Participatory Methods to Engage Health Service Users in the Development of Electronic Health Resources: Systematic Review

Moore, Gaye; Wilding, Helen; Gray, Kathleen; Castle, David

doi:10.2196/11474

Cited by 96Health Literacy and Information AccessibilityMobile Health and mHealth ApplicationsMental Health and Patient Involvement

Participatory Methods to Engage Health Service Users in the Development of Electronic Health Resources: Systematic Review

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Moore, Gaye, Wilding, Helen, Gray, Kathleen, Castle, David·2019·Journal of Participatory Medicine

DOI 10.2196/11474PMC PMC7434099

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Abstract

BACKGROUND: When health service providers (HSP) plan to develop electronic health (eHealth) resources for health service users (HSU), the latter's involvement is essential. Typically, however, HSP, HSU, and technology developers engaged to produce the resources lack expertise in participatory design methodologies suited to the eHealth context. Furthermore, it can be difficult to identify an established method to use, or determine how to work stepwise through any particular process. OBJECTIVE: We sought to summarize the evidence about participatory methods and frameworks used to engage HSU in the development of eHealth resources from the beginning of the design process. METHODS: We searched for studies reporting participatory processes in initial development of eHealth resources from 2006 to 2016 in 9 bibliographic databases: MEDLINE, EMBASE, CINAHL, PsycINFO, Emcare, Cochrane Library, Web of Science, ACM Guide to Computing Literature, and IEEE Xplore. From 15,117 records initially screened on title and abstract for relevance to eHealth and early participatory design, 603 studies were assessed for eligibility on full text. The remaining 90 studies were rated by 2 reviewers using the Mixed Methods Appraisal Tool Version 2011 (Pluye et al; MMAT) and analyzed with respect to health area, purpose, technology type, and country of study. The 30 studies scoring 90% or higher on MMAT were included in a detailed qualitative synthesis. RESULTS: Of the 90 MMAT-rated studies, the highest reported (1) health areas were cancer and mental disorders, (2) eHealth technologies were websites and mobile apps, (3) targeted populations were youth and women, and (4) countries of study were the United States, the United Kingdom, and the Netherlands. Of the top 30 studies the highest reported participatory frameworks were User-Centered Design, Participatory Action Research Framework, and the Center for eHealth Research and Disease Management (CeHRes) Roadmap, and the highest reported model underpinning development and engagement was Social Cognitive Theory. Of the 30 studies, 4 reported on all the 5 stages of the CeHRes Roadmap. CONCLUSIONS: The top 30 studies yielded 24 participatory frameworks. Many studies referred to using participatory design methods without reference to a framework. The application of a structured framework such as the CeHRes Roadmap and a model such as Social Cognitive Theory creates a foundation for a well-designed eHealth initiative that ensures clarity and enables replication across participatory design projects. The framework and model need to be clearly articulated and address issues that include resource availability, responsiveness to change, and the criteria for good practice. This review creates an information resource for future eHealth developers, to guide the design of their eHealth resource with a framework that can support further evaluation and development. TRIAL REGISTRATION: PROSPERO CRD42017053838; https://www.crd.york.ac.uk/prospero/display_record.php?RecordID=53838.

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The CeHRes Roadmap is a much-used structured framework for the development of eHealth technologies.
“The CeHRes Roadmap is a much-used structured framework for the development of eHealth technologies [5,16].”
From Methods for Human-Centered eHealth Development: Narrative Scoping Review (2022) · cites this paper as [16]

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Preferred Reporting Items for Systematic Reviews and Meta-Analyses: the PRISMA statement
Moher, D., Liberati, A., Tetzlaff, J., Altman, D. G., & for the PRISMA Group (2009) · BMJ · doi:10.1136/bmj.b2535 · Cited by 83,823 · see citing works
Preferred Reporting Items for Systematic Reviews and Meta-Analyses: The PRISMA Statement
Moher, D., Liberati, A., Tetzlaff, J., Altman, D. G., & The PRISMA Group (2009) · PLoS Medicine · doi:10.1371/journal.pmed.1000097 · Cited by 64,042 · see citing works
The PRISMA Statement for Reporting Systematic Reviews and Meta-Analyses of Studies That Evaluate Health Care Interventions: Explanation and Elaboration
Liberati, A., Altman, D. G., Tetzlaff, J., Mulrow, C., Gøtzsche, P. C., Ioannidis, J. P. A., Clarke, M., Devereaux, P. J., Kleijnen, J., & Moher, D. (2009) · PLoS Medicine · doi:10.1371/journal.pmed.1000100 · Cited by 28,164 · see citing works
The Effect of Riding as an Alternative Treatment for Children with Cerebral Palsy: A Systematic Review and Meta-Analysis
Wang, G., Ma, R., Qiao, G., Wada, K., Aizawa, Y., & Satoh, T. (2015) · Integrative Medicine International · doi:10.1159/000368408 · Cited by 18,759 · see citing works
Developing and evaluating complex interventions: the new Medical Research Council guidance
Craig, P., Dieppe, P., Macintyre, S., Michie, S., Nazareth, I., & Petticrew, M. (2008) · BMJ · doi:10.1136/bmj.a1655 · Cited by 10,995 · see citing works
The PRISMA Statement for Reporting Systematic Reviews and Meta-Analyses of Studies That Evaluate Health Care Interventions: Explanation and Elaboration
Liberati, A., Altman, D. G., Tetzlaff, J., Mulrow, C., Gøtzsche, P. C., Ioannidis, J. P. A., Clarke, M., Devereaux, P. J., Kleijnen, J., & Moher, D. (2009) · Annals of Internal Medicine · doi:10.7326/0003-4819-151-4-200908180-00136 · Cited by 10,349 · see citing works
Health Promotion by Social Cognitive Means
Bandura, A. (2004) · Health Education & Behavior · doi:10.1177/1090198104263660 · Cited by 7,238 · see citing works
Framework for design and evaluation of complex interventions to improve health
Campbell, M. (2000) · BMJ · doi:10.1136/bmj.321.7262.694 · Cited by 3,474 · see citing works
A behavior model for persuasive design
Fogg, B. (2009) · Proceedings of the 4th International Conference on Persuasive Technology · doi:10.1145/1541948.1541999 · Cited by 2,328 · see citing works
CONSORT-EHEALTH: Improving and Standardizing Evaluation Reports of Web-based and Mobile Health Interventions
Eysenbach, G., & CONSORT-EHEALTH Group (2011) · Journal of Medical Internet Research · doi:10.2196/jmir.1923 · Cited by 1,863 · see citing works
A Holistic Framework to Improve the Uptake and Impact of eHealth Technologies
van Gemert-Pijnen, J. E., Nijland, N., van Limburg, M., Ossebaard, H. C., Kelders, S. M., Eysenbach, G., & Seydel, E. R. (2011) · Journal of Medical Internet Research · doi:10.2196/jmir.1672 · Cited by 1,126 · see citing works
Design of an mHealth app for the self-management of adolescent type 1 diabetes: a pilot study
Cafazzo, J. A., Casselman, M., Hamming, N., Katzman, D. K., & Palmert, M. R. (2012) · Journal of Medical Internet Research · doi:10.2196/jmir.2058 · Cited by 676 · see citing works
The theory of planned behaviour: The effects of perceived behavioural control and self‐efficacy
Terry, D. J., & O'Leary, J. E. (1995) · British Journal of Social Psychology · doi:10.1111/j.2044-8309.1995.tb01058.x · Cited by 655 · see citing works
The Handbook of health behavior change
(2009) · Choice Reviews Online · doi:10.5860/choice.46-6233 · Cited by 616 · see citing works
A user-centered model for designing consumer mobile health (mHealth) applications (apps)
Schnall, R., Rojas, M., Bakken, S., Brown, W., Carballo-Dieguez, A., Carry, M., Gelaude, D., Mosley, J. P., & Travers, J. (2016) · Journal of Biomedical Informatics · doi:10.1016/j.jbi.2016.02.002 · Cited by 583 · see citing works
A review of health behaviour theories: how useful are these for developing interventions to promote long-term medication adherence for TB and HIV/AIDS?
Atkins, S. A., Lewin, S. A., Swart, T. M., & Volmink, J. A. (2007) · BMC Public Health · doi:10.1186/1471-2458-7-104 · Cited by 564 · see citing works
User-Centered Design and Interactive Health Technologies for Patients
DABBS, A. D. V., MYERS, B. A., MC CURRY, K. R., DUNBAR-JACOB, J., HAWKINS, R. P., BEGEY, A., & DEW, M. A. (2009) · CIN: Computers, Informatics, Nursing · doi:10.1097/ncn.0b013e31819f7c7c · Cited by 517 · see citing works
Practicing participatory action research.
