Examining Health Behaviors of Chronic Disease Caregivers in the U.S.
Open accessAbstract
Introduction Many informal caregivers experience a significant caregiving burden, which may interfere with their health behaviors. Caregiver health behaviors may vary by disease context, but this has rarely been studied. This study compares the health behaviors of prevalent groups of chronic illness caregivers (i.e., dementia, cancer, chronic obstructive pulmonary disease/emphysema, diabetes) with those of noncaregivers and examines whether caregiving intensity is associated with these behaviors.Methods In 2021, using pooled cross-sectional 2015-2019 Behavioral Risk Factor Surveillance System data, health behaviors (i.e., physical activity, diet, alcohol use, smoking, sleep, and influenza immunization) of caregivers of patients with dementia (n=5,525), cancer (n=4,246), chronic obstructive pulmonary disease/emphysema (n=1,959), and diabetes (n=2,853) and noncaregivers (n=203,848) were compared. Relationships between caregiving intensity (e.g., hours, type of tasks) and caregiver health behaviors were examined. Regression analyses were used to compare groups.Results Compared with noncaregivers, caregiver groups were more likely to report engaging in both risky (i.e., smoking, shorter sleep duration) and health-promoting (i.e., physical activity, vegetable consumption, abstaining from heavy drinking) behaviors, whereas nonsignificant differences were observed for influenza immunization. Longer caregiving hours and providing help with personal care were associated with poorer health behaviors (e.g., shorter sleep duration). Few differences in health behaviors were observed between caregivers of patients with dementia and other caregiver groups.Conclusions Results suggest that caregivers are more likely to engage in both risky and health-promoting behaviors than noncaregivers. Furthermore, findings suggest that greater caregiving responsibilities are associated with certain risky health behaviors. Findings support the development and implementation of strategies to improve caregivers' health behaviors across disease contexts.
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Dementia caregivers who provided care to spouses had 41% increased odds of becoming increasingly frail between becoming a caregiver and their spouse's death compared with other spousal caregivers of similar age.
“Data from the HRS showed that dementia caregivers who provided care to spouses were much more likely (41% increased odds) than other spousal caregivers of similar age to become increasingly frail during the time between becoming a caregiver and their spouse's death.[511][512][513][514]”
From 2023 Alzheimer's disease facts and figures (2023) · cites this paper as [513]
The Results describe a BRFSS analysis of caregivers’ health behaviors, not an HRS analysis of frailty. Searches for frailty, spousal caregiving, and the claimed 41% increase found no passage addressing that finding in our copy. (LLM, conf=0.76)
Experimental — accuracy not yet measuredData from the Health and Retirement Study showed that dementia caregivers who provided care to spouses were much more likely (41% increased odds) than other spousal caregivers of similar age to become increasingly frail during the time between becoming a caregiver and their spouse's death.
“Data from the Health and Retirement Study showed that dementia caregivers who provided care to spouses were much more likely (41% increased odds) than other spousal caregivers of similar age to become increasingly frail during the time between becoming a caregiver and their spouse's death. 559 , 560 , 561 , 562”
From 2024 Alzheimer's disease facts and figures (2024) · cites this paper as [561]
The Results section uses 2015–2019 BRFSS data to examine caregivers’ health behaviors, not Health and Retirement Study data or changes in frailty. Searches for frailty, 41% increased odds, and dementia spousal caregivers found no passage in our copy reporting the claimed comparison or time period. The copy provides no page numbers for these passages. (LLM, conf=0.77)
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Research works printed but not linked: 1
- [1]1. Schulz R, Tompkins CA. Informal caregivers in the United States: prevalence, caregiver characteristics, and ability to provide care. In: Olson S, ed. The Role of Human Factors in Home Health Care: Workshop Summary. Washington, DC: National Academies Press; 2010:117-145.
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2023 Alzheimer's disease facts and figures
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- Authors
- Secinti, E., Wu, W., Kent, E. E., Demark-Wahnefried, W., Lewson, A. B., & Mosher, C. E.
- Affiliations
- Indiana University – Purdue University Indianapolis (US)
- University of North Carolina at Chapel Hill (US)
- Venue
- American Journal of Preventive Medicine
- Publisher
- Elsevier BV
- Published
- 2022-03
- Volume
- 62
- Issue
- 3
- Pages
- e145-e158
- ISSN
- 0749-3797 (ISSN-L)
- OpenAlex
- W3204266635
- Cited by
- 36
- References
- 74
- Citations by year
- 2026: 5 · 2025: 10 · 2024: 11 · 2023: 6 · 2022: 3
- FWCI
- 7.79
- Type
- journal article
- Language
- en
- Open access
- green
- hdl.handle.net
- Locations
- American Journal of Preventive Medicine (publishedVersion)
- PubMed (publishedVersion)
- Purdue University Indianapolis (Indiana University) (submittedVersion)
- IUScholarWorks (Indiana University) (submittedVersion)
- Topics
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Health Sciences › Health Professions › General Health Professions › Health and Wellbeing Research
- Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
- Keywords
- informal caregivers, chronic disease caregiving, caregiver burden, dementia caregivers, cancer caregivers, physical activity, sleep duration, smoking, alcohol consumption, diet, influenza vaccination, care intensity, Behavioral Risk Factor Surveillance System
- MeSH terms
- Chronic Disease, Cross-Sectional Studies, Humans, Health Behavior, Caregivers, Behavioral Risk Factor Surveillance System
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