A recovery journey for people with personality disorder
Open accessAbstract
BACKGROUND: The study investigates the process of recovery for people diagnosed with personality disorder, a client group that suffers significant social exclusion known to impact on demand for health and other public services. It aims to examine efforts that attempt to reverse this social exclusion as an aspect of the recovery process. AIM: and METHOD: The following study aims to (1) explore what recovery means to people with personality disorder; (2) develop a conceptual model of recovery in personality disorder; and (3) evaluate the contribution of the setting (The Haven) to recovery practice. The study uses a Participatory Action Research (PAR) design. Data was collected from 66 participants by focus groups and individual interviews. FINDINGS: A map based on thematic analysis of data collected during the study is proposed of the recovery journey for people with this diagnosis, shown as a pyramid that represents a hierarchy of progress, from building trust through stages of recovery to social inclusion. CONCLUSION: The findings offer contributions to knowledge in terms of the service design and propose a new model of recovery in personality disorder. This is defined as a journey of small steps highlighting recovery as a process rather than a goal, leading to the emergence of the new concept of transitional recovery.
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At the same time, some researchers have suggested there may be an excessive representativeness of user narratives which align with medical views due to user samples consisting for the most part of responsive persons who are in a disempowered position.
“At the same time, some researchers have suggested there may be an excessive representativeness of user narratives which align with medical views due to user samples consisting for the most part of responsive persons who are in a disempowered position (78, 113, 114).”
From Recovery from Severe Mental Health Problems: A Systematic Review of Service User and Informal Caregiver Perspectives (2021) · cites this paper as [114]
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Using thematic analysis in psychology
Braun, V., & Clarke, V. (2006) · Qualitative Research in Psychology · doi:10.1191/1478088706qp063oa · Cited by 194,414 · see citing works
Maslow, A. H. (1943) · Psychological Review · doi:10.1037/h0054346 · Cited by 21,563 · see citing works
(1969) · Cited by 18,340 · see citing works
Axford, N. (2017) · Routledge eBooks · doi:10.4324/9781315258324-16 · Cited by 11,329 · see citing works
The Maturational Processes and the Facilitating Environment
Winnicott, D. W. (2018) · Routledge eBooks · doi:10.4324/9780429482410 · Cited by 3,689 · see citing works
Reason, P., & Bradbury, H. M. (2006) · Cited by 2,381 · see citing works
The Maturational Process and the Facilitating Environment.
Levitt, L. P. (1966) · Archives of General Psychiatry · doi:10.1001/archpsyc.1966.01730120099015 · Cited by 1,356 · see citing works
Recovery as A Journey of the Heart
Deegan, P. (1996) · Psychiatric Rehabilitation Journal · doi:10.1037/h0101301 · Cited by 796 · see citing works
Mentalization-Based Treatment of BPD
BATEMAN, A. W., & Fonagy, P. (2004) · Journal of Personality Disorders · doi:10.1521/pedi.18.1.36.32772 · Cited by 688 · see citing works
Zanarini, M. C., Frankenburg, F. R., Reich, D. B., & Fitzmaurice, G. (2012) · American Journal of Psychiatry · doi:10.1176/appi.ajp.2011.11101550 · Cited by 484 · see citing works
Recovery: an international perspective
Slade, M., Amering, M., & Oades, L. G. (2008) · Epidemiologia e Psichiatria Sociale · doi:10.1017/s1121189x00002827 · Cited by 409 · see citing works
The rediscovery of recovery: open to all
Roberts, G., & Wolfson, P. (2004) · Advances in Psychiatric Treatment · doi:10.1192/apt.10.1.37 · Cited by 326 · see citing works
Creating Sanctuary: Toward the Evolution of Sane Societies
Bloom, S. L. (1997) · Cited by 287 · see citing works
Benedek, T. F., & Bettelheim, B. (1950) · Cited by 188 · see citing works
Campling, P. (2001) · Advances in Psychiatric Treatment · doi:10.1192/apt.7.5.365 · Cited by 156 · see citing works
Katsakou, C., Marougka, S., Barnicot, K., Savill, M., White, H., Lockwood, K., & Priebe, S. (2012) · PLoS ONE · doi:10.1371/journal.pone.0036517 · Cited by 124 · see citing works
Therapeutic communities : past, present, and future
Haigh, R., & Campling, P. (1999) · Medical Entomology and Zoology · Cited by 110 · see citing works
Recovering: a process of empowerment.
