The DOI matches its Crossref record; 81 of the 81 references it cites were found in a registry or an index.
A 10-year literature review of family caregiving for motor neurone disease: Moving from caregiver burden studies to palliative care interventions
Open accessAbstract
Background: There is growing awareness that different terminal diseases translate into different family caregiver experiences, and the palliative and supportive care needs of these families are both similar and unique. Family members caring for people with motor neurone disease may experience exceptional strain due to the usually rapid and progressive nature of this terminal illness. Aim: The purpose of this review is to synthesize contemporary research and provide a comprehensive summary of findings relevant to motor neurone disease family caregivers, as well as highlight some of the suggested interventions to alleviate burden and improve quality of life for this group. Design: We conducted a comprehensive review of empirical research on family caregiving for people with motor neurone disease in peer-reviewed journals published in English, January 2000–April 2011. Fifty-nine studies met the inclusion criteria. Results: This comprehensive literature review was consistent with previous research documenting the substantial burden and distress experienced by motor neurone disease family caregivers and revealed important points in the trajectory of care that have the potential for negative effects. The diagnosis experience, assisted ventilation, cognitive changes and end-of-life decision making create challenges within a short time. This review has also implicated the need for improvements in access to palliative care services and highlighted the absence of interventions to improve care. Conclusions: Caregiver burden and quality-of-life studies on motor neurone disease family caregivers have so far dominated the research landscape .The focus needs to be on developing interventions that provide direct practical and psychosocial supports for motor neurone disease family caregivers.
Overview
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Verification
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
The source backs part of the claim, not all of it — or backs it for a different population, condition or comparison.
In the citing paper
“Previous studies have indicated that there is a need for psychosocial interventions for caregivers, but such interventions are still lacking [6, 20, 21].”
From A blended psychosocial support program for partners of patients with amyotrophic lateral sclerosis and progressive muscular atrophy: Protocol of a randomized controlled trial (2018) · cites this paper as [21]
Experimental — accuracy not yet measuredThe cited source says what the claim attributes to it.
In the citing paper
“Previous research on ALS caregiving revealed increasing levels of psychological distress in caregivers, a lack of existing interventions and an urgent need for support [7, 21].”
The cited source says what the claim attributes to it.
In the citing paper
“Research has documented the distress and burden experienced by MND family carers [9-12]”
From Feasibility, acceptability and potential effectiveness of dignity therapy for family carers of people with motor neurone disease (2014) · cites this paper as [9]
The cited source says what the claim attributes to it.
In the citing paper
“Family members caring for people with MND often encounter exceptional strain during the caregiving experience due to the rapid and progressive nature of MND coupled with the incapacitating effects of the disease.”
From Feasibility, acceptability and potential effectiveness of dignity therapy for family carers of people with motor neurone disease (2014) · cites this paper as [9]
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Citations
Cites
Pinquart, M., & Sörensen, S. (2003) · The Journals of Gerontology: Series B · doi:10.1093/geronb/58.2.p112 · Cited by 1,108 · cited 1×
“In general, end-of-life caregiving by families is demanding and associated with morbidity and mortality (10-12).”
