The relation between information provision and health-related quality of life, anxiety and depression among cancer survivors: a systematic review
Open accessAbstract
BACKGROUND: Providing information that is congruent with patients' needs is an important determinant for patient satisfaction and might also affect health-related quality of life (HRQoL) and anxiety and depression levels of cancer survivors. DESIGN: The authors systematically reviewed the available literature on the relationship between information provision and HRQoL, anxiety and depression. A PubMed literature search for original articles published until February 2010 was carried out. Twenty-five articles, all conducted between 1996 and 2009, which met the predefined inclusion criteria, were subjected to a quality checklist. RESULTS: Satisfied patients, patients with fulfilled information needs, and patients who experience less information barriers, in general have a better HRQoL and less anxiety and depression. Out of eight intervention studies that aimed to improve information provision, only one showed a positive association with better HRQoL. CONCLUSION: Health care providers must pay more attention to patient-centred information provision. Additional research is needed to make definitive conclusions about information interventions as most results did not reach statistical significance due to methodological constraints. The quick development of the relatively young research field of patient-reported outcomes in cancer survivorship will make it possible to conduct better quality studies in the future.
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Psychological interventions before surgery have been observed to be a better coping strategy.
“Psychological interventions before surgery have been observed to be a better coping strategy.”
From Coping in Post-Mastectomy Breast Cancer Survivors and Need for Intervention: Systematic Review. (2023) · cites this paper as [31]
The Discussion (page unavailable) suggests that an intervention might be more powerful if it includes counselling or psychotherapy. It does not report that psychological interventions before surgery were observed to improve coping; the proposed benefit is tentative, and neither the timing nor the coping outcome is established. (LLM, conf=0.78)
Experimental — accuracy not yet measuredProviding sufficient information to breast cancer patients helps them understand trauma and anxiety, and they are more prepared for better HRQoL compared with women who do not have information.
“Similarly, providing sufficient information to breast cancer patients helps them to understand the various aspects related to trauma and anxiety, and they are more prepared for better HRQoL when compared with women who do not have information.”
From Coping in Post-Mastectomy Breast Cancer Survivors and Need for Intervention: Systematic Review. (2023) · cites this paper as [31]
In the health-related quality of life section, the review reports that breast cancer patients who received clearer or higher levels of information had better reported QoL. The discussion suggests that information may improve understanding and help patients cope with cancer or reduce distress, but it does not establish that information helps women understand trauma and anxiety, or demonstrate the stated comparison with women who receive no information. Page numbers are unavailable in the supplied passages. (LLM, conf=0.84)
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Health information needs of pregnant women: information sources, motives and barriers
Kamali, S., Ahmadian, L., Khajouei, R., & Bahaadinbeigy, K. (2017) · Health Information & Libraries Journal · doi:10.1111/hir.12200 · Cited by 109 · see citing works
Faller, H., Brähler, E., Härter, M. C., Keller, M., Schulz, H., Wegscheider, K., Weis, J., Boehncke, A., Reuter, K., Richard, M., et al. (2017) · Patient Education and Counseling · doi:10.1016/j.pec.2017.05.031 · Cited by 110 · see citing works
Wang, Y., Hemmelder, M. H., Bos, W. J. W., Snoep, J. D., de Vries, A. P. J., Dekker, F. W., & Meuleman, Y. (2021) · Nephrology Dialysis Transplantation · doi:10.1093/ndt/gfab232 · Cited by 104 · see citing works
“stronger positive beliefs about the seriousness and controllability of their condition) compared with before the transplantation, and such beliefs could also positively influence patient outcomes such as HRQOL [57, 69].”
van de Wal, M., van de Poll-Franse, L. V., Prins, J. B., & Gielissen, M. F. M. (2015) · Psycho-Oncology · doi:10.1002/pon.4002 · Cited by 103 · see citing works
“Still, anxiety has also been associated with inhibition of information processing leading to difficulty understanding medical information and less satisfaction [26].”
BackgroundVetsch, J., Fardell, J. E., Wakefield, C. E., Signorelli, C., Michel, G., McLoone, J. K., Walwyn, T., Tapp, H., Truscott, J., & Cohn, R. J. (2017) · Patient Education and Counseling · doi:10.1016/j.pec.2016.09.013 · Cited by 95 · see citing works
Health-related quality of life in survivors of childhood cancer: the role of chronic health problems
Rueegg, C. S., Gianinazzi, M. E., Rischewski, J. R., Popovic, M. B., von der Weid, N., Michel, G., & Kuehni, C. E. (2013) · Journal of Cancer Survivorship · doi:10.1007/s11764-013-0288-4 · Cited by 94 · see citing works
“Educating survivors can indirectly help improving outcomes [38].”
