Identifying Psychosocial Risk Indicative of Subsequent Resource Use in Families of Newly Diagnosed Pediatric Oncology Patients
Abstract
Purpose: The primary purpose of this prospective study was to identify the level of risk for psychosocial distress in families of children newly diagnosed with cancer. Additional study aims were to examine concordance among family and staff reports of psychosocial risk, changes in risk status over time, and to predict the use of psychosocial resources during the first months of treatment. Patients and Methods: Caregivers of 125 children newly diagnosed with cancer completed the Psychosocial Assessment Tool (PAT) at diagnosis (t 1) and 3 to 6 months later (t 2). Primary oncologists and nurses completed an analogous measure of perceived family psychosocial risk at t 1 and t 2. At t 2, oncology social workers reported types and intensity of psychosocial interventions provided. Results: The PAT identified three subsets of families who presented with increasing levels of psychosocial risk at diagnosis. In general, there was moderate concordance among family, oncologist, and nurse reports of psychosocial risk. PAT scores at t 1 predicted t 2 PAT scores and psychosocial resource use at t 2 beyond demographic or disease factors. Conclusion: A brief screening tool (PAT) is valuable in identifying psychosocial risk factors at diagnosis and is predictive of later use of psychosocial resources. As a next step in this research, the development of psychosocial interventions to match family risk level may be an effective and cost-efficient approach to working with families to address their concerns and promote short- and long-term adjustment.
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The intervention is delivered 4-10 months after child diagnosis, a time when the acute management of the child's condition has eased and parents are more able to consider their own needs.
“The intervention is delivered 4–10 months after child diagnosis, a time when the acute management of the child’s condition has eased and parents are more able to consider their own needs [15].”
Persistent distress can impair a parent's ability to respond to the demands of their child's illness and result in the utilization of more hospital resources.
“Persistent distress can impair a parent’s ability to respond to the demands of their child’s illness [12–14], and result in the utilization of more hospital resources [15].”
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Feasibility of clinical psychosocial screening in pediatric oncology: Implementing the PAT2.0
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PSYCHOSOZIALE VERSORGUNG IN DER PÄDIATRISCHEN ONKOLOGIE UND HÄMATOLOGIE (S3)
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- Authors
- Kazak, A. E., Cant, M. C., Jensen, M. M., McSherry, M., Rourke, M. T., Hwang, W.-T., Alderfer, M. A., Beele, D., Simms, S., & Lange, B. J.
- Affiliations
- Children's Hospital of Philadelphia (US)
- Venue
- Journal of Clinical Oncology
- Published
- 2003-09-01
- Volume
- 21
- Issue
- 17
- Pages
- 3220-3225
- ISSN
- 0732-183X (ISSN-L)
- 1527-7755
- OpenAlex
- W2151697274
- Cited by
- 194
- References
- 10
- Citations by year
- 2026: 1 · 2025: 1 · 2023: 6 · 2022: 2 · 2021: 41 · 2020: 8 · 2019: 5 · 2018: 6 · 2017: 6 · 2016: 10 · 2015: 14 · 2014: 8 · 2013: 12 · 2012: 11
- FWCI
- 6.53
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Clinical Oncology (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
- Social Sciences › Sociology and Political Science › Family Support in Illness
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Keywords
- childhood cancer, psychosocial distress, family caregivers, psychosocial risk screening, Psychosocial Assessment Tool, risk prediction, oncology social work, psychosocial interventions, family adjustment
- MeSH terms
- Adaptation, Psychological, Adolescent, Adult, Child, Child Health Services, Child, Preschool, Family, Female, Humans, Infant, Male, Neoplasms, Predictive Value of Tests, Prospective Studies, Surveys and Questionnaires, Risk Factors, Social Support, Time Factors, Sickness Impact Profile
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