Dignity Therapy: A Novel Psychotherapeutic Intervention for Patients Near the End of Life
Chochinov, H. M., Hack, T., Hassard, T., Kristjanson, L. J., McClement, S., & Harlos, M. (2005) · Journal of Clinical Oncology · doi:10.1200/jco.2005.08.391 · Cited by 1,033
Mitchell, J. D., & Borasio, G. D. (2007) · The Lancet · doi:10.1016/s0140-6736(07)60944-1 · Cited by 606
Resilience and Distress Among Amyotrophic Lateral Sclerosis Patients and Caregivers
Rabkin, J. G., Wagner, G. J., & Del Bene, M. (2000) · Psychosomatic Medicine · doi:10.1097/00006842-200003000-00020 · Cited by 288
Kaub-Wittemer, D., von Steinbüchel, N., Wasner, M., Laier-Groeneveld, G., & Borasio, G. D. (2003) · Journal of Pain and Symptom Management · doi:10.1016/s0885-3924(03)00323-3 · Cited by 260
A longitudinal study on quality of life and depression in ALS patient–caregiver couples
Gauthier, A., Vignola, A., Calvo, A., Cavallo, E., Moglia, C., Sellitti, L., Mutani, R., & Chiò, A. (2007) · Neurology · doi:10.1212/01.wnl.0000257093.53430.a8 · Cited by 256
Caregiver burden and patients’ perception of being a burden in ALS
Chiò, A., Gauthier, A., Calvo, A., Ghiglione, P., & Mutani, R. (2005) · Neurology · doi:10.1212/01.wnl.0000162034.06268.37 · Cited by 223
Diagnosis and management of motor neurone disease
McDermott, C. J., & Shaw, P. J. (2008) · BMJ · doi:10.1136/bmj.39493.511759.be · Cited by 220
Supporting lay carers in end of life care: current gaps and future priorities
Grande, G., Stajduhar, K., Aoun, S. M., Toye, C. M., Funk, L. M., Addington-Hall, J. M., Payne, S. A., & Todd, C. J. (2009) · Palliative Medicine · doi:10.1177/0269216309104875 · Cited by 220
Self-citationCaregiving for the terminally ill: at what cost?
Aoun, S. M., Kristjanson, L. J., Currow, D. C., & Hudson, P. (2005) · Palliative Medicine · doi:10.1191/0269216305pm1053oa · Cited by 206
Self-citationPalliative care in amyotrophic lateral sclerosis
Borasio, G. D., Voltz, R., & Miller, R. G. (2001) · Neurologic Clinics · doi:10.1016/s0733-8619(05)70049-9 · Cited by 193
Trail, M., Nelson, N. D., Van, J. N., Appel, S. H., & Lai, E. C. (2003) · Journal of the Neurological Sciences · doi:10.1016/s0022-510x(03)00003-0 · Cited by 176
Dignity Therapy: Family Member Perspectives
McClement, S., Chochinov, H. M., Hack, T., Hassard, T., Kristjanson, L. J., & Harlos, M. (2007) · Journal of Palliative Medicine · doi:10.1089/jpm.2007.0002 · Cited by 171
Neurobehavioral symptoms in ALS are negatively related to caregivers’ burden and quality of life
Chiò, A., Vignola, A., Mastro, E., Giudici, A. D., Iazzolino, B., Calvo, A., Moglia, C., & Montuschi, A. (2010) · European Journal of Neurology · doi:10.1111/j.1468-1331.2010.03016.x · Cited by 157
A Method for Defining and Estimating the Palliative Care Population
McNamara, B. A., Rosenwax, L. K., & Holman, C. D. J. (2006) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2005.12.018 · Cited by 153
Burden, depression, and anxiety in caregivers of people with amyotrophic lateral sclerosis
Pagnini, F., Rossi, G., Lunetta, C., Banfi, P., Castelnuovo, G., Corbo, M., & Molinari, E. (2010) · Psychology, Health & Medicine · doi:10.1080/13548506.2010.507773 · Cited by 139
Lackey, N. R., & Gates, M. F. (2001) · Journal of Advanced Nursing · doi:10.1046/j.1365-2648.2001.01761.x · Cited by 137
The effect of noninvasive ventilation on ALS patients and their caregivers
Mustfa, N., Walsh, E., Bryant, V., Lyall, R. A., Addington-Hall, J. M., Goldstein, L. H., Donaldson, N., Polkey, M. I., Moxham, J., & Leigh, P. N. (2006) · Neurology · doi:10.1212/01.wnl.0000208957.88534.11 · Cited by 130
Palliative Care for Patients With Amyotrophic Lateral Sclerosis