Kimman, M., Dirksen, C. D., Voogd, A. C., Falger, P. R. J., Gijsen, B., Thuring, M., Lenssen, A., van der Ent, F., Verkeyn, J., Haekens, C., et al. (2011) · European Journal of Cancer · doi:10.1016/j.ejca.2010.12.003 · Cited by 91 · see citing works
Information provision and information needs in adult survivors of childhood cancer
Gianinazzi, M. E., Essig, S., Rueegg, C. S., von der Weid, N., Brazzola, P., Kuehni, C. E., Michel, G., & for the Swiss Paediatric Oncology Group (SPOG) (2013) · Pediatric Blood & Cancer · doi:10.1002/pbc.24762 · Cited by 88 · see citing works
“Cancer patients who are knowledgeable about their medical history are better decision makers, adhere more to the prescribed care-plan, show lower levels of distress and higher quality of life (QoL), have a greater sense of control and have less information needs [3,4].”
BackgroundResultFear of cancer recurrence and its predictors among cervical cancer survivors
Hanprasertpong, J., Geater, A., Jiamset, I., Padungkul, L., Hirunkajonpan, P., & Songhong, N. (2017) · Journal of Gynecologic Oncology · doi:10.3802/jgo.2017.28.e72 · Cited by 86 · see citing works
“Anxiety has also been associated with inhibition of information processing leading to difficulty understanding medical information and less satisfaction [28].”
BackgroundNicolaije, K. A. H., Husson, O., Ezendam, N. P. M., Vos, M. C., Kruitwagen, R. F. P. M., Lybeert, M. L. M., & van de Poll-Franse, L. V. (2012) · Patient Education and Counseling · doi:10.1016/j.pec.2012.05.002 · Cited by 85 · see citing works
“Cancer survivors who are satisfied with the information they received have a better health related quality of life, and lower levels of depression and anxiety [8].”
Self-citationInformation needs of adolescent and young adult cancer patients and their parent-carers
McCarthy, M., McNeil, R., Drew, S. E., Orme, L. M., & Sawyer, S. M. (2017) · Supportive Care in Cancer · doi:10.1007/s00520-017-3984-1 · Cited by 79 · see citing works
Nguyen, M. H., Smets, E. M. A., Bol, N., Bronner, M. B., Tytgat, K. M. A. J., Loos, E. F., & van Weert, J. C. M. (2018) · Acta Oncologica · doi:10.1080/0284186x.2018.1512156 · Cited by 79 · see citing works
Oerlemans, S., Mols, F., Nijziel, M. R., Zijlstra, W. P., Coebergh, J. W. W., & van de Poll-Franse, L. V. (2014) · Journal of Cancer Survivorship · doi:10.1007/s11764-014-0367-1 · Cited by 74 · see citing works
Self-citationBlödt, S., Kaiser, M., Adam, Y., Adami, S., Schultze, M., Müller‐Nordhorn, J., & Holmberg, C. (2018) · BMJ Open · doi:10.1136/bmjopen-2017-019576 · Cited by 72 · see citing works
“Cancer survivors who were satisfied with the information they had received seemed to have a higher health-related quality of life, less anxiety and less depression.(9) Indeed, receiving health information influences illness perceptions, with the perceived receipt of more disease-specific information leading to a feeli…”
BackgroundRood, J. A. J., Nauta, I. H., Lissenberg-Witte, B. I., Stam, F., van Zuuren, F. J., Manenschijn, A., Huijgens, P. C., Leeuw, I. M. V., & Zweegman, S. (2017) · Psycho-Oncology · doi:10.1002/pon.4414 · Cited by 71 · see citing works
Ruetters, D., Keinki, C., Schroth, S., Liebl, P., & Hübner, J. (2015) · Journal of Cancer Research and Clinical Oncology · doi:10.1007/s00432-015-2099-7 · Cited by 71 · see citing works
Stiefel, F., Bourquin, C., Salmon, P., Jeanneret, L. A., Dauchy, S., Ernstmann, N., Grassi, L. G., Libert, Y., Vitinius, F., Santini, D., et al. (2024) · ESMO Open · doi:10.1016/j.esmoop.2024.103496 · Cited by 70 · see citing works
“50 When patients have already been informed about certain aspects of their disease, it has been recommended that clinicians fi rst explore their understanding of the medical situation when providing new information.”
van de Poll-Franse, L. V., Nicolaije, K. A. H., & Ezendam, N. P. M. (2017) · Acta Oncologica · doi:10.1080/0284186x.2016.1266080 · Cited by 67 · see citing works
Information Needs Priorities in Patients Diagnosed With Cancer: A Systematic Review.
