Patients’ online access to their electronic health records and linked online services: a systematic interpretative review
Open accessAbstract
Objectives: To investigate the effect of providing patients online access to their electronic health record (EHR) and linked transactional services on the provision, quality and safety of healthcare. The objectives are also to identify and understand: barriers and facilitators for providing online access to their records and services for primary care workers; and their association with organisational/IT system issues. Setting: Primary care. Participants: A total of 143 studies were included. 17 were experimental in design and subject to risk of bias assessment, which is reported in a separate paper. Detailed inclusion and exclusion criteria have also been published elsewhere in the protocol. Primary and secondary outcome measures: Our primary outcome measure was change in quality or safety as a result of implementation or utilisation of online records/transactional services. Results: No studies reported changes in health outcomes; though eight detected medication errors and seven reported improved uptake of preventative care. Professional concerns over privacy were reported in 14 studies. 18 studies reported concern over potential increased workload; with some showing an increase workload in email or online messaging; telephone contact remaining unchanged, and face-to face contact staying the same or falling. Owing to heterogeneity in reporting overall workload change was hard to predict. 10 studies reported how online access offered convenience, primarily for more advantaged patients, who were largely highly satisfied with the process when clinician responses were prompt. Conclusions: Patient online access and services offer increased convenience and satisfaction. However, professionals were concerned about impact on workload and risk to privacy. Studies correcting medication errors may improve patient safety. There may need to be a redesign of the business process to engage health professionals in online access and of the EHR to make it friendlier and provide equity of access to a wider group of patients. A1. Systematic review registration number: PROSPERO CRD42012003091.
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
It is difficult to embed eHealth solutions in daily health care routines.
“However, it appears to be difficult to embed them in daily health care routines [3].”
From Lessons Learned From a Living Lab on the Broad Adoption of eHealth in Primary Health Care (2018) · cites this paper as [3]
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Cites
Cochrane Handbook for Systematic Reviews of Interventions: Cochrane Book Series
(2008) · doi:10.1002/9780470712184 · Cited by 25,048 · see citing works
GRADE: an emerging consensus on rating quality of evidence and strength of recommendations
Guyatt, G. H., Oxman, A. D., Vist, G. E., Kunz, R., Falck-Ytter, Y., Alonso-Coello, P., & Schünemann, H. J. (2008) · BMJ · doi:10.1136/bmj.39489.470347.ad · Cited by 23,305 · see citing works
The Triple Aim: Care, Health, And Cost
Berwick, D. M., Nolan, T. W., & Whittington, J. (2008) · Health Affairs · doi:10.1377/hlthaff.27.3.759 · Cited by 5,136 · see citing works
Improving Primary Care for Patients With Chronic Illness
Bodenheimer, T. (2002) · JAMA · doi:10.1001/jama.288.14.1775 · Cited by 2,961 · see citing works
The Impact of eHealth on the Quality and Safety of Health Care: A Systematic Overview
Black, A. D., Car, J., Pagliari, C., Anandan, C., Cresswell, K., Bokun, T., McKinstry, B., Procter, R., Majeed, A., & Sheikh, A. (2011) · PLoS Medicine · doi:10.1371/journal.pmed.1000387 · Cited by 1,442 · see citing works
Self-citationImplementing information systems in health care organizations: myths and challenges
Berg, M. (2001) · International Journal of Medical Informatics · doi:10.1016/s1386-5056(01)00200-3 · Cited by 715 · see citing works
Inviting Patients to Read Their Doctors' Notes: A Quasi-experimental Study and a Look Ahead
Delbanco, T., Walker, J., Bell, S. K., Darer, J. D., Elmore, J. G., Farag, N., Feldman, H. J., Mejilla, R., Ngo, L. H., Ralston, J. D., et al. (2012) · Annals of Internal Medicine · doi:10.7326/0003-4819-157-7-201210020-00002 · Cited by 686 · see citing works
Holland, K. (2008) · Nurse Education in Practice · doi:10.1016/j.nepr.2008.07.004 · Cited by 589 · see citing works
Selecting Studies and Collecting Data
Higgins, J. P., & Deeks, J. J. (2008) · Cochrane Handbook for Systematic Reviews of Interventions · doi:10.1002/9780470712184.ch7 · Cited by 467 · see citing works
Hassol, A., Walker, J. M., Kidder, D., Rokita, K. A., Young, D., Pierdon, S. B., Deitz, D., Kuck, S., & Ortíz, E. (2004) · Journal of the American Medical Informatics Association · doi:10.1197/jamia.m1593 · Cited by 430 · see citing works
Greenhalgh, T., Hinder, S., Stramer, K., Bratan, T., & Russell, J. (2010) · BMJ · doi:10.1136/bmj.c5814 · Cited by 343 · see citing works
Disparities in Enrollment and Use of an Electronic Patient Portal
Goel, M. S., Brown, T. L., Williams, A., Hasnain‐Wynia, R., Thompson, J. A., & Baker, D. W. (2011) · Journal of General Internal Medicine · doi:10.1007/s11606-011-1728-3 · Cited by 320 · see citing works
