Cited by 26Telemedicine and Telehealth ImplementationDiabetes Management and EducationMobile Health and mHealth Applications

Adapting a home telemonitoring intervention for underserved Hispanic/Latino patients with type 2 diabetes: an acceptability and feasibility study

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Pekmezaris, Renee, Williams, Myia S., Pascarelli, Briana, Finuf, Kayla D., Harris, Yael T., Myers, Alyson K., Taylor, Tonya, Kline, Myriam +15 more·2020·BMC Medical Informatics and Decision Making

Abstract

Background: Home telemonitoring is a promising approach to optimizing outcomes for patients with Type 2 Diabetes; however, this care strategy has not been adapted for use with understudied and underserved Hispanic/Latinos (H/L) patients with Type 2 Diabetes. Methods: A formative, Community-Based Participatory Research approach was used to adapt a home telemonitoring intervention to facilitate acceptability and feasibility for vulnerable H/L patients. Utilizing the ADAPT-ITT framework, key stakeholders were engaged over an 8-month iterative process using a combination of strategies, including focus groups and structured interviews. Nine Community Advisory Board, Patient Advisory, and Provider Panel Committee focus group discussions were conducted, in English and Spanish, to garner stakeholder input before intervention implementation. Focus groups and structured interviews were also conducted with 12 patients enrolled in a 1-month pilot study, to obtain feedback from patients in the home to further adapt the intervention. Focus groups and structured interviews were approximately 2 hours and 30 min, respectively. All focus groups and structured interviews were audio-recorded and professionally transcribed. Structural coding was used to mark responses to topical questions in the moderator and interview guides. Results: Two major themes emerged from qualitative analyses of Community Advisory Board/subcommittee focus group data. The first major theme involved intervention components to maximize acceptance/usability. Subthemes included tablet screens (e.g., privacy/identity concerns; enlarging font sizes; lighter tablet to facilitate portability); cultural incongruence (e.g., language translation/literacy, foods, actors “who look like me”); nursing staff (e.g., ensuring accessibility; appointment flexibility); and, educational videos (e.g., the importance of information repetition). A second major theme involved suggested changes to the randomized control trial study structure to maximize participation, including a major restructuring of the consenting process and changes designed to optimize recruitment strategies. Themes from pilot participant focus group/structured interviews were similar to those of the Community Advisory Board such as the need to address and simplify a burdensome consenting process, the importance of assuring privacy, and an accessible, culturally congruent nurse. Conclusions: These findings identify important adaptation recommendations from the stakeholder and potential user perspective that should be considered when implementing home telemonitoring for underserved patients with Type 2 Diabetes. Trial registration: NCT03960424; ClinicalTrials.gov (US National Institutes of Health). Registered 23 May 2019. Registered prior to data collection. https://www.clinicaltrials.gov/ct2/show/NCT03960424?term=NCT03960424&draw=2&rank=1

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  • The technology acceptability and feasibility theme arose in six studies and comprised three sub-themes: convenience and acceptability, technology feasibility, and barriers of rural areas.

    “This theme arose in six studies [19, 22–25, 27] and comprise the following sub-themes: (1) Convenience & Acceptability; (2) Technology feasibility; and (3) Barriers of rural areas.”
  • In three studies, participants found devices difficult to use, accentuated by generational differences, with older participants generally less confident and less able to use them.

    “In three studies, [19, 23, 27] participants found devices difficult to use, which was accentuated by generational differences, with older participants generally less confident and less able to use them.”
  • The importance of education regarding device usage was highlighted in three studies, though this is likely dependent on the specific devices used.

    “Whilst this is likely to be dependent on specific devices used, the importance of education regarding device usage was highlighted in three studies. [24, 25, 27]”
  • Consideration of cultural differences was highlighted when creating educational videos, as many patients felt the content and/or technology were not culturally appropriate, particularly for the Hispanic and Latino population.

    “Consideration of cultural differences was highlighted when creating educational videos to supplement the device/application, as many patients felt the content and/or technology were not “culturally appropriate”, particularly targeting the Hispanic and Latino population [27].”
  • Three studies suggested that the barrier of device difficulty could be better managed with improved education and support.

    “Three studies [24, 25, 27] however, suggested this barrier could be better managed with improved education and support.”

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  1. [46]Luborsky MR. The identification and analysis of themes and patterns. In: Gubrium JF, Sankar A, editors. Qualitative methods in aging research, vol. 168. Sage focus edition. Thousand Oaks, CA, USA: Sage Publications; 1994. p. 189–210.

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Authors
Pekmezaris, R., Williams, M. S., Pascarelli, B., Finuf, K. D., Harris, Y. T., Myers, A. K., Taylor, T., Kline, M., Patel, V. H., Murray, L. M., McFarlane, S. I., Pappas, K., Lesser, M. L., Makaryus, A. N., Martinez, S., Kozikowski, A., Polo, J., Guzman, J., Zeltser, R., Marino, J., Pena, M., DiClemente, R. J., & Granville, D.
Affiliations
  • Northwell Health (US)
  • North Shore University Hospital (US)
  • SUNY Downstate Health Sciences University (US)
  • Nassau University Medical Center (US)
  • Mount Sinai Health System (US)
  • New York University (US)
Corresponding author
Finuf, Kayla D.
Venue
BMC Medical Informatics and Decision Making
Published
2020-12
Volume
20
Issue
1
Pages
324-324
ISSN
1472-6947 (ISSN-L)
OpenAlex
W3111180642
Cited by
26
References
50
Citations by year
2026: 3 · 2025: 2 · 2024: 9 · 2023: 8 · 2022: 4
FWCI
2.25
Type
journal article
Language
en
Open access
Locations
  • BMC Medical Informatics and Decision Making (publishedVersion, cc-by)
  • PubMed Central (publishedVersion, cc-by)
  • PubMed (publishedVersion)
  • DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
Funders
Patient-Centered Outcomes Research Institute (AD-2017C3-9185)
Topics
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Telemedicine and Telehealth Implementation
  • Health Sciences › Medicine › Endocrinology, Diabetes and Metabolism › Diabetes Management and Education
  • Health Sciences › Health Professions › General Health Professions › Mobile Health and mHealth Applications
Keywords
home health monitoring, type 2 diabetes, Hispanic patients, underserved populations, intervention adaptation, acceptability, feasibility, community-based participatory research, stakeholder engagement, culturally congruent care, informed consent process, recruitment strategies, ADAPT-ITT framework, diabetes self-management education, educational videos, patient privacy
MeSH terms
Diabetes Mellitus, Type 2, Feasibility Studies, Health Promotion, Hispanic or Latino, Humans, Interviews as Topic, Patient Acceptance of Health Care, Pilot Projects, Focus Groups, Telemedicine, Monitoring, Ambulatory, Vulnerable Populations, Qualitative Research, Healthcare Disparities, Culturally Competent Care

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