Tariman, J. D., Doorenbos, A. Z., Schepp, K. G., Singhal, S., & Berry, D. L. (2014) · PubMed Central · Cited by 67 · see citing works
Matcham, F., Rayner, L., Hutton, J., Monk, A., Steel, C., & Hotopf, M. (2014) · Clinical Psychology Review · doi:10.1016/j.cpr.2014.01.005 · Cited by 85 · see citing works
Sodergren, S. C., Wheelwright, S. J., Permyakova, N. V., Patel, M., Calman, L. A., Smith, P. W. F., Din, A., Richardson, A. M., Fenlon, D., Winter, J. N., et al. (2019) · Journal of Cancer Survivorship · doi:10.1007/s11764-019-00805-6 · Cited by 64 · see citing works
Kelada, L., Wakefield, C. E., Heathcote, L. C., Jaaniste, T., Signorelli, C., Fardell, J. E., Donoghoe, M. W., McCarthy, M., Gabriel, M. A., & Cohn, R. J. (2019) · Patient Education and Counseling · doi:10.1016/j.pec.2019.06.022 · Cited by 64 · see citing works
Berqlund, C. B., Gustafsson, E., Johansson, H., & Bergenmar, M. (2015) · European Journal of Oncology Nursing · doi:10.1016/j.ejon.2015.05.007 · Cited by 62 · see citing works
Depression, anxiety, and somatic symptoms in older cancer patients: a comparison across age groups
Cohen, M. W. (2013) · Psycho-Oncology · doi:10.1002/pon.3383 · Cited by 62 · see citing works
“These unmet needs may be addressed by multiprofessional oncology teams [45,46].”
BackgroundSuh, S. R., & Lee, M. K. (2017) · Oncology nursing forum · doi:10.1188/17.onf.e168-e184 · Cited by 61 · see citing works
Rood, J. A. J., van Zuuren, F. J., Stam, F., van der Ploeg, T., Eeltink, C., Leeuw, I. M. V., & Huijgens, P. C. (2014) · Hematological Oncology · doi:10.1002/hon.2138 · Cited by 60 · see citing works
“More important, higher satisfaction with the information provided was associated with better QoL, confirming the outcomes of earlier studies [8,9,40].”
ResultSchäffeler, N., Pfeiffer, K., Ringwald, J., Brucker, S. Y., Wallwiener, M., Zipfel, S., & Teufel, M. (2015) · Psycho-Oncology · doi:10.1002/pon.3855 · Cited by 59 · see citing works
“Patients who are satisfied with the information they received concerning treatment options and their disease in general seem to have lower anxiety and depression as well as a better quality of life [11].”
BackgroundLamers, R. E. D., Cuypers, M., Husson, O., de Vries, M., Kil, P. J. M., Bosch, J. L. H. R., & van de Poll-Franse, L. V. (2015) · Psycho-Oncology · doi:10.1002/pon.3981 · Cited by 57 · see citing works
“In Dutch patients diagnosed with lymphoma, multiple myeloma, endometrial or colorectal cancer it has been described that satisfaction with the information received is associated with better illness perception and higher overall HRQoL [3,9,10].”
InfluentialSelf-citationHusson, O., Mols, F., Oranje, W. A., Haak, H. R., Nieuwlaat, W., Netea-Maier, R. T., Smit, J. W. A., & van de Poll-Franse, L. V. (2014) · Psycho-Oncology · doi:10.1002/pon.3514 · Cited by 56 · see citing works
“needs as research showed that satisfaction with received information is strongly associated with better healthrelated quality of life (HRQoL), lower levels of anxiety and depression, and more positive illness perceptions [11,12].”
Self-citationPapadopoulou, A., Govina, O., Tsatsou, I., Μαντζώρου, Μ., Mantoudi, A., Tsiou, C., & Αδαμακίδου, Θ. (2022) · Medicine and Pharmacy Reports · doi:10.15386/mpr-2458 · Cited by 55 · see citing works
“Health related QoL is related to patients’ perceptions regarding their physical, emotional, social and mental functions [20] and expresses patients’ perceptions about their life, at any given time in the course of the disease [21].”