Kidd, S. A., & Kral, M. J. (2005) · Journal of Counseling Psychology · doi:10.1037/0022-0167.52.2.187 · Cited by 457 · see citing works
User profiles and personas in the design and development of consumer health technologies
LeRouge, C., Ma, J., Sneha, S., & Tolle, K. (2013) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2011.03.006 · Cited by 411 · see citing works
Encyclopedia of Human-Computer Interaction
Baskerville, R., & Stage, J. (2004) · Cited by 401 · see citing works
Participatory design methods in telemedicine research
Clemensen, J., Rothmann, M. J., Smith, A. C., Caffery, L. J., & Danbjørg, D. B. (2016) · Journal of Telemedicine and Telecare · doi:10.1177/1357633x16686747 · Cited by 296 · see citing works
Designing eHealth that Matters via a Multidisciplinary Requirements Development Approach
Van Velsen, L., Wentzel, J., & Van Gemert-Pijnen, J. E. (2013) · JMIR Research Protocols · doi:10.2196/resprot.2547 · Cited by 262 · see citing works
Co-design of mHealth Delivered Interventions: A Systematic Review to Assess Key Methods and Processes
Eyles, H. C., Jull, A., Dobson, R., Firestone, R. T., Whittaker, R., Morenga, L. T., Goodwin, D., & Mhurchú, C. N. (2016) · Current Nutrition Reports · doi:10.1007/s13668-016-0165-7 · Cited by 222 · see citing works
Development of a UK Online 24-h Dietary Assessment Tool: myfood24
Carter, M. C., Albar, S. A., Morris, M. A., Mulla, U. Z., Hancock, N., Evans, C. E. L., Alwan, N. A., Greenwood, D. C., Hardie, L. J., Frost, G. S., et al. (2015) · Nutrients · doi:10.3390/nu7064016 · Cited by 175 · see citing works
A Multimedia Mobile Phone–Based Youth Smoking Cessation Intervention: Findings From Content Development and Piloting Studies
Whittaker, R., Maddison, R., McRobbie, H., Bullen, C., Denny, S., Dorey, E., Ellis-Pegler, M., van Rooyen, J., & Rodgers, A. (2008) · Journal of Medical Internet Research · doi:10.2196/jmir.1007 · Cited by 171 · see citing works
Participatory Design, User Involvement and Health IT Evaluation
Andre, K., & Christian, N. (2016) · Studies in Health Technology and Informatics · doi:10.3233/978-1-61499-635-4-139 · Cited by 166 · see citing works
Participatory action research in health systems : a methods reader
Loewenson, R. H., Laurell, A. C., Hogstedt, C., D’Ambruoso, L., & Shroff, Z. C. (2014) · Aberdeen University Research Archive (Aberdeen University) · Cited by 164 · see citing works
<i>iCanCope with Pain</i>™: User‐Centred Design of a Web‐ and Mobile‐Based Self‐Management Program for Youth with Chronic Pain Based on Identified Health Care Needs
Stinson, J. N., Lalloo, C., Harris, L., Isaac, L., Campbell, F., Brown, S., Ruskin, D., Gordon, A., Galonski, M., Pink, L. R., et al. (2014) · Pain Research and Management · doi:10.1155/2014/935278 · Cited by 149 · see citing works
Reaching Perinatal Women Online: The<i>Healthy You, Healthy Baby</i>Website and App
Hearn, L., Miller, M., & Lester, L. (2014) · Journal of Obesity · doi:10.1155/2014/573928 · Cited by 148 · see citing works
'Will I be able to have a baby?' Results from online focus group discussions with childhood cancer survivors in Sweden
Nilsson, J., Jervaeus, A., Lampic, C., Eriksson, L. E., Widmark, C., Armuand, G. M., Malmros, J., Heyman, M. M., & Wettergren, L. (2014) · Human Reproduction · doi:10.1093/humrep/deu280 · Cited by 139 · see citing works
Is Participatory Design Associated with the Effectiveness of Serious Digital Games for Healthy Lifestyle Promotion? A Meta-Analysis
DeSmet, A., Thompson, D., Baranowski, T., Palmeira, A., Verloigne, M., & De Bourdeaudhuij, I. (2016) · Journal of Medical Internet Research · doi:10.2196/jmir.4444 · Cited by 138 · see citing works
Integrating Evidence From Systematic Reviews, Qualitative Research, and Expert Knowledge Using Co-Design Techniques to Develop a Web-Based Intervention for People in the Retirement Transition
O'Brien, N., Heaven, B., Teal, G., Evans, E. H., Cleland, C., Moffatt, S., Sniehotta, F. F., White, M., Mathers, J. C., & Moynihan, P. (2016) · Journal of Medical Internet Research · doi:10.2196/jmir.5790 · Cited by 135 · cited 3× · see citing works
“[51] Youth, Netherlands Website Website for childhood cancer survivors Peute 2015 [52] Youth, adult, aged, Sweden”
BackgroundMethod
Co-production in practice: how people with assisted living needs can help design and evolve technologies and services
Wherton, J. P., Sugarhood, P., Procter, R., Hinder, S., & Greenhalgh, T. (2015) · Implementation Science · doi:10.1186/s13012-015-0271-8 · Cited by 134 · see citing works
Can't surf, won't surf: The digital divide in mental health
Ennis, L., Rose, D., Denis, M., Pandit, N., & Wykes, T. (2012) · Journal of Mental Health · doi:10.3109/09638237.2012.689437 · Cited by 127 · see citing works
Improving access to supportive cancer care through an eHealth application: a qualitative needs assessment among cancer survivors.
Lubberding, S., van Uden-Kraan, C. V., Velde, E. A. T., Cuijpers, P., Leemans, C., & Leeuw, I. V. V.-D. (2015) · Journal of Clinical Nursing · doi:10.1111/jocn.12753 · Cited by 122 · see citing works
Feasibility of an eHealth application “OncoKompas” to improve personalized survivorship cancer care
Duman-Lubberding, S., van Uden-Kraan, C. F., Jansen, F., Witte, B. I., van der Velden, L. A., Lacko, M., Cuijpers, P., Leemans, C. R., & Verdonck-de Leeuw, I. M. (2016) · Supportive Care in Cancer · doi:10.1007/s00520-015-3004-2 · Cited by 112 · see citing works
Development and evaluation of iManage: A self‐management app co‐designed by adolescents with sickle cell disease
Crosby, L. E., Ware, R. E., Goldstein‐Leever, A., Walton, A. E., Joffe, N. E., Vogel, C., & Britto, M. T. (2016) · Pediatric Blood & Cancer · doi:10.1002/pbc.26177 · Cited by 111 · see citing works
Designing for collaborative interpretation in telemonitoring: Re-introducing patients as diagnostic agents
Andersen, T. O., Bjørn, P., Kensing, F., & Moll, J. (2010) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2010.09.010 · Cited by 104 · see citing works
Feasibility of PRIME: A Cognitive Neuroscience-Informed Mobile App Intervention to Enhance Motivated Behavior and Improve Quality of Life in Recent Onset Schizophrenia
Schlosser, D., Campellone, T., Kim, D., Truong, B., Vergani, S., Ward, C., & Vinogradov, S. (2016) · JMIR Research Protocols · doi:10.2196/resprot.5450 · Cited by 103 · see citing works
Patient Engagement A Consumer-Centered Model to Innovate Healthcare
Graffigna, G., Barello, S., & Triberti, S. (2015) · doi:10.1515/9783110452440 · Cited by 102 · see citing works
Designing a Personal Health Application for Older Adults to Manage Medications: A Comprehensive Case Study
Siek, K. A., Khan, D. U., Ross, S. E., Haverhals, L. M., Meyers, J., & Cali, S. R. (2011) · Journal of Medical Systems · doi:10.1007/s10916-011-9719-9 · Cited by 95 · see citing works
Patient perspectives on health advice posted on Internet discussion boards: a qualitative study
Armstrong, N., & powell, J. A. (2009) · Health Expectations · doi:10.1111/j.1369-7625.2009.00543.x · Cited by 94 · see citing works
Usability of a new electronic assistive device for community-dwelling persons with mild dementia
Meiland, F. J. M., Bouman, A. I. E., Sävenstedt, S., Bentvelzen, S., Davies, R. J., Mulvenna, M. D., Nugent, C. D., Moelaert, F., Hettinga, M. E., Bengtsson, J. E., et al. (2012) · Aging & Mental Health · doi:10.1080/13607863.2011.651433 · Cited by 94 · see citing works
A web-based self-management intervention for Bipolar Disorder ‘Living with Bipolar’: A feasibility randomised controlled trial
Todd, N. J., Jones, S. H., Hart, A., & Lobban, F. A. (2014) · Journal of Affective Disorders · doi:10.1016/j.jad.2014.07.027 · Cited by 93 · see citing works
Preferences for a Mobile HIV Prevention App for Men Who Have Sex With Men
Goldenberg, T., McDougal, S. J., Sullivan, P., Stekler, J. D., & Stephenson, R. (2014) · JMIR mHealth and uHealth · doi:10.2196/mhealth.3745 · Cited by 91 · see citing works
HealthMpowerment.org: Development Of A Theory-Based HIV/STI Website for Young Black MSM
Hightow‐Weidman, L., Fowler, B., Kibe, J., McCoy, R., Pike, E. C., Calabria, M. S., & Adimora, A. A. (2011) · AIDS Education and Prevention · doi:10.1521/aeap.2011.23.1.1 · Cited by 87 · see citing works
Women more vulnerable than men when facing risk for treatment-induced infertility: A qualitative study of young adults newly diagnosed with cancer
Armuand, G. M., Wettergren, L., Rodriguez‐Wallberg, K. A., & Lampic, C. (2014) · Acta Oncologica · doi:10.3109/0284186x.2014.948573 · Cited by 83 · see citing works
Development of a web-based intervention for the indicated prevention of depression
Kelders, S. M., Pots, W. T., Oskam, M. J., Bohlmeijer, E. T., & van Gemert-Pijnen, J. E. (2013) · BMC Medical Informatics and Decision Making · doi:10.1186/1472-6947-13-26 · Cited by 80 · cited 1× · see citing works
“…iterative development process, prototype, think aloud, usability testing, cognitive walkthrough CeHRes Roadmap, Human Centered Design Kelders 2013 [46] Ethics approval, interviews (HSU), interviews (HSP), thematic analysis, content creation (HSU), iterative development process, prototype,…”
Method
Online healthy lifestyle support in the perinatal period: what do women want and do they use it?
Hearn, L., Miller, M., & Fletcher, A. (2013) · Australian Journal of Primary Health · doi:10.1071/py13039 · Cited by 76 · see citing works
Co-creation of an ICT-supported cancer rehabilitation application for resected lung cancer survivors: design and evaluation
Timmerman, J. G., Tönis, T. M., Dekker-van Weering, M. G. H., Stuiver, M. M., Wouters, M. W. J. M., van Harten, W. H., Hermens, H. J., & Vollenbroek-Hutten, M. M. R. (2016) · BMC Health Services Research · doi:10.1186/s12913-016-1385-7 · Cited by 75 · see citing works
International Patient Decision Aid Standards (IPDAS): beyond decision aids to usual design of patient education materials
Holmes-Rovner, M. M. (2007) · Health Expectations · doi:10.1111/j.1369-7625.2007.00445.x · Cited by 75 · see citing works
An e-health intervention to support the transition of young people with long-term illnesses to adult healthcare services: Design and early use.
