Stuttering as Defined by Adults Who Stutter
Abstract
Purpose: Numerous frameworks and definitions have sought to differentiate what behaviors and experiences should be considered as a part of stuttering. Nearly all of these efforts have been based on the perspectives and beliefs of conversational partners and listeners. This outside-in approach to defining stuttering lacks validation from people who live with the condition. Method: In this study, 430 adults who stutter participated in a qualitative exploration of the term stuttering . Data were analyzed thematically to determine speakers' perspectives about moment of stuttering and the overall experience of stuttering in their lives. Results: To adults who stutter, the term stuttering signifies a constellation of experiences beyond the observable speech disfluency behaviors that are typically defined as stuttering by listeners. Participants reported that the moment of stuttering often begins with a sensation of anticipation, feeling stuck, or losing control. This sensation may lead speakers to react in various ways, including affective, behavioral, and cognitive reactions that can become deeply ingrained as people deal with difficulties in saying what they want to say. These reactions can be associated with adverse impact on people's lives. This interrelated chain of events can be exacerbated by outside environmental factors, such as the reactions of listeners. Discussion: Data from this survey provide novel evidence regarding what stuttering means to adults who stutter. These data are used to update the adaptation of the World Health Organization's International Classification of Functioning, Disability and Health as it applies to stuttering ( Yaruss & Quesal, 2004 ) to better account for the complex and individualized phenotype of stuttering and to develop a definition of the experience of stuttering that is based not only on the observations of listeners but also on the impact of stuttering on the lives of adults who stutter.
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The field of SLP has historically framed stuttering as a problem to be fixed, relying on external observations and control.
“The field of SLP has historically framed stuttering as a problem to be fixed, relying on external observations and control [22, 99].”
From Disability-First AI Dataset Annotation: Co-designing Stuttered Speech Annotation Guidelines with People Who Stutter (2026) · cites this paper as [99]
An increasing number of voices from the stuttering community have called for the inclusion of PWS in shaping knowledge about stuttering.
“an increasing number of voices from the stuttering community have called for the inclusion of PWS in shaping knowledge about stuttering [22, 99]”
From Disability-First AI Dataset Annotation: Co-designing Stuttered Speech Annotation Guidelines with People Who Stutter (2026) · cites this paper as [99]
Annotating stuttered speech is inherently challenging and subjective due to its high variability and the ambiguous boundary between stuttered and fluent speech.
“While annotating stuttered speech is inherently challenging and subjective due to its high variability and the ambiguous boundary between stuttered and fluent speech [99, 102]”
From Disability-First AI Dataset Annotation: Co-designing Stuttered Speech Annotation Guidelines with People Who Stutter (2026) · cites this paper as [99]
Both SLP participants agreed that videos could be incorporated into the review process, as embodied cues such as lip movements are often a crucial aspect of stuttering and can aid interpretation.
“For instance, Jia and Kerrigan both agreed that videos could be incorporated into the review process, as embodied cues such as lip movements are often a crucial aspect of stuttering and can aid interpretation [99].”
From Disability-First AI Dataset Annotation: Co-designing Stuttered Speech Annotation Guidelines with People Who Stutter (2026) · cites this paper as [99]
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Self-citationExploring the Relationship Between Resilience and the Adverse Impact of Stuttering in Children
Walsh, B. M., Grobbel, H., Christ, S. L., Tichenor, S. E., & Gerwin, K. L. (2023) · Journal of Speech Language and Hearing Research · doi:10.1044/2023_jslhr-23-00012 · Cited by 20 · see citing works
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Variability of Stuttering in Young Children: Caregivers' Perceptions and Experiences
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Self-citationAdvances in Understanding Stuttering as a Disorder of Language Encoding
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The Association Between Stuttering Burden and Psychosocial Aspects of Life in Adults
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Verbal Response Inhibition in Adults Who Stutter
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Understanding the Broader Impact of Stuttering: Suicidal Ideation
Tichenor, S. E., Palasik, S., & Yaruss, J. S. (2023) · American Journal of Speech-Language Pathology · doi:10.1044/2023_ajslp-23-00007 · Cited by 14 · see citing works
Self-citationBriley, P. M. (2023) · Journal of Fluency Disorders · doi:10.1016/j.jfludis.2023.105997 · Cited by 14 · see citing works
What Is the Role of Questioning in Young Children’s Fluency?
