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The Disproportionate Impact Of Dementia On Family And Unpaid Caregiving To Older Adults
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The number of US adults ages sixty-five and older who are living with dementia is substantial and expected to grow, raising concerns about the demands that will be placed on family members and other unpaid caregivers. We used data from the 2011 National Health and Aging Trends Study and its companion study, the National Study of Caregiving, to investigate the role of dementia in caregiving. We found that among family and unpaid caregivers to older noninstitutionalized adults, one-third of caregivers, and 41 percent of the hours of help they provide, help people with dementia, who account for about 10 percent of older noninstitutionalized adults. Among older adults who receive help, the vast majority in both community and residential care settings other than nursing homes rely on family or unpaid caregivers (more than 90 percent and more than 80 percent, respectively), regardless of their dementia status. Caregiving is most intense, however, to older adults with dementia in community settings and from caregivers who are spouses or daughters or who live with the care recipient.
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“Most caregivers (66%) live with the person with dementia in the community.402”
From 2023 Alzheimer's disease facts and figures (2023) · cites this paper as [402]
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“Of these individuals, nearly half live alone, perhaps making it more difficult to ask for and receive informal care.402”
From 2023 Alzheimer's disease facts and figures (2023) · cites this paper as [402]
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“Over one-third of dementia caregivers are daughters caring for a parent.394,402”
From 2023 Alzheimer's disease facts and figures (2023) · cites this paper as [402]
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In the citing paper
“30% of older adults with dementia rely on three or more unpaid caregivers, whereas 23% of older adults without dementia do so.402”
From 2023 Alzheimer's disease facts and figures (2023) · cites this paper as [402]
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“Only a small percentage of older adults with dementia do not receive help from family members or other informal care providers (8%).”
From 2023 Alzheimer's disease facts and figures (2023) · cites this paper as [402]
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In the citing paper
“Only a small percentage (8%) of older adults with dementia do not receive help from family members or other informal care providers.”
From 2024 Alzheimer's disease facts and figures (2024) · cites this paper as [433]
Experimental — accuracy not yet measuredThe source backs part of the claim, not all of it — or backs it for a different population, condition or comparison.
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“Individuals with dementia living in the community are more likely than older adults without dementia to rely on multiple unpaid caregivers (often family members); 30% of older adults with dementia rely on three or more unpaid caregivers, whereas 23% of older adults without dementia do so.”
From 2024 Alzheimer's disease facts and figures (2024) · cites this paper as [433]
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“Over one‐third of dementia caregivers in the United States are daughters caring for a parent.”
From 2024 Alzheimer's disease facts and figures (2024) · cites this paper as [433]
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“According to another study, well over half (57%) of family caregivers of people with Alzheimer's or other dementias living in the community had provided care for four or more years.”
From 2024 Alzheimer's disease facts and figures (2024) · cites this paper as [433]
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“On average, female caregivers spend more time caregiving than male caregivers.402”
From 2023 Alzheimer's disease facts and figures (2023) · cites this paper as [402]
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“On average, female caregivers spend more time caregiving than male caregivers.”
From 2024 Alzheimer's disease facts and figures (2024) · cites this paper as [433]
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Metadata
- Authors
- Kasper, J. D., Freedman, V. A., Spillman, B. C., & Wolff, J. L.
- Affiliations
- Johns Hopkins University (US)
- University of Michigan (US)
- Urban Institute (US)
- Venue
- Health Affairs
- Publisher
- Health Affairs Publishing, LLC
- Published
- 2015-10
- Volume
- 34
- Issue
- 10
- Pages
- 1642-1649
- ISSN
- 0278-2715 (ISSN-L)
- 1544-5208
- PMC
- PMC4635557
- OpenAlex
- W2298583712
- Cited by
- 354
- References
- 22
- Citations by year
- 2026: 26 · 2025: 60 · 2024: 52 · 2023: 40 · 2022: 55 · 2021: 39 · 2020: 25 · 2019: 24 · 2018: 16 · 2017: 11 · 2016: 6
- FWCI
- 8.92
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Health Affairs (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- Funders
- National Institute on Aging (U01AG032947)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
- Health Sciences › Nursing › Research and Theory › Nursing care and research
- Keywords
- dementia, unpaid caregiving, family caregivers, older adults, caregiver burden, community-based care, residential care, spousal caregiving, daughters as caregivers, caregiving hours
- MeSH terms
- Aged, Aged, 80 and over, Dementia, Family, Female, Home Care Services, Humans, Male, Caregivers
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