Coyne, I., Prizeman, G., Sheehan, A., Malone, H., & While, A. (2016) · Patient Education and Counseling · doi:10.1016/j.pec.2016.06.005 · Cited by 74 · see citing works
What Do Service Users with Bipolar Disorder Want from a Web‐Based Self‐Management Intervention? A Qualitative Focus Group Study
Todd, N. J., Jones, S. H., & Lobban, F. A. (2013) · Clinical Psychology & Psychotherapy · doi:10.1002/cpp.1804 · Cited by 73 · see citing works
Development of a Web‐based alcohol intervention for university students: Processes and challenges
Hallett, J., Maycock, B. R., Kypri, K., Howat, P. A., & McManus, A. (2009) · Drug and Alcohol Review · doi:10.1111/j.1465-3362.2008.00008.x · Cited by 70 · see citing works
Co-Creation With TickiT: Designing and Evaluating a Clinical eHealth Platform for Youth
Whitehouse, S., Lam, P., Balka, E., McLellan, S., Deevska, M., Penn, D., Issenman, R. M., & Paone, M. C. (2013) · JMIR Research Protocols · doi:10.2196/resprot.2865 · Cited by 69 · see citing works
What Young People Want From a Sexual Health Website: Design and Development of Sexunzipped
McCarthy, O., Carswell, K., Murray, E., Free, C., Stevenson, F. A., & Bailey, J. (2012) · Journal of Medical Internet Research · doi:10.2196/jmir.2116 · Cited by 69 · see citing works
Evaluation of a web-based program promoting healthy eating and physical activity for adolescents: Teen Choice: Food and Fitness
Cullen, K. W., Thompson, D. I., Boushey, C. J., Konzelmann, K. L., & Chen, T. (2013) · Health Education Research · doi:10.1093/her/cyt059 · Cited by 68 · see citing works
Web-based Intervention for Postpartum Depression: Formative Research and Design of the MomMoodBooster Program
Danaher, B. G., Milgrom, J., Seeley, J. R., Stuart, S., Schembri, C., Tyler, M. S., Ericksen, J., Lester, W., Gemmill, A. W., & Lewinsohn, P. (2012) · JMIR Research Protocols · doi:10.2196/resprot.2329 · Cited by 67 · see citing works
Psychosocial service use: a qualitative exploration from the perspective of rural Australian cancer patients
Gunn, K. M., Turnbull, D. A., McWha, J. L., Davies, M., & Olver, I. (2013) · Supportive Care in Cancer · doi:10.1007/s00520-013-1812-9 · Cited by 61 · see citing works
A user driven approach to develop a cognitive prosthetic to address the unmet needs of people with mild dementia
Davies, R. J., Nugent, C., Donnelly, M. P., Hettinga, M., Meiland, F. J. M., Moelaert, F., Mulvenna, M. D., Bengtsson, J. E., Craig, D., & Dröes, R. (2008) · Pervasive and Mobile Computing · doi:10.1016/j.pmcj.2008.07.002 · Cited by 59 · see citing works
Human-centred methods in the design of an e-health solution for patients undergoing weight loss treatment
Das, A., & Svanæs, D. (2013) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2013.06.008 · Cited by 58 · see citing works
Rural eHealth Nutrition Education for Limited-Income Families: An Iterative and User-Centered Design Approach
Atkinson, N. L., Saperstein, S. L., Desmond, S. M., Gold, R. S., Billing, A. S., & Tian, J. (2009) · Journal of Medical Internet Research · doi:10.2196/jmir.1148 · Cited by 58 · see citing works
An interactive portal to empower cancer survivors: a qualitative study on user expectations
Kuijpers, W., Groen, W. G., Loos, R., Oldenburg, H. S. A., Wouters, M. W. J. M., Aaronson, N. K., & van Harten, W. H. (2015) · Supportive Care in Cancer · doi:10.1007/s00520-015-2605-0 · Cited by 58 · see citing works
Development of Young Adults Eating and Active for Health (YEAH) Internet-Based Intervention via a Community-Based Participatory Research Model
Kattelmann, K. K., White, A. A., Greene, G. W., Byrd‐Bredbenner, C., Hoerr, S. L., Horacek, T. M., Kidd, T., Colby, S. E., Phillips, B. W., Koenings, M., et al. (2014) · Journal of Nutrition Education and Behavior · doi:10.1016/j.jneb.2013.11.006 · Cited by 57 · see citing works
Barriers and facilitators to effective communication experienced by patients with malignant lymphoma at all stages after diagnosis
van Bruinessen, I. R., van Weel-Baumgarten, E. M., Gouw, H., Zijlstra, J. M., Albada, A., & van Dulmen, S. (2013) · Psycho-Oncology · doi:10.1002/pon.3352 · Cited by 56 · see citing works
“Only your blood can tell the story” – a qualitative research study using semi- structured interviews to explore the hepatitis B related knowledge, perceptions and experiences of remote dwelling Indigenous Australians and their health care providers in northern Australia
Davies, J., Bukulatjpi, S. M., Sharma, S., Davis, J. S., & Johnston, V. (2014) · BMC Public Health · doi:10.1186/1471-2458-14-1233 · Cited by 56 · see citing works
Development and usability testing of a web‐based self‐management intervention for oral cancer survivors and their family caregivers
Badr, H., Lipnick, D., Diefenbach, M. A., Posner, M., Kotz, T., Miles, B., & Genden, E. (2016) · European Journal of Cancer Care · doi:10.1111/ecc.12396 · Cited by 55 · see citing works
The Kanker Nazorg Wijzer (Cancer Aftercare Guide) protocol: the systematic development of a web-based computer tailored intervention providing psychosocial and lifestyle support for cancer survivors
Willems, R. A., Bolman, C. A. W., Mesters, I., Kanera, I. M., Beaulen, A. A. J. M., & Lechner, L. (2015) · BMC Cancer · doi:10.1186/s12885-015-1588-z · Cited by 55 · see citing works
eHealth Program to Empower Patients in Returning to Normal Activities and Work After Gynecological Surgery: Intervention Mapping as a Useful Method for Development
Vonk Noordegraaf, A., Huirne, J. A. F., Pittens, C. A., van Mechelen, W., Broerse, J. E. W., Brölmann, H. A. M., & Anema, J. R. (2012) · Journal of Medical Internet Research · doi:10.2196/jmir.1915 · Cited by 54 · see citing works
An eHealth Application in Head and Neck Cancer Survivorship Care: Health Care Professionals' Perspectives
Duman-Lubberding, S., van Uden‐Kraan, C. F., Peek, N. B., Cuijpers, P. J., Leemans, C. R., & Leeuw, I. M. V. (2015) · Journal of Medical Internet Research · doi:10.2196/jmir.4870 · Cited by 53 · see citing works
Development of a Web-Based and Mobile App to Support Physical Activity in Individuals With Rheumatoid Arthritis: Results From the Second Step of a Co-Design Process
Revenäs, Å., Opava, C. H., Martin, C., Demmelmaier, I., Keller, C., & Åsenlöf, P. (2015) · JMIR Research Protocols · doi:10.2196/resprot.3795 · Cited by 53 · see citing works
Participatory Design and Development of a Patient-centered Toolkit to Engage Hospitalized Patients and Care Partners in their Plan of Care.
Dykes, P. C., Stade, D., CHANG, F. Y., Dalal, A. K., Getty, G., Kandala, R., Lee, J., Lehman, L. A., Leone, K., Massaro, A. F., et al. (2014) · PubMed Central · Cited by 51 · see citing works
BeWell24: development and process evaluation of a smartphone “app” to improve sleep, sedentary, and active behaviors in US Veterans with increased metabolic risk
Buman, M. P., Epstein, D. R., Gutiérrez, M., Herb, C. A., Hollingshead, K. E., Huberty, J., Hekler, E. B., Vega‐López, S., Ohri‐Vachaspati, P., Hekler, A. C., et al. (2015) · Translational Behavioral Medicine · doi:10.1007/s13142-015-0359-3 · Cited by 50 · see citing works
Identifying the Educational Needs of Menopausal Women: A Feasibility Study
Trudeau, K. J., Ainscough, J. L., Trant, M., Starker, J. E., & Cousineau, T. M. (2010) · Women s Health Issues · doi:10.1016/j.whi.2010.10.001 · Cited by 47 · see citing works
Collaborative development of an electronic Personal Health Record for people with severe and enduring mental health problems
Ennis, L., Robotham, D., Denis, M., Pandit, N., Newton, D., Rose, D. S., & Wykes, T. (2014) · BMC Psychiatry · doi:10.1186/s12888-014-0305-9 · Cited by 46 · see citing works
Development and Validation of an Interactive Internet Platform for Older People: The Healthy Ageing Through Internet Counselling in the Elderly Study
Jongstra, S., Beishuizen, C. R. L., Andrieu, S., Barbera, M., van Dorp, M., van de Groep, B., Guillemont, J., Mangialasche, F., van Middelaar, T., van Charante, E. P. M., et al. (2016) · Telemedicine Journal and e-Health · doi:10.1089/tmj.2016.0066 · Cited by 46 · see citing works
Development of a Culturally Appropriate Bilingual Electronic App About Hepatitis B for Indigenous Australians: Towards Shared Understandings
Davies, J., Bukulatjpi, S. M., Sharma, S., Caldwell, L., Johnston, V., & Davis, J. S. (2015) · JMIR Research Protocols · doi:10.2196/resprot.4216 · Cited by 45 · see citing works
An Interactive, Bilingual, Culturally Targeted Website About Living Kidney Donation and Transplantation for Hispanics: Development and Formative Evaluation
Gordon, E. J., Feinglass, J. M., Carney, P., Ramirez, D. I., Olivero, M., O’Connor, K. G., MacLean, J., Brucker, J. B., & Caicedo, J. C. (2015) · JMIR Research Protocols · doi:10.2196/resprot.3838 · Cited by 45 · see citing works
Developing an interactive mobile phone self-report system for self-management of hypertension. Part 1: Patient and professional perspectives
Bengtsson, U., Kasperowski, D., Ring, L., & Kjellgren, K. (2014) · Blood Pressure · doi:10.3109/08037051.2014.883203 · Cited by 44 · see citing works
Active Patient Participation in the Development of an Online Intervention
van Bruinessen, I. R., van Weel-Baumgarten, E. M., Snippe, H. W., Gouw, H., Zijlstra, J. M., & van Dulmen, S. (2014) · JMIR Research Protocols · doi:10.2196/resprot.3695 · Cited by 43 · see citing works
Development of an Evidence-Based mHealth Weight Management Program Using a Formative Research Process
Waterlander, W. E., Whittaker, R., McRobbie, H. J., Dorey, E., Ball, K., Maddison, R., Smith, K. M., Crawford, D. A., Jiang, Y., Gu, Y., et al. (2014) · JMIR mhealth and uhealth · doi:10.2196/mhealth.2850 · Cited by 43 · see citing works
