How do people experience early intervention services for psychosis? A meta-synthesis.

Hansen, Hege; Stige, Signe Hjelen; Davidson, Larry; Moltu, Christian; Veseth, Marius

doi:10.1177/1049732317735080

Cited by 49Schizophrenia research and treatmentPsychiatric care and mental health servicesMental Health and Patient Involvement

How do people experience early intervention services for psychosis? A meta-synthesis.

Hansen, Hege, Stige, Signe Hjelen, Davidson, Larry, Moltu, Christian, Veseth, Marius·2018·Qualitative Health Research

DOI 10.1177/1049732317735080

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Abstract

We conducted a study to explore how people diagnosed with first-episode psychosis experienced their contact with early intervention services for psychosis and the way these experiences relate to their recovery processes. Our aim was to integrate and describe the service users' experiences in a rigorous and comprehensive way. A broad literature search was performed in June and July 2016. After screening, 17 qualitative studies were included. We analyzed the findings in two main steps: (a) translating studies into one another and (b) synthesizing the findings from the studies. Through these interpretative processes, we found five new and overarching themes: (a) something is wrong, (b) do for myself, (c) it's about people, (d) a price to pay, and (e) ongoing vulnerability. We describe these themes as a process that service users' maneuver through in their contact with the services. Our findings are discussed in light of relevant research.

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Empirical work studying different illness experiences underscores agency and autonomy as healing phenomena.
“Empirical work studying different illness experiences underscore agency and autonomy as healing phenomena (Moltu et al., 2012, 2017; Bjornestad et al., 2017; Hansen et al., 2017).”
From Moving toward connectedness – a qualitative study of recovery processes for people with borderline personality disorder (2019) · cites this paper as Hansen et al., 2017

