Understanding recovery in the context of lived experience of personality disorders: a collaborative, qualitative research study
Open accessAbstract
BACKGROUND: Concepts of recovery increasingly inform the development and delivery of mental health services internationally. In the UK recent policy advocates the application of recovery concepts to the treatment of personality disorders. However diagnosis and understanding of personality disorders remains contested, challenging any assumption that mainstream recovery thinking can be directly translated into personality disorders services. METHODS: In a qualitative interview-based study understandings of recovery were explored in extended, in-depth interviews with six people purposively sampled from a specialist personality disorders' service in the UK. An interpretive, collaborative approach to research was adopted in which university-, clinical- and service user (consumer) researchers were jointly involved in carrying out interviews and analysing interview data. RESULTS: Findings suggested that recovery cannot be conceptualised separately from an understanding of the lived experience of personality disorders. This experience was characterised by a complexity of ambiguous, interrelating and conflicting feelings, thoughts and actions as individuals tried to cope with tensions between internally and externally experienced worlds. Our analysis was suggestive of a process of recovering or, for some, discovering a sense of self that can safely coexist in both worlds. CONCLUSIONS: We conclude that key facilitators of recovery - positive personal relationships and wider social interaction - are also where the core vulnerabilities of individuals with lived experience of personaility disorders can lie. There is a role for personality disorders services in providing a safe space in which to develop positive relationships. Through discursive practice within the research team understandings of recovery were co-produced that responded to the lived experience of personality disorders and were of applied relevance to practitioners.
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There is a fine line between the demands one places on one's self (internal demands), the demands placed on one by others (external demands), and the person's resources.
“There is a fine line between the demands one places on one’s self (internal demands), the demands placed on one by others (external demands), and the person’s resources as described in the literature (Doroud et al., 2015; Gillard, Turner, & Neffgen, 2015).”
From "What an eye-opener" - a qualitative study of vulnerable citizens participating in a municipality-based intervention. (2018) · cites this paper as Gillard, Turner, & Neffgen, 2015
The Results sections on lived experience and recovery (page numbers unavailable) describe tension between internal and external worlds, expectations from others, and choices about how much outside interaction participants could cope with. They do not frame this as a fine line between internal demands, external demands, and a person’s resources; that broader formulation goes beyond the paper’s account. (LLM, conf=0.83)
Experimental — accuracy not yet measuredAccounts of recovery found in the literature that fall within this category include "being positive" (78), "being happy and successful" (67, 77), "finding hope and purpose" (48), or "having a meaningful and satisfying life" (69), without a deeper description about what this meant.
“Accounts of recovery found in the literature that fall within this category include “being positive” (78), “being happy and successful” (67, 77), “finding hope and purpose” (48), or “having a meaningful and satisfying life” (69), without a deeper description about what this meant.”
From Recovery from Severe Mental Health Problems: A Systematic Review of Service User and Informal Caregiver Perspectives (2021) · cites this paper as [78]
At the same time, some researchers have suggested there may be an excessive representativeness of user narratives which align with medical views due to user samples consisting for the most part of responsive persons who are in a disempowered position.
“At the same time, some researchers have suggested there may be an excessive representativeness of user narratives which align with medical views due to user samples consisting for the most part of responsive persons who are in a disempowered position (78, 113, 114).”
From Recovery from Severe Mental Health Problems: A Systematic Review of Service User and Informal Caregiver Perspectives (2021) · cites this paper as [78]
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- Authors
- Gillard, S., Turner, K., & Neffgen, M.
- Affiliations
- St George's, University of London (GB)
- South West London and St George's Mental Health NHS Trust (GB)
- Corresponding author
- Gillard, Steve
- Venue
- BMC Psychiatry
- Published
- 2015-07-31
- Volume
- 15
- Issue
- 1
- Pages
- 183-183
- ISSN
- 1471-244X (ISSN-L)
- PMC
- PMC4521354
- OpenAlex
- W1835032434
- Cited by
- 49
- References
- 53
- Citations by year
- 2026: 4 · 2025: 6 · 2024: 2 · 2023: 4 · 2022: 4 · 2021: 5 · 2020: 5 · 2019: 6 · 2018: 2 · 2017: 4 · 2016: 4 · 2015: 1 · 2014: 1 · 2012: 1
- FWCI
- 4.55
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- BMC Psychiatry (publishedVersion, other-oa)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- St George's Online Research Archive (St George's University of London) (acceptedVersion)
- City Research Online (City University London) (acceptedVersion)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Personality Disorders and Psychopathology
- Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
- Social Sciences › Psychology › Clinical Psychology › Psychiatric care and mental health services
- Keywords
- recovery, personality disorders, lived experience, lived experience research, research collaboration, service user involvement, selfhood, interpersonal relationships, mental health services, recovery-oriented care
- MeSH terms
- Adaptation, Psychological, Adult, Aged, Cooperative Behavior, Female, Humans, Life Change Events, Male, Mental Health Services, Middle Aged, Personality Disorders, Qualitative Research
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
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