Cited by 66Child and Adolescent HealthAutism Spectrum Disorder ResearchDown syndrome and intellectual disability research

Racial disparities in developmental delay diagnosis and services received in early childhood

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Gallegos, Abraham, Dudovitz, Rebecca, Biely, Christopher, Chung, Paul J., Coker, Tumaini R., Barnert, Elizabeth, Guerrero, Alma D., Szilagyi, Peter G. +1 more·2021·Academic Pediatrics

Abstract

Background and objective Racial disparities in diagnosis and receipt of services for early childhood developmental delay (DD) are well known but studies have had difficulties distinguishing contributing patient, healthcare system, and physician factors from underlying prevalence. We examine rates of physician diagnoses of DD by preschool and kindergarten entry controlling for a child's objective development via scoring on validated developmental assessment along with other child characteristics.Methods We used data from the preschool and kindergarten entry waves of the Early Childhood Longitudinal Study, Birth Cohort. Dependent variables included being diagnosed with DD by a medical provider and receipt of developmental services. Logistic regression models tested whether a child's race was associated with both outcomes during preschool and kindergarten while controlling for the developmental assessments, as well as other contextual factors.Results Among 7950 children, 6.6% of preschoolers and 7.5% of kindergarteners were diagnosed with DD. Of preschool children with DD, 66.5% were receiving developmental services, while 69.1% of kindergarten children with DD were receiving services. Children who were Black, Asian, spoke a primary language other than English and had no health insurance were less likely to be diagnosed with DD despite accounting for cognitive ability. Black and Latinx children were less likely to receive services.Conclusions Racial minority children are less likely to be diagnosed by their pediatric provider with DD and less likely to receive services despite accounting for a child's objective developmental assessment. The pediatric primary care system is an important target for interventions to reduce these disparities.

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  • Children from low-income families and those from minoritized communities have increased risk for developmental delay and are less likely to receive timely developmental support services than more socially advantaged peers.

    “Children from low-income families and those from minoritized communities face the double disadvantage of having increased risk for developmental delay and being less likely to receive timely developmental support services than their more socially advantaged peers.8, 9”

    From Sustained Effectiveness of a 211 Call Center With Early Childhood Care Coordination (2025) · cites this paper as [8]

    The Results (page not supplied) report lower odds of receiving developmental services by preschool for Black and Latinx children with a diagnosis, and by kindergarten for Black children and children in one lower-income bracket. The paper does not establish that these groups have an increased underlying risk of developmental delay; its Discussion says the lower diagnosis rate among racial and ethnic minority children was not explained by differences in underlying prevalence. (LLM, conf=0.88)

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  1. [28]Pediatrics AAo. Periodic survey of fellows# 53: Identification of children< 36 months at risk for developmental problems and referral to early identification programs. Retrieved November 2003; 11: 2007

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Authors
Gallegos, A., Dudovitz, R., Biely, C., Chung, P. J., Coker, T. R., Barnert, E., Guerrero, A. D., Szilagyi, P. G., & Nelson, B. B.
Affiliations
  • University of California, Los Angeles (US)
  • University of Washington (US)
  • Virginia Commonwealth University (US)
Corresponding author
Gallegos, Abraham
Venue
Academic Pediatrics
Publisher
Elsevier BV
Published
2021-09
Volume
21
Issue
7
Pages
1230-1238
ISSN
1876-2859 (ISSN-L)
OpenAlex
W3163587188
Cited by
66
References
35
Citations by year
2026: 22 · 2025: 14 · 2024: 16 · 2023: 11 · 2022: 3
FWCI
8.43
Type
journal article
Language
en
Open access
Locations
  • Academic Pediatrics (publishedVersion)
  • PubMed (publishedVersion)
  • PubMed Central (acceptedVersion)
  • eScholarship (California Digital Library) (submittedVersion)
Funders
  • University of California, Los Angeles
  • Clinical and Translational Science Institute, University of California, Los Angeles
  • National Institutes of Health
  • National Center for Advancing Translational Sciences
Topics
  • Health Sciences › Health Professions › General Health Professions › Child and Adolescent Health
  • Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
Keywords
racial disparities, developmental delay, early childhood, developmental services, physician diagnosis, preschool children, kindergarten entry, Black children, Latinx children, language minority children, health insurance, pediatric primary care, developmental assessment, Early Childhood Longitudinal Study-Birth Cohort
MeSH terms
Child, Child Development, Child, Preschool, Educational Status, Humans, Insurance, Health, Longitudinal Studies, Minority Groups, Healthcare Disparities

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