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Cited by 6,060Health Systems, Economic Evaluations, Quality of LifeHealth Education and ValidationPsychometric Methodologies and Testing

The DOI matches its Crossref record; 65 of the 66 references it cites were found in a registry or an index.

Cross-cultural adaptation of health-related quality of life measures: Literature review and proposed guidelines

Guillemin, Francis, Bombardier, Claire, Beaton, Dorcas·1993·Journal of Clinical Epidemiology
DOI 10.1016/0895-4356(93)90142-n
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Abstract

Clinicians and researchers without a suitable health-related quality of life (HRQOL) measure in their own language have two choices: (1) to develop a new measure, or (2) to modify a measure previously validated in another language, known as a cross-cultural adaptation process. We propose a set of standardized guidelines for this process based on previous research in psychology and sociology and on published methodological frameworks. These guidelines include recommendations for obtaining semantic, idiomatic, experiential and conceptual equivalence in translation by using back-translation techniques and committee review, pre-testing techniques and re-examining the weight of scores. We applied these guidelines to 17 cross-cultural adaptation of HRQOL measures identified through a comprehensive literature review. The reporting standards varied across studies but agreement between raters in their ratings of the studies was substantial to almost perfect (weighted kappa = 0.66-0.93) suggesting that the guidelines are easy to apply. Further research is necessary in order to delineate essential versus optional steps in the adaptation process.

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Citations

Cites

Research works printed but not linked: 9

  1. Gerin, 1991, Le questionnaire “Profit de la qualité de la vie subjective”. Premiers éléments de validation, Therapie, 46, 131
  2. Bombardier, 1987, Methodological consideration in functional assessment, J Rheumatol, 14, 6
  3. Perez, 1990, Development of a Spanish version of the Modified Health Assessment Questionnaire, Arthritis Rheum, 33, S100
  4. Cardiel, 1991, Quality of life in rheumatoid arthritis: validation of a Spanish version of the disability index of the Health Assessment Questionnaire, Arthritis Rheum, 34, S183
  5. Raynauld, 1992, A French-Canadian version of the Health Assessment Questionnaire, Arthritis Rheum, 35, S125
  6. Archenholtz, 1990, Reliability and validity of a Swedish version of the Arthritis Impact Measurement Scales, Scand J Rhematol, 20, 219
  7. Abello-Banfi, 1991, Quality of life in rheumatoid arthritis: validation of a Spanish version of the Arthritis Impact Measurement Scales, Arthritis Rhemn, 34, S183
  8. Esteva, 1992, Reliability and validity of a Spanish version of the Sickness Impact Profile, Arthritis Rheum, 35, S219
  9. Ferracioli, 1988, Compromissione funzionale, invalidita ed handicap nell'artrite reumatoide. Studio prospettico mediante questionari orientari, Reumatismo, 40, 45

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Metadata

Authors
Guillemin, F., Bombardier, C., & Beaton, D.
Affiliations
University of Toronto (CA)
ORCID
Venue
Journal of Clinical Epidemiology
Publisher
Elsevier BV
Published
1993-12
Volume
46
Issue
12
Pages
1417-1432
ISSN
0895-4356 (ISSN-L)
DOI
10.1016/0895-4356(93)90142-n
OpenAlex
W2150377764
Cited by
6,060
References
66
Citations by year
2026: 208 · 2025: 262 · 2024: 300 · 2023: 307 · 2022: 312 · 2021: 360 · 2020: 379 · 2019: 344 · 2018: 325 · 2017: 306 · 2016: 263 · 2015: 301 · 2014: 305 · 2013: 270 · 2012: 262
FWCI
41.45
Type
journal article
Language
en
Open access
closed
Licence
www.elsevier.com/tdm/userlicense/1.0/ (tdm)
Locations
  • Journal of Clinical Epidemiology (publishedVersion)
  • PubMed (publishedVersion)
  • DigitalGeorgetown (Georgetown University Library) (submittedVersion)
Topics
  • Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
  • Health Sciences › Nursing › Research and Theory › Health Education and Validation
  • Social Sciences › Decision Sciences › Management Science and Operations Research › Psychometric Methodologies and Testing
Keywords
cross-cultural adaptation, health-related quality of life, back-translation, semantic equivalence, conceptual equivalence, idiomatic equivalence, adaptation guidelines, psychometric validation, reporting guidelines
MeSH terms
Cross-Cultural Comparison, Cultural Characteristics, Health Status Indicators, Humans, Language, Quality of Life, Surveys and Questionnaires, Guidelines as Topic

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