The Kaiser Permanente Electronic Health Record: Transforming And Streamlining Modalities Of Care
Chen, C., Garrido, T., Chock, D., Okawa, G., & Liang, L. (2009) · Health Affairs · doi:10.1377/hlthaff.28.2.323 · Cited by 300 · see citing works
Greenhalgh, T., Stramer, K., Bratan, T., Byrne, E., Russell, J., & Potts, H. W. W. (2010) · BMJ · doi:10.1136/bmj.c3111 · Cited by 275 · see citing works
Open Notes: Doctors and Patients Signing On
Delbanco, T., Walker, J., Darer, J. D., Elmore, J. G., Feldman, H. J., Leveille, S. G., Ralston, J. D., Ross, S. E., Vodicka, E., & Weber, V. D. (2010) · Annals of Internal Medicine · doi:10.7326/0003-4819-153-2-201007200-00008 · Cited by 254 · see citing works
Kennedy, A., Bower, P., Reeves, D., Blakeman, T., Bowen, R., Chew-Graham, C., Eden, M., Fullwood, C., Gaffney, H., Gardner, C., et al. (2013) · BMJ · doi:10.1136/bmj.f2882 · Cited by 239 · see citing works
Email consultations in health care: 1—scope and effectiveness
Car, J., & Sheikh, A. (2004) · BMJ · doi:10.1136/bmj.329.7463.435 · Cited by 216 · see citing works
Self-citationInviting Patients to Read Their Doctors' Notes: Patients and Doctors Look Ahead
Walker, J., Leveille, S. G., Ngo, L. H., Vodicka, E. L., Darer, J. D., Dhanireddy, S., Elmore, J. G., Feldman, H. J., Lichtenfeld, M. J., Oster, N. V., et al. (2011) · Annals of Internal Medicine · doi:10.7326/0003-4819-155-12-201112200-00003 · Cited by 208 · see citing works
Zhou, Y. Y., Garrido, T., Chin, H. L., Wiesenthal, A. M., & Liang, L. (2007) · PubMed · Cited by 207 · see citing works
Patient reported barriers to enrolling in a patient portal
Goel, M. S., Brown, T. L., Williams, A., Cooper, A. J., Hasnain‐Wynia, R., & Baker, D. W. (2011) · Journal of the American Medical Informatics Association · doi:10.1136/amiajnl-2011-000473 · Cited by 202 · see citing works
An Internet-Based Patient-Provider Communication System: Randomized Controlled Trial
Lin, C., Wittevrongel, L., Moore, L. A., Beaty, B. L., & Ross, S. E. (2005) · Journal of Medical Internet Research · doi:10.2196/jmir.7.4.e47 · Cited by 199 · see citing works
E-mail in patient–provider communication: A systematic review
Ye, J., Rust, G. S., Fry-Johnson, Y. W., & Strothers, H. (2009) · Patient Education and Counseling · doi:10.1016/j.pec.2009.09.038 · Cited by 198 · see citing works
Evidence-Based Practice, Step by Step: Asking the Clinical Question
Stillwell, S. B., Fineout‐Overholt, E., Melnyk, B. M., & Williamson, K. M. (2010) · AJN American Journal of Nursing · doi:10.1097/01.naj.0000368959.11129.79 · Cited by 198 · see citing works
Hart, A., Henwood, F., & Wyatt, S. (2004) · Journal of Medical Internet Research · doi:10.2196/jmir.6.3.e36 · Cited by 193 · see citing works
Association of Online Patient Access to Clinicians and Medical Records With Use of Clinical Services
Palen, T. E., Ross, C. A., Powers, J. D., & Xu, S. (2012) · JAMA · doi:10.1001/jama.2012.14126 · Cited by 193 · see citing works
Web Messaging: A New Tool for Patient-Physician Communication
Liederman, E. M. (2003) · Journal of the American Medical Informatics Association · doi:10.1197/jamia.m1259 · Cited by 188 · see citing works
Wiljer, D., Urowitz, S., Apatu, E., DeLenardo, C., Eysenbach, G., Harth, T., Pai, H. H., & Leonard, K. J. (2008) · Journal of Medical Internet Research · doi:10.2196/jmir.1061 · Cited by 180 · see citing works
Email consultations in health care: 2—acceptability and safe application
Car, J., & Sheikh, A. (2004) · BMJ · doi:10.1136/bmj.329.7463.439 · Cited by 179 · see citing works
Self-citationBarriers to the use of a personal health record by an elderly population.
Lober, W. B., Zierler, B. K., Herbaugh, A. L., Shinstrom, S. E., Stolyar, A., Kim, E.-H., & Kim, Y. (2006) · Europe PMC (PubMed Central) · Cited by 177 · see citing works
Patients' experiences when accessing their on-line electronic patient records in primary care.
Pyper, C., Amery, J. M., Watson, M., & Crook, C. (2004) · Europe PMC (PubMed Central) · Cited by 170 · see citing works
Mold, F., de Lusignan, S., Sheikh, A., Majeed, A., Wyatt, J. C., Quinn, T., Cavill, M., Franco, C., Chauhan, U., Blakey, H., et al. (2015) · British Journal of General Practice · doi:10.3399/bjgp15x683941 · Cited by 168 · see citing works
Self-citationMoyer, C. A., Stern, D. T., Dobias, K. S., Cox, D. T., & Katz, S. J. (2002) · PubMed · Cited by 157 · see citing works
Nijland, N., van Gemert-Pijnen, J., Boer, H., Steehouder, M. F., & Seydel, E. R. (2008) · Journal of Medical Internet Research · doi:10.2196/jmir.957 · Cited by 150 · see citing works
Brooks, R. G., & Menachemi, N. (2006) · Journal of Medical Internet Research · doi:10.2196/jmir.8.1.e2 · Cited by 145 · see citing works
Andreassen, H., Trondsen, M. V., Kummervold, P. E., Gammon, D., & Hjortdahl, P. (2006) · Qualitative Health Research · doi:10.1177/1049732305284667 · Cited by 143 · see citing works
Doctors Who Are Using E-mail With Their Patients: a Qualitative Exploration
Patt, M. R., Houston, T. K., Jenckes, M. W., Sands, D. Z., & Ford, D. E. (2003) · Journal of Medical Internet Research · doi:10.2196/jmir.5.2.e9 · Cited by 143 · see citing works
Self-management support interventions for persons with chronic disease: an evidence-based analysis.