Mitsumoto, H., & Rabkin, J. G. (2007) · JAMA · doi:10.1001/jama.298.2.207 · Cited by 126
GOLDSTEIN, L. H., ATKINS, L., LANDAU, S., BROWN, R., & LEIGH, P. N. (2006) · Psychological Medicine · doi:10.1017/s0033291706007124 · Cited by 123
Gysels, M., & Higginson, I. J. (2009) · Palliative & Supportive Care · doi:10.1017/s1478951509000200 · Cited by 119
Aoun, S. M., Connors, S. L., Priddis, L., Breen, L. J., & Colyer, S. (2012) · Palliative Medicine · doi:10.1177/0269216311416036 · Cited by 119
Self-citationBurden of care in amyotrophic lateral sclerosis
Hecht, M. J., Graesel, E., Tigges, S., Hillemacher, T., Winterholler, M., Hilz, M. J., Heuß, D. F., & Neundörfer, B. (2003) · Palliative Medicine · doi:10.1191/0269216303pm754oa · Cited by 108
O'Brien, M. R., Whitehead, B. A., Jack, B., & Mitchell, J. D. (2011) · Amyotrophic Lateral Sclerosis · doi:10.3109/17482968.2010.546414 · Cited by 106
Living with motor neurone disease: lives, experiences of services and suggestions for change
Hughes, R. A., Sinha, A., Higginson, I., Down, K., & Leigh, P. N. (2005) · Health and Social Care in the Community · doi:10.1111/j.1365-2524.2005.00530.x · Cited by 105 · cited 5×
“Stresses and challenges include: dealing with swallowing and eating difficulties (23); worries about the illness progression and the well-being of family (23, 24); changes in family roles (22, 25); loss of a sexual relationship between spouse caregivers and people with MND (21,”
InfluentialSchepelmann, K., Winter, Y., Spottke, A. E., Claus, D., Grothe, C., Schröder, R., Heuß, D. F., Vielhaber, S., Mylius, V., Kiefer, R., et al. (2009) · Journal of Neurology · doi:10.1007/s00415-009-5256-6 · Cited by 100
Clinical Characteristics and Management of ALS
Borasio, G. D., & Miller, R. G. (2001) · Seminars in Neurology · doi:10.1055/s-2001-15268 · Cited by 97
Coco, G. L., Coco, D. L., Cicero, V., Oliveri, A. M., Verso, G. L., Piccoli, F., & Bella, V. L. (2005) · Journal of the Neurological Sciences · doi:10.1016/j.jns.2005.05.018 · Cited by 96
Breaking the news: A survey of ALS patients and their caregivers
McCluskey, L. F., Casarett, D., & Siderowf, A. (2004) · Amyotrophic Lateral Sclerosis and Other Motor Neuron Disorders · doi:10.1080/14660820410020772 · Cited by 93
Palliative care and support for people with neurodegenerative conditions and their carers
Kristjanson, L. J., Aoun, S. M., & Oldham, L. (2006) · International Journal of Palliative Nursing · doi:10.12968/ijpn.2006.12.8.368 · Cited by 91
Self-citationAnxiety undermines quality of life in ALS patients and caregivers
Vignola, A., Guzzo, A., Calvo, A., Moglia, C., Pessia, A., Cavallo, E., Cammarosano, S., Giacone, S., Ghiglione, P., & Chiò, A. (2008) · European Journal of Neurology · doi:10.1111/j.1468-1331.2008.02303.x · Cited by 89
Jenkinson, C., Fitzpatrick, R., Swash, M., & Peto, V. (2000) · Journal of Neurology · doi:10.1007/s004150070069 · Cited by 88
Some difficult decisions in ALS/MND
Oliver, D., & Turner, M. R. (2010) · Amyotrophic Lateral Sclerosis · doi:10.3109/17482968.2010.487532 · Cited by 87
Falling in Parkinson's disease: the impact on informal caregivers
Davey, C., Wiles, R., Ashburn, A., & Murphy, C. (2004) · Disability and Rehabilitation · doi:10.1080/09638280400000195 · Cited by 87
Comparison of instruments addressing quality of life in patients with ALS and their caregivers
Bromberg, M. B., & Forshew, D. A. (2002) · Neurology · doi:10.1212/wnl.58.2.320 · Cited by 86
Miyashita, M., Narita, Y., Sakamoto, A., Kawada, N., Akiyama, M. O., Kayama, M., Suzukamo, Y., & Fukuhara, S. (2008) · Journal of the Neurological Sciences · doi:10.1016/j.jns.2008.09.022 · Cited by 86
Which carers of family members at the end of life need more support from health services and why?