Participatory development of MIDY (Mobile Intervention for Drinking in Young people)
Wright, C. C. J., Dietze, P., Crockett, B., & Lim, M. S. C. (2016) · BMC Public Health · doi:10.1186/s12889-016-2876-5 · Cited by 42 · see citing works
Development of a self-help web-based intervention targeting young cancer patients with sexual problems and fertility distress in collaboration with patient research partners
Winterling, J., Wiklander, M., Obol, C. M., Lampic, C., Eriksson, L. E., Pelters, B., & Wettergren, L. (2016) · JMIR Research Protocols · doi:10.2196/resprot.5499 · Cited by 42 · see citing works
The use of patient and provider perspectives to develop a patient-oriented website for women diagnosed with breast cancer
Clayman, M. L., Boberg, E. W., & Makoul, G. T. (2008) · Patient Education and Counseling · doi:10.1016/j.pec.2008.05.032 · Cited by 41 · see citing works
What Overweight Women Want From a Weight Loss App: A Qualitative Study on Arabic Women
Alnasser, A., Al-Khalifa, A. S., Sathiaseelan, A., & Marais, D. (2015) · JMIR mhealth and uhealth · doi:10.2196/mhealth.4409 · Cited by 41 · see citing works
The Theory, Development, and Implementation of an e-Intervention to Prevent Excessive Gestational Weight Gain: e-Moms Roc
Graham, M. L., Uesugi, K. H., Niederdeppe, J., Gay, G. K., & Olson, C. M. (2014) · Telemedicine Journal and e-Health · doi:10.1089/tmj.2013.0354 · Cited by 40 · see citing works
The consumer-driven development and acceptability testing of a website designed to connect rural cancer patients and their families, carers and health professionals with appropriate information and psychosocial support
Gunn, K. M., Turnbull, D. A., Bidargaddi, N. P., McWha, J. L., Davies, M., & Olver, I. (2016) · European Journal of Cancer Care · doi:10.1111/ecc.12533 · Cited by 40 · see citing works
Design of a Website on Nutrition and Physical Activity for Adolescents: Results From Formative Research
Thompson, D. I., Cullen, K. W., Boushey, C. J., & Konzelmann, K. L. (2012) · Journal of Medical Internet Research · doi:10.2196/jmir.1889 · Cited by 40 · see citing works
Developing an Internet‐Based Decision Aid for Women Choosing Between Vaginal Birth After Cesarean and Planned Repeat Cesarean
Shorten, A., Fagerlin, A., Illuzzi, J. L., Kennedy, H. P., Lakehomer, H., Pettker, C. M., Saran, A., Witteman, H. O., & Whittemore, R. (2015) · Journal of Midwifery & Women s Health · doi:10.1111/jmwh.12298 · Cited by 39 · see citing works
Building a Mobile HIV Prevention App for Men Who Have Sex With Men: An Iterative and Community-Driven Process
Goldenberg, T., McDougal, S. J., Sullivan, P. S., Stekler, J. D., & Stephenson, R. B. (2015) · JMIR Public Health and Surveillance · doi:10.2196/publichealth.4449 · Cited by 39 · see citing works
Designing iCanFit: A Mobile-Enabled Web Application to Promote Physical Activity for Older Cancer Survivors
Hong, Y. A., Dahlke, D. V., Ory, M. G., Hochhalter, A. K., Reynolds, J. M., Peña-Purcell, N. C., Talwar, D., & Eugene, N. (2013) · JMIR Research Protocols · doi:10.2196/resprot.2440 · Cited by 38 · see citing works
Integrating service user and practitioner expertise within a web-based system for collaborative mental-health risk and safety management
Buckingham, C. D., Adams, A., Vail, L., Kumar, A., Ahmed, A., Whelan, A., & Karasouli, E. (2015) · Patient Education and Counseling · doi:10.1016/j.pec.2015.08.018 · Cited by 38 · see citing works
Developing young person's Face IT: Online psychosocial support for adolescents struggling with conditions or injuries affecting their appearance
Williamson, H., Griffiths, C., & Harcourt, D. (2015) · Health Psychology Open · doi:10.1177/2055102915619092 · Cited by 37 · see citing works
A Community-Engaged Approach to Developing an mHealth HIV/STI and Drug Abuse Preventive Intervention for Primary Care: A Qualitative Study
Córdova, D., Bauermeister, J. A., Fessler, K. B., Delva, J., Nelson, A., Nurenberg, R., Lua, F. M., Alers‐Rojas, F., & Salas‐Wright, C. P. (2015) · JMIR mhealth and uhealth · doi:10.2196/mhealth.4620 · Cited by 36 · see citing works
Exploring childhood cancer survivors' views about sex and sexual experiences -findings from online focus group discussions
Jervaeus, A., Nilsson, J., Eriksson, L. E., Lampic, C., Widmark, C., & Wettergren, L. (2015) · European Journal of Oncology Nursing · doi:10.1016/j.ejon.2015.07.009 · Cited by 36 · see citing works
Evolution of a web-based, prototype Personal Health Application for diabetes self-management
Fonda, S. J., Kedziora, R. J., Vigersky, R. A., & Bursell, S. (2010) · Journal of Biomedical Informatics · doi:10.1016/j.jbi.2010.05.006 · Cited by 36 · see citing works
Application of best practice approaches for designing decision support tools: The preparatory education about clinical trials (PRE-ACT) study
Fleisher, L. G., Ruggieri, D. G., Miller, S. M., Manne, S. L., Albrecht, T. L., Buzaglo, J. S., Collins, M., Katz, M., Kinzy, T. G., Liu, T. M., et al. (2014) · Patient Education and Counseling · doi:10.1016/j.pec.2014.04.009 · Cited by 35 · see citing works
A Participatory Design Approach to Develop a Web-Based Self-Care Program Supporting Early Rehabilitation among Patients after Total Laryngectomy
Cnossen, I. C., van Uden‐Kraan, C. F., Eerenstein, S. E. J., Rinkel, R. N. P. M., Aalders, I. J., van den Berg, K., de Goede, C. J. T., van Stijgeren, A. J., Cruijff-Bijl, Y., de Bree, R., et al. (2015) · Folia Phoniatrica et Logopaedica · doi:10.1159/000441251 · Cited by 34 · see citing works
Development and Formative Evaluation of a Web-Based Self-Management Exercise and Diet Intervention Program With Tailored Motivation and Action Planning for Cancer Survivors
Lee, M. K., Park, H., Yun, Y. H., & Chang, Y. J. (2013) · JMIR Research Protocols · doi:10.2196/resprot.2331 · Cited by 33 · see citing works
Developing and Evaluating a Website to Guide Older Adults in Their Health Information Searches
Fink, A., & Beck, J. C. (2013) · Journal of Applied Gerontology · doi:10.1177/0733464813486961 · Cited by 33 · see citing works
ProjectHeartforGirls.com: Development of a Web-Based HIV/STD Prevention Program for Adolescent Girls Emphasizing Sexual Communication Skills
Widman, L. M., Golin, C. E., Noar, S. M., Massey, J., & Prinstein, M. J. (2016) · AIDS Education and Prevention · doi:10.1521/aeap.2016.28.5.365 · Cited by 33 · see citing works
Development of MijnAVL, an Interactive Portal to Empower Breast and Lung Cancer Survivors: An Iterative, Multi-Stakeholder Approach
Kuijpers, W., Groen, W. G., Oldenburg, H. S., Wouters, M. W., Aaronson, N. K., & van Harten, W. H. (2015) · JMIR Research Protocols · doi:10.2196/resprot.3796 · Cited by 32 · see citing works
Combining Users’ Needs With Health Behavior Models in Designing an Internet- and Mobile-Based Intervention for Physical Activity in Cardiac Rehabilitation
Antypas, K., & Wangberg, S. C. (2014) · JMIR Research Protocols · doi:10.2196/resprot.2725 · Cited by 32 · see citing works
An information model to support user-centered design of medical devices
Hagedorn, T. J., Krishnamurty, S., & Grosse, I. R. (2016) · Journal of Biomedical Informatics · doi:10.1016/j.jbi.2016.07.010 · Cited by 32 · see citing works
Capturing the patients’ voices: Planning for patient-centered electronic health record use
Asan, O., Tyszka, J. T., & Fletcher, K. E. (2016) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2016.08.002 · Cited by 32 · see citing works
Tailored and Integrated Web-Based Tools for Improving Psychosocial Outcomes of Cancer Patients: The DoTTI Development Framework
Smits, R., Bryant, J., Sanson‐Fisher, R., Tzelepis, F., Henskens, F. A., Paul, C. L., & Stevenson, W. S. (2014) · Journal of Medical Internet Research · doi:10.2196/jmir.2849 · Cited by 31 · see citing works
Empowering Homeless Youth: Building Capacity through the Development of Mobile Technology
Buccieri, K., & Molleson, G. (2015) · Journal of Community Practice · doi:10.1080/10705422.2015.1027802 · Cited by 31 · see citing works
Youth-centered design and usage results of the iN Touch mobile self-management program for overweight/obesity
Kim, K. K., Logan, H. C., Young, E., & Sabee, C. M. (2014) · Personal and Ubiquitous Computing · doi:10.1007/s00779-014-0808-x · Cited by 31 · see citing works
From conception to evaluation of mobile services for people with head injury: A participatory design perspective
Groussard, P.-Y., Pigot, H., & Giroux, S. (2015) · Neuropsychological Rehabilitation · doi:10.1080/09602011.2015.1117499 · Cited by 31 · see citing works
Development and pilot evaluation of an online relapse-prevention program based on acceptance and commitment therapy for chronic pain patients
Fledderus, M., Schreurs, K. M., Bohlmeijer, E. T., & Vollenbroek-Hutten, M. M. (2015) · JMIR Human Factors · doi:10.2196/humanfactors.3302 · Cited by 30 · see citing works
Consideration of Insulin Pumps or Continuous Glucose Monitors by Adolescents With Type 1 Diabetes and Their Parents
Wysocki, T., Hirschfeld, F., Miller, L., Izenberg, N., Dowshen, S. A., Taylor, A., Milkes, A. I., Shinseki, M. T., Bejarano, C. M., Kozikowski, C. B., et al. (2016) · The Science of Diabetes Self-Management and Care · doi:10.1177/0145721716647492 · Cited by 30 · see citing works
Stakeholder Perspectives on the Development of a Virtual Clinic for Diabetes Care: Qualitative Study
Armstrong, N., Hearnshaw, H., powell, J. A., & Dale, J. R. (2007) · Journal of Medical Internet Research · doi:10.2196/jmir.9.3.e23 · Cited by 29 · see citing works
Combining i Google and Personal Health Records to Create a Prototype Personal Health Application for Diabetes Self-Management
Fonda, S. J., Kedziora, R. J., Vigersky, R. A., & Bursell, S. (2010) · Telemedicine Journal and e-Health · doi:10.1089/tmj.2009.0122 · Cited by 29 · see citing works