Franek, J. A. (2013) · Europe PMC (PubMed Central) · Cited by 140 · see citing works
If You Build It, Will They Come? The Kaiser Permanente Model Of Online Health Care
Silvestre, A.-L., Sue, V. M., & Allen, J. Y. (2009) · Health Affairs · doi:10.1377/hlthaff.28.2.334 · Cited by 140 · see citing works
Patient Interest in Sharing Personal Health Record Information
Zulman, D. M., Nazi, K. M., Turvey, C., Wagner, T. H., Woods, S. S., & An, L. C. (2011) · Annals of Internal Medicine · doi:10.7326/0003-4819-155-12-201112200-00002 · Cited by 139 · see citing works
Katz, S. J., Moyer, C. A., Cox, D. T., & Stern, D. T. (2003) · Journal of General Internal Medicine · doi:10.1046/j.1525-1497.2003.20756.x · Cited by 137 · see citing works
White, C. B. (2004) · Journal of the American Medical Informatics Association · doi:10.1197/jamia.m1445 · Cited by 137 · see citing works
Patient-physician web messaging
Liederman, E. M., Lee, J. C., Baquero, V. H., & Seites, P. G. (2005) · Journal of General Internal Medicine · doi:10.1111/j.1525-1497.2005.40009.x · Cited by 131 · see citing works
Collaborative Chronic Care Models for Mental Health Conditions
Miller, C. J., Grogan‐Kaylor, A. C., Perron, B. E., Kilbourne, A. M., Woltmann, E. M., & Bauer, M. S. (2013) · Medical Care · doi:10.1097/mlr.0b013e3182a3e4c4 · Cited by 130 · see citing works
Bergmo, T. S., Kummervold, P. E., Gammon, D., & Dahl, L. B. (2005) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2005.06.002 · Cited by 124 · see citing works
Expectations of Patients and Physicians Regarding Patient-Accessible Medical Records
Ross, S. E., Todd, J., Moore, L. A., Beaty, B. L., Wittevrongel, L., & Lin, C.-T. (2005) · Journal of Medical Internet Research · doi:10.2196/jmir.7.2.e13 · Cited by 122 · see citing works
Fisher, B., Bhavnani, V., & Winfield, M. (2009) · Journal of the Royal Society of Medicine · doi:10.1258/jrsm.2009.090328 · Cited by 120 · see citing works
Weitzman, E. R., Kaci, L., & Mandl, K. D. (2009) · Journal of Medical Internet Research · doi:10.2196/jmir.1187 · Cited by 117 · see citing works
Patient Use of Secure Electronic Messaging Within a Shared Medical Record: A Cross-sectional Study
Ralston, J. D., Rutter, C. M., Carrell, D., Hecht, J., Rubanowice, D., & Simon, G. E. (2009) · Journal of General Internal Medicine · doi:10.1007/s11606-008-0899-z · Cited by 109 · see citing works
The challenges in making electronic health records accessible to patients: Table 1
Beard, L., Schein, R., Morra, D. J., Wilson, K. R., & Keelan, J. E. (2011) · Journal of the American Medical Informatics Association · doi:10.1136/amiajnl-2011-000261 · Cited by 108 · see citing works
Can E-Mail Messages Between Patients and Physicians Be Patient-Centered?
ROTER, D. L., Larson, S., Sands, D. Z., Ford, D. E., & Houston, T. K. (2008) · Health Communication · doi:10.1080/10410230701807295 · Cited by 107 · see citing works
A personally controlled electronic health record for Australia
Pearce, C. M., & Bainbridge, M. (2014) · Journal of the American Medical Informatics Association · doi:10.1136/amiajnl-2013-002068 · Cited by 106 · see citing works
Impact of electronic messaging on the patient-physician interaction
Wallwiener, M., Wallwiener, C. W., Kansy, J., Seeger, H., & Rajab, T. K. (2009) · Journal of Telemedicine and Telecare · doi:10.1258/jtt.2009.090111 · Cited by 103 · see citing works
Physicians’ use of and attitudes toward electronic mail for patient communication
Gaster, B., Knight, C. L., DeWitt, D. E., Sheffield, J. V. L., Assefi, N. P., & Buchwald, D. (2003) · Journal of General Internal Medicine · doi:10.1046/j.1525-1497.2003.20627.x · Cited by 102 · see citing works
Bourgeois, F. C., Taylor, P. L., Emans, S. J., Nigrin, D. J., & Mandl, K. D. (2008) · Journal of the American Medical Informatics Association · doi:10.1197/jamia.m2865 · Cited by 101 · see citing works
Huba, N., & Zhang, Y. (2012) · Journal of Medical Systems · doi:10.1007/s10916-012-9861-z · Cited by 99 · see citing works
Lessons learned from usability testing of the VA's personal health record
Haggstrom, D. A., Saleem, J. J., Russ, A. L., Jones, J., Russell, S. A., & Chumbler, N. R. (2011) · Journal of the American Medical Informatics Association · doi:10.1136/amiajnl-2010-000082 · Cited by 98 · see citing works
Wright, A. T., Poon, E. G., Wald, J. S., Feblowitz, J. C., Pang, J. E., Schnipper, J. L., Grant, R. W., Gandhi, T. K., Volk, L. A., Bloom, A., et al. (2011) · Journal of General Internal Medicine · doi:10.1007/s11606-011-1859-6 · Cited by 96 · see citing works
Pilot Study of Providing Online Care in a Primary Care Setting
Adamson, S. C., & Bachman, J. W. (2010) · Mayo Clinic Proceedings · doi:10.4065/mcp.2010.0145 · Cited by 95 · see citing works
Texting appointment reminders to repeated non-attenders in primary care: randomised controlled study
Fairhurst, K., & Sheikh, A. (2008) · Quality and Safety in Health Care · doi:10.1136/qshc.2006.020768 · Cited by 94 · see citing works
