Cited by 6,060Health Systems, Economic Evaluations, Quality of LifeHealth Education and ValidationPsychometric Methodologies and Testing

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Cross-cultural adaptation of health-related quality of life measures: Literature review and proposed guidelines

Guillemin, Francis, Bombardier, Claire, Beaton, Dorcas·1993·Journal of Clinical Epidemiology

DOI 10.1016/0895-4356(93)90142-n

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Abstract

Clinicians and researchers without a suitable health-related quality of life (HRQOL) measure in their own language have two choices: (1) to develop a new measure, or (2) to modify a measure previously validated in another language, known as a cross-cultural adaptation process. We propose a set of standardized guidelines for this process based on previous research in psychology and sociology and on published methodological frameworks. These guidelines include recommendations for obtaining semantic, idiomatic, experiential and conceptual equivalence in translation by using back-translation techniques and committee review, pre-testing techniques and re-examining the weight of scores. We applied these guidelines to 17 cross-cultural adaptation of HRQOL measures identified through a comprehensive literature review. The reporting standards varied across studies but agreement between raters in their ratings of the studies was substantial to almost perfect (weighted kappa = 0.66-0.93) suggesting that the guidelines are easy to apply. Further research is necessary in order to delineate essential versus optional steps in the adaptation process.

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Authors: Guillemin, F., Bombardier, C., & Beaton, D.
Affiliations: University of Toronto (CA)
ORCID: Bombardier, Claire
Beaton, Dorcas
Venue: Journal of Clinical Epidemiology
Publisher: Elsevier BV
Published: 1993-12
Volume: 46
Issue: 12
Pages: 1417-1432
ISSN: 0895-4356 (ISSN-L)
DOI: 10.1016/0895-4356(93)90142-n
OpenAlex: W2150377764
Cited by: 6,060
References: 66
Citations by year: 2026: 208 · 2025: 262 · 2024: 300 · 2023: 307 · 2022: 312 · 2021: 360 · 2020: 379 · 2019: 344 · 2018: 325 · 2017: 306 · 2016: 263 · 2015: 301 · 2014: 305 · 2013: 270 · 2012: 262
FWCI: 41.45
Type: journal article
Language: en
Open access: closed
Licence: www.elsevier.com/tdm/userlicense/1.0/ (tdm)
Locations: Journal of Clinical Epidemiology (publishedVersion)
PubMed (publishedVersion)
DigitalGeorgetown (Georgetown University Library) (submittedVersion)
Topics: Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
Health Sciences › Nursing › Research and Theory › Health Education and Validation
Social Sciences › Decision Sciences › Management Science and Operations Research › Psychometric Methodologies and Testing
Keywords: cross-cultural adaptation, health-related quality of life, back-translation, semantic equivalence, conceptual equivalence, idiomatic equivalence, adaptation guidelines, psychometric validation, reporting guidelines
MeSH terms: Cross-Cultural Comparison, Cultural Characteristics, Health Status Indicators, Humans, Language, Quality of Life, Surveys and Questionnaires, Guidelines as Topic

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Cross-cultural adaptation of health-related quality of life measures: Literature review and proposed guidelines

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