Cited by 195Stuttering Research and TreatmentVoice and Speech DisordersLanguage Development and Disorders

Stuttering as Defined by Adults Who Stutter

Tichenor, Seth E., Yaruss, J. Scott·2019·Journal of Speech, Language, and Hearing Research

Abstract

Purpose: Numerous frameworks and definitions have sought to differentiate what behaviors and experiences should be considered as a part of stuttering. Nearly all of these efforts have been based on the perspectives and beliefs of conversational partners and listeners. This outside-in approach to defining stuttering lacks validation from people who live with the condition. Method: In this study, 430 adults who stutter participated in a qualitative exploration of the term stuttering . Data were analyzed thematically to determine speakers' perspectives about moment of stuttering and the overall experience of stuttering in their lives. Results: To adults who stutter, the term stuttering signifies a constellation of experiences beyond the observable speech disfluency behaviors that are typically defined as stuttering by listeners. Participants reported that the moment of stuttering often begins with a sensation of anticipation, feeling stuck, or losing control. This sensation may lead speakers to react in various ways, including affective, behavioral, and cognitive reactions that can become deeply ingrained as people deal with difficulties in saying what they want to say. These reactions can be associated with adverse impact on people's lives. This interrelated chain of events can be exacerbated by outside environmental factors, such as the reactions of listeners. Discussion: Data from this survey provide novel evidence regarding what stuttering means to adults who stutter. These data are used to update the adaptation of the World Health Organization's International Classification of Functioning, Disability and Health as it applies to stuttering ( Yaruss & Quesal, 2004 ) to better account for the complex and individualized phenotype of stuttering and to develop a definition of the experience of stuttering that is based not only on the observations of listeners but also on the impact of stuttering on the lives of adults who stutter.

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Crossref · 10.1044/2019_jslhr-19-00137

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Authors
Tichenor, S. E., & Yaruss, J. S.
Affiliations
Michigan State University (US)
Venue
Journal of Speech, Language, and Hearing Research
Published
2019-12-18
Volume
62
Issue
12
Pages
4356-4369
ISSN
  • 1092-4388 (ISSN-L)
  • 1558-9102
OpenAlex
W2995710170
Cited by
195
References
99
Citations by year
2026: 26 · 2025: 48 · 2024: 39 · 2023: 27 · 2022: 27 · 2021: 14 · 2020: 12 · 2019: 2
FWCI
16.05
Type
journal article
Language
en
Open access
closed
Locations
  • Journal of Speech Language and Hearing Research (publishedVersion)
  • PubMed (publishedVersion)
Topics
  • Social Sciences › Psychology › Clinical Psychology › Stuttering Research and Treatment
  • Health Sciences › Medicine › Physiology › Voice and Speech Disorders
  • Social Sciences › Psychology › Developmental and Educational Psychology › Language Development and Disorders
Keywords
stuttering, adults who stutter, listener reactions, International Classification of Functioning, Disability and Health
MeSH terms
Adolescent, Adult, Aged, Aged, 80 and over, Communication, Emotions, Female, Humans, Male, Middle Aged, Terminology as Topic, Surveys and Questionnaires, Self Concept, Stuttering, Qualitative Research, Young Adult

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