McNamara, B. A., & Rosenwax, L. K. (2010) · Social Science & Medicine · doi:10.1016/j.socscimed.2009.11.029 · Cited by 85
Promoting excellence in end‐of‐life care in ALS
Mitsumoto, H., Bromberg, M. B., Johnston, W. S. W., Tandan, R., Byock, I. R., Lyon, M., Miller, R. G., Appel, S. H., Benditt, J., Bernat, J. L., et al. (2005) · Amyotrophic Lateral Sclerosis · doi:10.1080/14660820510028647 · Cited by 85
The physical costs of AIDS caregiving
LeBlanc, A. J., London, A. S., & Aneshensel, C. S. (1997) · Social Science & Medicine · doi:10.1016/s0277-9536(97)00002-6 · Cited by 83
Chiò, A., Gauthier, A., Vignola, A., Calvo, A., Ghiglione, P., Cavallo, E., Terreni, A., & Mutani, R. (2006) · Neurology · doi:10.1212/01.wnl.0000233840.41688.df · Cited by 83
Interviews with Patients, Family, and Caregivers in Amyotrophic Lateral Sclerosis: Comparing Needs
Bolmsjö, I., & Hermerén, G. (2001) · Journal of Palliative Care · doi:10.1177/082585970101700403 · Cited by 80
ALS patients and caregivers communication preferences and information seeking behaviour
Chiò, A., Montuschi, A., Cammarosano, S., Mercanti, S. F. D., Cavallo, E., Ilardi, A., Ghiglione, P., Mutani, R., & Calvo, A. (2007) · European Journal of Neurology · doi:10.1111/j.1468-1331.2007.02000.x · Cited by 80
A Review: Carers, MND and service provision
Mockford, C., Jenkinson, C., & Fitzpatrick, R. M. (2006) · Amyotrophic Lateral Sclerosis · doi:10.1080/14660820600601028 · Cited by 79
Merrilees, J. J., Klapper, J., Murphy, J. M., Lomen, C. E., & Miller, B. L. (2010) · Amyotrophic Lateral Sclerosis · doi:10.3109/17482961003605788 · Cited by 76
McCabe, M. P., Firth, L., & O’Connor, E. (2009) · Journal of Clinical Psychology in Medical Settings · doi:10.1007/s10880-009-9168-5 · Cited by 76 · cited 2×
“issues among MND caregivers included depression (13, 15, 39-41, 45, 46, 60, 63, 64); psychological distress (15, 40, 50, 57, 60); and anxiety (27, 41, 46, 57, 62, 63, 65).”