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Stuttering severity and social anxiety among adults who stutter: A multilevel analysis
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Structural brain network topological alterations in stuttering adults
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Can Stoicism inspire stuttering intervention? The clinical usefulness of an ancient philosophy
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Adults Who Stutter Show Diminished Word Fluency, Regardless of Mode
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Understanding the Perspectives of School Children Who Stutter: A Rapid Review
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Differential Impacts of Anticipated Success on Employment Outcomes Among Adults Who Stutter
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Stuttering-Related Podcasts: Audio-Based Self-Help for People Who Stutter
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Word-Final Disfluencies in a School-Age Child: Beneath the Tip of the Iceberg
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3Es: An All-Inclusive Stuttering Therapy Tool
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Speech Therapy and Earnings: Economic Benefits for Individuals Who Stutter
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ASTER: Automatic Speech Recognition System Accessibility Testing for Stutterers
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Life Impact of Cluttering: The Adult Perspective
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Beyond the Stuttering Toolbox: The Concept of Meta-Therapy
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Scientists, society, and stuttering
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Speech characteristics that differentiate stuttering and cluttering in Japanese speakers
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Repetitive Negative Thinking as a Mechanism of Stuttering Anticipation
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Self-citationPositive Experiences Related to Stuttering in Adults Who Stutter
Manivannan, V., Medina, A. M., Maruthy, S., Singhal, M. K., Agarwal, A., & Manchaiah, V. K. C. (2023) · Perspectives of the ASHA Special Interest Groups · doi:10.1044/2023_persp-22-00151 · Cited by 6 · see citing works
Identifying perspectives of adults who stutter on therapeutic alliance in stuttering intervention
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Risk of sleep problems in a clinical sample of children who stutter
do Couto, M. C. H., de Oliveira, C. M. C., Merlo, S., Briley, P. M., & Pinato, L. (2024) · Journal of Fluency Disorders · doi:10.1016/j.jfludis.2023.106036 · Cited by 5 · see citing works
Teachers’ perceptions of the impact of stuttering on the daily life of their students who stutter
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Self-citationTang, X., Li, J., & Wu, S. (2026) · Proceedings of the 2026 CHI Conference on Human Factors in Computing Systems · doi:10.1145/3772318.3790405 · Cited by 4 · see citing works
“Other research further emphasizes the affective, behavioral, and cognitive dimensions that shape the lived experience and intimate understanding of stuttering [99].”
InfluentialSchoolteachers’ beliefs and self reactions towards stuttering in Israel
Fichman, S., Adelman, C., Leyer, M., Tuvia, T. B., Segal, J., & Louis, K. O. S. (2024) · Speech Language and Hearing · doi:10.1080/2050571x.2024.2424050 · Cited by 4 · see citing works
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Personal Factors and the Overall Variability of Stuttering
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Speech disfluencies in bilingual Greek-English young adults
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Designing a Module on Stuttering and Cluttering: A Guide for Speech-Language Pathology Educators
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Stutterers’ experiences on classic psychedelics: A preliminary self-report study
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Variability in Stuttering Severity and Other Symptoms Across Three Fluency States
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Novel Word Recognition in Childhood Stuttering
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Stuttering in individuals with Down syndrome: a systematic review of earlier research
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The impact of stuttering on Portuguese school-age children as measured by the OASES-S
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Tang, X., & Zhang, W. (2026) · Proceedings of the 2026 CHI Conference on Human Factors in Computing Systems · doi:10.1145/3772318.3790464 · Cited by 3 · see citing works
“Both studies have provided critical insights into design opportunities for assistive technologies, including collaborative systems for accom-modations and proactive, and customizable assistive tools [41, 55].”
Improving Stuttering Through Augmented Multisensory Feedback Stimulation
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The experience of stuttering among adolescents in Iran: A cross-cultural study
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Self-citationTurkish Version of the Stuttering Severity Instrument-Version 4 (SSI-4)
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Communication attitude of Kannada-speaking adults who do and do not stutter
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Auditory Processing of Speech and Nonspeech in People Who Stutter
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Socioecological Determinants of Speech Evaluation and Treatment Among Children Who Stutter
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An active inference account of stuttering behavior
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Self-citationUwarunkowania skuteczności terapii utrwalonego jąkania w opiniach logopedów i studentów logopedii
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- Authors
- Tichenor, S. E., & Yaruss, J. S.
- Affiliations
- Michigan State University (US)
- Venue
- Journal of Speech, Language, and Hearing Research
- Published
- 2019-12-18
- Volume
- 62
- Issue
- 12
- Pages
- 4356-4369
- ISSN
- 1092-4388 (ISSN-L)
- 1558-9102
- OpenAlex
- W2995710170
- Cited by
- 195
- References
- 99
- Citations by year
- 2026: 26 · 2025: 48 · 2024: 39 · 2023: 27 · 2022: 27 · 2021: 14 · 2020: 12 · 2019: 2
- FWCI
- 16.05
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Speech Language and Hearing Research (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Stuttering Research and Treatment
- Health Sciences › Medicine › Physiology › Voice and Speech Disorders
- Social Sciences › Psychology › Developmental and Educational Psychology › Language Development and Disorders
- Keywords
- stuttering, adults who stutter, listener reactions, International Classification of Functioning, Disability and Health
- MeSH terms
- Adolescent, Adult, Aged, Aged, 80 and over, Communication, Emotions, Female, Humans, Male, Middle Aged, Terminology as Topic, Surveys and Questionnaires, Self Concept, Stuttering, Qualitative Research, Young Adult
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