BackgroundThe Impact of Depression and Anxiety on Adult Cancer Patients’ Health-Related Quality of Life
Alwhaibi, M., Alruthia, Y., & Sales, I. (2023) · Journal of Clinical Medicine · doi:10.3390/jcm12062196 · Cited by 54 · see citing works
“Finally, coordinated care between healthcare providers and the provision of patient-centered information are important elements of patient care and may also improve HRQoL and ameliorate anxiety and depression in patients with cancer [32].”
BackgroundPlaydon, M. C., Ferrucci, L. M., McCorkle, R. C., Stein, K., Cannady, R., Sanft, T. B., & Cartmel, B. (2016) · Journal of Cancer Survivorship · doi:10.1007/s11764-015-0513-4 · Cited by 55 · see citing works
Chou, Y.-H., Chia-Rong Hsieh, V., Chen, X., Huang, T.-Y., & Shieh, S.-H. (2020) · Taiwanese Journal of Obstetrics and Gynecology · doi:10.1016/j.tjog.2020.01.010 · Cited by 54 · see citing works
Mina, D. S., Au, D., Brunet, J., Jones, J. M., TOMLINSON, G. A., Taback, N., Field, D., Berlingeri, A., Bradley, H., & Howell, D. (2017) · Current Oncology · doi:10.3747/co.23.3585 · Cited by 54 · see citing works
Busolo, D., & Woodgate, R. (2015) · JBI Database of Systematic Reviews and Implementation Reports · doi:10.11124/jbisrir-2015-1809 · Cited by 63 · see citing works
Angioli, R., Plotti, F., Capriglione, S., Aloisi, A., Aloisi, M., Luvero, D., Miranda, A., Montera, R., Gulino, M., & Frati, P. (2014) · European Journal of Obstetrics & Gynecology and Reproductive Biology · doi:10.1016/j.ejogrb.2014.03.041 · Cited by 53 · see citing works
“Studies suggest that most cancer patients want as much information as possible [5–7].”
BackgroundWhat information do cancer patients want and how well are their needs being met?
Chua, G. P., Tan, H. K., & Gandhi, M. (2018) · ecancermedicalscience · doi:10.3332/ecancer.2018.873 · Cited by 53 · see citing works
Iskandarsyah, A., de Klerk, C., Suardi, D. R., Soemitro, M. P., Sadarjoen, S. S., & Passchier, J. (2013) · Supportive Care in Cancer · doi:10.1007/s00520-013-1877-5 · Cited by 51 · see citing works
Information needs in cancer patients across the disease trajectory. A prospective study
Goerling, U., Faller, H., Hornemann, B., Hönig, K., Bergelt, C., Maatouk, I., Stein, B., Teufel, M., Erim, Y., Geiser, F., et al. (2019) · Patient Education and Counseling · doi:10.1016/j.pec.2019.08.011 · Cited by 50 · see citing works
Oerlemans, S., Husson, O., Mols, F., Poortmans, P. M., Roerdink, H., Daniels, L. A., Creutzberg, C. L., & van de Poll-Franse, L. V. (2012) · Annals of Hematology · doi:10.1007/s00277-012-1495-1 · Cited by 49 · see citing works
Self-citationHamdy, F. C., Donovan, J., Lane, J. A., Mason, M. D., Metcalfe, C. D., Holding, P., Wade, J., Noble, S., Garfield, K., Young, G., et al. (2020) · Health Technology Assessment · doi:10.3310/hta24370 · Cited by 49 · see citing works
“134 (10) 133 (5) 124 (2) Number at riska 123 (17) 128 (6) 119 (0) 105 (18) 120 (3) 116 (5) 86 (7) 115 (4) 107 (1) 56 (7) 85 (1) 83 (2) 23 (2) 42 (1) 50 (4) 7 18 12 Follow-up (years) C u m u la ti ve in ci d en ce o f d is ea se p ro g re ss io n”
InfluentialMitsutake, S., Takahashi, Y., Otsuki, A., Umezawa, J., Yaguchi‐Saito, A., Saito, J., Fujimori, M., Shimazu, T., & INFORM Study Group (2023) · Journal of Medical Internet Research · doi:10.2196/44741 · Cited by 48 · see citing works
“Access to appropriate information regarding cancer can contribute to improving anxiety and the quality of life (QOL) among patients with cancer [26,27].”
