Internet-enabled pulmonary rehabilitation and diabetes education in group settings at home: a preliminary study of patient acceptability
Open accessAbstract
BACKGROUND: The prevalence of major chronic illnesses, such as chronic obstructive pulmonary disease (COPD) and diabetes, is increasing. Pulmonary rehabilitation and diabetes self-management education are important in the management of COPD and diabetes respectively. However, not everyone can participate in the programmes offered at a hospital or other central locations, for reasons such as travel and transport. Internet-enabled home-based programmes have the potential to overcome these barriers.This study aims to assess patient acceptability of the delivery form and components of Internet-enabled programmes based on home groups for comprehensive pulmonary rehabilitation and for diabetes self-management education. METHODS: We have developed Internet-enabled home programmes for comprehensive pulmonary rehabilitation and for diabetes self-management education that include group education, group exercising (COPD only), individual consultations, educational videos and a digital health diary. Our prototype technology platform makes use of each user's own TV at home, connected to a computer, and a remote control. We conducted a six-week home trial with 10 participants: one group with COPD and one with diabetes. The participants were interviewed using semi-structured interviews. RESULTS: Both home-based programmes were well accepted by the participants. The group setting at home made it possible to share experiences and to learn from questions raised by others, as in conventional group education. In the sessions, interaction and discussion worked well, despite the structure needed for turn taking. The thematic educational videos were well accepted although they were up to 40 minutes long and their quality was below TV broadcasting standards. Taking part in group exercising at home under the guidance of a physiotherapist was also well accepted by the participants. Participants in the COPD group appreciated the social aspect of group education sessions and of exercising together, each in their own home. The digital health diary was used as background information in the individual consultations and by some participants as a self-management tool. Participant retention was high, with no dropouts. None of the participants reported that the six-week duration of the home programmes was too long. CONCLUSIONS: The Internet-enabled programmes for home-based groups in pulmonary rehabilitation and diabetes education were generally well accepted by the participants. Our findings indicate that conventional programmes have the potential to be delivered in socially supportive group settings at home.
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Eight of the 15 studies reported few technical difficulties, whereas 7 reported a number of problems, 2 of which required substantial work hours to overcome.
“Various levels of technical problems were encountered; 8 of the 15 studies reported few difficulties [31,32,34-36,38,44-46], whereas 7 reported a number of problems [33,37,39,42,43,45,47], 2 of which required substantial work hours to overcome [39,47].”
From Telehealth Interventions Delivering Home-based Support Group Videoconferencing: Systematic Review (2018) · cites this paper as [34]
Adherence rates were very good, with homework completed 93% of the time and all participants viewing educational videos and completing health diaries.
“Adherence rates were very good, with homework completed 93% of the time [46] and all participants viewing educational videos and completing health diaries [34,35].”
From Telehealth Interventions Delivering Home-based Support Group Videoconferencing: Systematic Review (2018) · cites this paper as [34]
Difficulties arose when several people talked at the same time and then stopped on hearing others and then after a pause started talking at the same time again.
“Difficulties arose when several people talked at the same time and then stopped on hearing others and then after a pause started talking at the same time again [34].”
From Telehealth Interventions Delivering Home-based Support Group Videoconferencing: Systematic Review (2018) · cites this paper as [34]
Overall, inexperience with videoconferencing or computer use did not appear to be a major problem; the majority of studies reported that over time participants found the technology easy to use and enjoyable.
“Overall, inexperience did not appear to be a major problem as the majority of studies reported that, over time, participants found the technology easy to use [32-35,40-42,46] and found videoconferencing enjoyable [42,44-46].”
From Telehealth Interventions Delivering Home-based Support Group Videoconferencing: Systematic Review (2018) · cites this paper as [34]
Some participants reported feeling more relaxed and open by being at home and valued the convenience.
“some participants reported feeling more relaxed and open by being at home and valued the convenience [33,34,36,42-46].”
From Telehealth Interventions Delivering Home-based Support Group Videoconferencing: Systematic Review (2018) · cites this paper as [34]
Videoconferencing groups provided emotional and social support.
“and provided emotional and social support [32-35]”
From Telehealth Interventions Delivering Home-based Support Group Videoconferencing: Systematic Review (2018) · cites this paper as [34]
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- Authors
- Burkow, T. M., Vognild, L. K., Østengen, G., Johnsen, E., Risberg, M. J., Bratvold, A., Hagen, T., Brattvoll, M., Krogstad, T., & Hjalmarsen, A.
- Affiliations
- University Hospital of North Norway (NO)
- Northern Research Institute (NO)
- Norwegian Agency for Development Cooperation (NO)
- UiT The Arctic University of Norway (NO)
- Corresponding author
- Burkow, Tatjana M
- ORCID
- Burkow, Tatjana M
- Venue
- BMC Medical Informatics and Decision Making
- Published
- 2013-03-05
- Volume
- 13
- Issue
- 1
- Pages
- 33-33
- ISSN
- 1472-6947 (ISSN-L)
- PMC
- PMC3599897
- OpenAlex
- W2171382601
- Cited by
- 53
- References
- 39
- Citations by year
- 2026: 1 · 2025: 3 · 2024: 1 · 2023: 2 · 2022: 3 · 2021: 7 · 2020: 5 · 2019: 3 · 2018: 4 · 2017: 8 · 2016: 6 · 2015: 5 · 2014: 4 · 2013: 1
- FWCI
- 5.45
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- BMC Medical Informatics and Decision Making (publishedVersion, cc-by)
- Europe PMC (PubMed Central) (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- NORA - Norwegian Open Research Archives (submittedVersion, other-oa)
- Funders
- Norges Forskningsråd
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Telemedicine and Telehealth Implementation
- Health Sciences › Health Professions › General Health Professions › Mobile Health and mHealth Applications
- Health Sciences › Medicine › Pulmonary and Respiratory Medicine › Chronic Obstructive Pulmonary Disease (COPD) Research
- Keywords
- home-based pulmonary rehabilitation, diabetes self-management education, chronic obstructive pulmonary disease, patient acceptability, educational videos, telemedicine, social support, patient retention
- MeSH terms
- Adult, Aged, Chronic Disease, Diabetes Mellitus, Feasibility Studies, Female, Humans, Male, Middle Aged, Patient Acceptance of Health Care, Patient Education as Topic, Rehabilitation, Self Care, Internet, Pulmonary Disease, Chronic Obstructive
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Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
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