Development and preliminary testing of PROGRESS: a Web-based education program for prostate cancer survivors transitioning from active treatment
Miller, S. M., Hudson, S. V., Hui, S. A., Diefenbach, M. A., Fleisher, L. G., Raivitch, S., Belton, T. D., Roy, G., Njoku, A. U., Scarpato, J., et al. (2015) · Journal of Cancer Survivorship · doi:10.1007/s11764-015-0431-5 · Cited by 27 · see citing works
A conceptual model for the role of storytelling in design: leveraging narrative inquiry in user-centered design (UCD)
Gausepohl, K. A., Winchester, W. W., Smith‐Jackson, T. L., Kleiner, B. M., & Arthur, J. D. (2016) · Health and Technology · doi:10.1007/s12553-015-0123-1 · Cited by 27 · see citing works
Incorporating User Perspectives in the Design of an Online Intervention Tool for People with Visible Differences: Face IT
Bessell, A., Clarke, A. M., Harcourt, D. M., Moss, T., & Rumsey, N. (2010) · Behavioural and Cognitive Psychotherapy · doi:10.1017/s1352465810000305 · Cited by 27 · see citing works
Managing fatigue after cancer treatment: development of RESTORE, a web‐based resource to support self‐management
Foster, C. L., Calman, L. A., Grimmett, C., Breckons, M., Cotterell, P., Yardley, L., Joseph, J. A., Hughes, S. F., Jones, R., Leonidou, C., et al. (2015) · Psycho-Oncology · doi:10.1002/pon.3747 · Cited by 26 · see citing works
Designing an over-the-counter consumer decision-making tool for older adults
Martin-Hammond, A. M., Abegaz, T. T., & Gilbert, J. E. (2015) · Journal of Biomedical Informatics · doi:10.1016/j.jbi.2015.07.006 · Cited by 26 · see citing works
Preliminary test of an Internet-based diabetes self-management tool
Armstrong, N., & powell, J. A. (2008) · Journal of Telemedicine and Telecare · doi:10.1258/jtt.2008.003002 · Cited by 24 · see citing works
Phases in development of an interactive mobile phone-based system to support self-management of hypertension
Hallberg, I., Bengtsson, U., Hoffmann, M., Kasperowski, D., Lundin, M., Ranerup, A., Ring, L., Rosenqvist, U., Taft, C., Kjellgren, K. I., et al. (2014) · Integrated Blood Pressure Control · doi:10.2147/ibpc.s59030 · Cited by 24 · see citing works
Details of development of the resource for adults with asthma in the RAISIN (randomized trial of an asthma internet self-management intervention) study
Morrison, D., Mair, F. S., Chaudhuri, R., Lennon, M., Thomas, M. D., Thomson, N. C., Yardley, L., & Wyke, S. (2015) · BMC Medical Informatics and Decision Making · doi:10.1186/s12911-015-0177-z · Cited by 23 · see citing works
Alignment of Concerns: A Design Rationale for Patient Participation in eHealth
Andersen, T. O., Bansler, J. P., Kensing, F., Moll, J., & Nielsen, K. D. (2014) · Hawaii International Conference on System Sciences (HICSS) · doi:10.1109/hicss.2014.327 · Cited by 23 · see citing works
Developing an interactive mobile phone self-report system for self-management of hypertension. Part 2: Content validity and usability
Bengtsson, U., Kjellgren, K. I., Höfer, S., Taft, C., & Ring, L. (2014) · Blood Pressure · doi:10.3109/08037051.2014.901009 · Cited by 23 · see citing works
Development of the Lupus Interactive Navigator as an Empowering Web-Based eHealth Tool to Facilitate Lupus Management: Users Perspectives on Usability and Acceptability
Neville, C., Costa, D. D., Rochon, M., PESCHKEN, C. A., Pineau, C. A., Bernatsky, S., Keeling, S., Avina-Zubieta, A., Lye, E., Eng, D., et al. (2016) · JMIR Research Protocols · doi:10.2196/resprot.4219 · Cited by 23 · see citing works
Study protocol of the YP Face IT feasibility study: comparing an online psychosocial intervention versus treatment as usual for adolescents distressed by appearance-altering conditions/injuries
Williamson, H., Hamlet, C., White, P., Marques, E. M. R., Cadogan, J., Perera, R., Rumsey, N., Hayward, L., & Harcourt, D. M. (2016) · BMJ Open · doi:10.1136/bmjopen-2016-012423 · Cited by 23 · see citing works
Implementation of a web-based tool for patient medication self-management: the Medication Self-titration Evaluation Programme (Med-STEP) for blood pressure control
Grant, R. W., Pandiscio, J. C., Pajolek, H., Woulfe, A., Pelletier, A. C., Kvedar, J. C., & Park, E. R. (2013) · Journal of Innovation in Health Informatics · doi:10.14236/jhi.v20i1.48 · Cited by 22 · see citing works
My Interventional Drug-Eluting Stent Educational App (MyIDEA): Patient-Centered Design Methodology
Boyd, A. D., Moores, K., Shah, V., Sadhu, E. M., Shroff, A. R., Groo, V. L., Dickens, C., Field, J., Baumann, M., Welland, B., et al. (2015) · JMIR mhealth and uhealth · doi:10.2196/mhealth.4021 · Cited by 21 · see citing works
Qualitative Evaluation of the Relevance and Acceptability of a Web-Based HIV Prevention Game for Rural Adolescents
Enah, C. C., Piper, K., & Moneyham, L. L. (2014) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2014.09.004 · Cited by 21 · see citing works
The needs of persons with lupus and health care providers: a qualitative study aimed toward the development of the Lupus Interactive Navigator™
Neville, C., Costa, D. D., Mill, C., Rochon, M., Aviña-Zubieta, J., Pineau, C., Eng, D., & Fortin, P. R. (2013) · Lupus · doi:10.1177/0961203313517154 · Cited by 20 · see citing works
The Diabetes App Challenge: User-Led Development and Piloting of Internet Applications Enabling Young People With Diabetes to Set the Focus for Their Diabetes Consultations
Ashurst, E. J., Jones, R. B., Abraham, C., Jenner, M., Boddy, K., Besser, R. E. J., & Hammersley, S. (2014) · Medicine 2 0 · doi:10.2196/med20.3032 · Cited by 20 · see citing works
Advise, Acknowledge, Grow and Engage
Ahtinen, A., Isomursu, M., Ramiah, S., & Blom, J. (2013) · International Journal of Mobile Human Computer Interaction · doi:10.4018/ijmhci.2013100102 · Cited by 19 · see citing works
Ethically Sound Technology? Guidelines for Interactive Ethical Assessment of Personal Health Monitoring
Palm, E., Nordgren, A., Verweij, M. F., & Göran, C. (2013) · Studies in health technology and informatics · doi:10.3233/978-1-61499-256-1-105 · Cited by 18 · see citing works
Development of an internet intervention to address behaviors associated with skin cancer risk among young adults
Heckman, C. J., Darlow, S. D., Munshi, T., Caruso, C., Ritterband, L. M., Raivitch, S., Fleisher, L. G., & Manne, S. L. (2015) · Internet Interventions · doi:10.1016/j.invent.2015.04.003 · Cited by 18 · see citing works
A Mobile Internet Service for Self-Management of Physical Activity in People With Rheumatoid Arthritis: Challenges in Advancing the Co-Design Process During the Requirements Specification Phase
Revenäs, Å., Martin, C., Opava, C. H., Brusewitz, M., Keller, C., & Åsenlöf, P. (2015) · JMIR Research Protocols · doi:10.2196/resprot.4824 · Cited by 18 · see citing works
Lead users’ ideas on core features to support physical activity in rheumatoid arthritis: a first step in the development of an internet service using participatory design
Revenäs, Å., Opava, C. H., & Åsenlöf, P. (2014) · BMC Medical Informatics and Decision Making · doi:10.1186/1472-6947-14-21 · Cited by 18 · see citing works
Development and assessment of a website presenting evidence-based information for people with multiple sclerosis: the IN-DEEP project
Colombo, C., Filippini, G., Synnot, A., Hill, S., Guglielmino, R., Traversa, S., Confalonieri, P. A., Mosconi, P., & Tramacere, I. (2016) · BMC Neurology · doi:10.1186/s12883-016-0552-0 · Cited by 18 · see citing works
Accessibility, usability, and usefulness of a Web-based clinical decision support tool to enhance provider–patient communication around Self-management TO Prevent (STOP) Stroke
ANDERSON, J. A., Godwin, K. M., Saleem, J. J., Russell, S. A., Robinson, J. J., & Kimmel, B. (2013) · Health Informatics Journal · doi:10.1177/1460458213493195 · Cited by 17 · see citing works
Development of ‘Twazon’: An Arabic App for Weight Loss
Alnasser, A., Sathiaseelan, A., Al-Khalifa, A. S., & Marais, D. (2016) · JMIR Research Protocols · doi:10.2196/resprot.5497 · Cited by 16 · see citing works
Understanding the diversity of user requirements for interactive online health services
Banna, S. A., Hasan, H. M., & Dawson, P. (2016) · International Journal of Healthcare Technology and Management · doi:10.1504/ijhtm.2016.078371 · Cited by 16 · see citing works
Informed Choice for Participation in Down Syndrome Screening: Development and Content of a Web-Based Decision Aid
Skjøth, M. M., Hansen, H. P., Draborg, E., Pedersen, C. D., Lamont, R., & Jørgensen, J. S. (2015) · JMIR Research Protocols · doi:10.2196/resprot.4291 · Cited by 15 · see citing works
Development and evaluation of a specifically designed website for haematopoietic stem cell transplant patients in Leeds
Horne, B., Newsham, A., Velikova, G., Liebersbach, S., Gilleece, M. H., & Wright, P. (2015) · European Journal of Cancer Care · doi:10.1111/ecc.12352 · Cited by 14 · see citing works
User experience design considerations for healthcare games and applications
Crossley, C., Fanfarelli, J. R., & McDaniel, R. (2016) · IEEE International Conference on Serious Games and Applications for Health (SeGAH) · doi:10.1109/segah.2016.7586264 · Cited by 14 · see citing works
A Concise and Practical Framework for the Development and Usability Evaluation of Patient Information Websites
Knijnenburg, S. L., Kremer, L. C. M., Jaspers, M., & Peute, L. (2015) · Applied Clinical Informatics · doi:10.4338/aci-2014-11-ra-0109 · Cited by 13 · see citing works
Development of a user‐centered health information service system for depressive symptom management
Bae, J., Wolpin, S. E., Kim, E., Lee, S., Yoon, S., & An, K. (2009) · Nursing and Health Sciences · doi:10.1111/j.1442-2018.2009.00454.x · Cited by 13 · see citing works