Baumann, C., Rat, A., Mainard, D., Cuny, C., & Guillemin, F. (2011) · Quality of Life Research · doi:10.1007/s11136-011-9913-8 · Cited by 48 · see citing works
Tran, Y., Lamprell, K., Easpaig, B. N. G., Arnolda, G., & Braithwaite, J. (2018) · Cancer Medicine · doi:10.1002/cam4.1915 · Cited by 49 · see citing works
Factors Associated with the Quality of Life of Patients with Cancer Undergoing Radiotherapy
Kim, J. W., Kang, D. H., Bong, S. H., & Seol, K. H. (2021) · Psychiatry Investigation · doi:10.30773/pi.2020.0286 · Cited by 47 · see citing works
The relation between cancer patient treatment decision‐making roles and quality of life
Atherton, P. J., Smith, T. G., Singh, J. A., Huntington, J., Diekmann, B. B., Huschka, M. M., & Sloan, J. A. (2013) · Cancer · doi:10.1002/cncr.28046 · Cited by 46 · see citing works
“Previous research has demonstrated that treatment satisfaction and QOL are related.(4,30,31) Our findings go beyond this to support the hypothesis that role satisfaction, and not just treatment satisfaction, impacts patient QOL.”
BackgroundQuality of life predictors in physically disabled people
Hosseini, S., Rajati, F., Ashtarian, H., Salari, N., Ghanbari, M., & Naghibifar, Z. (2018) · Journal of Education and Health Promotion · doi:10.4103/jehp.jehp_115_17 · Cited by 46 · see citing works
“[18] Satisfied patients and those with fulfilled needs who experience less social barriers have a better QoL and less anxiety and depression[13], and therefore, experience greater mental health.[19] Previous reports showed that the more chronic pain is associated with the more depressive mood, fatigue, anxiety, and po…”
BackgroundHowell, D. A., McCaughan, D., Smith, A. G., Patmore, R. D., & Roman, E. (2022) · PLoS ONE · doi:10.1371/journal.pone.0263672 · Cited by 46 · see citing works
van de Poll-Franse, L. V., Nicolaije, K. A. H., Vos, M. C., Pijnenborg, J. M. A., Boll, D., Husson, O., Ezendam, N. P. M., Boss, E. A., Hermans, R. H. M., Engelhart, K. C. M., et al. (2011) · Trials · doi:10.1186/1745-6215-12-256 · Cited by 45 · see citing works
Self-citationEffects of Physicians’ Information Giving on Patient Outcomes: a Systematic Review
Lie, H. C., Juvet, L. K., Street, R. L., Gulbrandsen, P., Mellblom, A. V., Brembo, E. A., Eide, H., Heyn, L. G., Saltveit, K. H., Strømme, H., et al. (2021) · Journal of General Internal Medicine · doi:10.1007/s11606-021-07044-5 · Cited by 47 · see citing works
Faller, H., Hass, H. G., Engehausen, D. G., Reuss-Borst, M. A., & Wöckel, A. (2019) · Acta Oncologica · doi:10.1080/0284186x.2018.1543947 · Cited by 44 · see citing works
“Regarding the particular need of information, a review has shown that high satisfaction with the information received as well as low unmet information needs were related to better QoL [33].”
BackgroundFactors associated with posttraumatic growth among parents of children with cancer
Nakayama, N., Mori, N., Ishimaru, S., Ohyama, W., Yuza, Y., Kaneko, T., Kanda, E., & Matsushima, E. (2016) · Psycho-Oncology · doi:10.1002/pon.4307 · Cited by 43 · see citing works
“It is essential for health care professionals to create settings for parents that help them express chronic anxiety and to provide parents with adequate and appropriate information.(32) This study showed that high PTG was associated with low trait anxiety.”
BackgroundReview of Psychological Interventions in Oncology: Current Trends and Future Directions
Anghel, T., MELANIA, B. L., Costea, I., Albai, O., Marinca, A., Levai, C. M., & Hogea, L. (2025) · Medicina · doi:10.3390/medicina61020279 · Cited by 41 · see citing works
“This is particularly important in the context of cancer care, where misinformation or a lack of information can exacerbate feelings of helplessness and anxiety [63,64].”