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“Similar to Hansen et al. (2018), this study found support from family members, employers, and mental health service providers (K. D. Stewart, 2012) was crucial to young adults with FEP.”
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“and caregivers experience engagement with EISs, as summarized in two recent meta-syntheses [5, 6].”
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“Needing different things from different people” – a qualitative exploration of recovery in first episode psychosis
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“Moreover, Hansen et al. (2018) found that people with first episode psychosis described stigma as the downside of engaging in relationships and community life.”
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Background
Retrospective Experiences of First-Episode Psychosis Treatment Under Open Dialogue-Based Services: A Qualitative Study
Bergström, T., Seikkula, J., Holma, J. M., Köngäs‐Saviaro, P., Taskila, J. J., & Alakare, B. (2021) · Community Mental Health Journal · doi:10.1007/s10597-021-00895-6 · Cited by 9 · see citing works
‘That hour served me better than any hour I have ever had before’: Service users’ experiences of CBTp in first episode psychosis
Mankiewicz, P. D., O’Leary, J., & Collier, O. (2018) · Counselling Psychology Review · doi:10.53841/bpscpr.2018.33.2.4 · Cited by 9 · see citing works
Discovery and analysis of global studies trend on digital transformation strategy: exploring challenges and opportunities
Khoshroo, M., & Talari, M. (2024) · Kybernetes · doi:10.1108/k-12-2023-2643 · Cited by 11 · see citing works
Recovery and self-identity development following a first episode of psychosis
Cogan, N. A., Schwannauer, M., & Harper, S. F. (2019) · Journal of Public Mental Health · doi:10.1108/jpmh-01-2019-0013 · Cited by 8 · see citing works
Show me you care : A patient‐ and family‐reported measure of care experiences in early psychosis services
Iyer, S. N., Taksal, A., MALLA, A. K., Martin, H., Levasseur, M. A., Pope, M. A., THARA, R., Ramachandran, P., & Mohan, G. (2022) · Early Intervention in Psychiatry · doi:10.1111/eip.13360 · Cited by 8 · see citing works
“Therefore, positive experiences of care early on can promote longerterm trust and treatment adherence (Allard et al., 2018; Hansen et al., 2018).”
Background
User-Centered Development of Bolster, an mHealth Intervention for Early Psychosis Caregivers: Needs Assessment, Prototyping, and Field Trial
Buck, B., Wingerson, M., Whiting, E. L., Snyder, J., Monroe‐DeVita, M., & Ben‐Zeev, D. (2023) · JMIR Mental Health · doi:10.2196/50522 · Cited by 8 · see citing works
“They also often seek resources and treatment [5], establish contact with providers [6], or work to persuade the individual to make such contacts on their own [7].”
Background
Service user perspectives of an early intervention in psychosis service: a service evaluation
Watkins, S., Sanderson, C., & Richards, V. (2018) · Mental Health Review Journal · doi:10.1108/mhrj-09-2017-0037 · Cited by 7 · see citing works
Socially differentiated life trajectories of individuals with experience of psychosis: A biographical study
Georgaca, E., & Zissi, A. (2019) · Mental Health & Prevention · doi:10.1016/j.mhp.2019.02.001 · Cited by 7 · see citing works
How lived experiences of illness trajectories, burdens of treatment, and social inequalities shape service user and caregiver participation in health and social care: a theory-informed qualitative evidence synthesis
May, C. R., Gravenhorst, K. C., Hillis, A., Arber, M. R., Chew-Graham, C. A., Gallacher, K., Mair, F. S., Nolte, E., & Richardson, A. M. (2024) · Health and Social Care Delivery Research · doi:10.3310/hgtq8159 · Cited by 8 · see citing works
‘Like I said about culture. You don't talk about mental health’: An interpretative phenomenological analysis of the experience of first‐episode psychosis in South Asian individuals
Patel, K., Cardno, A. G., & Isherwood, T. (2023) · Early Intervention in Psychiatry · doi:10.1111/eip.13368 · Cited by 6 · see citing works
Effects of the muscarinic agonist oxotremorine on membrane fluidity in rat lymphocytes.
Tang, C., Castoldi, A. F., & Costa, L. G. (1993) · PubMed · Cited by 5 · see citing works
Détection et intervention précoce pour la psychose : pourquoi et comment ?
Bertulies‐Esposito, B., Sicotte, R., Iyer, S. N., Delfosse, C., Girard, N., Nolin, M., Villeneuve, M., Conus, P., & Abdel‐Baki, A. (2021) · Santé mentale au Québec · doi:10.7202/1088178ar · Cited by 7 · see citing works
“…ayant été suivies par les PPEP soulignent que l’humanité du suivi, le sentiment d’être compris, le soutien des professionnels et de la famille et l’impli-cation dans la prise de décision représentent des éléments cruciaux pour leur rétablissement (Hansen, Stige, Davidson, Moltu et Veseth, 2018).”
Background
Experiences and socio-environmental contexts in the lead-up to psychosis: a qualitative analysis of the narratives of persons with psychosis from different ethnic, racial and immigrant backgrounds
Xavier, S. M., Both, A. P., van der Ven, E., Ferrari, M., Abdel‐Baki, A., van den Bogerd, N., Lemmers-Jansen, I. L. J., & Iyer, S. N. (2025) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2025.1602468 · Cited by 3 · see citing works