Non-communicable disease epidemic: epidemiology in action (EuroEpi 2013 and NordicEpi 2013)
Tsukinoki, R., & Murakami, Y. (2013) · European Journal of Epidemiology · doi:10.1007/s10654-013-9820-0 · Cited by 12 · see citing works
Analyzing User Experience Design of Mobile Hospital Applications Using the Evaluation Grid Method
Park, J., Kim, J.-H., Park, E., & Ham, S. M. (2016) · Wireless Personal Communications · doi:10.1007/s11277-016-3193-0 · Cited by 12 · see citing works
Design, construction, and implementation of an online platform for patients with type 1 diabetes: EncoDiab
Alvarado-Martel, D., Cañas, F., Velasco, R., Alcubierre, N., Lopez-Rios, L., Rius, F., Nóvoa, F., Carrillo, A., Hernández, M., Wägner, A., et al. (2015) · Patient Preference and Adherence · doi:10.2147/ppa.s77730 · Cited by 10 · see citing works
Patient Involvement as Experts in the Development and Assessment of a Smartphone App as a Patient Education Tool for the Management of Thalassemia and Iron Overload Syndromes
Ward, R., & Taha, K. M. (2016) · Hemoglobin · doi:10.1080/03630269.2016.1217875 · Cited by 10 · see citing works
Development of the web-based type 2 diabetes education programme: DIEP
Heinrich, E., Schaper, N. C., & de Vries, N. K. (2009) · European Diabetes Nursing · doi:10.1002/edn.135 · Cited by 9 · see citing works
Online self‐help: Developing a student‐focused website for depression
Meyer, D. (2007) · Counselling and Psychotherapy Research · doi:10.1080/14733140701566357 · Cited by 8 · see citing works
Wearable device to assist independent living
McCrindle, R., Williams, V., Victor, C. R., Harvey, A. P., Nyman, S. R., Barrett, J. C., Hogarth, H., Levene, P., Smith, R. B., Panek, P. E., et al. (2011) · International Journal on Disability and Human Development · doi:10.1515/ijdhd.2011.052 · Cited by 8 · see citing works
Make It Like the Real World: Adolescents’ Recommendations for the Design of a Digital HIV Prevention Game
Enah, C. C., Moneyham, L. L., Vance, D. E., Gakumo, C. A., & Chandler, M. (2014) · Journal of HIV/AIDS & Social Services · doi:10.1080/15381501.2012.749821 · Cited by 3 · see citing works

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[2]Okun S Caligtan C Nelson R Staggers N The engaged ePatient Health Informatics: An Interprofessional Approach 2017 St Louis, Missouri Elsevier 204 19
[7]Toraldo ML Mangia G Consiglio S Mercurio R A model for value creation: key role of the users as co-producers of e-health services Proceedings IFKAD 2013 2013 International Forum on Knowledge Asset Dynamics June 12-14, 2013 Zagreb, Croatia 1057 70

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Generative Participatory Design Methodology to Develop Electronic Health Interventions: Systematic Literature Review
Vandekerckhove, P., de Mul, M., Bramer, W. M., & Bont, A. A. D. (2020) · Journal of Medical Internet Research · doi:10.2196/13780 · Cited by 131 · see citing works
Artificial intelligence-driven virtual rehabilitation for people living in the community: A scoping review
Abedi, A., Colella, T. J. F., Pakosh, M. T., & Khan, S. S. (2024) · npj Digital Medicine · doi:10.1038/s41746-024-00998-w · Cited by 122 · see citing works
Co-design in mHealth Systems Development: Insights From a Systematic Literature Review
Noorbergen, T. J., Adam, M. T. P., Roxburgh, M., & Teubner, T. (2021) · AIS Transactions on Human-Computer Interaction · doi:10.17705/1thci.00147 · Cited by 83 · see citing works
Methods for Human-Centered eHealth Development: Narrative Scoping Review
Kip, H., Keizer, J., da Silva, M. C., Beerlage-de Jong, N., Köhle, N., & Kelders, S. M. (2022) · Journal of Medical Internet Research · doi:10.2196/31858 · Cited by 67 · see citing works
Methods for Human-Centered eHealth Development: Narrative Scoping Review (Preprint)
Kip, H., Keizer, J., da Silva, M. C., Beerlage-de Jong, N., Köhle, N., & Kelders, S. M. (2021) · doi:10.2196/preprints.31858 · Cited by 67 · see citing works
Participatory Design in Human-Computer Interaction: Cases, Characteristics, and Lessons
Qi, X., & Yu, J. (2025) · CHI Conference on Human Factors in Computing Systems · doi:10.1145/3706598.3713436 · Cited by 61 · see citing works
Participatory Research Emergent Recommendations for Researchers and Academic Institutions: A Rapid Scoping Review
Scher, B. D., Scott-Barrett, J., Hickman, M., & Chrisinger, B. W. (2023) · Journal of Participatory Research Methods · doi:10.35844/001c.74807 · Cited by 51 · see citing works
Fertility education: recommendations for developing and implementing tools to improve fertility literacy
Martins, M. V., Koert, E., Sylvest, R., Maeda, E., Moura‐Ramos, M., Hammarberg, K., & Harper, J. C. (2023) · Human Reproduction · doi:10.1093/humrep/dead253 · Cited by 49 · see citing works
Researchers’ Perspectives on Digital Mental Health Intervention Co-Design With Marginalized Community Stakeholder Youth and Families
Porche, M. V., Folk, J. B., Tolou-Shams, M., & Fortuna, L. R. (2022) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2022.867460 · Cited by 45 · see citing works
Involving End Users in Adapting a Spanish Version of a Web-Based Mental Health Clinic for Young People in Colombia: Exploratory Study Using Participatory Design Methodologies
Ospina‐Pinillos, L., Davenport, T. A., Navarro-Mancilla, Á. A., Cheng, V. W. S., Alarcón, A. C. C., Rangel, A., Rueda-Jaimes, G. E., Gómez–Restrepo, C., & Hickie, I. B. (2019) · JMIR Mental Health · doi:10.2196/15914 · Cited by 46 · see citing works
In transition with ADHD: the role of information, in facilitating or impeding young people’s transition into adult services
Price, A., Newlove‐Delgado, T., Eke, H., Paul, M., Young, S., Ford, T. J., & Janssens, A. I. W. A. (2019) · BMC Psychiatry · doi:10.1186/s12888-019-2284-3 · Cited by 44 · see citing works
Anticipated barriers and facilitators for implementing smart inhalers in asthma medication adherence management
van de Hei, S. J., Stoker, N., Blok, B. M. J. F.-D., Poot, C. C., Meijer, E., Postma, M. J., Chavannes, N. H., Kocks, J. W. H., & van Boven, J. F. M. (2023) · npj Primary Care Respiratory Medicine · doi:10.1038/s41533-023-00343-w · Cited by 46 · see citing works
Patient and public involvement in healthcare: a systematic mapping review of systematic reviews – identification of current research and possible directions for future research
Bergholtz, J., Wolf, A., Crine, V., Cleeve, H., Santana, M., & Björkman, I. (2024) · BMJ Open · doi:10.1136/bmjopen-2023-083215 · Cited by 39 · see citing works
Best-practices for co-design processes involving people with severe mental illness for eMental health interventions: a qualitative multi-method approach.
Schouten, S. E., Kip, H., Dekkers, T., Deenik, J., Beerlage-de Jong, N., Ludden, G. D. S., & Kelders, S. M. (2022) · Design for Health · doi:10.1080/24735132.2022.2145814 · Cited by 37 · see citing works
Contrast of Digital and Health Literacy Between IT and Health Care Specialists Highlights the Importance of Multidisciplinary Teams for Digital Health—A Pilot Study
Pfob, A., Sidey-Gibbons, C. J., Schuessler, M., Lu, S.-C., Xu, C., Dubsky, P. C., Golatta, M., & Heil, J. (2021) · JCO Clinical Cancer Informatics · doi:10.1200/cci.21.00032 · Cited by 37 · see citing works
Determining Priorities in the Aboriginal and Islander Mental Health Initiative for Youth App Second Phase Participatory Design Project: Qualitative Study and Narrative Literature Review
Povey, J., Sweet, M., Nagel, T., Lowell, A., Shand, F., Vigona, J., & Dingwall, K. M. (2022) · JMIR Formative Research · doi:10.2196/28342 · Cited by 26 · see citing works
What Enables Child Sexual Abuse in Sport? A Systematic Review
Dodd, K., Solomon, C., Naughton, M. R., Salmon, P. M., & McLean, S. G. (2023) · Trauma Violence & Abuse · doi:10.1177/15248380231190666 · Cited by 34 · see citing works
Maximizing the value of patient and public involvement in the digital health co-design process: A qualitative descriptive study with design leaders and patient-public partners
Voorheis, P., Petch, J., Phạm, Q., & Kuluski, K. (2023) · PLOS Digital Health · doi:10.1371/journal.pdig.0000213 · Cited by 33 · see citing works
Patient Engagement in the Design of a Mobile Health App That Supports Enhanced Recovery Protocols for Cardiac Surgery: Development Study
Chudyk, A. M., Ragheb, S. M., Kent, D. E., Duhamel, T. A., Hyra, C., Dave, M. G., Arora, R. C., & Schultz, A. S. H. (2021) · JMIR Perioperative Medicine · doi:10.2196/26597 · Cited by 32 · see citing works
Best Practices and Lessons Learned for Action Research in eHealth Design and Implementation: Literature Review
Oberschmidt, K., Grünloh, C., Nijboer, F., & van Velsen, L. (2021) · Journal of Medical Internet Research · doi:10.2196/31795 · Cited by 33 · see citing works
Involvement of children and young people in the conduct of health research: A rapid umbrella review
Wyatt, K. A., Bell, J., Cooper, J., Constable, L. N., Siero, W., Jeria, C. P., Darling, S. J., Smith, R., & Hughes, E. K. (2024) · Health Expectations · doi:10.1111/hex.14081 · Cited by 32 · see citing works
Involvement of End Users in the Development of Serious Games for Health Care Professions Education: Systematic Descriptive Review
Maheu‐Cadotte, M., Dubé, V., Cossette, S., Lapierre, A., Fontaine, G., Deschênes, M., & Lavoie, P. (2021) · JMIR Serious Games · doi:10.2196/28650 · Cited by 30 · see citing works
Involving Health Care Professionals in the Development of Electronic Health Records: Scoping Review
Busse, T. S., Jux, C., Laser, J., Rasche, P., Vollmar, H. C., Ehlers, J. P., & Kernebeck, S. (2023) · JMIR Human Factors · doi:10.2196/45598 · Cited by 24 · see citing works