Self-citationImpact of a Wellness Portal on the Delivery of Patient-Centered Preventive Care
Nagykaldi, Z. J., ASPY, C. B., Chou, A. F., & Mold, J. W. (2012) · The Journal of the American Board of Family Medicine · doi:10.3122/jabfm.2012.02.110130 · Cited by 93 · see citing works
Leveille, S. G., Walker, J., Ralston, J. D., Ross, S. E., Elmore, J. G., & Delbanco, T. (2012) · BMC Medical Informatics and Decision Making · doi:10.1186/1472-6947-12-32 · Cited by 89 · see citing works
Opportunities to enhance patient and physician e-mail contact
Hobbs, J., Wald, J. S., Jagannath, Y., Kittler, A. F., Pizziferri, L., Volk, L. A., Blackford Middleton, A., & Bates, D. W. (2003) · International Journal of Medical Informatics · doi:10.1016/s1386-5056(03)00007-8 · Cited by 87 · see citing works
Expectations and experiences of eHealth in primary care: A qualitative practice-based investigation
Flynn, D. J., Gregory, P., Makki, H., & Gabbay, M. (2009) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2009.03.008 · Cited by 86 · see citing works
Schnipper, J. L., Gandhi, T. K., Wald, J. S., Grant, R. W., Poon, E. G., Volk, L. A., Businger, A., Williams, D. H., Siteman, E., Buckel, L., et al. (2012) · Journal of the American Medical Informatics Association · doi:10.1136/amiajnl-2011-000723 · Cited by 85 · see citing works
Nijland, N., van Gemert-Pijnen, J. E. W. C., Boer, H., Steehouder, M. F., & Seydel, E. R. (2009) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2009.06.002 · Cited by 84 · see citing works
Staroselsky, M., Volk, L. A., Tsurikova, R., Newmark, L. P., Lippincott, M. F., Litvak, I., Kittler, A. F., Wang, T., Wald, J. S., & Bates, D. W. (2007) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2007.03.001 · Cited by 83 · see citing works
Experiences of Physicians Who Frequently Use E-Mail With Patients
Houston, T. K., Sands, D. Z., Nash, B. R., & Ford, D. E. (2003) · Health Communication · doi:10.1207/s15327027hc1504_08 · Cited by 83 · see citing works
Crossing the digital divide: evaluating online communication between patients and their providers.
Katz, S. J., Nissan, N., & Moyer, C. A. (2004) · PubMed · Cited by 79 · see citing works
Schnipper, J. L., Gandhi, T. K., Wald, J. S., Grant, R. W., Poon, E. G., Volk, L. A., Businger, A., Siteman, E., Buckel, L., & Blackford Middleton, A. (2008) · Journal of Innovation in Health Informatics · doi:10.14236/jhi.v16i2.686 · Cited by 78 · see citing works
A Content Analysis of E-mail Communication Between Primary Care Providers and Parents
Anand, S. G., Feldman, M. J., Geller, D. S., Bisbee, A. B., & Bauchner, H. (2005) · PEDIATRICS · doi:10.1542/peds.2004-1297 · Cited by 78 · see citing works
Umefjord, G., Hamberg, K., Malker, H., & Petersson, G. (2006) · Family Practice · doi:10.1093/fampra/cmi117 · Cited by 76 · see citing works
How patients use access to their electronic GP record--a quantitative study
Bhavnani, V., Fisher, B., Winfield, M., et al. (2010) · Family Practice · doi:10.1093/fampra/cmq092 · Cited by 75 · see citing works
Confidentiality of medical records: the patient's perspective.
Carman, D. K., & Britten, N. (1995) · PubMed · Cited by 74 · see citing works
Virji, A., Yarnall, K. S. H., Krause, K. M., Pollak, K. I., Scannell, M. A., Gradison, M., & Østbye, T. (2006) · BMC Medicine · doi:10.1186/1741-7015-4-18 · Cited by 73 · see citing works
Where's the Revolution? Digital Technology and Health Care in the Internet Age
Miller, E. A., & West, D. M. (2009) · Journal of Health Politics Policy and Law · doi:10.1215/03616878-2008-046 · Cited by 72 · see citing works
Crowley, M. J., Powers, B. J., Olsen, M. K., Grubber, J. M., Koropchak, C. M., Rose, C., Gentry, P., Bowlby, L. A., Trujillo, G., Maciejewski, M. L., et al. (2013) · American Heart Journal · doi:10.1016/j.ahj.2013.04.004 · Cited by 72 · see citing works
E-mail communications in family practice: what do patients expect?
Gr, C., Forjuoh, S., & Rascoe, T. G. (2001) · PubMed · Cited by 72 · see citing works
Who Can Provide Diabetes Self-Management Support in Primary Care?
Siminerio, L. M., Ruppert, K. M., & Gabbay, R. A. (2013) · The Science of Diabetes Self-Management and Care · doi:10.1177/0145721713492570 · Cited by 71 · see citing works
Patient-physician e-mail communication: the kaiser permanente experience
Baer, D. (2011) · Journal of Oncology Practice · doi:10.1200/jop.2011.000323 · Cited by 68 · see citing works
Access to electronic health records in primary care-a survey of patients' views.
Pyper, C., Amery, J. M., Watson, M., & Crook, C. (2004) · PubMed · Cited by 66 · see citing works
Patient Access to Radiology Reports: What Do Physicians Think?
Johnson, A. J., Frankel, R. M., Williams, L. S., Glover, S., & Easterling, D. V. (2010) · Journal of the American College of Radiology · doi:10.1016/j.jacr.2009.10.011 · Cited by 66 · see citing works
Adler, K. G. (2006) · Journal of Medical Internet Research · doi:10.2196/jmir.8.4.e26 · Cited by 65 · see citing works
Internet use by primary care patients: where is the digital divide?