Nehls, N. (2000) · ANS. Advances in nursing science · doi:10.1097/00012272-200006000-00006 · Cited by 55 · see citing works
Experiencing Personality Disorder: a Participative Research
Ramon, S., Castillo, H., & Morant, N. J. (2001) · International Journal of Social Psychiatry · doi:10.1177/002076400104700401 · Cited by 48 · see citing works
Self-citationChiesa, M. C., BATEMAN, A. W., Wilberg, T., & Friis, S. (2002) · Psychology and Psychotherapy Theory Research and Practice · doi:10.1348/147608302321151899 · Cited by 34 · see citing works
Users researching health and social care : an empowering agenda?
Ramon, S. (2003) · Venture Press eBooks · Cited by 27 · see citing works
Self-citationTurner, K. J., Lovell, K., & Brooker, A. (2011) · Psychodynamic Practice · doi:10.1080/14753634.2011.587604 · Cited by 26 · see citing works
Cosmopolitan minds and metropolitan societies: social exclusion and social refusal revisited
Scanlon, C., & Adlam, J. (2011) · Psychodynamic Practice · doi:10.1080/14753634.2011.587637 · Cited by 19 · see citing works
Flagged first, then by citations
Research works printed but not linked: 2
- Davidson, L. (2003) Living Outside Mental Illness: Qualitative Studies in Schizophrenia. New York and London: New York University Press.
- Ramon, S., Castillo, H. & Morant, N. (2001) Experiencing Personality Disorder: International Journal of Social Psychiatry, 47, 4, pp1-15.
Cited by
Sorted by citations
Patient journey mapping: Current practices, challenges and future opportunities in healthcare
Joseph, A. L., Kushniruk, A. W., Borycki, E. M., & |, |. (2020) · Knowledge Management & E-Learning An International Journal · doi:10.34105/j.kmel.2020.12.021 · Cited by 83 · see citing works
The lived experience of recovery in borderline personality disorder: a qualitative study
Ng, F., Townsend, M. L., Miller, C. E., Jewell, M., & Grenyer, B. F. S. (2019) · Borderline Personality Disorder and Emotion Dysregulation · doi:10.1186/s40479-019-0107-2 · Cited by 80 · see citing works
Vera San Juan, N., Gronholm, P. C., Heslin, M., Lawrence, V., Bain, M., Okuma, A., & Evans-Lacko, S. (2021) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2021.712026 · Cited by 78 · see citing works
Katsakou, C., & Pistrang, N. (2017) · Psychotherapy Research · doi:10.1080/10503307.2016.1277040 · Cited by 58 · see citing works
Rains, L. S., Echave, A., Rees, J., Scott, H. R., Taylor, B. L., Broeckelmann, E., Steare, T., Barnett, P., Cooper, C., Jeynes, T., et al. (2021) · PLoS ONE · doi:10.1371/journal.pone.0248316 · Cited by 48 · see citing works
Gillard, S., Turner, K., & Neffgen, M. (2015) · BMC Psychiatry · doi:10.1186/s12888-015-0572-0 · Cited by 49 · see citing works
Helleman, M., Goossens, P. J. J., van Achterberg, T., & Kaasenbrood, A. (2017) · Journal of the American Psychiatric Nurses Association · doi:10.1177/1078390317728330 · Cited by 34 · see citing works
Ikhtabi, S., Pitman, A., Toh, G., Birken, M., Pearce, E., & Johnson, S. (2022) · BMC Psychiatry · doi:10.1186/s12888-022-03767-9 · Cited by 33 · see citing works
The transformative role of interaction rituals within therapeutic communities
Clarke, J. M., & Waring, J. J. (2018) · Sociology of Health & Illness · doi:10.1111/1467-9566.12773 · Cited by 26 · see citing works
Gamache, D., Savard, C., Lemelin, S., Côté, A., & Villeneuve, É. (2017) · Comprehensive Psychiatry · doi:10.1016/j.comppsych.2017.08.001 · Cited by 25 · see citing works
Shepherd, A., Sanders, C., Doyle, M., & Shaw, J. (2016) · International Journal of Social Psychiatry · doi:10.1177/0020764015589133 · Cited by 23 · see citing works