Boundary Objects as Dialogical Learning Accelerators for Social Change in Design for Health: Systematic Review
Terlouw, G., Kuipers, D. A., Veldmeijer, L., Veer, J. V. ‘., Prins, J., & Pierie, J.-P. E. N. (2021) · JMIR Human Factors · doi:10.2196/31167 · Cited by 22 · see citing works
Toward Inclusive Approaches in the Design, Development, and Implementation of eHealth in the Intellectual Disability Sector: Scoping Review
van Calis, J. F. E., Bevelander, K. E., van der Cruijsen, A. W. C., Leusink, G. L., & Naaldenberg, J. (2023) · Journal of Medical Internet Research · doi:10.2196/45819 · Cited by 25 · see citing works
Evaluation of an Electronic Medical Record Module for Nursing Documentation in Paediatric Palliative Care: Involvement of Nurses with a Think-Aloud Approach
Kernebeck, S., Busse, T. S., Jux, C., Dreier, L. A., Meyer, D., Zenz, D., Zernikow, B., & Ehlers, J. P. (2022) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph19063637 · Cited by 16 · see citing works
Challenges and Facilitation Approaches for the Participatory Design of AI-Based Clinical Decision Support Systems: Protocol for a Scoping Review
Rambach, T., Gleim, P., Mandelartz, S., Heizmann, C., Kunze, C., & Kellmeyer, P. (2024) · JMIR Research Protocols · doi:10.2196/58185 · Cited by 15 · see citing works
User involvement in digital mental health: approaches, potential and the need for guidelines
Bernaerts, S., Daele, T. V., Carlsen, C. K., Nielsen, S. L., Schaap, J., & Roke, Y. (2024) · Frontiers in Digital Health · doi:10.3389/fdgth.2024.1440660 · Cited by 15 · see citing works
Community-Based Organizations as Effective Partners in the Battle Against Misinformation
Korin, M., Araya, F., Idris, M. Y., Brown, H., & Cláudio, L. (2022) · Frontiers in Public Health · doi:10.3389/fpubh.2022.853736 · Cited by 13 · see citing works
Association Between the Characteristics of mHealth Apps and User Input During Development and Testing: Secondary Analysis of App Assessment Data
Frey, A.-L., Baines, R., Hunt, S., Kent, R., Andrews, T., & Leigh, S. (2023) · JMIR mhealth and uhealth · doi:10.2196/46937 · Cited by 12 · see citing works
Involvement of Indigenous young people in the design and evaluation of digital mental health interventions: a scoping review protocol
Povey, J., Raphiphatthana, B., Torok, M. H., Nagel, T. M., Shand, F., Sweet, M., Lowell, A., Mills, P. P. J. R., & Dingwall, K. M. (2021) · Systematic Reviews · doi:10.1186/s13643-021-01685-7 · Cited by 12 · see citing works
An Overview of Stakeholders, Methods, Topics, and Challenges in Participatory Approaches Used in the Development of Medical Devices: A Scoping Review
Woudstra, K., Reuzel, R. P. B., Rovers, M. M., & Tummers, M. (2022) · International Journal of Health Policy and Management · doi:10.34172/ijhpm.2022.6839 · Cited by 12 · see citing works
The Potential Use and Value of a Wearable Monitoring Bracelet for Patients With Chronic Obstructive Pulmonary Disease: Qualitative Study Investigating the Patient and Health Care Professional Perspectives
Debeij, S. M., Aardoom, J. J., Haaksma, M. L., Stoop, W. A. M., van Isselt, E. F. V. D., & Kasteleyn, M. J. (2024) · JMIR Formative Research · doi:10.2196/57108 · Cited by 11 · see citing works
Development and Evaluation of the Canteen Connect Online Health Community: Using a Participatory Design Approach in Meeting the Needs of Young People Impacted by Cancer
Cohen, J. E., Patterson, P., Noke, M., Clarke, K. S., & Husson, O. (2021) · Cancers · doi:10.3390/cancers14010050 · Cited by 10 · see citing works
Innovators’ views on involving users and patients in surgical device development: a qualitative interview study
Woudstra, K., Tummers, M., Rovers, M. M., & Reuzel, R. P. B. (2021) · BMJ Open · doi:10.1136/bmjopen-2021-050801 · Cited by 8 · see citing works
Participatory Design of an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Study with Nurses and Physicians
Kernebeck, S., Busse, T. S., Jux, C., Meyer, D., Dreier, L. A., Zenz, D., Zernikow, B., & Ehlers, J. P. (2021) · Children · doi:10.3390/children8080695 · Cited by 9 · see citing works
Understanding, Assessing, and Improving Social Health Resource Referrals in Healthcare Organizations
Garcia, S., Mahmud, A., Dumke, K. A., Erkenbeck, A., Chao, C., Mun, S., & Brown, M. C. (2025) · Health Services Research · doi:10.1111/1475-6773.14466 · Cited by 7 · see citing works
Participatory Design of a Medication Module in an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Approach with Nurses and Physicians
Kernebeck, S., Jux, C., Busse, T. S., Meyer, D., Dreier, L. A., Zenz, D., Zernikow, B., & Ehlers, J. P. (2022) · Children · doi:10.3390/children9010082 · Cited by 7 · see citing works
Understanding Acceptability of AI Triage Tools Amongst Underserved Populations: Lessons From the Early Phases of Co‐Production With Bangladeshi Communities in Birmingham, UK
Litchfield, I. J., Delanerolle, G., Harper, L., & Dunning, S. (2025) · Health Expectations · doi:10.1111/hex.70523 · Cited by 6 · see citing works
The Effects of mHealth Versus eHealth on Weight Loss in Adults
O'Boyle, J., & Davidson, P. (2022) · Topics in Clinical Nutrition · doi:10.1097/tin.0000000000000268 · Cited by 6 · see citing works
Categorization and Analysis of Primary Care mHealth Apps Related to Breast Health and Breast Cancer: Systematic Search in App Stores and Content Analysis
Kanodia, S., Thalabard, J., & Lhoste, K. (2023) · JMIR Cancer · doi:10.2196/42044 · Cited by 6 · see citing works
Unethical Issues in Twenty-First Century International Development and Global Health Policy
Hanson-DeFusco, J., Malik, S., Assamoi, R., Chiromba, A. K., Davis, D., Hounnouvi, F. M., Irfan, F. B., Faley, P. S., Matangwa, D. D., Muzenda, T., et al. (2023) · International Studies Perspectives · doi:10.1093/isp/ekad016 · Cited by 6 · see citing works
Digital Transformation in Patient Organizations: Interview and Focus Group Study
Wallraf, S., Köthemann, S., Wiesemann, C., Wöhlke, S., Dierks, M., Schmidt, M. A., van Gils-Schmidt, H. J., & Lander, J. (2024) · Journal of Medical Internet Research · doi:10.2196/62750 · Cited by 5 · see citing works
Implementing Oncologic Nursing Care Plans in Electronic Health Records With Two Taxonomies: A Pilot Study
Togni, S., Saracino, L., Cieri, M., Bianco, R., Terzoni, S., Santini, M. G., Zito, E., Lusignani, M., Silvia, P. M., & Depalma, L. (2025) · Western Journal of Nursing Research · doi:10.1177/01939459241310402 · Cited by 5 · see citing works
Increasing the inclusivity of digital health co-production: an integrative review
Litchfield, I. J., Delanerolle, G., Juffs, H., Bloxham, S., Dunning, S., & Harper, L. (2025) · Frontiers in Digital Health · doi:10.3389/fdgth.2025.1636469 · Cited by 5 · see citing works
What Do Adolescents and Their Parents Need From Mental Health Integration in Primary Care? A Qualitative Exploration of Design Insights
Hoopes, A. J., Brandzel, S. D., Luce, C., Ferguson, D. M., Shulman, L., Chávez, B. V., Lozano, P., & Lapham, G. T. (2022) · Journal of Pediatric Health Care · doi:10.1016/j.pedhc.2022.06.006 · Cited by 5 · see citing works
Applying a Participatory Design Model-Making Engagement Activity to Understand How Different Stakeholders Envision Senior-Friendly Outdoor Gyms in Parks
Lee, J. L. C., Lee, K., Shi, S. L., Lee, K. N. K., Wong, A. Y. L., Ho, R., & Ng, P. H. F. (2025) · Journal of Aging and Environment · doi:10.1080/26892618.2025.2454036 · Cited by 4 · see citing works
Experiences of disabled students in online education: a systematic review
Lynch, S., Brunton, J., & Farrell, O. (2025) · Distance Education · doi:10.1080/01587919.2025.2562802 · Cited by 6 · see citing works
Exploring the Needs of People With Chronic Low Back Pain and Health Care Professionals for mHealth Devices to Support Self-Managed Physical Activity and Pain: User-Centered Design Approach
Berger, M., Deblock-Bellamy, A., Chèze, L., Robert, T., Desrosiers, J. J., Christe, G., & Bertrand, A. M. (2024) · JMIR Human Factors · doi:10.2196/59897 · Cited by 4 · see citing works
Adoption of Telemedicine for Dementia Care in Nigeria: Scoping Review
Adedeji, A., Doğan, H., Adedoyin, F. F., & Heward, M. (2025) · Interactive Journal of Medical Research · doi:10.2196/75168 · Cited by 3 · see citing works
Examining Challenges to the Incorporation of End Users in the Design of Digital Health Interventions: Protocol for a Systematic Review
Duffy, A., Christie, G., & Moreno, S. (2021) · JMIR Research Protocols · doi:10.2196/28083 · Cited by 3 · see citing works
Increasing Quality of Life by Playing Chess: A Blended Care Approach for Elderly People
Haase, M., & Loebel, J.-M. (2023) · Lecture notes in computer science · doi:10.1007/978-3-031-34866-2_4 · Cited by 3 · see citing works
Partizipatives Design im Kontext gesundheitsbezogener Technologien – Herausforderungen und Handlungserfordernisse aus Perspektive der Versorgungsforschung
Kernebeck, S., Busse, T. S., Fischer, F., & Ehlers, J. P. (2023) · Das Gesundheitswesen · doi:10.1055/a-2184-5731 · Cited by 3 · see citing works
Enhancing digital mental health platforms: a usability exploration with ergonomics design students
Ngabo-Woods, H., Dunai, L., & Verdú, I. S. (2025) · Mental Health and Digital Technologies · doi:10.1108/mhdt-01-2025-0002 · Cited by 2 · see citing works
Wearable devices and ecological momentary assessment EMA in the workplace: A study protocol on work stress assessment
Dell’Aversana, G., Herold, M., Simbula, S., Ruina, I., Pillan, M., & Miglioretti, M. (2026) · PLoS ONE · doi:10.1371/journal.pone.0339288 · Cited by 3 · see citing works
The Use of Speculative Fiction in Future-Focused Health Care Research
