Using the illness intrusiveness ratings scale to understand health-related quality of life in chronic disease
Abstract
Objective Illness intrusiveness is a common, underlying determinant of quality of life in people affected by chronic disease. Illness intrusiveness results from disease- and treatment-induced disruptions to lifestyles, activities, and interests (i.e., interference with psychologically meaningful activity). This paper introduces the Illness Intrusiveness Ratings Scale (IIRS), a 13-item, self-report instrument. The IIRS can be scored to generate a total score or three subscale scores: relationships and personal development, intimacy, and instrumental. In addition to describing the IIRS, the paper presents the theoretical framework in which it is anchored, reviews the evidence, and reports psychometric properties.Methods Qualitative literature review.Results Findings support the IIRS's reliability (internal consistency and test-retest), validity (construct, criterion-related, and discriminant), sensitivity to change, and factorial invariance across numerous chronic-disease groups. The paper reports IIRS reliability coefficients and normative statistics for 36 chronic, medical and psychiatric patient populations.Conclusion The IIRS taps the extent to which disease- and treatment-related factors interfere with psychologically meaningful activity among people affected by chronic disease. It provides a valid, reliable measure that is easy to administer and unequivocally interpretable rendering it suitable for research designed to estimate the psychosocial impact of chronic disease and to document (and compare) the effectiveness of therapeutic interventions.
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The Illness Intrusiveness Rating Scale (IIRS) has been shown to be reliable and has construct, criterion and discriminant validity.
“It has been shown to be reliable (internal consistency and test -retest) and has construct, criterion and discriminant validity (Devins, 2010).”
From Effectiveness and predictors of group cognitive behaviour therapy outcome for generalised anxiety disorder in an out-patient hospital setting (2024) · cites this paper as Devins, 2010
Increased self-compassion reduces rumination, avoidance and isolation - factors identified as relating to pain intrusiveness.
“Given that increased self-compassion reduces rumination, avoidance and isolation - factors identified as relating to pain intrusiveness (Devins, 2010; Neff, 2003) - additional research is necessary to better understand the role that self-compassion may play on pain intrusiveness.”
From Increasing access to pain management: Feasibility of a self-compassion psychoeducational website using a minimally monitored delivery model (2021) · cites this paper as Devins, 2010
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- Authors
- Devins, G. M.
- Affiliations
- University of Toronto (CA)
- Corresponding author
- Devins, Gerald M.
- Venue
- Journal of Psychosomatic Research
- Publisher
- Elsevier BV
- Published
- 2010-06
- Volume
- 68
- Issue
- 6
- Pages
- 591-602
- ISSN
- 0022-3999 (ISSN-L)
- OpenAlex
- W2048449366
- Cited by
- 294
- References
- 105
- Citations by year
- 2026: 7 · 2025: 11 · 2024: 23 · 2023: 15 · 2022: 16 · 2021: 24 · 2020: 69 · 2019: 21 · 2018: 12 · 2017: 18 · 2016: 10 · 2015: 17 · 2014: 15 · 2013: 19 · 2012: 10
- FWCI
- 1.79
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Psychosomatic Research (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Canadian Institutes of Health Research
- Topics
- Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Health Sciences › Medicine › Epidemiology › Chronic Disease Management Strategies
- Keywords
- illness intrusiveness, health-related quality of life, chronic disease, psychosocial impact, self-report measures, psychometric properties, measurement invariance, reference values, treatment interference, intimacy, instrumental activities
- MeSH terms
- Activities of Daily Living, Chronic Disease, Disability Evaluation, Female, Humans, Male, Psychometrics, Quality of Life, Reproducibility of Results, Sickness Impact Profile, Illness Behavior
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