Disparities in perceptions of distress and burden in ALS patients and family caregivers
Adelman, E. E., Albert, S. M., Rabkin, J. G., Del Bene, M. L., Tider, T., & O’Sullivan, I. (2004) · Neurology · doi:10.1212/01.wnl.0000125180.04000.a4 · Cited by 75
Service use and needs of people with motor neurone disease and their carers in Scotland
van Teijlingen, E., Friend, E., & Kamal, A. D. (2001) · Health & Social Care in the Community · doi:10.1046/j.1365-2524.2001.00320.x · Cited by 72
Dawson, S., & Kristjanson, L. J. (2003) · Journal of Palliative Care · doi:10.1177/082585970301900107 · Cited by 71
Rabkin, J. G., Albert, S. M., Tider, T., Bene, M. L. D., O'Sullivan, I., Rowland, L. P., & Mitsumoto, H. (2006) · Amyotrophic Lateral Sclerosis · doi:10.1080/14660820500515021 · Cited by 66
The Impact of Neurological Illness on Marital Relationships
O’Connor, E. J., McCabe, M. P., & Firth, L. A. (2008) · Journal of Sex & Marital Therapy · doi:10.1080/00926230701636189 · Cited by 64
How common is depression among ALS caregivers? A longitudinal study
Rabkin, J. G., Albert, S. M., Rowland, L. P., & Mitsumoto, H. (2009) · Amyotrophic Lateral Sclerosis · doi:10.3109/17482960802459889 · Cited by 60
Kristjanson, L. J., Toye, C. M., & Dawson, S. (2003) · The Medical Journal of Australia · doi:10.5694/j.1326-5377.2003.tb05578.x · Cited by 57
Self-citationHow common is depression among ALS caregivers? A longitudinal study
Rabkin, J. G., Albert, S. M., Rowland, L. P., & Mitsumoto, H. (2008) · Amyotrophic Lateral Sclerosis · doi:10.1080/17482960802459889 · Cited by 53
Trail, M., Nelson, N. D., Van, J. N., Appel, S. H., & Lai, E. C. (2004) · Amyotrophic Lateral Sclerosis and Other Motor Neuron Disorders · doi:10.1080/14660820310016075 · Cited by 49
Kristjanson, L. J., Aoun, S. M., & Yates, P. M. (2006) · Journal of Palliative Care · doi:10.1177/082585970602200305 · Cited by 48
Self-citationBreaking the news in amyotrophic lateral sclerosis
Chiò, A., & Borasio, G. D. (2004) · Amyotrophic Lateral Sclerosis and Other Motor Neuron Disorders · doi:10.1080/14660820310017326 · Cited by 47
Problem solving skills predict quality of life and psychological morbidity in ALS caregivers
Murphy, V., Felgoise, S. H., Walsh, S. M., & Simmons, Z. (2009) · Amyotrophic Lateral Sclerosis · doi:10.1080/17482960802245007 · Cited by 46
Ray, R., & Street, A. F. (2007) · Journal of Clinical Nursing · doi:10.1111/j.1365-2702.2006.01722.x · Cited by 45
Bolmsjö, I., & Hermerén, G. (2003) · Nursing Ethics · doi:10.1191/0969733003ne593oa · Cited by 44
Caregiver bodywork: family members’ experiences of caring for a person with motor neurone disease
Ray, R., & Street, A. F. (2006) · Journal of Advanced Nursing · doi:10.1111/j.1365-2648.2006.03977.x · Cited by 43
Preston, H., Fineberg, I. C., Callagher, P., & Mitchell, D. J. (2011) · Palliative Medicine · doi:10.1177/0269216311399664 · Cited by 42
Quality of Life in Amyotrophic Lateral Sclerosis
Bromberg, M. B. (2008) · Physical Medicine and Rehabilitation Clinics of North America · doi:10.1016/j.pmr.2008.02.005 · Cited by 42
O'Brien, M. R., Whitehead, B. A., Murphy, P. N., Mitchell, J. D., & Jack, B. (2011) · Palliative Medicine · doi:10.1177/0269216311398697 · Cited by 41
Ray, R., & Street, A. F. (2005) · Health & Social Care in the Community · doi:10.1111/j.1365-2524.2005.00586.x · Cited by 37
Evidence in palliative care research: how should it be gathered?