Early intervention in psychosis for first episode psychotic mania: the experience of people diagnosed with bipolar disorder
Farr, J., Rhodes, J., Baruch, E., & Smith, J. A. (2024) · Journal of Mental Health · doi:10.1080/09638237.2024.2332805 · Cited by 3 · see citing works
“Reviews of this area highlight the pivotal role of a person-centred relationship with staff, the impact of which is multi-faceted (Hansen et al., 2017; Loughlin et al., 2020).”
Implementation of an Online Mental Health Website for the Early Intervention in Psychosis Services, Developed for the Early Youth Engagement ( EYE‐2 ) Trial: A Cross‐Sectional Survey Study of Clinical Barriers and Facilitators to Normalisation
Robson, E., & Greenwood, K. (2025) · Early Intervention in Psychiatry · doi:10.1111/eip.70055 · Cited by 2 · see citing works
Demographic Equality of Access to Cognitive Behavioural Treatment for Early Psychosis in Community Mental Healthcare in Greater London
Mankiewicz, P. D., Reid, J., & Hughes, E. A. (2021) · ATHENS JOURNAL OF HEALTH & MEDICAL SCIENCES · doi:10.30958/ajhms.8-3-1 · Cited by 2 · see citing works
“Hansen et al. (2018), in their meta-synthesis of qualitative literature, explored how individuals diagnosed with FEP experienced their involvement with EIP services.”
Background
Adherence to Treatment in First Episode Psychosis: Acceptance, Refusal, or Ambivalent Process?
Artaud, L., Abdel‐Baki, A., Nolin, M., & Rousseau, C. (2020) · Canadian Journal of Community Mental Health · doi:10.7870/cjcmh-2020-018 · Cited by 2 · see citing works
Vi sier recovery, men hva mener vi egentlig?
Hansen, H. A. (2022) · Tidsskrift for psykisk helsearbeid · doi:10.18261/tph.19.2-3.2 · Cited by 2 · see citing works
Fractures into flickers: an interpretive phenomenological analysis of experiences in structured expressive writing among depressed college students
Zhu, S., & Wang, J. (2026) · Humanities and Social Sciences Communications · doi:10.1057/s41599-026-06950-5 · Cited by 1 · see citing works
“My World Is Gone”: Understanding and Addressing the Needs of Caregivers of First Episode Psychosis Patients
Modesto, O., Beaton, L., Nicholson, M., Brown, C., & Short, B. (2026) · Counselling and Psychotherapy Research · doi:10.1002/capr.70114 · Cited by 1 · see citing works
The Social Sharing of Hallucinations
Pierce, A. (2019) · HARVEST (University of Saskatchewan)
Designing mental health services that are fit for purpose using the principles of Perceptual Control Theory
Griffiths, R. (2023) · Elsevier eBooks · doi:10.1016/b978-0-323-91165-8.00003-2
How do young adults experience and understand the process of developing a first episode of psychosis? A qualitative exploration
Hansen, H. A., Stige, S. H., Davidson, L., Løberg, E., & Veseth, M. (2023) · Psychosis · doi:10.1080/17522439.2023.2215295
“A meta-synthesis containing 17 qualitative articles, which focused on experiences related to contact with early intervention services (Hansen et al., 2018), found that before engaging with the services, participants described having a growing feeling of something being wrong.”
Literaturverzeichnis zu Voderholzer (Hrsg.): Therapie psychischer Erkrankungen, 20. Auflage
(2024) · Elsevier eBooks · doi:10.1016/b978-3-437-21224-6.00055-4
What Do We Risk to SQuEASE by Making Psychiatric Phenomenology Too Efficient?
Delcourt, F., & Englebert, J. (2025) · Psychopathology · doi:10.1159/000545169
“…and the persons directly concerned, suffering from the disorder, belonging to their entourage, or their carers can testify subjectively to this need, but also to the necessity of a humane approach of it, inclined to compassion, understanding and con ﬁ dence in their own recovery [21 – 24].”
Additional file 3 of The impact of early intervention psychosis services on hospitalisation experiences: a qualitative study with young people and their carers
Powell, T., Glozier, N., Conn, K., Einboden, R., Buus, N., Caldwell, P., & Milton, A. C. (2024) · Figshare · doi:10.6084/m9.figshare.26718876
Additional file 2 of The impact of early intervention psychosis services on hospitalisation experiences: a qualitative study with young people and their carers
Powell, T., Glozier, N., Conn, K., Einboden, R., Buus, N., Caldwell, P., & Milton, A. C. (2024) · Figshare · doi:10.6084/m9.figshare.25801076
Additional file 1 of The impact of early intervention psychosis services on hospitalisation experiences: a qualitative study with young people and their carers
Powell, T., Glozier, N., Conn, K., Einboden, R., Buus, N., Caldwell, P., & Milton, A. C. (2024) · Figshare · doi:10.6084/m9.figshare.25800931
“Never Just the Next Case File”: A Qualitative Study Exploring Youth and Family Experiences Within Early Psychosis Coordinated Specialty Care
Zaheer, R., Magel, B., Vaz, Q., Kozloff, N., Ampofo, A., Duda, L., Durbin, J., Foussias, G., Sockalingam, S., Zaheer, J., et al. (2026) · Early Intervention in Psychiatry · doi:10.1111/eip.70168
Approche phénoménologique du premier épisode psychotique : de la déconstruction à la reconstruction : remaniements identitaires, narration de soi et parcours de rétablissement
André, A. (2023) · doi:10.70675/719a1e03zc306z4f8czb2c0z7be0024f1fd8
Accessing Early Intervention for Psychosis Services in New Zealand – The Light at the End of the Tunnel
Grattan, R. E., Fraser, G., Wolmarans, M., & Clifford, A. E. (2026) · Community Mental Health Journal · doi:10.1007/s10597-026-01711-9

