Parent distress reactions following a serious illness or injury in their child: a protocol paper for the take a breath cohort study
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BACKGROUND: Diagnosis of life threatening childhood illness or injury can lead to significant distress reactions in parents, with many experiencing clinically significant levels of post-traumatic stress symptoms. These symptoms can have long-term adverse impacts on parent mental health, family functioning, and the adjustment of the ill child. Independent studies have found such reactions in several different illness groups. However, very little research has systematically compared the prevalence, impact and trajectories over time of post-traumatic stress symptoms in parents across different childhood illness groups with an acute life threat. The current study seeks to map the course of post-traumatic stress reactions in parents of children with various life threatening illnesses over an 18 month period, and identify factors that predict successful adaptation in families. METHOD/DESIGN: The current study described is of a prospective, longitudinal design. The sample included parents of children admitted to four major hospital departments at the Royal Children's Hospital, Melbourne, Australia, for a life threatening illness or injury. Eligible parents were those who were caregivers of children aged 0-to 18-years admitted to the Oncology, Cardiology, Neurology and Pediatric Intensive Care Unit. Parents were recruited acutely, and completed self-report questionnaires at four time-points: within the first 4 weeks (T1:); then at 4 months (T2); 7 months (T3); and 19 months (T4) after admission. Questionnaires assessed parent and child mental health and wellbeing, and a number of risk and reliance factors such child illness factors, parent demographic factors, and psychosocial factors. DISCUSSION: This study is one of the first to document the trajectory of post-traumatic stress responses in parents of very ill children, across illness groups. Given that it will also identify risk and resilience factors, and map the course of parent outcomes over an 18 monthperiod, it has the potential to inform novel strategies for intervention.
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The large sample size for this observational study (145 parents assessed at the equivalent of the current study's proposed 6 month follow-up) provides us the opportunity to compare the long term adjustment of intervention families from the current study with a non-intervention normative population.
“The large sample size for this observational study (145 parents assessed at the equivalent of the current study’s proposed 6 month follow-up) provides us the opportunity to compare the long term adjustment of intervention families from the current study with a non-intervention normative population.”
From Take A Breath: Study protocol for a randomized controlled trial of an online group intervention to reduce traumatic stress in parents of children with a life threatening illness or injury (2016) · cites this paper as [38]
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Experimental — accuracy not yet measuredOur team has collected longitudinal data from a large cohort of parents of children with life-threatening illnesses recruited in the same setting and using similar eligibility criteria, measurement tools, and assessment time points.
“Our team has collected longitudinal data from a large cohort of parents of children with life-threatening illnesses recruited in the same setting and using similar eligibility criteria, measurement tools, and assessment time points [38].”
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- Authors
- Muscara, F., Burke, K., McCarthy, M. C., Anderson, V. A., Hearps, S. J., Hearps, S. J., Dimovski, A., & Nicholson, J. M.
- Affiliations
- Royal Children's Hospital (AU)
- The University of Queensland (AU)
- La Trobe University (AU)
- Corresponding author
- Muscara, Frank
- Venue
- BMC Psychiatry
- Published
- 2015-07-08
- Volume
- 15
- Issue
- 1
- Pages
- 153-153
- ISSN
- 1471-244X (ISSN-L)
- PMC
- PMC4495936
- OpenAlex
- W1595191934
- Cited by
- 69
- References
- 61
- Citations by year
- 2026: 1 · 2025: 4 · 2024: 5 · 2023: 4 · 2022: 7 · 2021: 6 · 2020: 10 · 2019: 7 · 2018: 7 · 2017: 13 · 2016: 3 · 2015: 1 · 2012: 1
- FWCI
- 9.92
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Locations
- BMC Psychiatry (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- Minerva Access (University of Melbourne) (submittedVersion, cc-by)
- Funders
- Pratt Foundation
- State Government of Victoria
- National Health and Medical Research Council (607333)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Posttraumatic Stress Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Grief, Bereavement, and Mental Health
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Keywords
- parental distress, posttraumatic stress symptoms, childhood injuries, parental mental health, family functioning, child mental health, risk and resilience factors, longitudinal trajectories, pediatric oncology, pediatric intensive care, pediatric cardiology, pediatric neurology, caregiver well-being
- MeSH terms
- Child Health, Adaptation, Psychological, Adolescent, Adult, Child, Clinical Protocols, Female, Humans, Male, Parents, Prospective Studies, Risk Factors, Stress Disorders, Post-Traumatic, Resilience, Psychological
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