Kruse, R. L., Koopman, R. J., Wakefield, B. J., Wakefield, D. S., Keplinger, L. E., Canfield, S. M., & Mehr, D. R. (2012) · PubMed · Cited by 63 · see citing works
van Gaalen, J. L., Beerthuizen, T., van der Meer, V., van Reisen, P., Redelijkheid, G. W., Snoeck-Stroband, J. B., Sont, J. K., & SMASHING Study Group (2013) · Journal of Medical Internet Research · doi:10.2196/jmir.2640 · Cited by 60 · see citing works
Tjora, A., Tran, T., & Faxvaag, A. (2005) · Journal of Medical Internet Research · doi:10.2196/jmir.7.2.e15 · Cited by 60 · see citing works
A patient-controlled journal for an electronic medical record: issues and challenges.
Wald, J. S., Middleton, B., Bloom, A., Walmsley, D., Gleason, M., Nelson, E., Li, Q., Epstein, M., Volk, L. A., & Bates, D. W. (2004) · PubMed · Cited by 59 · see citing works
Potential impacts of patient access to their electronic care records
Honeyman, A., Cox, B. M., & Fisher, B. (2005) · Journal of Innovation in Health Informatics · doi:10.14236/jhi.v13i1.579 · Cited by 59 · see citing works
Albert, S. M., Shevchik, G. J., Paone, S., & Martich, G. D. (2011) · Telemedicine Journal and e-Health · doi:10.1089/tmj.2010.0156 · Cited by 58 · see citing works
Medical text-based consultations on the Internet: A 4-year study
UMEFJORD, G., SANDSTROM, H., MALKER, H., & PETERSSON, G. (2008) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2007.01.009 · Cited by 56 · see citing works
Initial Experience with Patient-Clinician Secure Messaging at a VA Medical Center
Byrne, J. M., Elliott, S., & Firek, A. F. (2008) · Journal of the American Medical Informatics Association · doi:10.1197/jamia.m2835 · Cited by 56 · see citing works
Wakefield, D. S., Mehr, D. R., Keplinger, L. E., Canfield, S. M., Gopidi, R., Wakefield, B. J., Koopman, R. J., Belden, J. L., Kruse, R. L., & Kochendorfer, K. M. (2010) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2010.04.005 · Cited by 53 · see citing works
Email consultations in general practice
Neville, R. G., Marsden, W., McCowan, C., Pagliari, C., Mullen, H., & Allison, F. (2004) · Journal of Innovation in Health Informatics · doi:10.14236/jhi.v12i4.128 · Cited by 52 · see citing works
Medication safety messages for patients via the web portal: The MedCheck intervention
Weingart, S. N., Hamrick, H. E., Tutkus, S., Carbo, A., Sands, D. Z., Tess, A., Davis, R. B., Bates, D. W., & Phillips, R. S. (2008) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2007.04.007 · Cited by 51 · see citing works
Pandora's electronic box: GPs reflect upon email communication with their patients
Goodyear‐Smith, F., Wearn, A. M., Everts, H., Huggard, P., & Halliwell, J. (2005) · Journal of Innovation in Health Informatics · doi:10.14236/jhi.v13i3.597 · Cited by 49 · see citing works
Matheny, M. E. (2007) · Archives of Internal Medicine · doi:10.1001/archinte.167.20.2233 · Cited by 49 · see citing works
Tang, P. C., Black, W., & Young, C. Y. (2006) · PubMed · Cited by 48 · see citing works
Hwang, H., Han, H.-E., Kuo, K.-M., & Liu, C.-F. (2012) · Journal of Medical Systems · doi:10.1007/s10916-012-9851-1 · Cited by 47 · see citing works
Goldzweig, C. L., Towfigh, A., Paige, N. M., Orshansky, G., Haggstrom, D. A., Beroes, J. M., Miake-Lye, I. M., & Shekelle, P. (2012) · Europe PMC (PubMed Central) · Cited by 47 · see citing works
E-mail communications in primary care: what are patients’ expectations for specific test results?
Couchman, G. R., Forjuoh, S. N., Rascoe, T. G., Reis, M. D., Koehler, B., & van Walsum, K. L. (2004) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2004.08.005 · Cited by 45 · see citing works
NHS Outcomes Framework 2012–13
Gladman, J. R. F., Harwood, R., Conroy, S., Logan, P., Elliott, R. A., Jones, R., Lewis, S., Dyas, J., Schneider, J. M., Porock, D. C., et al. (2015) · Cited by 44 · see citing works
Computer-using patients want Internet services from family physicians.
Grover, F. L., Wu, H. D., Blanford, C., Holcomb, S., & Tidler, D. (2002) · PubMed · Cited by 43 · see citing works
Policies for patient access to clinical data via PHRs: current state and recommendations
Collins, S., Vawdrey, D. K., Kukafka, R., et al. (2011) · Journal of the American Medical Informatics Association · doi:10.1136/amiajnl-2011-000400 · Cited by 40 · see citing works
Swartz, S. H., Cowan, T. M., & Batista, I. A. (2004) · Journal of Medical Internet Research · doi:10.2196/jmir.6.1.e1 · Cited by 39 · see citing works
Patients’ willingness to pay for electronic communication with their general practitioner
Bergmo, T. S., & Wangberg, S. C. (2007) · The European Journal of Health Economics · doi:10.1007/s10198-006-0014-5 · Cited by 39 · see citing works
The transition from 'informed patient' care to 'patient informed' care.
Gardiner, R. (2008) · PubMed · Cited by 37 · see citing works
Nijland, N., Cranen, K., Boer, H., van Gemert-Pijnen, J. E. W. C., & Seydel, E. R. (2010) · Journal of Telemedicine and Telecare · doi:10.1258/jtt.2009.001004 · Cited by 37 · see citing works
MyHealtheVet PHR: a description of users and patient portal use.