Aoun, S. M., & Kristjanson, L. J. (2005) · The Medical Journal of Australia · doi:10.5694/j.1326-5377.2005.tb07034.x · Cited by 37
Self-citationMiyashita, M., Narita, Y., Sakamoto, A., Kawada, N., Akiyama, M. O., Kayama, M., Suzukamo, Y., & Fukuhara, S. (2010) · Psychiatry and Clinical Neurosciences · doi:10.1111/j.1440-1819.2010.02155.x · Cited by 36
Lasting impact in families after death from ALS
Martin, J., & Turnbull, J. (2001) · Amyotrophic Lateral Sclerosis and Other Motor Neuron Disorders · doi:10.1080/14660820152882188 · Cited by 34
Marital relationships in amyotrophic lateral sclerosis
Atkins, L., Brown, R. G., Leigh, P. N., & Goldstein, L. H. (2009) · Amyotrophic Lateral Sclerosis · doi:10.3109/17482960903307797 · Cited by 30
McCabe, M. P., Roberts, C., & Firth, L. A. (2008) · Nursing and Health Sciences · doi:10.1111/j.1442-2018.2008.00399.x · Cited by 29
Religiousness is positively associated with quality of life of ALS caregivers
Calvo, A., Moglia, C., Ilardi, A., Cammarosano, S., Gallo, S., Canosa, A., Mastro, E., Montuschi, A., & Chiò, A. (2011) · Amyotrophic Lateral Sclerosis · doi:10.3109/17482968.2011.560947 · Cited by 29
Mock, S. E., & Boerner, K. (2010) · Journal of Health Psychology · doi:10.1177/1359105309344897 · Cited by 26
Grief support for informal caregivers of patients with ALS: A national survey
Hebert, R. S., Lacomis, D., Easter, C. R., Frick, V., & Shear, M. K. (2005) · Neurology · doi:10.1212/01.wnl.0000148586.79290.a6 · Cited by 25
The Challenges And Unmet Needs of People with Neurodegenerative Conditions And Their Carers
Aoun, S. M., Kristjanson, L. J., & Oldham, L. (2006) · Australasian Journal of Paramedicine · Cited by 25
Self-citationJacobi, C., Müller, H. D., Korporal, M., Back, T., & Wildemann, B. (2008) · European Journal of Neurology · doi:10.1111/j.1468-1331.2008.02123.x · Cited by 24
McConigley, R., Aoun, S. M., Kristjanson, L. J., Colyer, S., Deas, K., O’Connor, M., Harris, R., Currow, D. C., & Yates, P. M. (2011) · Palliative Medicine · doi:10.1177/0269216311426918 · Cited by 22
Self-citationLove, A. W., Street, A. F., Ray, R., HARRIS, R., & Lowe, R. M. (2005) · Palliative & Supportive Care · doi:10.1017/s1478951505050054 · Cited by 22
Attributions, strain and depression in carers of partners with MND: a preliminary investigation
Goldstein, L. H., Adamson, M., Barby, T., Down, K., & Leigh, P. N. (2000) · Journal of the Neurological Sciences · doi:10.1016/s0022-510x(00)00416-0 · Cited by 17
Referral criteria: making the district nursing service visible
Jarvis, A., Mackie, S., & Arundel, D. (2006) · British Journal of Community Nursing · doi:10.12968/bjcn.2006.11.1.20280 · Cited by 15
The dynamics of socio-connective trust within support networks accessed by informal caregivers
Ray, R., & Street, A. F. (2010) · Health An Interdisciplinary Journal for the Social Study of Health Illness and Medicine · doi:10.1177/1363459309360786 · Cited by 13
A study of the burden of caring for patients with amyotrophic lateral sclerosis (MND) in Japan
Akiyama, M. O., Kayama, M., Takamura, S., Kawano, Y., Ohbu, S., & Fukuhara, S. (2006) · British Journal of Neuroscience Nursing · doi:10.12968/bjnn.2006.2.1.20501 · Cited by 12
Motor neurone disease: Carers' experiences, behaviour and coping methods
