When Personal Feels Invasive: Foreseeing Challenges in Precision Medicine Communication
Abstract
Precision medicine (PM) draws upon individual biological and psychosocial factors to create a personalized approach to healthcare. To date, little is known about how healthcare consumers will respond to such highly personalized guidance and treatment. The assumption is that responses will generally be favorable; yet in the media and in online public discussions about PM, concerns have been raised about invasions of privacy and autonomy. Findings from the tailoring literature-relevant because PM is, in a sense, "hypertailoring"-similarly suggest a potential for provoking unintended consequences such as personalization reactance, wherein perceived threat to one's privacy or freedom can lead to rejection of the personalized message or its source. Here, we review extant tailoring and other relevant research to identify challenges that could arise in PM communication. We then draw upon a patient-centered communication perspective to highlight elements of the communication process wherein resistance could be mitigated. This review aims to provide preliminary guidance for practitioners when communicating with patients and healthcare consumers about PM, as well as point scholars toward fruitful topics for research in this emerging health communication area.
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Ethnic minorities and individuals with lower socioeconomic status seem to be less aware of precision medicine technologies and less likely to use them.
“Ethnic minorities and individuals with lower socioeconomic status seem to be less aware of technologies and less likely to use them [113].”
From Patients’ and professionals’ views related to ethical issues in precision medicine: a mixed research synthesis (2021) · cites this paper as [113]
Not knowing enables people to keep hope, a positive self-perception and remain optimistic.
“Not knowing enables people to keep hope, a positive self-perception and remain optimistic [113].”
From Patients’ and professionals’ views related to ethical issues in precision medicine: a mixed research synthesis (2021) · cites this paper as [113]
Professionals and patients in some studies report psychological implications from knowing or while waiting for the test results.
“Besides these adverse events, professionals and patients in some studies report psychological implications from knowing [31, 32, 46, 51, 63, 113] or while waiting for the test results [26].”
From Patients’ and professionals’ views related to ethical issues in precision medicine: a mixed research synthesis (2021) · cites this paper as [113]
Some patients evade health care provider expectations of recording data using smartphone apps or wearables.
“As a result, some patients evade health care provider expectations of recording data using smartphone apps or wearables [113].”
From Patients’ and professionals’ views related to ethical issues in precision medicine: a mixed research synthesis (2021) · cites this paper as [113]
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- Authors
- Ratcliff, C. L., Kaphingst, K. A., & Jensen, J. D.
- Affiliations
- University of Utah (US)
- Corresponding author
- Ratcliff, Chelsea L.
- Venue
- Journal of Health Communication
- Publisher
- Informa UK Limited
- Published
- 2017-12-26
- Volume
- 23
- Issue
- 2
- Pages
- 144-152
- ISSN
- 1081-0730 (ISSN-L)
- 1087-0415
- OpenAlex
- W2778626213
- Cited by
- 20
- References
- 89
- Citations by year
- 2026: 1 · 2025: 3 · 2024: 4 · 2023: 3 · 2022: 5 · 2021: 2 · 2020: 1 · 2019: 1
- FWCI
- 0.89
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Health Communication (publishedVersion)
- PubMed (publishedVersion)
- Funders
- National Institutes of Health
- Topics
- Health Sciences › Health Professions › General Health Professions › Patient-Provider Communication in Healthcare
- Social Sciences › Arts and Humanities › Literature and Literary Theory › Media Influence and Health
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics and bioethics in healthcare
- Keywords
- precision medicine, privacy concerns, autonomy, patient-centered communication, psychosocial factors
- MeSH terms
- Communication, Humans, Physician-Patient Relations, Precision Medicine
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