Katsakou, C., Pistrang, N., Barnicot, K., White, H., & Priebe, S. (2017) · Journal of Mental Health · doi:10.1080/09638237.2017.1340631 · Cited by 23 · see citing works
Stickley, T., Higgins, A., Meade, O., Sitvast, J. E., Doyle, L., Ellilä, H., Jormfeldt, H., Keogh, B., Lahti, M., Skärsäter, I., et al. (2015) · Nurse Education Today · doi:10.1016/j.nedt.2015.11.015 · Cited by 23 · see citing works
Gamache, D., Savard, C., Lemelin, S., Côté, A., & Villeneuve, É. (2018) · Journal of Nervous & Mental Disease · doi:10.1097/nmd.0000000000000764 · Cited by 15 · see citing works
Woodbridge, J., Townsend, M. L., Reis, S. L., & Grenyer, B. F. S. (2023) · Borderline Personality Disorder and Emotion Dysregulation · doi:10.1186/s40479-023-00219-y · Cited by 12 · see citing works
Staff perceptions of borderline personality disorder and recovery: A Q‐sort method approach
Dean, R. L., Siddiqui, S., Beesley, F., Fox, J. R. E., & Berry, K. (2018) · British Journal of Clinical Psychology · doi:10.1111/bjc.12180 · Cited by 12 · see citing works
Consumer perspectives on personal recovery and borderline personality disorder
Donald, F., Duff, C., Broadbear, J. H., Rao, S., & Lawrence, K. A. (2017) · The Journal of Mental Health Training Education and Practice · doi:10.1108/jmhtep-09-2016-0043 · Cited by 11 · see citing works
Corrective Experiences to Enhance Trust: Clinical Wisdom From Good (Enough) Psychiatric Management
Choi-Kain, L. W., Masland, S. R., & Finch, E. F. (2023) · Journal of Personality Disorders · doi:10.1521/pedi.2023.37.5.559 · Cited by 10 · see citing works
“Work with me”: service users’ perspectives on shared decision making in mental health
Castillo, H., & Ramon, S. (2017) · Mental Health Review Journal · doi:10.1108/mhrj-01-2017-0005 · Cited by 10 · see citing works
Self-citationJuan, N. V. S., Gronholm, P. C., Heslin, M., Lawrence, V. C., Bain, M., Okuma, A., & Evans-Lacko, S. E. (2021) · medRxiv · doi:10.1101/2021.05.13.21257172 · Cited by 10 · see citing works
Mohi, S. R., Deane, F. P., Mooney-Reh, D., Bailey, A. B., & Ciaglia, D. (2021) · Journal of Contextual Behavioral Science · doi:10.1016/j.jcbs.2021.03.002 · Cited by 9 · see citing works
Ramon, S. (2014) · Intersectionalities: A Global Journal of Social Work Analysis, Research, Polity, and Practice · doi:10.48336/ijdugf1572 · Cited by 8 · see citing works
Self-citationSocial inclusion and personality disorder
Castillo, H. (2013) · Mental Health and Social Inclusion · doi:10.1108/mhsi-05-2013-0019 · Cited by 7 · see citing works
Self-citationAtta, M. H. R., Abdelrazek, M. N., Rahman, A. A. A. O. A., & Eweida, R. S. (2024) · Journal of Psychiatric and Mental Health Nursing · doi:10.1111/jpm.13148 · Cited by 8 · see citing works
McCusker, L., Turner, M.-L., Pike, G., & Startup, H. M. (2018) · Behavioural and Cognitive Psychotherapy · doi:10.1017/s1352465818000036 · Cited by 7 · see citing works
An exploration of values among consumers seeking treatment for borderline personality disorder
Mohi, S. R., Deane, F. P., Bailey, A., Mooney-Reh, D., & Ciaglia, D. (2018) · Borderline Personality Disorder and Emotion Dysregulation · doi:10.1186/s40479-018-0085-9 · Cited by 6 · see citing works
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Ekeberg, Ø., Kvarstein, E. H., Urnes, Ø., Eikenæs, I. U.-M., & Hem, E. (2019) · Tidsskrift for Den norske legeforening · doi:10.4045/tidsskr.19.0492 · Cited by 5 · see citing works
