) synthesise all papers currently published on the impact of the COVID-19 pandemic on autistic adults and (b) identify lessons for the care and support of Autistic adults in pandemic and post-pandemic times. Recent Findings: Fifty-five papers met the inclusion criteria. Most studies focused on the pandemic's impact on the wellbeing of Autistic adults. Several studies focused on the use of (telehealth) services or the risk of COVID-19 infection/hospitalisation. Summary: Autistic adults were significantly impacted by the pandemic, both directly as indicated by higher COVID-19 infection and hospitalisation rates, but also indirectly due to severe service disruptions and social restrictions. Even though there were large differences observed both between as well as within individuals in terms of the negative/positive effects of the COVID-19 pandemic, most studies reported a negative effect on Autistic adults' mental health. We draw several lessons from this review for the future care and support of Autistic adults, all of which must be underpinned by participatory research methods, that is, where Autistic community members are actively involved in setting research questions, testing the acceptability of the methods and interpreting and disseminating the results. Supplementary Information: The online version contains supplementary material available at 10.1007/s40474-023-00268-6.
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While the overall impact of the pandemic on neuro-divergent populations has been reviewed, little research focuses specifically on working practices.
“While the overall impact of the pandemic on neuro-divergent populations has been reviewed [21], little research focuses specifically on working practices.”
From Homeworking experiences of neuro-divergent workers: systematic review (2024) · cites this paper as [21]
The pandemic and lockdowns negatively affected the mental health of neuro-divergent people, who often experienced greater psychological burden than neuro-typical individuals due to the loss of routines.
“Research suggests the pandemic and lockdowns negatively affected the mental health of neuro-divergent people [21], who often experienced greater psychological burden than neuro-typical individuals due to the loss of routines [50]”
From Homeworking experiences of neuro-divergent workers: systematic review (2024) · cites this paper as [21]
Both positive and negative effects of WFH were noted, echoing research on COVID-19 experiences generally for neuro-divergent populations.
“We noted both positive and negative effects of WFH: this echoes research on COVID-19 experiences generally for neuro-divergent populations [21].”
From Homeworking experiences of neuro-divergent workers: systematic review (2024) · cites this paper as [21]
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- Authors
- Scheeren, A. M., Crane, L., Heyworth, M., & Pellicano, E.
- Affiliations
- Vrije Universiteit Amsterdam (NL)
- University College London (GB)
- Macquarie University (AU)
- Corresponding author
- Scheeren, Anke M.
- Venue
- Current Developmental Disorders Reports
- Published
- 2023-01-31
- Volume
- 10
- Issue
- 1
- Pages
- 92-122
- ISSN
- 2196-2987 (ISSN-L)
- PMC
- PMC9887236
- OpenAlex
- W4318594639
- Cited by
- 26
- References
- 64
- Citations by year
- 2026: 2 · 2025: 6 · 2024: 13 · 2023: 5
- FWCI
- 1.31
- Type
- journal article
- Language
- en
- Open access
- hybrid
- doi.org
- Locations
- Current Developmental Disorders Reports (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- University of Birmingham Research Portal (University of Birmingham) (publishedVersion, cc-by)
- VU Research Portal (publishedVersion, other-oa)
- UCL Discovery (University College London) (submittedVersion, cc-by)
- Data Archiving and Networked Services (DANS) (submittedVersion, other-oa)
- Funders
- Australian Research Council (FT190100077)
- Topics
- Social Sciences › Psychology › Clinical Psychology › COVID-19 and Mental Health
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Safety Research › Social impacts of COVID-19
- Keywords
- COVID-19 pandemic, autistic adults, mental health, well-being, telemedicine, service disruption, social restrictions, care and support, participatory research, autism spectrum disorder
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
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