Nazi, K. M., Ss, W., & Woods, S. S. (2008) · PubMed · Cited by 36 · see citing works
When trust defies common security sense
Williams, P. A. H. (2008) · Health Informatics Journal · doi:10.1177/1081180x08092831 · Cited by 36 · see citing works
A literature review of email-based telemedicine.
Caffery, L. J., & Smith, A. C. (2010) · PubMed · Cited by 34 · see citing works
The Impact of eHealth on the Quality and Safety of Healthcare
Majeed, A., Black, A., Car, J., Anandan, C., Cresswell, K. M., McKinstry, B., Pagliari, C., Procter, R., & Sheikh, A. (2009) · Lecture notes of the Institute for Computer Sciences, Social Informatics and Telecommunications Engineering · doi:10.1007/978-3-642-11284-3_21 · Cited by 34 · see citing works
Self-citationEmbedding online patient record access in UK primary care: a survey of stakeholder experiences
Pagliari, C., Shand, T., & Fisher, B. (2012) · JRSM Short Reports · doi:10.1258/shorts.2012.012009 · Cited by 34 · see citing works
Consistency of Patient Preferences About a Secure Internet-Based Patient Communications Portal
Wakefield, D. S., Kruse, R. L., Wakefield, B. J., Koopman, R. J., Keplinger, L. E., Canfield, S. M., & Mehr, D. R. (2012) · American Journal of Medical Quality · doi:10.1177/1062860611436246 · Cited by 33 · see citing works
A survey of GP attitudes to and experiences of email consultations
Neville, R. G., Marsden, W., McCowan, C., Pagliari, C., Mullen, H., & Allison, F. (2004) · Journal of Innovation in Health Informatics · doi:10.14236/jhi.v12i4.127 · Cited by 31 · see citing works
Adams, W. G. (2012) · JAMA · doi:10.1001/jama.2012.524 · Cited by 30 · see citing works
Variations in patient portal adoption in four primary care practices.
Wald, J. S. (2010) · PubMed · Cited by 29 · see citing works
Hannan, A. (2010) · Journal of Innovation in Health Informatics · doi:10.14236/jhi.v18i1.752 · Cited by 29 · see citing works
Understanding health care communication preferences of veteran primary care users
LaVela, S. L., Schectman, G., Gering, J., Locatelli, S. M., Gawron, A., & Weaver, F. M. (2012) · Patient Education and Counseling · doi:10.1016/j.pec.2012.06.004 · Cited by 29 · see citing works
Neinstein, L. S. (2000) · Journal of Adolescent Health · doi:10.1016/s1054-139x(99)00119-6 · Cited by 29 · see citing works
Hoyt, R., & Yoshihashi, A. K. (2010) · PubMed · Cited by 28 · see citing works
Providing cell phone numbers and email addresses to Patients: the physician's perspective
Peleg, R., Avdalimov, A., & Freud, T. (2011) · BMC Research Notes · doi:10.1186/1756-0500-4-76 · Cited by 28 · see citing works
North, F., Hanna, B. K., Crane, S. J., Smith, S. A., Tulledge‐Scheitel, S. M., & Stroebel, R. J. (2011) · Journal of the American Medical Informatics Association · doi:10.1136/amiajnl-2011-000381 · Cited by 28 · see citing works
Motivating, influencing, and persuading patients through personal health records: a scoping review.
Saparova, D. R. (2012) · PubMed · Cited by 27 · see citing works
Physicians' attitudes towards eprescribing: a comparative web survey in Austria and Sweden
Steinschaden, T., Petersson, G., & Åstrand, B. (2009) · Journal of Innovation in Health Informatics · doi:10.14236/jhi.v17i4.743 · Cited by 27 · see citing works
Association of Online Patient Access to Clinicians and Medical Records With Use of Clinical Services
Te, P., Ross, C. A., Powers, J. D., & Xu, S. (2013) · Cited by 27 · see citing works
Early Experiences with e-Health Services (1999–2002)
Fung, V., Ortíz, E., Huang, J., FIREMAN, B. H., Miller, R., Selby, J. V., & Hsu, J. (2006) · Medical Care · doi:10.1097/01.mlr.0000207917.28988.dd · Cited by 26 · see citing works
Developing a shared electronic health record for patients and clinicians.
Ruland, C. M., Brynhi, H., Andersen, R., et al. (2008) · PubMed · Cited by 25 · see citing works
Hanna, L., May, C. R., & Fairhurst, K. (2011) · Journal of Innovation in Health Informatics · doi:10.14236/jhi.v19i1.789 · Cited by 25 · see citing works
A qualitative study of Australians' opinions about personally controlled electronic health records.
Lehnbom, E. C., McLachlan, A. J., & Brien, J.-A. E. (2012) · PubMed · Cited by 25 · see citing works
[Patient-physician interaction over the internet].