Gent, C., McGarry, J., & Pinnington, L. (2009) · British Journal of Neuroscience Nursing · doi:10.12968/bjnn.2009.5.12.45651 · Cited by 10
Research works printed but not linked: 3
- Rowland LP, 2005, Merritt’s neurology, 861
- Oliver D, 2004, Eur J Palliat Care, 11, 185
- McConigley R, Palliat Med
Cited by
Sorted by citations
Amyotrophic lateral sclerosis: improving care with a multidisciplinary approach
Hogden, A., Foley, G., Henderson, R. D., James, N., & Aoun, S. M. (2017) · Journal of Multidisciplinary Healthcare · doi:10.2147/jmdh.s134992 · Cited by 187
Self-citationCaregiver burden in amyotrophic lateral sclerosis: A systematic review
de Wit, J., Bakker, L. A., van Groenestijn, A. V., van den Berg, L. H., Schröder, C., Visser-Meily, J. A., & Beelen, A. (2017) · Palliative Medicine · doi:10.1177/0269216317709965 · Cited by 153
“In previous systematic reviews, the suggestion was made that social support might be a protective factor for caregiver burden, 12,57 but this result could not be confirmed in our review.”
Krug, K., Miksch, A., Peters-Klimm, F., Engeser, P., & Szecsenyi, J. (2016) · BMC Palliative Care · doi:10.1186/s12904-016-0082-y · Cited by 139
“a study with cancer patients [11] and a review on patients with motor neurone disease [12]), but also between unmet needs of patients and caregiver stress burden [13].”
BackgroundLynch, J. J., & Cahalan, R. (2017) · Spinal Cord · doi:10.1038/sc.2017.56 · Cited by 134
Caregiving in ALS – a mixed methods approach to the study of Burden
Galvin, M., Corr, B., Madden, C., Mays, I., McQuillan, R., Timonen, V., Staines, A. S., & Hardiman, O. M. (2016) · BMC Palliative Care · doi:10.1186/s12904-016-0153-0 · Cited by 138
Metadata
- Authors
- Aoun, S. M., Bentley, B., Funk, L., Toye, C., Grande, G., & Stajduhar, K. J.
- Affiliations
- Curtin University (AU)
- University of Manitoba (CA)
- Curtin University, Perth, WA, Australia
- University of Manchester (GB)
- University of Victoria (CA)
- Venue
- Palliative Medicine
- Publisher
- SAGE Publications
- Published
- 2012-08-20
- Volume
- 27
- Issue
- 5
- Pages
- 437-446
- ISSN
- 0269-2163 (ISSN-L)
- 1477-030X
- OpenAlex
- W2143100466
- Cited by
- 152
- References
- 81
- Citations by year
- 2026: 10 · 2025: 14 · 2024: 6 · 2023: 12 · 2022: 15 · 2021: 17 · 2020: 15 · 2019: 8 · 2018: 8 · 2017: 11 · 2016: 14 · 2015: 14 · 2014: 7 · 2013: 1
- FWCI
- 16.27
- Type
- journal article
- Language
- en
- Open access
- Locations
- Palliative Medicine (publishedVersion)
- PubMed (publishedVersion)
- Murdoch University Research Portal (submittedVersion)
- eSpace (Curtin University) (submittedVersion)
- Research Explorer (The University of Manchester) (submittedVersion)
- Topics
- Health Sciences › Nursing › Research and Theory › Nursing care and research
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Clinical Neurology › Amyotrophic Lateral Sclerosis Research
- Keywords
- motor neuron disease, family caregivers, caregiver burden, palliative care interventions, psychosocial support, end-of-life decisions, respiratory support, cognitive change, quality of life, access to palliative care, caregiver distress
- MeSH terms
- Family, Humans, Palliative Care, Quality of Life, Social Support, Stress, Psychological, Motor Neuron Disease, Caregivers, Cost of Illness
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