Engler, J., Adami, S., Adam, Y., Keller, B., Repke, T., Fügemann, H., Lucius-Hoene, G., Müller‐Nordhorn, J., & Holmberg, C. (2016) · Patient Education and Counseling · doi:10.1016/j.pec.2016.03.015 · Cited by 41 · see citing works
Yılmaz, N. G., Schouten, B. C., Schinkel, S., & van Weert, J. C. M. (2018) · Patient Education and Counseling · doi:10.1016/j.pec.2018.11.018 · Cited by 41 · see citing works
“Meeting patients ’ information preferences and needs results in more positive patient outcomes, such as a better health-related quality of life, and less depression and anxiety [16].”
Everaars, K. E., Welbie, M., Hummelink, S., Tjin, E. P. M., de Laat, E. H., & Ulrich, D. J. O. (2020) · Journal of Cancer Survivorship · doi:10.1007/s11764-020-00926-3 · Cited by 41 · see citing works
Verkissen, M. N., Ezendam, N. P. M., Fransen, M. P., Essink‐Bot, M., Aarts, M. J., Nicolaije, K. A. H., Vos, M. C., & Husson, O. (2014) · Patient Education and Counseling · doi:10.1016/j.pec.2014.03.008 · Cited by 40 · see citing works
“Appropriate information provision, for example about the diagnosis, treatment, long-term effects, and care services, can result in informed decision making, improved treatment adherence, lower levels of distress, and higher satisfaction with care and information received [1–6].”
BackgroundSelf-citationPerceived need for information of patients with haematological malignancies: a literature review
Rood, J. A. J., Eeltink, C., van Zuuren, F. J., Leeuw, I. M. V., & Huijgens, P. C. (2014) · Journal of Clinical Nursing · doi:10.1111/jocn.12630 · Cited by 40 · see citing works
A Nurse-Led Care Program for Breast Cancer Patients in a Chemotherapy Day Center
Lai, X. B., Ching, S. S. Y., Wong, F. K. Y., Leung, C. W. Y., Lee, L. H., Wong, J. S. Y., & Lo, Y. F. (2017) · Cancer Nursing · doi:10.1097/ncc.0000000000000539 · Cited by 40 · see citing works
Winters‐Stone, K. M., MOE, E. L., Perry, C. K., Medysky, M. E., Pommier, R. F., Vetto, J. T., & Naik, A. M. (2017) · Supportive Care in Cancer · doi:10.1007/s00520-017-3909-z · Cited by 40 · see citing works
Rood, J. A. J., van Zuuren, F. J., Stam, F., van der Ploeg, T., Huijgens, P. C., & Leeuw, I. M. V. (2014) · Psycho-Oncology · doi:10.1002/pon.3699 · Cited by 40 · see citing works
Boele, F. W., Butler, S., Nicklin, E., Bulbeck, H., Pointon, L., Short, S. C., & Murray, L. J. (2023) · Palliative Medicine · doi:10.1177/02692163231152525 · Cited by 39 · see citing works
Post-traumatic growth in cancer survivors: What is its extent and what are important determinants?
Blickle, P., Schmidt, M. E., & Steindorf, K. (2023) · International Journal of Clinical and Health Psychology · doi:10.1016/j.ijchp.2023.100418 · Cited by 39 · see citing works
“This may underline the importance that providing adequate information about cancer and its side effects is crucial for patients and their coping with the disease (Brown et al., 2016; Husson et al., 2011).”
BackgroundResultPerceived information provision and information needs in adolescent and young adult cancer survivors
Christen, S., Weishaupt, E., Vetsch, J., Rueegg, C. S., Mader, L., Dehler, S., & Michel, G. (2018) · European Journal of Cancer Care · doi:10.1111/ecc.12892 · Cited by 37 · see citing works
Patient satisfaction with information on oral anticancer agent use
Boons, C. C. L. M., Timmers, L., van Schoor, N. M., Swart, E. L., Hendrikse, N. H., Janssen, J. J. W. M., & Hugtenburg, J. G. (2017) · Cancer Medicine · doi:10.1002/cam4.1239 · Cited by 36 · see citing works
“Side effects and their consequences are an important aspect of quality of life and have been found to relate to information satisfaction [12, 15, 16].”
BackgroundPongthavornkamol, K., Lekdamrongkul, P., Pinsuntorn, P., & Molassiotis, A. (2019) · Asia-Pacific Journal of Oncology Nursing · doi:10.4103/apjon.apjon_26_19 · Cited by 38 · see citing works
“[11] Conversely, patients who receive sufficient information may promote self‑care behaviors, leading to improved QoL.”
