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Measuring the impact of caregiving on informal carers: a construct validation study of the CarerQol instrument
Open accessAbstract
BACKGROUND: Informal caregivers provide a significant part of the total care needed by ill or disabled persons. Although informal care is often the preferred option of those who provide and those who receive informal care, caring can nevertheless be very straining. This study investigates construct validation of an instrument of the impact of caregiving, the CarerQol. METHODS: Data was collected among adult caregivers (n = 1,244) selected from the general population using an online questionnaire in October 2010, in the Netherlands. The CarerQol measures and values the impact of informal care. The CarerQol measures subjective burden (CarerQol-7D) and well-being (CarerQol-VAS). Construct validation comprised clinical, convergent and discriminative validity tests. RESULTS: Clinical validity was supported by statistically significant associations of CarerQol-VAS and caregivers' health, income and employment status, care recipients' health, and the relationship between caregiver and care recipient. Convergent validity was supported by positive associations of CarerQol-VAS with the two positive CarerQol-7D dimensions (fulfillment and support) and negative associations with the five negative CarerQol-7D dimensions (relational problems, mental health problems, problems combining daily activities, financial problems and physical health problems). Moreover, CarerQol-VAS was negatively associated with other instruments measuring caregiving burden. CONCLUSIONS: Construct validity tests in a large, heterogeneous sample of caregivers show that the CarerQol validly measures the impact of caregiving. The CarerQol can be used in informal care research and economic evaluations of health care interventions. Hence, its use can facilitate informed decision making in health care.
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“The psychometric properties of the CarerQol were shown to be satisfactory [48–50].”
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Metadata
- Authors
- Hoefman, R. J., van Exel, J., & Brouwer, W. B.
- Affiliations
- Erasmus University Rotterdam (NL)
- Corresponding author
- Hoefman, Renske J
- Venue
- Health and Quality of Life Outcomes
- Published
- 2013
- Volume
- 11
- Issue
- 1
- Pages
- 173
- ISSN
- 1477-7525 (ISSN-L)
- PMC
- PMC4015499
- OpenAlex
- W2169882001
- Cited by
- 101
- References
- 62
- Citations by year
- 2026: 9 · 2025: 9 · 2024: 5 · 2023: 12 · 2022: 11 · 2021: 9 · 2020: 10 · 2019: 11 · 2018: 8 · 2017: 6 · 2016: 5 · 2015: 4 · 2014: 2
- FWCI
- 6.96
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- cc-by
- Locations
- Health and Quality of Life Outcomes (publishedVersion, cc-by)
- Europe PMC (PubMed Central) (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- EUR Research Repository (Erasmus University Rotterdam) (publishedVersion, other-oa)
- EUR Research Repository (Erasmus University Rotterdam) (submittedVersion, other-oa)
- RePub (Erasmus University Rotterdam) (submittedVersion, other-oa)
- Open Scholarship Institutional Repository (Washington University in St. Louis) (submittedVersion, cc-by)
- Topics
- Health Sciences › Nursing › Research and Theory › Nursing care and research
- Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
- Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
- Keywords
- informal caregivers, caregiver burden, caregiver well-being, construct validity, subjective burden, quality of life, caregiver-care recipient relationship, financial stress, mental illness
- MeSH terms
- Adult, Female, Humans, Male, Middle Aged, Netherlands, Quality of Life, Surveys and Questionnaires, Caregivers
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
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