Cited by 165Autism Spectrum Disorder ResearchPsychology and Mental HealthIdentity, Memory, and Therapy

The `not guilty verdict': Psychological reactions to a diagnosis of Asperger syndrome in adulthood

Punshon, C., Skirrow, P., Murphy, G.·2009·Autism

Abstract

Asperger syndrome is a relatively new diagnostic classification. A number of factors make receiving a diagnosis of Asperger syndrome in adulthood a unique experience. This study used a phenomenological approach to examine the experiences of 10 adults receiving such a diagnosis. Results suggested that six major themes were associated with receiving a diagnosis of Asperger syndrome. Individuals discussed their negative life experiences and their experience of services prior to diagnosis, which led to individuals holding certain beliefs about the symptoms of Asperger syndrome. These beliefs had an effect on the formation of each individual's perceived self-identity. Participants made links between how they felt when they received the diagnosis and their current beliefs about both their ;symptoms' and themselves. Finally, participants highlighted the importance of the societal view of Asperger syndrome. The implications of these findings are reappraised in the context of previous research and the wider literature on identity formation.

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Crossref · 10.1177/1362361309103795

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20 of 20 references verified0 citation errors · 0 not checkable

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  • Mothers involved in their adult children's diagnosis expressed positive reactions to the diagnosis, but autistic adults described both positive and negative reactions from their parents.

    “Mothers involved in their adult children's diagnosis expressed positive reactions to the diagnosis (Raymond-Barker et al., 2018), but autistic adults described both positive and negative reactions from their parents (Crane et al., 2018; Punshon et al., 2009).”

    From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Punshon et al., 2009

  • Adults expressed that even when families were accepting, misconceptions about autism made support difficult.

    “Adults expressed that even when families were accepting, misconceptions about autism made support difficult (Crane et al., 2018; Punshon et al., 2009).”

    From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Punshon et al., 2009

  • Adults frequently described lifelong feelings of being different from peers, social isolation and bullying prior to diagnosis.

    “Adults frequently described lifelong feelings of being different from peers, social isolation and bullying prior to diagnosis (Hickey et al., 2018; Lewis, 2016b; Punshon et al., 2009).”

    From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Punshon et al., 2009

  • There was a lack of understanding from families and wider community.

    “Lack of understanding from families and wider community.”

    From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Punshon et al. (2009)

  • Adults described trying to mask differences.

    “trying to mask differences.”

    From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Punshon et al. (2009)

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Authors
Punshon, C., Skirrow, P., & Murphy, G.
Affiliations
  • Mersey Care NHS Trust (GB)
  • University of Kent (GB)
Venue
Autism
Published
2009-05
Volume
13
Issue
3
Pages
265-283
ISSN
  • 1362-3613 (ISSN-L)
  • 1461-7005
OpenAlex
W2030351972
Cited by
165
References
20
Citations by year
2026: 13 · 2025: 5 · 2024: 16 · 2023: 13 · 2022: 14 · 2021: 14 · 2020: 15 · 2019: 10 · 2018: 13 · 2017: 8 · 2016: 6 · 2015: 13 · 2014: 4 · 2013: 8 · 2012: 9
FWCI
2.10
Type
journal article
Language
en
Open access
closed
Locations
  • Autism (publishedVersion)
  • PubMed (publishedVersion)
  • Lancaster EPrints (Lancaster University) (submittedVersion)
  • Kent Academic Repository (University of Kent) (submittedVersion)
Topics
  • Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
  • Social Sciences › Psychology › Clinical Psychology › Psychology and Mental Health
  • Social Sciences › Psychology › Developmental and Educational Psychology › Identity, Memory, and Therapy
Keywords
Asperger syndrome, adult diagnosis, diagnostic experience, self-identity, identity construction, life experience, autism services
MeSH terms
Adult, Age Factors, Attitude to Health, Cognition Disorders, Family, Female, Humans, Interview, Psychological, Life Change Events, Male, Middle Aged, Models, Psychological, Self Concept, Social Identification, Asperger Syndrome, Friends

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