Groeneveld, S., Wentzel, J., Laurens, M. C., van Gemert-Pijnen, L. V., Verdaasdonk, R., van Os-Medendorp, H., & den Ouden, M. (2026) · Journal of Medical Internet Research · doi:10.2196/89699 · Cited by 2 · see citing works
Co-Develop-IT! Unifying Methodological Guideline for the Co-Design, Development, and Evaluation of Individually Tailored Technology-Enhanced Training and Rehabilitation Concepts: Consensus Development Study and Tutorial
Manser, P., Hardeman, L. E. S., Wallin, A., Conradsson, D. M., Leavy, B., Albrecht, F., Roerdink, M., Temprado, J.-J., de Bruin, E. D., & Franzén, E. (2026) · Journal of Medical Internet Research · doi:10.2196/84163 · Cited by 2 · see citing works
Key user experience principles in designing computer interfaces for emotionally vulnerable user groups
du Preez, S., Coleman, K., & Smuts, H. (2022) · EPiC series in computing · doi:10.29007/w8h9 · Cited by 2 · see citing works
Applying the Nominal Group Technique for the Conceptual Validation of ehealth Solutions
Rosa, A. F., Martins, A. I., Cerqueira, M., Santos, M., Silva, A. G., & Rocha, N. P. (2023) · Procedia Computer Science · doi:10.1016/j.procs.2023.01.407 · Cited by 2 · see citing works
Exploring the need for overdose prevention centers in England: A qualitative community-based participatory study on the perspectives of people who use drugs in public and semi-public environments
Scher, B. D., Southwell, M., Harris, M., Stevens, A., Chrisinger, B. W., Humphreys, D. K., & Shorter, G. W. (2025) · International Journal of Drug Policy · doi:10.1016/j.drugpo.2025.104816 · Cited by 2 · see citing works
Reporting von Studien zu digitalen Interventionen im Gesundheitswesen
Kernebeck, S., Busse, T. S., & Vollmar, H. C. (2022) · Springer eBooks · doi:10.1007/978-3-658-35691-0_4 · Cited by 2 · see citing works
Playful Co-Design: Creating an AR-Prototype with Nurses in Interlocking Remote and On-Site Workshops
Gansohr, C., Geisler, S., & Eimler, S. C. (2023) · CHI Conference Extended Abstracts on Human Factors in Computing Systems (CHI EA) · doi:10.1145/3544549.3573869 · Cited by 2 · see citing works
Design and development of an eHealth intervention to support self-management in people with musculoskeletal disorders - ‘eHealth: It’s TIME’: a study protocol
Kelly, M., Fullen, B. M., Martin, D., Bradley, C., O’Mahony, B., & McVeigh, J. G. (2023) · HRB Open Research · doi:10.12688/hrbopenres.13611.2 · Cited by 2 · see citing works
Collaborative Involvement of Indigenous Youth in the Design and Evaluation of Digital Mental Health Interventions: A Scoping Review ProtocolPreprint
Povey, J., Raphiphatthana, B., Torok, M. H., Nagel, T. M., Shand, F., Sweet, M., Lowell, A., & Dingwall, K. M. (2020) · Research Square · doi:10.21203/rs.3.rs-75519/v1 · Cited by 2 · see citing works
Perspectives on Mental Health Digital Platforms: A Usability Study with Ergonomics Design StudentsPreprint
Ngabo-Woods, H. (2023) · doi:10.33774/coe-2023-zb8xg-v2 · Cited by 1 · see citing works
The Evaluation of the Suitability, Quality, and Readability of Publicly Available Online Resources for the Self-Management of Fear of Cancer Recurrence
Wu, V. S., Sabud, T., Smith, A. B., Lambert, S., Descallar, J., Lebel, S., & Bamgboje‐Ayodele, A. (2023) · Current Oncology · doi:10.3390/curroncol31010005 · Cited by 1 · see citing works
Quadruple helix collaboration for eHealth: a business relationship approach
Qvarfordt, M., Lagrosen, S. O., & Nilsson, L. (2024) · International Journal of Healthcare Technology and Management · doi:10.1504/ijhtm.2024.140387 · Cited by 1 · see citing works
Consumer Involvement in the Co-Design of Diabetes Self-Management Smartphone Apps: A Scoping Review
Martin, C. L., Bakker, C., Sarkar, S., Kang, R. M., Reid, N., Chih, M., Sittig, S., Gao, G., Smith, C., Morse, B., et al. (2025) · Applied Clinical Informatics · doi:10.1055/a-2564-7682 · Cited by 1 · see citing works
Insights into organizational health literacy in Italian hospitals: findings from the M-POHL network project
Lorini, C., Palmieri, L., Unim, B., Zimmitti, S., Lunetta, C., Biagi, C., Toccafondi, F., Zanobini, P., Iadevaia, S., Cacciuttolo, M. G., et al. (2025) · Health Promotion International · doi:10.1093/heapro/daaf137 · Cited by 1 · see citing works
Needs and Expectations Associated With an e–Mental Health Intervention for Reducing Somatoform, Anxiety, and Depressive Symptoms in Sexual and Gender Minority Adults: Qualitative Participative Study
Gomes, A., Tsiouris, A., Jung, F., Klein, L. R., Kreis, A., Beutel, M. E., Strauss, B. M., Hoy, M., & Zwerenz, R. (2025) · JMIR Formative Research · doi:10.2196/65834 · Cited by 1 · see citing works
Rural community engagement and cultural considerations in the design and deployment of remote health monitoring systems: A scoping review
Reed, K., Petermann, V. M., Nicholas, R. D., Truong, T. (. V., & LeBaron, V. T. (2026) · The Journal of Rural Health · doi:10.1111/jrh.70141 · Cited by 1 · see citing works
Design and development of an eHealth intervention to support self-management in people with musculoskeletal disorders - ‘eHealth: It’s TIME’: a study protocol
Kelly, M., Fullen, B. M., Martin, D., Bradley, C., O’Mahony, B., & McVeigh, J. G. (2022) · HRB Open Research · doi:10.12688/hrbopenres.13611.1 · Cited by 3 · see citing works
Development and Implementation of MyPainHub, a Web-Based Resource for People With Musculoskeletal Conditions and Their Health Care Professionals: Mixed Methods Study
Evans, K. A., Ko, J., Ceprnja, D., Maka, K., Beales, D. J., Sterling, M. M., Bennell, K. L., Jull, G. A., Hodges, P. W., McKay, M. J., et al. (2024) · JMIR Formative Research · doi:10.2196/63780 · Cited by 1 · see citing works
Development of an eHealth Intervention Including Self-Management for Reducing Sedentary Time in the Transition to Retirement: Participatory Design Study
Hultman, L., Eklund, C., Wågert, P. V. H., Söderlund, A., Lindén, M., & Elfström, M. L. (2025) · JMIR Formative Research · doi:10.2196/63567 · Cited by 1 · see citing works
Challenging assumptions: narrative analysis of interviews for digital health development
Bradway, M., Álvarez-Malé, M. L., Wägner, A. M., & Dyb, K. (2025) · BMC Digital Health · doi:10.1186/s44247-025-00211-2 · Cited by 1 · see citing works
Electronic System Design and OpenGL Simulation of Digital Painting Art Intelligence Platform
Xing, X. (2022) · International Conference on Inventive Research in Computing Applications (ICIRCA) · doi:10.1109/icirca54612.2022.9985478 · Cited by 1 · see citing works
A community-based case study of the co-construction of an online intervention with gay and bisexual men who use substances
Aubut, V., Goyette, M., Flores-Aranda, J., Saint-Jacques, M., Pronovost, F., & Bertrand, K. (2023) · Journal of Community Practice · doi:10.1080/10705422.2023.2183920 · Cited by 1 · see citing works
Perspectives on Mental Health Digital Platforms: A Usability Study with Ergonomics Design StudentsPreprint
Ngabo-Woods, H., & Cuesta, S. A. (2023) · doi:10.33774/coe-2023-zb8xg · Cited by 1 · see citing works
Adaptive Digital Encounters: An approach for reducing digital impact on outpatient flow
Satti, F. A., Chung, T., & Lee, S. (2021) · Asia Conference on Computers and Communications (ACCC) · doi:10.1109/accc54619.2021.00032
Digital health policies and participation for digital transformation in German-speaking countries: A critical approach
Schaller, M., Redlich, M.-C., & Fischer, F. (2023) · Elsevier eBooks · doi:10.1016/b978-0-443-15299-3.00016-6
Digitalisierung des Gesundheitswesens
Götze, C., Hofer, P., Kernebeck, S., Knöfler, M., von Rath, U., Ruppel, T., Schmidt-Bodenstein, S., Strumann, C., Timmesfeld, N., Vollmar, H. C., et al. (2021) · Elsevier eBooks · doi:10.1016/b978-3-437-23545-0.00004-0
Co-production of teaching content and delivery with an NHS service user group
Bell, S. J., M.R.C.V.S., A. C. B. V. M. D. V. R., Cole, S., & Barrowman, D. (2024) · Journal of Prescribing Practice · doi:10.12968/jprp.2024.6.1.22
Evaluating Perceptions of the CANreduce 2.0 eHealth Intervention for Cannabis Use: Focus Group Study
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Authors: Moore, G., Wilding, H., Gray, K., & Castle, D.
Affiliations: The University of Melbourne (AU)
St Vincent's Hospital Melbourne (AU)
Corresponding author: Moore, Gaye
ORCID: Moore, Gaye
Wilding, Helen
Gray, Kathleen
Castle, David
Venue: Journal of Participatory Medicine
Publisher: JMIR Publications Inc.
Published: 2019-02-22
Volume: 11
Issue: 1
Pages: e11474
ISSN: 2152-7202 (ISSN-L)
DOI: 10.2196/11474
PMC: PMC7434099
OpenAlex: W2904219385
Cited by: 95
References: 152
Citations by year: 2026: 11 · 2025: 20 · 2024: 11 · 2023: 20 · 2022: 12 · 2021: 17 · 2020: 2 · 2019: 2
FWCI: 0.95
Type: journal article
Language: en
Open access: gold
doi.org
Licence: cc-by
Locations: Journal of Participatory Medicine (publishedVersion, cc-by)
PubMed Central (publishedVersion, cc-by)
PubMed (publishedVersion)
Minerva Access (University of Melbourne) (submittedVersion, cc-by)
Funders: University of Melbourne
Topics: Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
Health Sciences › Health Professions › General Health Professions › Mobile Health and mHealth Applications
Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
Keywords: participatory design, user engagement, health care consumers, participatory approach, user-centered design, participatory action research, social cognitive theory, mobile health apps, health websites, cancer, mental illness, youth, women, health technology development, health information systems, health information privacy

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Participatory Methods to Engage Health Service Users in the Development of Electronic Health Resources: Systematic Review

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