BackgroundInfluentialRural cancer survivors’ health information needs post-treatment
Palmer, N. R., Avis, N. E., Fino, N. F., Tooze, J. A., & Weaver, K. E. (2020) · Patient Education and Counseling · doi:10.1016/j.pec.2020.02.034 · Cited by 38 · see citing works
“Meeting survivors’ health information needs can help enhance their self-management skills and psychological adjustment, inform health promotion lifestyle changes, and reduce anxiety about future health problems [5], [64].”
BackgroundWatch and wait after a clinical complete response in rectal cancer patients younger than 50 years
Bahadoer, R. R., Peeters, K. C. M. J., Beets, G. L., Figueiredo, N., Bastiaannet, E., Vahrmeijer, A. L., Temmink, S. J. D., Kranenbarg, E. M., Roodvoets, A. G. H., Habr‐Gama, A., et al. (2021) · British journal of surgery · doi:10.1093/bjs/znab372 · Cited by 38 · see citing works
Adriaans, D. J., Daele, A. T. M. D.-V., van Bakel, M. J. H. M., Nieuwenhuijzen, G. A. P., Teijink, J. A. W., Heesakkers, F. F. B. M., & van Laarhoven, H. W. M. (2021) · Journal of Medical Internet Research · doi:10.2196/20861 · Cited by 37 · see citing works
“An earlier review of cancer survivors supported the benefit of an educational element, that is, cancer survivors who received sufficient information reported a better QOL [42].”
BackgroundAlzahrani, A., Alqahtani, A., Alhazmi, M. A., Gaafar, R., Bajabir, D., Alharbi, I. M., Alharbi, A., Kheshaifaty, G., & Alzahrani, A. (2018) · Patient Preference and Adherence · doi:10.2147/ppa.s176651 · Cited by 36 · see citing works
“Finally, we recommend educating families about the benefits of well-informed patients, which include, among other things, better health competence, greater sense of control over cancer, and improved symptom management.(20)”
Wieldraaijer, T., Duineveld, L. A. M., Bemelman, W. A., van Weert, H. C. P. M., & Wind, J. (2019) · Journal of Cancer Survivorship · doi:10.1007/s11764-019-00779-5 · Cited by 36 · see citing works
Menichetti, J., Lie, H. C., Mellblom, A. V., Brembo, E. A., Eide, H., Gulbrandsen, P., Heyn, L. G., Saltveit, K. H., Strømme, H., Sundling, V., et al. (2021) · Patient Education and Counseling · doi:10.1016/j.pec.2021.01.019 · Cited by 36 · see citing works
Arvanitou, E., Nikoloudi, M., Tsoukalas, N., Parpa, E., & Mystakidou, K. (2023) · Psycho-Oncology · doi:10.1002/pon.6115 · Cited by 35 · see citing works
“(2011) according to which, patients with less information needs and fewer barriers to information experienced lower levels of anxiety and depression.(38) Finally, the present study showed that demoralization and in particular its factor Meaning and Purpose can relate to depression.”
BackgroundTan, A. S. L., Nagler, R. H., Hornik, R., & DeMichele, A. M. (2015) · Cancer Epidemiology Biomarkers & Prevention · doi:10.1158/1055-9965.epi-15-0041 · Cited by 35 · see citing works
“This could potentially alleviate survivors' psychologic distress about these concerns (19).”