Kummervold, P. E., Trondsen, M. V., Andreassen, H., Gammon, D., & Hjortdahl, P. (2004) · PubMed · Cited by 25 · see citing works
eVisit: A Pilot Study of a New Kind of Healthcare Delivery
Rema, P., Shevchik, G. J., Paone, S., Dolezal, C., & Cervenak, J. (2010) · Studies in health technology and informatics · doi:10.3233/978-1-60750-588-4-262 · Cited by 24 · see citing works
Wagner, P. J., Howard, S. M., Bentley, D. R., Seol, Y.-H., & Sodomka, P. (2010) · Europe PMC (PubMed Central) · Cited by 23 · see citing works
Patient Access to U.S. Physicians Who Conduct Internet or E-mail Consults
Sciamanna, C., Rogers, M. L., Shenassa, E. D., & Houston, T. K. (2007) · Journal of General Internal Medicine · doi:10.1007/s11606-006-0076-1 · Cited by 23 · see citing works
Harms, M. (2009) · Physiotherapy · doi:10.1016/j.physio.2009.10.001 · Cited by 23 · see citing works
Tufano, J. T., Ralston, J. D., & Martin, D. P. (2008) · Journal of General Internal Medicine · doi:10.1007/s11606-008-0761-3 · Cited by 22 · see citing works
Getting Seamless Care Right from the Beginning – Integrating Computers into the Human Interaction
Christopher, P., Kumarapeli, P., & Simon, D. L. (2010) · Studies in health technology and informatics · doi:10.3233/978-1-60750-563-1-196 · Cited by 20 · see citing works
Clinician-Patient E-mail Communication: Challenges for Reimbursement
Komives, E. (2005) · North Carolina Medical Journal · doi:10.18043/ncm.66.3.238 · Cited by 19 · see citing works
The role of primary care non-physician clinic staff in e-mail communication with patients
Kittler, A. F., Wald, J. S., Volk, L. A., Pizziferri, L., Jagannath, Y., Harris, C., Lippincott, M. F., Yu, T., Hobbs, J., & Bates, D. W. (2004) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2004.02.004 · Cited by 18 · see citing works
Towards a partnership of trust.
Hannan, A., & Webber, F. (2007) · PubMed · Cited by 18 · see citing works
Primary care physicians' experiences of carrying out consultations on the internet
Umefjord, G., Malker, H., Olofsson, N., Hensjö, L., & Petersson, G. (2004) · Journal of Innovation in Health Informatics · doi:10.14236/jhi.v12i2.112 · Cited by 17 · see citing works
Early experience of the use of short message service (SMS) technology in routine clinical care
Neville, R., Reed, C., Boswell, B., Sergeant, P., Sullivan, T., & Sullivan, F. (2008) · Journal of Innovation in Health Informatics · doi:10.14236/jhi.v16i3.695 · Cited by 17 · see citing works
Mold, F., Ellis, B., de Lusignan, S., Sheikh, A., Wyatt, J. C., Cavill, M., Michalakidis, G., Barker, F., Majeed, A., Quinn, T., et al. (2013) · Journal of Innovation in Health Informatics · doi:10.14236/jhi.v20i4.17 · Cited by 15 · see citing works
Self-citationInternet availability and interest in patients at a family medicine residency clinic.
Fashner, J., & Drye, S. T. (2011) · PubMed · Cited by 15 · see citing works
Requirements development for a patient computing system.
Wald, J. S., Pedraza, L., Reilly, C. A., et al. (2001) · PubMed · Cited by 14 · see citing works
Cultivating Quality: An Evidence-Based Approach to Taking Charge
Flynn, J. P., Prufeta, P., & Minghillo-Lipari, L. (2010) · AJN American Journal of Nursing · doi:10.1097/01.naj.0000388268.65499.bc · Cited by 14 · see citing works
Allaert, F., Teuff, G. L., Quantin, C., & Barber, B. (2004) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2003.11.007 · Cited by 14 · see citing works
Goldzweig, C. L., Towfigh, A., Paige, N. M., Orshansky, G., Haggstrom, D. A., Beroes, J. M., Miake-Lye, I. M., & Shekelle, P. (2012) · Cited by 13 · see citing works
“Patient Portals” and “E-Visits”
Walters, B., Barnard, D. L., & Paris, S. (2006) · Journal of Ambulatory Care Management · doi:10.1097/00004479-200607000-00007 · Cited by 13 · see citing works
The NHS Information Technology (IT) and Social Care Review 2009: a synopsis
Hayes, G. (2010) · Journal of Innovation in Health Informatics · doi:10.14236/jhi.v18i2.757 · Cited by 12 · see citing works
BMA warns against letting patients have access to their electronic records
Cross, M. (2011) · BMJ · doi:10.1136/bmj.d206 · Cited by 11 · see citing works
Rules and Access Rights of the Estonian Integrated e-Health System
Tiik, M. (2010) · Studies in health technology and informatics · doi:10.3233/978-1-60750-565-5-245 · Cited by 11 · see citing works
A system for telephone and secure email consultations, with automatic billing
Rutland, J., Marie, C., & Rutland, B. (2004) · Journal of Telemedicine and Telecare · doi:10.1258/1357633042614285 · Cited by 9 · see citing works
de Lusignan, S., Morris, L., Hassey, A., et al. (2013) · British Journal of General Practice · doi:10.3399/bjgp13x668032 · Cited by 9 · see citing works
Patient-physician e-mail communication revisited a decade later: an OKPRN study.
Smith, K. D., Merchen, E., Turner, C. D., Vaught, C., Nagykaldi, Z. J., ASPY, C. B., & Mold, J. (2009) · PubMed · Cited by 5 · see citing works
Chew-Graham, C. A., Alexander, H., & Rogers, A. E. (2005) · Primary Health Care Research & Development · doi:10.1191/1463423605pc257oa · Cited by 4 · see citing works
Giving patients secure << Google-like >> access to their medical record.