The journey through early intervention services : a narrative analysis
Clayton, R. (2011) · OpenGrey (Institut de l'Information Scientifique et Technique)
Service‐users’ experiences of an early intervention in psychosis service: An interpretative phenomenological analysis
Harris, K., Collinson, C., & das Nair, R. (2011) · Psychology and Psychotherapy Theory Research and Practice · doi:10.1111/j.2044-8341.2011.02043.x · Cited by 34 · see citing works
Recovery from first-episode psychosis and the role for services beyond first-episode detection
Baggott, E. (2026) · OpenGrey (Institut de l'Information Scientifique et Technique) · doi:10.82444/warw.33602707
Service users' experiences of receiving information about a first episode of psychosis : an interpretative phenomenological analysis
Nicholas, E. (2012) · Figshare
Qualitative exploration of recovery following first episode psychosis : a grounded theory approach & Clinical research portfolio
Loughran, L. E. (2011) · Enlighten: Theses (The University of Glasgow)

Authors: Hansen, H., Stige, S. H., Davidson, L., Moltu, C., & Veseth, M.
Affiliations: Western Norway University of Applied Sciences (NO)
University of Bergen (NO)
Yale University (US)
Helse Førde (NO)
Corresponding author: Hansen, Hege
ORCID: Hansen, Hege
Stige, Signe Hjelen
Davidson, Larry
Moltu, Christian
Veseth, Marius
Venue: Qualitative Health Research
Publisher: SAGE Publications
Published: 2017-10-17
Volume: 28
Issue: 2
Pages: 259-272
ISSN: 1049-7323 (ISSN-L)
1552-7557
DOI: 10.1177/1049732317735080
OpenAlex: W2765867913
Semantic Scholar: 928a940e4eb14eec0b688e488c1279086545ac9d
Cited by: 49
References: 68
Citations by year: 2026: 4 · 2025: 3 · 2024: 8 · 2023: 6 · 2022: 2 · 2021: 5 · 2020: 3 · 2019: 9 · 2018: 8
FWCI: 4.52
Type: journal article
Language: en
Open access: closed
Licence: journals.sagepub.com/page/policies/text-and-data-mining-license (tdm)
Locations: Qualitative Health Research (publishedVersion)
PubMed (publishedVersion)
Topics: Health Sciences › Medicine › Psychiatry and Mental health › Schizophrenia research and treatment
Social Sciences › Psychology › Clinical Psychology › Psychiatric care and mental health services
Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
Keywords: first-episode psychosis, service user experiences, recovery, help-seeking, vulnerability, self-management, mental health services
MeSH terms: Adaptation, Psychological, Age Factors, Humans, Mental Health Services, Psychotic Disorders, Qualitative Research

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How do people experience early intervention services for psychosis? A meta-synthesis.

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