Savard, C., Chrétien, M., Gamache, D., Maranda, J., & Villeneuve, É. (2019) · Journal of Psychiatric Practice · doi:10.1097/pra.0000000000000382 · Cited by 3 · see citing works
Sekharan, L., Jagadheesan, K., Das, P., Lakra, V., West, K., & Baldwin, M. (2021) · Australasian Psychiatry · doi:10.1177/1039856220961646 · Cited by 4 · see citing works
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Sagan, O., & Sochos, A. (2016) · Therapeutic Communities The International Journal of Therapeutic Communities · doi:10.1108/tc-01-2015-0002 · Cited by 4 · see citing works
Mooney, A., Crafti, N. A., & Broadbear, J. H. (2023) · The Journal of Mental Health Training Education and Practice · doi:10.1108/jmhtep-01-2022-0003 · Cited by 2 · see citing works
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Fegan, C. (2014) · SHURA (Sheffield Hallam University Research Archive) (Sheffield Hallam University) · Cited by 1 · see citing works
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Woodbridge, J., Townsend, M. L., Reis, S. L., & Grenyer, B. F. S. (2022) · Research Square · doi:10.21203/rs.3.rs-1699762/v1
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Safa, A., & Adib‐Hajbaghery, M. (2021) · Galen Medical Journal · doi:10.31661/gmj.v10i.2164
Ruttley, M., Hasan, S., Mahamed, W., Murphy, C., Nosheen, Q., & Williams, N. (2025) · Therapeutic Communities The International Journal of Therapeutic Communities · doi:10.1108/tc-01-2023-0002
The Storm of Values in Borderline Personality Disorder
Dudas, R. B. (2025) · Cambridge University Press eBooks · doi:10.1017/9781108883535.015
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Woodbridge, J., Townsend, M. L., Reis, S. L., & Grenyer, B. F. S. (2024) · Figshare · doi:10.6084/m9.figshare.26583207
- Authors
- Castillo, H., Ramon, S., & Morant, N.
- Affiliations
- Colchester Institute (GB)
- Anglia Ruskin University (GB)
- University of Cambridge (GB)
- Venue
- International Journal of Social Psychiatry
- Publisher
- SAGE Publications
- Published
- 2013-03-12
- Volume
- 59
- Issue
- 3
- Pages
- 264-273
- ISSN
- 0020-7640 (ISSN-L)
- 1741-2854
- OpenAlex
- W2169603616
- Cited by
- 40
- References
- 23
- Citations by year
- 2025: 3 · 2024: 2 · 2023: 4 · 2022: 2 · 2021: 6 · 2020: 2 · 2019: 3 · 2018: 4 · 2017: 7 · 2016: 1 · 2015: 3 · 2014: 2 · 2013: 1
- FWCI
- 2.59
- Type
- journal article
- Language
- en
- Open access
- green
- hdl.handle.net
- Locations
- International Journal of Social Psychiatry (publishedVersion)
- PubMed (publishedVersion)
- University of Hertfordshire Research Archive (University of Hertfordshire) (submittedVersion)
- RePEc: Research Papers in Economics (submittedVersion)
- UCL Discovery (University College London) (submittedVersion)
- Funders
- National Institute for Health and Care Research
- Topics
- Social Sciences › Psychology › Clinical Psychology › Personality Disorders and Psychopathology
- Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
- Social Sciences › Psychology › Clinical Psychology › Psychiatric care and mental health services
- Keywords
- personality disorders, recovery, social exclusion, social inclusion, trust building, service design, mental health services, recovery journey
- MeSH terms
- Adolescent, Adult, Aged, Attitude to Health, Female, United Kingdom, Humans, Interview, Psychological, Male, Mental Health Services, Middle Aged, Patient Participation, Personality Disorders, Psychological Distance, Focus Groups, Age Distribution, Young Adult
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