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Cited by 18Personality Disorders and PsychopathologyMental Health and Patient InvolvementPsychiatric care and mental health services

Seeking to understand lived experiences of personal recovery in personality disorder in community and forensic settings – a qualitative methods investigation

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Shepherd, Andrew, Sanders, Caroline, Shaw, Jenny·2017·BMC Psychiatry
DOI 10.1186/s12888-017-1442-8PMC PMC5539887
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Abstract

BACKGROUND: Understandings of personal recovery have emerged as an alternative framework to traditional ideas of clinical progression, or symptom remission, in clinical practice. Most research in this field has focussed on the experience of individuals suffering with psychotic disorders and little research has been conducted to explore the experience of individuals with a personality disorder diagnosis, despite the high prevalence of such difficulties. The nature of the personality disorder diagnosis, together with high prevalence rates in forensic settings, renders the understanding of recovery in these contexts particularly problematic. The current study seeks to map out pertinent themes relating to the recovery process in personality disorder as described by individuals accessing care in either community or forensic settings. METHODS: Individual qualitative interviews were utilised to explore the lived experience of those receiving a personality disorder diagnosis and accessing mental health care in either community or forensic settings. A thematic analysis was conducted to identify shared concepts and understanding between participants. RESULTS: Fourty-one individual participant interviews were conducted across forensic and community settings. Recovery was presented by participants as a developing negotiated understanding of the self, together with looked for change and hope in the future. Four specific themes emerged in relation to this process: 1. Understanding early lived experience as informing sense of self 2. Developing emotional control 3. Diagnosis as linking understanding and hope for change 4. The role of mental health services. CONCLUSIONS: Through considering personal recovery in personality disorder as a negotiated understanding between the individual, their social networks and professionals this study illustrates the complexity of working through such a process. Clarity of understanding in this area is essential to avoid developing resistance in the recovery process. Understanding of recovery in a variety of diagnostic categories and social settings is essential if a truly recovery orientated mental health service is to be developed.

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  • Service users in (49) study underlined the role of understanding early lived experience as informing sense of self.

    “Service users in (49) study underlined the role of understanding early lived experience as informing sense of self “Most participants framed their understanding of their experiences within a description of their early life within their family, particularly their sense of belonging and the interpretations of their behaviour made by key family members.””

    From Recovery from Severe Mental Health Problems: A Systematic Review of Service User and Informal Caregiver Perspectives (2021) · cites this paper as [49]

  • Some studies found both views represented in their sample, such as (49) who studied recovery in people diagnosed with personality disorder and concluded that most found it useful and "For a minority of participants however the diagnosis of personality disorder was seen as unhelpful - representing a direct comment on them as a person, or as a representation of their previous behaviour, not a 'ment'

    “At the same time, some studies found both views represented in their sample, such as (49) who studied recovery in people diagnosed with personality disorder and concluded that most found it useful and “For a minority of participants however the diagnosis of personality disorder was seen as unhelpful - representing a direct comment on them as a person, or as a representation of their previous”

    From Recovery from Severe Mental Health Problems: A Systematic Review of Service User and Informal Caregiver Perspectives (2021) · cites this paper as [49]

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Authors
Shepherd, A., Sanders, C., & Shaw, J.
Affiliations
University of Manchester (GB)
Corresponding author
Shepherd, Andrew
ORCID
Venue
BMC Psychiatry
Publisher
Springer Science and Business Media LLC
Published
2017-08-01
Volume
17
Issue
1
Pages
282-282
ISSN
1471-244X (ISSN-L)
DOI
10.1186/s12888-017-1442-8
PMC
PMC5539887
OpenAlex
W2739992884
Cited by
18
References
51
Citations by year
2025: 2 · 2024: 3 · 2023: 1 · 2022: 3 · 2021: 5 · 2019: 3 · 2018: 1
FWCI
1.35
Type
journal article
Language
en
Open access
Licence
cc-by
Locations
  • BMC Psychiatry (publishedVersion, cc-by)
  • PubMed Central (publishedVersion, cc-by)
  • PubMed (publishedVersion)
  • Research Explorer (The University of Manchester) (publishedVersion, cc-by)
  • DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
Funders
National Institute for Health Research (15934)
Topics
  • Social Sciences › Psychology › Clinical Psychology › Personality Disorders and Psychopathology
  • Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
  • Social Sciences › Psychology › Clinical Psychology › Psychiatric care and mental health services
Keywords
personal recovery, personality disorders, lived experience, forensic mental health services, community mental health services, selfhood, emotional control, diagnosis, recovery-oriented mental health services, social networks
MeSH terms
Adolescent, Adult, Community Mental Health Services, Deinstitutionalization, Female, Forensic Psychiatry, Humans, Interviews as Topic, Male, Middle Aged, Personality Disorders, Young Adult, Criminals

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