BackgroundNguyen, M. H., Smets, E. M. A., Bol, N., Loos, E. F., van Laarhoven, H. W. M., Geijsen, D. E., Henegouwen, M. I. V. B., Tytgat, K. M. A. J., & van Weert, J. C. M. (2019) · Journal of Medical Internet Research · doi:10.2196/14407 · Cited by 35 · see citing works
“This raises the question: Could it be that offering patients’ preparatory online information before their hospital visit helped them to attend to and process information from the consultation despite their anxiety levels? Previous studies showed that highly anxious patients with cancer have higher information needs [6…”
BackgroundO’Connor, G., COATES, V. E., & O’Neill, S. M. (2013) · European Journal of Oncology Nursing · doi:10.1016/j.ejon.2013.10.011 · Cited by 35 · see citing works
“Interestingly Elf and Wikblad (2001) also reported no significant differences in quality of life between satisfied and dissatisfied patients and in a review of studies on the relationship between information provision, health related quality of life and anxiety and depression, only one out of eight intervention studie…”
BackgroundWang, T., Molassiotis, A., Chung, B., Zheng, S.-L., Huang, H.-Q., & Tan, J.-Y. (2021) · BMC Palliative Care · doi:10.1186/s12904-021-00774-7 · Cited by 32 · see citing works
Husson, O., Thong, M. S. Y., Mols, F., Smilde, T. J., Creemers, G., & van de Poll-Franse, L. V. (2013) · Journal of Palliative Medicine · doi:10.1089/jpm.2012.0430 · Cited by 34 · see citing works
Self-citationUnmet information needs of men with breast cancer and health professionals
Bootsma, T. I., Duijveman, P., Pijpe, A., Scheelings, P. C., Witkamp, A. J., & Bleiker, E. M. A. (2020) · Psycho-Oncology · doi:10.1002/pon.5356 · Cited by 34 · see citing works
“Meeting the information needs for cancer patients could facilitate informed decision making(25) thus leading to higher levels of satisfaction,(26) a better sense of control,(27) a higher compliance with therapy,(28) and less anxiety and depression.(26,29) Because of the rarity of MBC, better access to information may…”
BackgroundDee, E. C., Muralidhar, V., Butler, S. S., Yu, Z., Sha, S. T., Mahal, B. A. V., Nguyen, P. L., & Sanford, N. N. (2020) · Journal of the National Comprehensive Cancer Network · doi:10.6004/jnccn.2020.7591 · Cited by 34 · see citing works
Lee, J. C., Hamill, C. S., Shnayder, Y., Buczek, E. P., Kakarala, K., & Bur, A. M. (2023) · The Laryngoscope · doi:10.1002/lary.31243 · Cited by 33 · see citing works
Hack, T. F., Ruether, J. D., Weir, L. M., Grenier, D., & Degner, L. F. (2012) · Psycho-Oncology · doi:10.1002/pon.3135 · Cited by 33 · see citing works
“The need for interventions to address the information needs of cancer patients is highlighted in a recent systematic review that reported that those patients whose information needs have been met, those who experience fewer information barriers, and those who are more satisfied with communication are significantly les…”
BackgroundLie, H. C., Loge, J. H., Fosså, S. D., Hamre, H. M., Hess, S. L., Mellblom, A. V., Ruud, E., & Finset, A. (2015) · Patient Education and Counseling · doi:10.1016/j.pec.2015.01.016 · Cited by 33 · see citing works
- Authors
- Husson, O., Mols, F., & van de Poll-Franse, L. V.
- Affiliations
- Tilburg University (NL)
- Corresponding author
- Husson, O.
- ORCID
- Venue
- Annals of Oncology
- Publisher
- Elsevier BV
- Published
- 2011-04
- Volume
- 22
- Issue
- 4
- Pages
- 761-772
- ISSN
- 0923-7534 (ISSN-L)
- PMC
- PMC3065875
- OpenAlex
- W2126686082
- Cited by
- 535
- References
- 48
- Citations by year
- 2026: 24 · 2025: 37 · 2024: 54 · 2023: 50 · 2022: 40 · 2021: 44 · 2020: 41 · 2019: 33 · 2018: 35 · 2017: 40 · 2016: 29 · 2015: 37 · 2014: 28 · 2013: 24 · 2012: 12
- FWCI
- 1.50
- Type
- journal article
- Language
- en
- Open access
- hybrid
- doi.org
- Licence
- Locations
- Annals of Oncology (publishedVersion, other-oa)
- Europe PMC (PubMed Central) (publishedVersion, cc-by-nc)
- PubMed Central (publishedVersion, cc-by-nc)
- Research portal (Tilburg University) (publishedVersion, other-oa)
- PubMed (publishedVersion)
- Data Archiving and Networked Services (DANS) (submittedVersion, other-oa)
- HighWire Press Open Archive (submittedVersion)
- Funders
- Cancer Research Award from the Dutch Cancer Society (UVT-2009-4349)
- Topics
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Health Sciences › Health Professions › General Health Professions › Patient-Provider Communication in Healthcare
- Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
- Keywords
- information provision, cancer survivors, health-related quality of life, anxiety, depression, patient-centered care, patient satisfaction, information needs, information barriers, patient-reported outcomes, cancer survivorship
- MeSH terms
- Anxiety, Depression, Health Status, Humans, Neoplasms, Quality of Life, Survivors, Information Literacy
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