Quantin, C., Fassa, M., Coatrieux, G., et al. (2008) · PubMed · Cited by 4 · see citing works
Mold, F., de Lusignan, S., Sheikh, A., et al. (2015) · Surrey Research Insight Open Access (The University of Surrey) · Cited by 3 · see citing works
Self-citationHerbert, I. (2007) · PubMed · Cited by 2 · see citing works
Flagged first, then by citations
Research works printed but not linked: 3
- [90]Conference Board of Canada. Valuing time saved: assessing the impact of patient time saved from the adoption of consumer health solutions. Ottawa, Canada, 2012. http://www.troymedia.com/wp-content/uploads/2012/10/ValuingTimeSaved.pdf
- [142]Chhanabhai P Holt A Hunter I Health care consumers, security and electronic health records. Health Care and Informatics Review Online (formerly Healthcare Review Online) 2006; 10
- [148]London Connect. Patients’ and commissioners’ views of personalised health information. Rapid review of key research: September 2012. London Connect
Cited by
Sorted by citations
Vincent, C., & Amalberti, R. (2016) · doi:10.1007/978-3-319-25559-0 · Cited by 278 · see citing works
Who Owns the Data? Open Data for Healthcare
Kostkova, P., Brewer, H., de Lusignan, S., Fottrell, E., Goldacre, B., Hart, G., Koczan, P., Knight, P., Marsolier, C., McKendry, R. A., et al. (2016) · Frontiers in Public Health · doi:10.3389/fpubh.2016.00007 · Cited by 230 · see citing works
Self-citationChauhan, B. F., Jeyaraman, M., Mann, A. S., Lys, J., Skidmore, B., Sibley, K. M., Abou-Setta, A., & Zarychanksi, R. (2017) · Implementation Science · doi:10.1186/s13012-016-0538-8 · Cited by 210 · see citing works
Electronic Consultation in Primary Care Between Providers and Patients: Systematic Review
Mold, F., Hendy, J., Lai, Y.-L., & de Lusignan, S. (2019) · JMIR Medical Informatics · doi:10.2196/13042 · Cited by 181 · see citing works
Self-citationLessons Learned From a Living Lab on the Broad Adoption of eHealth in Primary Health Care
Swinkels, I. C. S., Huygens, M. W. J., Schoenmakers, T. M., Oude Nijeweme-D'Hollosy, W., van Velsen, L., Vermeulen, J., Schoone-Harmsen, M., Jansen, Y. J., van Schayck, O. C., Friele, R., et al. (2018) · Journal of Medical Internet Research · doi:10.2196/jmir.9110 · Cited by 90 · see citing works
Zanaboni, P., Ngangue, P., Mbemba, G. I. C., Schopf, T. R., Bergmo, T. S., & Gagnon, M.-P. (2018) · Journal of Medical Internet Research · doi:10.2196/10202 · Cited by 79 · see citing works
Hoonakker, P. L. T., Carayon, P., & Cartmill, R. S. (2017) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2017.01.004 · Cited by 60 · see citing works
López Seguí, F., Vidal-Alaball, J., Sagarra Castro, M., García-Altés, A., & García Cuyàs, F. (2020) · Journal of Medical Internet Research · doi:10.2196/14478 · Cited by 42 · see citing works
Huygens, M. W. J., Swinkels, I. C. S., Verheij, R. A., Friele, R. D., van Schayck, O. C. P., & de Witte, L. P. (2018) · BMJ Open · doi:10.1136/bmjopen-2017-019233 · Cited by 24 · see citing works
Democratising Healthcare: The Role of eHealth Technologies in Driving Patient Participation
Amann, J. (2017) · EMJ Innovations · doi:10.33590/emjinnov/10312722 · Cited by 9 · see citing works
- Authors
- de Lusignan, S., Mold, F., Sheikh, A., Majeed, A., Wyatt, J. C., Quinn, T., Cavill, M., Gronlund, T. A., Franco, C., Chauhan, U., Blakey, H., Kataria, N., Barker, F., Ellis, B., Koczan, P., Arvanitis, T. N., McCarthy, M., Jones, S., & Rafi, I.
- Affiliations
- Department of Health Care Management and Policy, University of Surrey, Guildford, UK
- University of Surrey (GB)
- University of Edinburgh (GB)
- Imperial College London (GB)
- University of Leeds (GB)
- Royal College of General Practitioners (GB)
- NHS Digital (GB)
- University of Dundee (GB)
- University of Lancashire (GB)
- St George's, University of London (GB)
- University College London (GB)
- University of Warwick (GB)
- Belvidere Medical Practice, Shrewsbury, Shropshire, UK
- ORCID
- Venue
- BMJ Open
- Publisher
- BMJ
- Published
- 2014-09
- Volume
- 4
- Issue
- 9
- Pages
- e006021
- ISSN
- 2044-6055 (ISSN-L)
- PMC
- PMC4158217
- OpenAlex
- W2107153681
- Cited by
- 212
- References
- 158
- Citations by year
- 2026: 1 · 2025: 12 · 2024: 14 · 2023: 9 · 2022: 21 · 2021: 15 · 2020: 19 · 2019: 22 · 2018: 32 · 2017: 21 · 2016: 24 · 2015: 22
- FWCI
- 40.63
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- cc-by-nc
- Locations
- BMJ Open (publishedVersion, cc-by-nc)
- PubMed Central (publishedVersion, cc-by-nc)
- PubMed (publishedVersion)
- CLOK (University of Central Lancashire) (acceptedVersion)
- Research Repository (Kingston University London) (acceptedVersion)
- Warwick Research Archive Portal (University of Warwick) (acceptedVersion)
- Surrey Research Insight Open Access (The University of Surrey) (submittedVersion)
- Edinburgh Research Explorer (University of Edinburgh) (submittedVersion, cc-by-nc)
- ePrints Soton (University of Southampton) (submittedVersion)
- HighWire Press Open Archive (submittedVersion)
- Funders
- Royal College of General Practitioners
- National Institute for Health and Care Research
- Topics
- Health Sciences › Health Professions › Health Information Management › Electronic Health Records Systems
- Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
- Social Sciences › Business, Management and Accounting › Organizational Behavior and Human Resource Management › Healthcare Systems and Technology
- Keywords
- electronic health records, primary care, patient safety, quality of care, medication errors, patient privacy, clinician workload, patient satisfaction, equitable access, barriers and facilitators, health information technology
- MeSH terms
- Data Collection, Delivery of Health Care, Humans, Patients, Quality of Health Care, Access to Information, Electronic Health Records
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review